DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Posted by Diane
Last Reply February 12, 2008 at 22:00
Started February 12, 2008 at 22:00
Hey, Rob, I have a favor to ask. Could you please remove the post I started called "Where We're all from." I started a new list and now people are posting to the old list so it is getting all mixed up. I'd like to keep one list only and it is titled something like "Our Names & Specific Conditions." That one is the keeper.
Thanks so much...and again I send this with gratitude to you for starting this forum.

0 replies...

Goji Berries
Posted by Mandy Pope
Last Reply February 10, 2008 at 18:39
Started February 9, 2008 at 18:19
Hi, does anyone know if you can have Goji berries when taking warfarin, please?

1 replies...

A good article well worth the read.
Posted by dero/www.lifeafterdvt.forumotion.com
Last Reply February 8, 2008
Started February 6, 2008 at 23:30
For those who know me and my antics, this is what I have been talking about all along...
"The public awareness has to be risen when talking of DVT and the medical community has to learn to recognise,understand and know how to properly treat DVT".

1 replies...

Just diagnosed
Posted by kim mcintyre
Last Reply February 6, 2008 at 22:30
Started February 4, 2008 at 22:13
Hi I was taken in to hospital 3 week ago and confirmed with DVT, clot is in my groin, i was told it started in my knee and had moved to my groin, i had 10 days of injections and am on warfrin my INR is up and down my last read today was 3.7 so my dopple test has been canceled! my leg is still very swollen and painfull my foot looks horrible its all purple red and swollen. im not sure if tjis is ok as i only see the doc at the warfrin clinic as no one else seems to tell me any thing. could some one tell me if my symptons are normal for dvt suffers? cheers kim uk.

4 replies...

Blood Clot Dissolved. Yippee
Posted by Claudine (Australia)
Last Reply February 6, 2008 at 22:23
Started February 6, 2008 at 02:54
Hello All,

Just came back from ultrasound and it appears that the 3.5 cm blood clot I developed in my iliac vein when I was 6 months pregnant has dissolved!
I am over the moon! My leg still aches and tingles at times but I no longer have the worry of a full blown clot.
Off the vascular surgeon next week to see if I can get off warfarin therapy.

6 replies...

pregnancy & Factor V Leiden
Posted by Nina
Last Reply February 6, 2008 at 17:58
Started February 6, 2008 at 17:58
Hiya everyone, I was just wondering if anyone can give me any feedback/adice on pregnancy and factor V.
Iam 20 and have just discovered Iam pregnant (5 weeks). I have been to see my Haemotologist today and he has explained the complications e.t.c
He said he is not going to put me on any anticoagulant as I have never had a clot. He has just advised me to pursue taking my mini asprin a day.
It has greatly worried me though thinking about the increased risks of thrombosis, miscarriages and risks associated with pre-eclampsia.
Nina xx

0 replies...

I'm curious about what your PE felt like.
Posted by Sharon
Last Reply February 5, 2008 at 06:24
Started January 28, 2008 at 06:36
I had an IVC filter, so I was protected from large PE. Had a super sharp pain in the left lung and some wheezing for awhile, but nothing major. I guess if you're all still alive, no one on this site had a major PE? Just curious if symptoms are as drastically different for PE as we decribe for our DVTs.

11 replies...

Angina/heart strain - u too?
Posted by Chicolita
Last Reply February 5, 2008 at 06:16
Started February 3, 2008 at 21:06
Hi everyone!

So nice to be in a forum where everyone knows what I am going through!

I have PE & extensive DVT from knee to abdomen.

In my second month of recovery I am starting to get what really seems like angina if I sit up at this computer for too long!!

Angina's defined as: "a pressure or heaviness across the front of the chest..." (etc)

Has anyone else felt this?


1 replies...

Natural or C-Section with DVT
Posted by Mel
Last Reply February 4, 2008 at 15:09
Started January 22, 2008 at 11:53
Hi All

I first had DVT in 2001, in both legs. I've gone through the whole compression stockings and tests etc.. I have to be on warfarin for the rest of my life though. The doctors did warn me that I should plan when I wanted to have a child. Anyway, had a bit of a whoops and am now pregnant.

I have stopped warfarin and am on clexane injections. At around 22 weeks pregnant I suffered another clot, but it was in the superficial vein, the Haematologist said he was not worried about it at all.

I am now 31 weeks pregnant, and the doctor STILL cannot tell me if I am going to be having a c-section or if its safe enough to have natural. I would like to have natural, but would obviously do what is safest for me and baby.

Can anyone give me some advice about what you have gone through with giving birth and what options you were offered, and what the procedure is during birth.

I am really panicking about it and would appreciate any input.


5 replies...

Posted by Diane
Last Reply February 3, 2008 at 03:17
Started January 30, 2008 at 06:22
Hey, everyone, maybe if we all write to Rob he can remove the porn posting from our forum. I tried to write, but it won't work for me. Let's see if we can get his attention. Thanks for helping with this.

13 replies...

Posted by Patty
Last Reply February 2, 2008 at 05:46
Started January 31, 2008 at 18:03
I stopped injecting Lovenox two weeks ago because by clot is gone which of course is great news! A week ago I started gaining weight literally overnight - from 1 to 1.5 pounds daily. I have severe abdominal bloating. My doctor ordered an admominal ultrasound and it turns out I have fluid in the abdominal cavity. She thinks it could be a result of the Lovenox ... I'm assuming flushing out of my body. Has anyone had anything like this happen? Thanks.

1 replies...

Posted by Donna - Edinburgh
Last Reply January 30, 2008 at 16:46
Started January 24, 2008 at 18:56

I have posted a few questions here before and I now have another one. I had a DVT in my lower right leg just behind my knee I have been wearing compression socks ever since I have been wearing them on both legs but reading through some of the other topics it seems alot of people just wear them on the affected leg, could anyone advise me if only the infected leg should be wearing one or is it bothe legs. I have the ones from the hospital the measure my calf and that descides what size I am is this the same for anyone else. Thanks for looking at another one of my questions (feels like I go on a bit)

6 replies...

genetic testing for warfarin response
Posted by Lisa Kessler
Last Reply January 30, 2008 at 15:12
Started January 7, 2008 at 23:45
Hi – I am a genetic counselor, and I wanted to share some important information about drugs and genetics. The FDA has begun including gene-and-drug-response information in drug labels, so that healthcare providers and patients have updated information on how genetics, along with other factors (age, gender, liver and kidney function, other medications) can influence a person’s response to a particular drug. One drug with this labeling is warfarin (also called Coumadin).

There is a test to determine how you respond to warfarin that gives important information about the dose you need to take. This test looks at 2 genes involved with breaking down warfarin in the body, called CYP2C9 and VKORC1.

DNA Direct has detailed information on our website (www.dnadirect.com) for you to learn more. This testing is useful for people who are taking or considering taking warfarin.

You can order the testing on your own directly from the website or your physician can complete the onlin... read more

10 replies...

6 months I am done
Posted by Will
Last Reply January 25, 2008 at 22:16
Started January 20, 2008 at 06:41
Well it has been 6 months since the clot in my leg was found. And the PE to go along with it. I had a scan of my leg last week and A CT of my lungs and all looks good. My doctor says I can now get off the blood thinners. I am glad it is done. Good luck to all who have been through this.

7 replies...

Factor V Leiden - Anonymous Gene Testing
Posted by Maria
Last Reply January 25, 2008 at 16:28
Started January 25, 2008 at 16:28
My sisters were concerned about their health insurance companies learning the resutls of their gene tests and dropping their coverage. I came across a company, DNA Direct who does anonymous testing and thought I'd pass along their website:


0 replies...

fatigue and coumadin
Posted by lynn
Last Reply January 23, 2008 at 10:05
Started January 22, 2008 at 20:11
Does anyone have symptons such as fatigue, sensitve to cold enviroment, hair thinning, and migraines. And even though its been over a year since to P.E. My leg and foot swell and is still a ince different than the other leg and it aches sometime.And hate the smell of smoke. Whoa that wore me out just to type all of my complaints. Is some of my symptoms relate to coumadin?

2 replies...

too high?
Posted by Lynn
Last Reply January 22, 2008 at 12:26
Started January 16, 2008 at 15:26
I'm 40 yrs old. had Pulmonary Embolism Nov. 2006. It's genetic. Test every 2weeks. Usually low 1.7. Dr adjusts coumadin levels, INR no higher than 2.0. DR adjusted coumadin to 7.5mg MWF and 5mg TTSS. Last week INR at highest 5.6. I've expeinced exterm fatigue and also transpose numbers and letters at timesand vision is blurred at times. Dr has no explanation. And I miss my margaretas!
And should I take coumadin for life?

6 replies...

DVT and minor injuries
Posted by Jackie
Last Reply January 20, 2008 at 17:49
Started January 17, 2008 at 23:24
this article was just published and I found it quite interesting-

5 replies...

INR lowest and Highest level
Posted by carrie
Last Reply January 18, 2008 at 22:27
Started January 17, 2008 at 19:38
Hello all,

My INR has been as low as 1.2 and as high as 5.2 has any one else experienced this and why does it happen besides the obvious vitamin k intake?

7 replies...

Alcohol and Tobacco
Posted by Frank
Last Reply January 16, 2008 at 21:11
Started January 12, 2008 at 12:55
Does anyone think that a DVT could be caused by heavy use of alcohol and tobacco in the absence of other risk factors?

When I first noticed mine, it was after a night of heavy drinking and smoking - upon waking. I can't help but think that the heavy tobacco use (which causes clotting) and the alcohol (which causes circulation to slow down if you drink enough) along with maybe sleeping the wrong way or my dog sleeping on my thigh could have produced the DVT.

4 replies...

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