DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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My story....
Posted by Michelle
Last Reply March 19, 2008 at 17:26
Started March 19, 2008 at 15:01
Hey everyone. Wish I owuld have known about the forum before.
I had my DVT several years ago when my son was born. I found out at the time I was Factor V leiden - so being pregnant with a genetic risk didn't help. For 10 years I was on birth control, and during that time I was in a cast, so why I didn't have a DVT then, I have no idea.
My DVT is huge - and apparently not going away. It blocks the femoral vein from belly button to knee on left leg.
I'll be on coumadin the rest of my life. I have severe residual leg pain, and take morphine for that.
I was just wondering if anyone else has had a large DVT that's not possible to get rid of, or if there are others out there with severe residual pain? How do you cope? Are you able to work?

3 replies...

Possible new treatment for DVT?
Posted by www.dvtfacts.com
Last Reply March 19, 2008 at 14:01
Started March 18, 2008 at 16:57
Hello,
While surfing the web i found this article. http://newsroom.bms.com/index.php?s=press_releases&item=254
Maybe this will be a breakthrough in treatment for DVT? I hope so.

Thanks,Paul

2 replies...

Your Story!
Posted by Charlie
Last Reply March 17, 2008 at 15:29
Started February 22, 2008 at 23:53
Well reading others storys your not the only one hey...I was a healthy 18 yr old female, dancer very active etc etc then ouch I had a cramp! I'll get through it I thought as a dancer its very common! well little did I know that for the next 3 months I would have to inject my self everyday and wear the sexi stockings!!! hmmmm lol I shouldn't laugh but 18yrs old? c'mon thats just crazy to be told that you could very possibly die! I'm now 21 and have had many a scare! 2 many if you ask me....I walk 10 yards up the road or drive for more than 30 mins and get awful leg pain, my doctors told me not to dance again...giving up your passion is not easy, so I didn't!! Thing that gets me why did I get a DVT at my age....hmmm doc's answer ''your guess is as good as mine'' reasurring hey!! well good to hear others storys.thanks for taking the time to read mine and listen to me harp on!! xx

11 replies...

pregnancy after DVT
Posted by simone
Last Reply March 17, 2008 at 13:54
Started September 19, 2006 at 04:08
THIS IS THE 2nd MESSAGE I MEANT TO WRITE FERTILITY TREATMENT AT THE END NOT WARFARIN TREATMENT !! SORRY. Hi i'm writing from N.Z and i am in a total state of shock at whats been going on for me. I fell and injured my knee which made me imobile i then discovered i was pregnant but sadly i lost the baby at 9half weeks. two weeks afterthe loss my lower leg went numb and i went to orthopedics for check up and ended up in ed, i had a blood clot. I was undergoing fertility meds to fall pregnant and now have been told i must go on warfarin for 3 months and absolutly no baby, and i am now having conflicting info from docs regarding going on clomiphene (fertility med) at the end of the 3 months. has anyone got any pearls of wisdom for me i'm absolutly freaking out that when i go for checkup in November they'll tell me no way to fertility treatment!


1 replies...

Yasmin
Posted by Katie
Last Reply March 17, 2008 at 11:14
Started February 28, 2008 at 16:43
Hello all
I am a 27 year old non smoker from the UK. I got a blood clot in my groin spreading halfway up to my stomach and all the way down to my knee in December 2007. Having read some articles on this site I see that a few women were taking the contraceptive pill Yasmin which I was too. This is a relatively new pill with supposedly fewer side affects but can't help but wonder if this is not a co-incidence... Was anyone else taking Yasmin?

12 replies...

Clots that just wont go away
Posted by Sue C Lincs England
Last Reply March 15, 2008 at 10:37
Started March 10, 2008 at 19:59
i suffered a large dvt april 2007 probably upper thigh to the iliac vein,still having to have irn every week very unstable, average warfarin dosage between 7 @ 10 changes most weeks, still have swollen leg.After having my last ultrasound still have total blockage clots in three of the 4 veins in my calf and the fourth patially blocked.My consultant even though nice offers nothing other than glib remarks when i asked can i fly he replied only if you grow wings ! am i stuck with these blockages for ever,.Read on one of comments venoplasty what is it and can it be done in england im really getting fed up feel as though you have a dvt they give you warfarin and forget about you also read some people saying things about warfarin side effects do i need to change my drs ive never been told any of this information.


12 replies...

DVT and Leg Changes.
Posted by Ray
Last Reply March 15, 2008 at 05:14
Started March 15, 2008 at 02:07
Hi all. I was diagnosed with a DVT back in July of '07. I actually had the DVT for some time before that tho - probably about 6 to 8 months as I had leg pain, but no swelling and thought that the pain was simply from a fall I took in my house. I am guessing this because as I look back on that period of time, I see all the symptoms I had, but I had no idea of what a DVT was, nor had I heard of it.

Anyway, been on warfarin since July. I was checked for PE's but nothing of that nature happened. My basic question is this - I have noticed that during the last 2-3 days my skin (over the areas of the DVT's) has become quite itchy and scaly. My ankles are still swollen (leg is also - but better than it was). I guess I am just trying to find out "what is normal" when one has a DVT. Thanks!

1 replies...

Anyone heard from Tony?
Posted by Sharon
Last Reply March 14, 2008 at 16:23
Started March 14, 2008 at 04:22
I was hoping we would hear from Tony in Taiwan after his surgery. Poor thing is so young and clotting in a foreign country and does not understand the language completely. He said he had clotted an artery and they were planning surgery. Ipray he is okay.

1 replies...

DVTS in Arms?
Posted by Kaweah
Last Reply March 13, 2008 at 22:32
Started March 6, 2008 at 22:38
I was hospitalized in 08/05 with 3 seperate clots in my right arm. Life for me has never been the same. I'm right handed so any movement cause it to swell still. Doctors say my arm will never be "normal" and that I will be in constant pain for all of my life. They have never found the reasons for the clots in the first place so not only do I walk around in pain but I also have the constant worry of getting more somewhere else. It's so hard to discuss this with people who have never experienced this, most just think that I am whinning.
Its nice to read that others have some of the same problems that I do.

6 replies...

Heavy bleeding
Posted by Vickie
Last Reply March 13, 2008 at 16:59
Started March 11, 2008 at 19:09
Sorry guys, this one's not for you. Has anyone else had problems with excessive bleeding during your periods while on coumadin? My doctors are freaking out as I was close to a blood transfusion last month.

7 replies...

Welcome ack Diane!
Posted by Sharon
Last Reply March 11, 2008 at 12:04
Started March 10, 2008 at 04:43
We missed you! There were questions about MT I had to tell people to wait and ask you upon your return. I do hope you had a wonderful time on your vacation! I had to go and turn 50 while you were gone. Please don't go away anymore--I am old enough as it is.

4 replies...

Exercise post DVT/PE
Posted by Cycling clotter
Last Reply March 9, 2008 at 22:01
Started March 9, 2008 at 10:48
Hello! I am 66 years old and cycling is my passion. I have recently retired and was looking forward to having time to train daily and take part in time trials. I aimed to improve on my time of 27 mins for 10 miles.
I was knocked off my bike by a pedestrian in November and subsequently developed phlebitis in the left superficial femoral vein in December. The clots were very large and visible to the naked eye. My leg ached and swelled. On 3 separate visits the GP gave me heparin cream and an elastic stocking. In January I developed breathing problems and was admitted to hospital with a pulmonary embolism. Tests also revealed my heart had gone into an irregular rhythm, atrial fibrillation (AF). I have previous history of AF and have had 1 cardioversion to restore normal sinus rhythm. It seems possible that the heart was having to pump harder with blood clots in the way and that caused the AF. Scans revealed DVT in the popliteal vein and thrombosed left saphenous vein.
I ... read more

1 replies...

IVIG and DVT
Posted by susan
Last Reply March 9, 2008 at 04:24
Started March 7, 2008 at 17:40
have just been diagnoised with DVT after being on
IVIG treatments for six months....my hemotologist believes
there might be a link....any comments??

2 replies...

Bulging Veins
Posted by Barb
Last Reply March 8, 2008 at 18:16
Started March 9, 2007 at 22:20
I've had a DVT in my right leg, from my ankle to my knee, for about 4 1/2 months. Recently I've noticed some bulging veins around my ankle along with itching. I wear a compression stocking pretty much all day, every day and this is distressing. Anyone else experiencing this? Will it get better with time? I plan to discuss it with my doctor, but was just wondering if anyone else has had this problem and what advice you received. Thanks

4 replies...

Retroperitoneal Fibrosis and DVT
Posted by Jody
Last Reply March 7, 2008 at 04:44
Started March 7, 2008 at 04:44
I have Retroperitoneal Fibrosis which is inoperable and have had surgery to free my entrapped ureters from the mass. The mass itself cannot be removed as it completely surrounds my Aorta. I also have developed a DVT, which I have read can be caused by the Fibrosis as it encircles the Inferior Vena Cava and puts pressure on one of the Iliac Veins in the abdomen. I was wondering if anyone else had a similar experience, and if so, how are you now?

0 replies...

stoke after blood clot?
Posted by carrie
Last Reply March 6, 2008 at 02:32
Started January 30, 2008 at 16:52
PE 11/2006 stroke 10/2007 Has anyone had a stroke after a blood clot? I had severe migrains. MRI results minor stroke. inr ranges from 1.2 - 1.7 take coumadin 5mg ech day. And I am only 40 yrs old. I am not depressed and I still work each day. Just hoping health gets better not worse.

11 replies...

Back to normality and Goals??
Posted by Tracie (Hampshire)
Last Reply March 5, 2008 at 22:56
Started September 18, 2007 at 14:55
Hi, I am so grateful to have found this forum. I'm probably going to type a bit as I have a huge mix of emotions right now. I suffered from a little bit of left thigh pain on the Thursday before the August bank holiday, nothing major, just when I walked it felt a bit tight. The following day I tripped over my toddlers stair gate and bounced off a few walls before hiting the floor quite hard on my knees. Come Saturday morning my left leg had swollen a bit but the discolouration (not due to bruising) was the bit that worried me. Slowly during the day I noticed walking was becoming more and more of an issue. On Sunday I took myself off to one of our local hospitals who immediatley injected me with Heparin and then ran the D-Diamond (?) blood test. A few hours later they apologised for the heparin, said my results were negative, I had probably pulled a muscle and to go home. On Monday I woke to quite extensive pain, a purple leg that was so swollen the skin was shiny. Nothing ea... read more

10 replies...

worried about father flying 16 hours after pe
Posted by lisam
Last Reply March 4, 2008 at 18:07
Started March 4, 2008 at 01:48
my father had a pe 2 weeks ago and was in hospital for about 10 days. He first had heparin and then discarged on warfarin. He feel very lethargic (unusual for him!!)but the most worrying thing about it is that his leg has swollen to twice the normal size and also another u/s showed that he still had blockages from his ankle up to his groin. He wants to fly home to UK but I am sorry worried about his leg. It looks like it will explode soon on the ground let along up in an aeroplane. Any tips or help would be most grateful. Many thanks.

1 replies...

Latest information for Europeen anticoagulants
Posted by dero/www.lifeafterdvt.forumotion.com
Last Reply March 3, 2008 at 19:55
Started February 21, 2008
European Medicines Agency recommends approval of novel oral anticoagulant, dabigatran etexilate (Pradaxa®) WEBWIRE – Monday, January 28, 2008
For medical media, outside the US only

Ingelheim/Germany, January 2008 - Boehringer Ingelheim today announced that the Committee for Medicinal Products in Human Use (CHMP) of the European Medicines Agency has issued a positive opinion to recommend marketing authorisation of their novel, oral direct thrombin inhibitor, dabigatran etexilate. The CHMP recommends approval of dabigatran etexilate for the prevention of venous thromboembolic events in patients who have undergone total hip replacement surgery or total knee replacement surgery.1


The positive opinion is a recommendation to the European Commission that authorization to market the drug should be granted in the European Union which normally occurs within 67 days. Dabigatran etexilate will be marketed by Boehringer Ingelheim exclusively under the brand name Pradaxa®, with a plann... read more

3 replies...

DVT AWARENESS
Posted by Tom in Connecticut
Last Reply March 3, 2008 at 19:07
Started February 28, 2008 at 16:58
March is DVT Awareness Month in the U.S. Each year, over 900,000 Americans suffer from Venous Thromboembolisms, or blood clots in the veins. Of that same number, about 300,000 of those same patients died. Sadly enough, only 7-percent of those patients who died were even diagnosed with having a blood clot. A majority of these deaths could have been prevented with proper prophylaxis, diagnosis and treatment.

Several organization here in the U.S. are part of a major public awareness movement to raise awareness. From the members of the healthcare professional you have the Vascular Disease Coalition and the Prevent DVT Coalition (supported by Sanofi-Aventis Pharmaceutical. On the Patient Advocate side you have the National Alliance for Thrombosis and Thrombophilia (NATT). NATT was founded by patients and hosts free patient education seminars around the country. They received a major Centers for Disease Control and Prevention grant for their highly successful "Stop-the-Clot" se... read more

8 replies...

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