DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Tiny isolated pain
Posted by RAK
Last Reply December 26, 2007 at 07:26
Started December 23, 2007 at 12:23
Hi All,

I've got a small isolated pains (about the size of pea) in my left calf. The area isn't warm. The area isn't sensitive to the touch. Elevating the leg relieves the pain. Walking exacerbates it. The pain is incredibly mild, on par with getting an IV needle.

I have a larger pain of similar intensity in my hamstring area, just below my buttocks, and I think is from sitting in my desk chair. I'm not sure of the two are related or not.

In the past, I had a surgery to relieve a herniated disc in my lower back. That played hell with my left leg before the surgery, so I'm hoping this may be neurological rather than a DVT.

I'm 29, obese, and sedentary -- but then again, so is everybody else in my family (obese and sedentary - not 29).

Any ideas?

RAK


4 replies...

Just Diagnosed! Walking for exercise, pain...
Posted by Maria
Last Reply December 25, 2007 at 08:23
Started December 24, 2007 at 15:54
What a shock. I was diagnosed less than a week ago with a DVT from my thigh to my calf. (Seems it may be due to a long flight and not getting up frequently enough from my computer desk.) I have 3 more shots of Lovanox left and am on 5mg of coumadin. Fortunately I'm not in much pain, except when walking...

I have many questions regarding many things including, mobility after diagnosis. The doctors I've asked havent' given me a clear answer. I'm a bit confused, didn't know where to turn, and am so glad to have found this forum.

In your opinion-your experience (I realize now there's no definite answer) is it wise to "walk through the pain" ? After a few minutes of walking I feel an intense vise-like grip with occasional spasms in my calf. This can subside and be followed by many moments of less pain, similar to what I've experienced the day after a strenuous hike. I don't want to cause further damage, yet want to increase the circulation. I don't mind walking through the p... read more

1 replies...

under dosed heparin accidentally
Posted by Tammy
Last Reply December 25, 2007 at 08:12
Started December 23, 2007 at 01:57
I am extremelty paranoid right now. I had a dvt from my groin past my knee 2 weeks after having my son. My son is 19 months old and I am currently 37 weeks pregnant. I have been on lovenox and have been doing fine. 3 days ago I switched to heparin and accidently was only giving myself half of the correct dose. I take it 3x a day and I caught my mistake on the last dose of my 2nd day. I am not having any shortness of breath or chest pain. Although my leg is slightly swollen, but again I am 37 weeks pregnant. I'm just so scared right now that I am making myself sick. Anyone have any advice. The more paranoid I get the worse I feel. I have been on the full dose for 3 injections now. Help!!!


9 replies...

Something different.
Posted by dero
Last Reply December 25, 2007 at 03:03
Started December 25, 2007 at 03:03
I would like to present my warmest wishes to EVERYBODY on this site for this festive period. For some, I know that it is hard to even think this way, DVT can be ever so devoustating, but one thing to keep in mind and this thought has helped me a lot, is that if we are here on this site it is because,
WE ARE ALIVE, it could be worst...
Just keep that in mind.

your's truly,
dero.


0 replies...

good reads...
Posted by dero
Last Reply December 23, 2007
Started December 5, 2007 at 02:56
I had many questions (and still have) after I was diagnosed with DVT,here are some sites where I found lots of info.
Maybe this post could serve as an list of sites you have found usefull...
Kind of a library for new and old members.(I don't mean old as in agewise.)
http://www.inate.org/#
http://www.tigc.org/eguidelines/patient06.htm
http://www.warfarinfo.com/dvttherapy.htm

5 replies...

Can we get rid of the picture?
Posted by dero
Last Reply December 20, 2007 at 23:53
Started December 5, 2007 at 01:51
I don't know about anybody else, but everytime I get on the site and see that picture at the top,it brings back
BAD MEMORIES.
The people here are simply great, the reads are good, but that picture...

It would be ENORMOUSLY appreciated.

19 replies...

Clot Care resource
Posted by Patty
Last Reply December 16, 2007 at 15:22
Started December 16, 2007 at 15:22
I just found a great website that has tons of information on what we all deal with. It's well written (not too much medical terminology). I hope you all find it as helpful as I did:

www.clotcare.com

0 replies...

Are you dealing w/ frequent/severe leg cramps?
Posted by Sharon
Last Reply December 16, 2007 at 14:50
Started November 29, 2007 at 04:40
I have cramps in my legs and feet all the time--especially in the evening and during the night. Do the rest of you experience this? What makes me wonder if it is not DVT related is that I have been having them in the leg that supposedly has never had clot. I'm not sure if the cramps are from something different than DVT or if I need to be concerned about clot in my other leg now.

4 replies...

Protein S Deficiency
Posted by John
Last Reply December 14, 2007 at 22:06
Started December 7, 2007 at 22:42
I had a DVT last December. I was on warfarin for 6 months then had a thrombophilia screening and after repeating the same tests three times have now been diagnosed with Protein S Deficiency. The doc says my score was 16 when the normal range is around 50+. Has anybody else been diagnosed with the same condition? I'm also interested to learn if others with the same have been told they cannot fly even if taking heparin injections. Thanks.

4 replies...

wee quick topic ,,,
Posted by chris jones
Last Reply December 14, 2007 at 09:34
Started December 14, 2007 at 09:34
hello all.just a word from myself,wishing all this forums users and relatives and the families of us all A VERY VERY MERRY CHRISTMAS AND A FANTASTIC NEW YEAR FOR 2008...and a special note for the warfarin people,,,dont drink too much!!...seriously,,all the best everyone,,,,lets hope its good for us all,,,chris in scotland,be safe and take care,xx

0 replies...

protien S deficient
Posted by chris jones
Last Reply December 14, 2007 at 04:31
Started December 11, 2007 at 11:20
right forum,,new news to me,,WHAT is protien S deficient..i am now looking into that,any help,advice,information will be greatly appreciated.answers on a postcard please.......take care and be safe,,chris in scotland

3 replies...

The "AFTER" of a DVT
Posted by Frances
Last Reply December 13, 2007 at 03:36
Started December 4, 2007 at 22:57
In Dec 2006 (at the age of 53) I thought I had a pulled a muscle in my leg and was treating it with icey hot; read some stuff on the Internet and went to my Dr. telling him it may be a DVT. Sent me for the doplar and then off to the emergency room and this wonderful adventure. I had no idea how serious it was...I wanted to go home and for a solid week I stayed there thinking why can't I go home. Finally, some nurse explained it to me. LOL. I got the DVT from a shot I had taken 4 times to put myself in a false menopause...never have taken BC pills, so it wasn't that. It's been a year...I still have excrutiating pain in that leg...do take pain meds for it. Also, the warfarin, I hate taking it, but in one year's time I have had only TWO good blood reports...I'm either too thin or too thick. Do most of you still have the pain? Have you been on warfarin like this with lousy results? Any food tricks to correct my blood so I can get off the thinners? Any suggestions at all would h... read more

13 replies...

Anyone else with a temporary filter?
Posted by Carole
Last Reply December 13, 2007 at 02:46
Started September 4, 2007 at 16:58
Hi everyone! I'm so happy to have found this site - great information!! On Aug 1, 2007 I was hospitalized after my GP found that I had blood clots from my ankle to my thigh (right leg), about 5" of clots in my left leg and clots in both lungs (clot in right lung was blocking 90% of the blood flow).

They immediately transferred me the Univ of MN (60 miles away) where they put a temporary vena cava filter. After reading some of your stories I feel really lucky - spent 5 days in the hospital and back to work 2 days after that. Still feel a little weak and sore sometimes but feels good to be back doing things (I'm normally very active).

Have any of you had a temporary filter? How long did they leave it in place?

3 replies...

dvt worries
Posted by dan
Last Reply December 11, 2007 at 18:56
Started December 10, 2007 at 17:02
hi ive just been diagnosed with 2 dvt's in my calf, i had a atheroscopy to repair a knee cartlidge, which is a fifteen minute op, and physio straight after so that doesnt fit dvt op guide lines. im 24 very fit, slim built guy so not on the pill. how did i get a dvt? shocking. any advice would be really appreciated regarding what i can do and cant do socially? ie can you play sport like football again? i start my warfrin today for 3 months is there a good prognosis to getting back to normal again after this set back? thanks for any replies given

4 replies...

where are we all from?
Posted by chris jones
Last Reply December 10, 2007 at 06:38
Started November 27, 2007 at 09:44
just a wee starter topic.where are we all from as its a very diverse forum and looks like loads of different treatments and care etc.so,its a good idea to see who is from where and what etc!!.......take care.chris in bonnie scotland,

28 replies...

Thrombolic Screen
Posted by Mick C
Last Reply December 8, 2007 at 14:18
Started November 8, 2007 at 18:10
How long do I have to be off Warfarin before this blood test can be done.

7 replies...

Is this usual procedure?
Posted by Jo
Last Reply December 7, 2007 at 06:41
Started December 2, 2007 at 04:47
Three weeks ago I develped a DVT, over a period of 48hrs - as far as symptoms go - in my left arm. The pain was excruciating, the lower part of my arm and hand went completely numb, white and cold for about 1 hour. It hurt alot. The pain subsided a little, not much, and I got to a hospital. After a scan to confirm thre was a clot, I was taken to surgery late at night and the clot was removed under local anaesthetic. The pain of removing the clot was incredible, literally like a red hot poker going in at my mid arm and coming back out at the tip of my thumb. I will never, ever go through that again! It was not certain that all the clot was removed.
Has anyone else been through this experience?

Look forward to hearing from others.

Jo.

3 replies...

BOSTON SCIENTIFIC WALLSTENT
Posted by Diane
Last Reply December 6, 2007 at 21:03
Started December 6, 2007 at 21:03
There are two of us (Diane and Crystal) on this blog with the Boston Scientific Wallstent in our Iliac veins, following diagnosis with May-Thurner Syndrome, which led to our DVT's. Both of us had them installed in 2004, therefore so we have over 6 years of combined history to share with others.

Due to the lack of reference material available on these stents, we would like to start a group of persons who have this Boston Scientific Wallstent in common.

We welcome anyone who has shared our common experience to join us and participate. We will be gathering data to share as we are able to find it (not easy).

0 replies...

msn messenger anyone?
Posted by chris
Last Reply December 6, 2007 at 01:52
Started December 5, 2007 at 11:29
seems we could all speak more fluently if some we used msn......more instantaneous etc.how can we get around it ?..hard to see who is online and those with the relative illness can talk about thier experiences etc.or have like a live chat room,,,,,the internet has made the world smaller......any ideas anyone?..chris,

2 replies...

DVT, Stents & Aspirin Therapy
Posted by Donna
Last Reply December 4, 2007 at 04:13
Started December 2, 2007 at 01:28
Hello,

If you have had a DVT and now have stents and have been advised to take an aspirin each day, how many milligrams are you taking? I was initially told to take 80 mg per day but was recently told to take 325 mg per day. I'm just curious as to what anyone else might be doing. Thank you!

4 replies...

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