DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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blood clot percentages
Posted by Ben
Last Reply March 3, 2008 at 13:26
Started March 1, 2008 at 18:53
Hi all- I saw my Hematologist the other day, and he said my leg was looking good and that he'd be surprised if they found any clot at all on my follow-up on April 18th. I get off Coumadin on March 30th. But I wanted to share something with you. I have heterozygous Factor 5 Leiden, and I was a little concerned about coming off the Coumadin. My doctor said that a completely healthy person has a .03% of a chance to get a clot. I have only a .24% chance of getting a clot even with no Coumadin. All this time I thought the chances were alot greater than that. twenty four hundredths of one percent. Although I will always be vigilant of any further clotting symptoms, knowing this info cheered me up greatly. I've never seen any real numbers on this forum like this, so I thought I'd share them with you. Hope you are all well, and good luck!- Ben

1 replies...

Heparin RECALL.
Posted by dero/www.lifeafterdvt.forumotion.com
Last Reply March 2, 2008 at 22:47
Started March 2, 2008 at 22:47
Baxter recalls all heparin products
Company: Nation's supply is sufficient
February 29, 2008

Baxter International Inc., which has experienced problems with a widely used blood-thinning product but held off on mounting a recall because of concerns over a shortage, said late Thursday that because the nation's supply of heparin has now increased, it is moving ahead with a full-scale recall of its product.

More than 400 people have suffered adverse effects that may be related to Baxter-made heparin, and four patients who used it have died.

The Food and Drug Administration said Thursday that it has completed the inspection of the Chinese plant owned by the supplier of the active ingredient in Baxter's heparin product but still had not determined the cause of the problem.

In mid-January Deerfield-based Baxter recalled nine lots of the heparin, disclosing for the first time that there had been scores of adverse reactions. It said ... read more

0 replies...

updated list
Posted by cathy
Last Reply March 1, 2008 at 19:52
Started March 1, 2008 at 16:32
Reply #18 by Donna Posted: February 29, 2008 at 17:12

Reply #17 by Dee Posted: February 29, 2008 at 14:14

Reply #12 by Anne Posted: February 13, 2008

.) Diane, Victoria, BC, Canada (ME) May-Thurner Syndrome
2.) Jo, Tasmania, Australia
3.) Terry, North Wales, UK
4.) Jackie, New York City, USA
5.) Donna, Washington, Pennsylvania, USA (DVT, PCD, May-Thurner)
6.) Donna #2, Scotland, UK
7.) Ann, Livingston in West Lothian, Scotland, UK
8.) Valerie, West Ireland, UK
9.) Sue, Skipton, North Yorks UK prothrombin 20210 mutation
10.) Crystal, Baton Rouge, Louisiana, USA, May-Thurner
11.) Kim, Aberdeen, Scotland, UK
12.) Gayle, Glascow, Scotland, UK
13.) Justin, Alaska, USA
14.) Sharon, Friendswood, Texas, USA (Factor V Leiden & Antiphospholipid Syndrome)
15.) Karen, Seattle, WA, USA
16.) Denis (Dero), Ottawa, Canada (Idiopathic DVT
www.... read more

1 replies...

How long does it take before I can Walk?
Posted by Gemma
Last Reply February 29, 2008 at 17:10
Started February 27, 2008 at 14:01
I have an Iliac DVT in my leg it is really painful and seems to be getting worse, My leg is very swollen and the surface veins are all broken, as i have two small children just wondered if anyone knew how long (approx.) it would take before everything returns to normal (or as near as possible) or at least how long is it before the pain goes and you can walk again?

2 replies...

Phlegmasia Cerulea Dolens
Posted by Donna
Last Reply February 29, 2008 at 17:06
Started February 27, 2008 at 22:10
I am interested in hearing from anyone who has had this DVT complication. It is very hard to find much in the way of information on this complication.

5 replies...

Factor 5
Posted by becy_roberts
Last Reply February 29, 2008 at 13:25
Started November 10, 2006 at 21:50
My dad had his dvt diagnosed 3 weeks ago, it's from his groin to his knee, but the swelling is right down to his ankle. It has gone down quite alot over the past few weeks, but is still big and discoloured.
Is anybody else suffering from a dvt due to factor 5?
I'm trying to get some information on factor 5, but i'm not getting very far, can anyone shed any light on it?
Also, has anyone got a dvt from driving? My dad is a full time driving instructor and we think that this may have added to him getting a dvt aswell as the factor 5 issue.
This is actually his second dvt, and he also had a PE last time, so any information would be appreciated.

Many thanks!

11 replies...

My Pulmonary Embolism Story
Posted by Lucky97
Last Reply February 28, 2008 at 16:51
Started September 27, 2007 at 04:33
Here is my story about surviving pulmonary embolism. Going through something like this definitely brings perspective in life:


3 replies...

PE 39 Weeks
Posted by ang
Last Reply February 27, 2008 at 07:24
Started February 27, 2008
It has been over 3 years since my nightmare began. My Doc at the time decided to put me on complete bedrest at 34 weeks and told me not to drink any water? No instructions on any type of exercise. At 39 weeks I stood up and had chest pain and that was it. I would like to have another baby but am beyond terrified. I wonder everyday if I will get another clot if I get pregnant or go on a plane travel in a car sit to long it haunts me. I have seen a specialist about becoming pregnant and would have to do the shots but mentally I am so scared.

1 replies...

Posted by Abbi Cooper
Last Reply February 26, 2008 at 13:31
Started February 20, 2008 at 10:25
I have been on warafrin for 6 months after an extensive DVT in my left leg, I am due to go back and see a consultatn in a months time and I wondered if anybody could advise me on what to expect? Will I come off the warafin, will I get a scan, I just not sure what will happen, advise greatly received.


8 replies...

FVL = Coumadin for Life?
Posted by Matt
Last Reply February 25, 2008 at 15:59
Started February 14, 2008 at 22:14

Does anyone have any information on whether or not it makes sense to stick with Coumadin for life simple because you have FLV (hetero)?

I had a bout with superficial thrombophlebitis and was recently dicovered to have FVL...I'm not too excited about being on Coumadin for life...

9 replies...

Growing Clot
Posted by Jill
Last Reply February 24, 2008 at 05:24
Started February 24, 2008 at 03:36
Hi my dad had his hip replaced a month ago and two days ago he woke up in extreme pain in his ankle. We discovered he had DVT in his upper thigh. He had been on wafrin after his surgery and now he is in the hospital and since he has been there the clot grew and it now extends from his upper thigh near the pelvis down below his knee. The medicines they are giving him so not seem to be helping and it being a weekend there is not a doctor in sight to tell us what to expect and what could possibly happen to him. I would really like any info people could share.

1 replies...

Pain in the lower legs
Posted by Karen S
Last Reply February 23, 2008 at 05:44
Started February 20, 2008 at 17:35
I've been having pain in my lower legs for over 7 years now. I was originally diagnosed and had surgery for popliteal artery entrapment followed by 3 surgeries for compartment syndrome in 3 different muscles. My doctor now think I could also have May Thurners.
My legs get very swollen, the left being worse than the right. I cannot climb hills or do many stairs before my muscles totally give out. I get alot of leg cramps at night. The pain is not localised, it runs right down the calf muscle.
I use to run 12 miles a week and work out in a gym 4 times a week. I had to stop exercising and the pain is so bad it's hard to cope with just day to day stuff now.
Is this typical of May Thurners and does anyone have any other suggestions?

1 replies...

Explain Your Pain (Post DVT)
Posted by Claudine
Last Reply February 22, 2008 at 23:45
Started February 8, 2008 at 02:06
My DVT found in my iliac vein has dissolved and I am still experiencing pain in my left leg.
My pain can be described as follows:
Short tingling in different parts of the leg throughout the day, knee has the sensation of slight burning feeling and every now again there are small jabs - again in different parts of the leg.
So will this last forever, will it improve over time or as I destined for it to get worse or at best remain the same?
Any suggestions? Would love to hear the different sensations and length of time.

8 replies...

Have DVT-How active or inactive should I be?
Posted by Dawn
Last Reply February 20, 2008 at 22:58
Started February 19, 2008 at 17:26
I found out I have a DVT in my right thigh approximately 3 weeks ago as a result of have foot surgery and being sedentary for 2 months and could not understand why my leg practically doubled in size when trying to walk again.
I was in the hospital for 6 days taking lovonox and coumadin and will need to be on coumadin for 6 months. I need to know how much activity I should resume if at all. I am currently out on disability and do not want to return to work if I am still at a high risk. Some people say it's ok to keep moving and others say not to move too much so it is confusing.

2 replies...

Posted by Anne
Last Reply February 18, 2008 at 20:04
Started February 12, 2008
Quite scared actually. I have been having strange pains in my left calf for awhile. usually after a walk it will be jabbing pains say every 10 seconds. when i lie down it comes on as well. i am used to exercise and this is not like any of the muscle pains etc that come as a result. At the moment, i walk maybe 3 miles a day, but i sit at the computer alot for my work and tend to sit on my left leg which i have now stopped doing, but the wierd pains still come. I saw the doctor twice (2 differrent ones). They both measured both calves and told me i didnt have DVT. #the second doctor made me stretch my ankles and tell him if there was pain, it was just the usual stretching ache anyone would get. no relation to the wierd pains i am getting. to cut a long story short, i am terrified yet the doctors wont send me for tests. i am not at all a hypochondriac, i just have intuition about it. How on earth do i get the doctors to take it seriously. #forgot to say i smoke quite a bit, which is al... read more

5 replies...

Posted by Diane
Last Reply February 17, 2008 at 01:55
Started October 31, 2007 at 14:53
Hi, I am curious as to how many of us have been told we might have "pain for life" following a DVT. I have not been told this, but 3 years post DVT I still have daily pain in my abdomen where the clot was its largest, having stretched from thigh to iliac vein in my abdomen.
I am lucky I have no leg pain, but others on this forum seem to suffer chronic leg pain. Are we all doomed to lifelong pain somewhere in our bodies following a DVT? I'd like to hear from others who are 2 years or more post DVT. Thanks.

20 replies...

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Last Reply February 16, 2008 at 17:41
Started February 16, 2008 at 17:41
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0 replies...

Posted by Nicola
Last Reply February 15, 2008 at 18:49
Started February 13, 2008 at 16:43
Hi im 28yrs old and 6 weeks ago i started with pain in my leg,sweeling and redness, i went to A&E and was diagnosed with a blood colt in my groin which was really scary, im still really concerened as all the Dr's I've seen don't tell me anything. All i know is im on Warfarin for at least 6 month.
My questions are:

How will i know the clots gone/ or will i have it for life???

What happens when i come off Warfarin?? Will they keep a check on my blood, is it likely to happen again???

I just need some one with experience to give me as much info as possible???

Thank you

7 replies...

Swelling in Ankles
Posted by Bernard
Last Reply February 15, 2008 at 05:25
Started October 12, 2007
I was diagnosed with a DVT behind my left knee last Sepetember 2006. I have consistently taken my Coumadin and keeping my INR between 2 and 3 as advised by by Hematologist. I usually ride 30 miles per day for exercise and last week I had a spill hitting my right knee. It became all swollen and had what appears to be bruises. A couple days later I returned to work and found the evening my ankle in the right foot was severely swollen and had the same bruises. I am sure I did not hit the ankle. Is it the coumadin causing this? I checked my INR on Monday 8th October and it was at 2.25.

3 replies...

Posted by Vickie
Last Reply February 14, 2008 at 17:12
Started February 7, 2008 at 16:52
4 weeks post diagnosis and depression over this whole ordeal is increasing. Went in for minor knee surgery, that turned major, and then got the blood clot in my calf. Not seeing any improvement in the leg with reddening, swelling, swollen toes, etc. Are there any signs that show the blood clot may be dissolving? I did the Lovenox, am on Warfarin and wearing a 30-40 compression hose.

I'm very active and feeling very unsure about what I may be able to do in the future. I've been on crutches since the surgery 1/3 with strict non-weight bearing on the clot leg. A little nervous about starting to walk again next week and the clot possibly breaking loose. Does anyone know what is considered a safe time period for possible PE?

9 replies...

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