DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Numbness long after DVT?
Posted by Connie
Last Reply November 2, 2007 at 07:47
Started October 29, 2007 at 12:27
Hi, im 23 and last year whilst pregnant with twins i got DVT in my left leg and the clot was no longer in my leg just before i gave birth. But a year on almost exactly my leg has started to go into a painful numbness, nothing like the DVT pain mind you, but i was wondering if people who have had it years ago still feel pain in their legs long after. I know my leg will always be bigger than the other one but is it still supposed to hurt or should i see my gp?

3 replies...

DVT and Recovery
Posted by Scared at 43
Last Reply November 2, 2007 at 07:46
Started July 11, 2007 at 04:05
I am 43 years old and just had knee surgery. I was suffering from extreme calf pain especially when trying to flex my ankle or walk. My Ortho and PT sent me for an ultrasound and I just go home from the hospital tonight. Needless to say, I was very scared and still am. I have an 8 and 10 year old and suddenly saw my life flash before me. For those of you who have had experience, please provide somemore information. I am taking Lovenox 2X and Day and Coumidin. My fear is that the clot will dislodge and cause what I fear most. The doctor has said that 24 hours after the second dose of Lovenox, I am safe. Will the calf pain be continous for the rest of my life. It hurts like crazy to walk but I am forcing myself to do so. If anyone can relate to this exerience, please help to put my mind to rest.

8 replies...

Annual Exam for Prevention
Posted by Sarah
Last Reply October 29, 2007 at 14:53
Started October 28, 2007 at 04:17
Does anyone know what would an annual DVT check might consist of? Would an MRI full body scan pick it up, or only sonogram and D-Dimer blood test, because if they travel you never really know where they will wind up. I met a woman who had 7 and 2 of them nearly killed her and the sixth one she had to have her leg amputated and the 7th one the left side of her body was partially paralized. THANK YOU:}

1 replies...

? Don't know what caused dvt
Posted by Sandra
Last Reply October 28, 2007 at 22:01
Started October 27, 2007 at 23:16
I've been seeing this Doctor, and he swears that what cause my DVT was a cyst in my left ovary, I told him sprained my ankle at the job and after that i stood off my feet for about a week and that's when I noticed my whole left leg was getting swollen. I went to hospital they told me I had blood clots in my left leg. After I was discharged with the medication of coumadin. Two weeks later I had a pain in my left side of my stomach and it turned out to be I had a cyst in my left ovary. Now my doctor telling me that probably the cause of the dvt on my left leg. They removed my ovary and still this day i am on coumadin and my leg is still swollen. So I can't believe it was my ovary it had to had happen when I sprained my ankle.I was told about compression stocking. Please tell me where I can find these Compression Stockings.


1 replies...

Compression Stockings
Posted by Kathy
Last Reply October 27, 2007 at 23:01
Started September 19, 2007
Has anyone else been told that until the clot is gone, that using compression stockings can cause the clot to break off?

14 replies...

for Travelling Now
Posted by Diane
Last Reply October 26, 2007
Started October 26, 2007
I hope you read this today.

Personally I would not get on the plane without having an ultrasound done on that leg to check for clots. Better safe than sorry because once you're in the air there will be no way to get the help you need, if indeed it is a clot and it goes to your lung. Err on the side of caution and if it is nothing, then be very happy and enjoy your flight home.


0 replies...

DVT - Full Recovery?
Posted by Colm
Last Reply October 25, 2007 at 17:29
Started October 25, 2007 at 17:29
Hi,

I had a knee op in June 2006. After 2 months of me telling them that I felt alot of pain running down from the knee to my achilles tendon, the consultants put it down to post-op tenderness. One weekend my calf felt like it was going to explode and ended up swelling to 22 inches. I was rushed into hospital and diagnosed with a DVT (Femoral, Popliteal and calf vein). I was told I was lucky to save the leg by coming into the hospital when I did. I was in hospital for 5 days and on warfarin for 10 months. Now I was very active and haven't trained properly since june 2006. I was running 10km a day, hiking at weekends, played football (soccer) at a high standard and then was reduced to sitting on my backside for nearly a year. I've started back training now but my leg is killing me. I can barely run for more then 2 km, the calf cramps all the time, I get spasms in the lower leg and shooting pain from my achilles up to the back of the knee. I don't feel the leg is ever going to rec... read more

0 replies...

Aspirin therapy
Posted by Michael
Last Reply October 22, 2007
Started October 22, 2007
After 21 years on 81mg aspirin daily I stopped on Dr. advice. Thirteen days later I had a DVT. Has anyone else had a similar experience?

0 replies...

Previous DVT can I take the pill with aspirin?
Posted by Amanda
Last Reply October 21, 2007 at 11:48
Started October 20, 2007 at 11:00
Hi there.

I had a DVT from a flight 6 years ago.

I was told today by a pharmacist that it would be ok for me to go on the pill if I take aspirin, since I am only wanting to be on the pill for 2 months. I know this might sound odd but there is a reason.

I went to see a doctor to get a mini-pill prescription this morning. He was a little old and deaf and I somehow ended up with a prescription for Monofeme, which the pharmacist pointed out is the pill, not the mini-pill. I waited an hour and a half to see the doctor !

Anyway, I gather I will need to go back to a doc to find out for sure if this is safe.

Any ideas ?

Thanks.

Amanda

2 replies...

original diagnosis/treatment
Posted by katherine
Last Reply October 21, 2007 at 08:13
Started October 10, 2007 at 18:19
i was just wondering how many of you were hospitalized after being diagnosed with your dvt? i am researching and it seems like so many people are first started on heparin or lovenox and put in the hospital.

the only reason i am asking is because i am really in the middle of finding a good doctor and i am hearing so many different things. i just have a vascular surgeon but is it more important to have a hematologist?

thank you.

5 replies...

dvt through iv use
Posted by maya
Last Reply October 20, 2007 at 17:33
Started October 20, 2007 at 17:33
has anyone got dvts through iv drug use and is afraid of what to do and feels guilty about getting treatment?

0 replies...

Post Natal DVT - support needed
Posted by JosieJo
Last Reply October 20, 2007 at 11:08
Started October 17, 2007 at 19:07
I've very recently been diagnosed with a 'small' DVT in my lower calf of my right leg. I gave birth 12 days ago to a beautiful daughter.

I feel like i've not been told much and what I have been told is conflicting.

Has anyone else had a DVT postnatally and what was their treatment? Is there anything I can do to help myself recover? How long will my treatment be? What do I need to keep an eye out for?

Please can someone help me as I'm feeling very low, alone and depressed and don't want my daughter to suffer.

Thank you

Josie

2 replies...

Exercise
Posted by TB
Last Reply October 19, 2007
Started October 17, 2007 at 22:47
Hello all,
I've read the previous postings on exercising during recovery, etc. So am i right in saying that as long as it's not too painful you can exercise as much as you like as soon as you like?
Does this include weights and running?
Do you need to wear your stockings during this exercise?
And finally, i was a keen footballer, can i go back to contact sports?
Thanks in advance

1 replies...

Newly diagnosed with severe pain
Posted by Libby
Last Reply October 17, 2007 at 22:11
Started October 17, 2007 at 22:11
I was diagnosed with DVTs of the right leg from calf to groin and a focal clot in the left calf on Oct. 8 via ultrsound. I started with severe pain in rt. groin on June 2 after a 4 mile walk, then developed pain down front and inside rt leg from groin to calf. I had an MRI of back in June, showing herniated disc-L3 and had a discectomy on Sept 4. I still have alot of pain and numbness in rt groin down leg to calf. My vascular Dr. said not to take any ibuprofen,aspirin,or tylenol. What can I take or do for pain? I never had any swelling in leg- how can this be with an extensive DVT? My leg becomes a little purplish only when I take a shower. Is it possible I could have had this DVT since June? They did not check to see if the clot is in my pelvis. Shouldn't this be checked and is a CT or MRI of the pevis better? Thanks so much for any advice.

Libby

0 replies...

DVT, ulcerative colitis, dental problems
Posted by NickiB
Last Reply October 15, 2007 at 14:03
Started October 11, 2007 at 14:04
First time poster. I've read through the posts and have gotten some great information. Thank you. A little background and a couple of questions...

My husband was diagnosed w/ DVT out of the blue in January. He was on Coumadin for about 3 months, and he had horrible side effects. He had a filter installed and the doctor took him off Coumadin because his system couldn't tolerate it (multiple hospitalizations, internal bleeding and transfusions).

His recovery has been painfully slow. He still has severe anemia and tiredness. He also still has lots of leg pain and swelling.

He developed ulcerative colitis while on Coumadin and it is still very bad. The UC was described to us as a side effect of the medicine, but when I research now it looks like the UC may be a cause of the DVT. Anyone have any thoughts or info on the link between these two conditions?

He has also developed some horrible dental problems. His gums "dropped" and exposed the roots/nerves while he was taking th... read more

3 replies...

Recovery
Posted by FRANK
Last Reply October 13, 2007 at 15:30
Started October 10, 2007 at 15:50
I hae been diagnosed with DVT about one month ago in lower leg. I had heparin injections for the first few days and am also on the usual Warfarin (for 3 months). After the first few days my DVT felt better and i couldn't feel it.However the past couple of days my toes are going a dull colour and i can feel pins and needles in my lower leg but mostly my foot. I went to A&E who said that this was normal. I am just wondering if anyone else has had a relapse in recovery? It just seems like i have taken a backward step when i thought it was going well!

1 replies...

Possible Concern
Posted by Mike Ishida
Last Reply October 10, 2007 at 05:30
Started October 10, 2007 at 01:31
I just recently turned 20, but for the past while I've been spending the majority of my time on the computer. Hours a day. I often sit normally in a chair wherein I can, half of the time, fully extend my legs. The desk at which I've sat, however, extends a little bit below the main surface (diagram: --\).

The problem is that my thigh has often been pressed up against that outcropping. A few weeks ago, I noticed some swelling just a bit further up on my thigh than where the outcropping was, and there seems to be an indentation between possible swollen areas. I've also noticed some pain local to the area, though this was not at all severe or entirely chronic, as it'd occur maybe only once a day. The pain almost feels like muscle pain, and it sometimes gives more of a sting or soreness.

Any idea of what this could possibly be, or if it could be related to DVT? I'd like to be sure.

1 replies...

Prognosis ?
Posted by Mary
Last Reply October 9, 2007 at 23:35
Started January 29, 2007 at 15:17
I am just wondering if anyone knows how long a 60 year old person can expect to live with reoccurring bouts of DVT, leg ulcers, and cellulites. After each hospital stay it takes me longer to recover. Probably a dumb question, but I just thought I would throw it out there. I don't want to ask my Dr. as I am too embarrassed.

3 replies...

dvt symptoms?
Posted by Katherine
Last Reply October 2, 2007 at 18:57
Started September 28, 2007 at 19:43
hi, i was just wondering if anyone could help me figure out what is going on.

first, i did have foot surgery and while the cast was on, i had pain that has now been diagnosed as a dvt. the cast is no longer on but my foot and calf are extremely swollen. i was put on coumadin 4 days ago.

now i know this will sound gross but my foot is constantly sweaty. it is plain gross. also, my heel has really started bothering me the last couple of days with today being very painful and now on the side of my foot (also where it is sweating) there are little red bumps that have formed, almost like a rash but they are raised. to add to this, my foot is hot to the touch.

now i called my orthopedic doctor who said to talk to the vascular doctor but he just called me and told me he really didn't know what it was and to take tylenol. i told him that i have been taking tylenol all day as i also woke up this morning with a brutal headache that i have had all day long, even with taking the ... read more

4 replies...

6 hour car trip with dvt?
Posted by Katherine
Last Reply October 1, 2007 at 21:59
Started September 29, 2007 at 13:55
me again, sorry but i have so many questions. i am definitely calling the doctor on monday because i forgot to ask but i thought i would run it by all of you here.

we are suppposed to drive to virginia next weekend which is about a 6 hour trip. do you think i will still be able to do this? i mean, if we drive for an hour and i get out and walk around and just keep stopping, then it is probably okay, right?

it's just that our summer vacation was cancelled due to my foot injury so we told the kids we would do something for a long weekend in october and we already have it all planned. i would feel horrible canceling on them again, you know? any advice would be great, thanks. : )

1 replies...

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