DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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my email for topic underneath
Posted by alice murrell
Last Reply August 6, 2007 at 14:43
Started August 6, 2007 at 14:43
alicemurrell@hotmail.co.uk

0 replies...

Platelets, Lovenox
Posted by Jen
Last Reply August 6, 2007 at 14:28
Started December 18, 2006 at 17:09
This is a bit off topic, but I cannot find any other resources online! My young neice has a thrombosis in her lateral sinus (draining brain). She is on low molecular weight heparin (enoxaparin/lovenox). How long can we expect it to take to break down the clot? What if it never breaks down - can a person live with a thrombosis?

Also, are platelet counts affected by enoxaparin? What goal platelet count is desirable?

We are just so very concerned and don't know much about thrombosis. Perhaps you guys can help.

thx.

2 replies...

Need Help
Posted by Sunshine
Last Reply August 6, 2007 at 11:14
Started July 11, 2007 at 18:36
I am now 29, after the birth of my son I had a massive DVT in my left leg. It's been six years now and I am still experiencing pain and swelling at times. Is this normal? Is there something that I should be doing? My doctor told me to take an asprin. Is there anything else I can do? What kinds of foods should be eating, and what should I stay away from?

2 replies...

made to measure
Posted by Brian
Last Reply July 30, 2007 at 19:50
Started July 18, 2007 at 20:20
Just back from a week in hospital and found advice on some sites recomending made to measure stockings, has anyone any information on companies that produce these? i am based in Essex.

6 replies...

Varda
Posted by SJRawden
Last Reply July 20, 2007 at 23:56
Started July 20, 2007 at 23:56
Intresting weblink for anyone who has contracted DVT though flying.

http://www.varda.org/about.htm

This is the Victims of Air related DVT Association.

Thought it may help anyone who has had DVT through flyin or has lost someone to the same cause.

Take Care All.

SJ

0 replies...

testing for factor V leiden
Posted by chriskura
Last Reply July 20, 2007 at 23:46
Started June 28, 2007 at 03:09
Recently my doctor has told me that I may have to be on warfarin for life. He suspects that I may have factor V leiden. I was hospitalized for my dvt 10 months ago and it was very sudden, so my doctor says even though they tested me for factor V and I was negative, I already had blood thinning drugs in my system at the time which would skew the results (they very quickly put me on a drip of heparin). Dr. says that I'd have to come off the warfarin for 5 days to get an accurate reading for the factor V, but he doesn't recommend this right now.

Has anyone had a similar experience? Should I see if my parents can be tested for factor V to confirm if I should just remain on the warfarin?

4 replies...

may thurner syndrome
Posted by Kate
Last Reply July 18, 2007 at 17:57
Started June 19, 2007 at 18:12
Hi, I have just been diagnosed with May-Thurner syndrome, but the consultant just refered me to St Thomas Hospital, London. Does anyone know what happens next. (I have been on Warfarin for a year after DVT)

1 replies...

Adhesive tapes and plasters
Posted by Mick C
Last Reply July 16, 2007 at 20:56
Started July 16, 2007 at 20:56
I didn't think I was allergic to surgical tape or other adhesive dressings until I used them on my DVT leg. I wont say what happened when I took the tape off other than to say that I said a few choice words.

0 replies...

Weather-predicting abilities?
Posted by Emma
Last Reply July 13, 2007 at 05:12
Started July 9, 2007 at 08:42
I've heard of people with athritis being affected by the weather (something to do with the air pressure or something), but has anyone else found that their 'bad leg' (if you've had a DVT before, that is) starts aching if the weather changes?

I'm asking because sometimes, for no apparent reason, my bad leg starts to ache like crazy, and it makes me paranoid because I think I have more blood clots. (Two years ago I had an enormous DVT in my right leg, caused by Factor V Leiden, the Pill, and sitting still with my legs crossed. Needless to say I don't do this any more.) It's been aching badly this week, when the weather suddenly went from bright and sunny to miserably stormy and raining. Has anyone else experienced this? (And it's normal for a post-thrombotic 'bad leg' to ache sometimes, right? It's happened before but I get worried so easily.)

1 replies...

Concerned
Posted by Mark Erdwin
Last Reply July 12, 2007 at 12:13
Started July 6, 2007 at 01:51
Hello my name`s Mark,I stumbled across this forum
(now bookmarked),because I have just recently come back
from fishing,I live in the UK I was sat under an umbrella in
the rain for 7 hours asleep in a seat,and it cuts the flow of blood in your leg,anyway,I got home from fishing 2 days later.and on taking my shoes off my right foot swelled up as did my calf region of my leg,it was like this for last 2 days so I called on a doctor he measured my right leg and it was up about half an inch compared to my left one my foot was about the same and i had noticeable swelling round the ankle,I suggested to him about it possibly being a DVT and
he said that the calf was too soft and flexible for it to be a DVT,but two days on and whilst the swelling has subsided quite a lot I am now getting like a dull aching in my Calf region and whilst not mega painful it is very very irratating.

I did also have some redness slightly in my leg,which I now do not have,should I be going for a second opin... read more

10 replies...

A Genetic disposition?
Posted by Trudie
Last Reply July 12, 2007 at 10:39
Started July 12, 2007 at 10:39
Hi,
My dad had a blood clot in his upper arm when he was 45 for an unknown reason. Me and my brother were therefore tested for any genetic predisosition to Thrombosis. I came back clear but because my dads was of unknown cause, and that not all the details of genetic predispotion have been discovered, the doctor told me to just assume I am predisposed!
anyway latley ive been experiencing a strange feeling in my lower left leg - like someone has put thier hand around a vessel and squeezes it everytime i move my foot, walk and especially if i flex my foot. its not pain exactly, just intense pressure. there is also a small area of my skin that protrudes and which i can push in an out.
does this sound like a DVT???
I really would appreciate anyones help. I also suffer from a chronic left 'restless leg' at night and dont know if this could also be connected?
thanks
Trudie (21, London)

0 replies...

My DVT
Posted by Jeremy D M
Last Reply July 9, 2007
Started June 30, 2007
I am 29 and not very active, mostly from working the graveyard shift with not many things open at night.

I started having pains in my left calf last Tues and didn't think much of it until it didn't go away by Friday. I had seen one Doctor who told me to go straight to the ER and have tests done for either a bad cramp or DVT. The ultrasound confirmed DVT. I was given a note to have that night (I work graveyard) and the next 2 nights off from work to go home and rest. Coming back in to get the heparin shots 4 more times in the belly (man those sting). I was given 5 mg tablets of Warfarin to take from the office I was to follow up on Monday. They initially said they couldn't see me for a month, but calling back and explaining I had DVT and needed to be in that day, I got in.

Since taking the Warfarin my leg seems to swell up quite abit when I move about. And am in EXCRUTIATING PAIN after getting up from sleeping or having my leg propped up. I have to walk around on my knees to ge... read more

10 replies...

warfarin and mosquitoes
Posted by chriskura
Last Reply June 28, 2007 at 16:15
Started June 28, 2007 at 16:15
Odd question, perhaps, but here goes. I haven't noticed that I'm being attacked by mosquitoes this year like I usually am even though it's mosquito season. I'm wondering if the warfarin makes me less tasty or something.

Just wondering . . .

0 replies...

Driving &DVT
Posted by Mick C
Last Reply June 28, 2007 at 13:09
Started June 26, 2007 at 13:10
Three months after surgery on a broken leg I developed DVT in the same leg. Whilst I was in plaster and then in a Boot I obviously could not drive a manual car but now I am able to physically drive my car but my orthopedic surgeon has said that I cannot drive because of the DVT. How long is it likely to be before I can drive again?

4 replies...

ct scan
Posted by mick
Last Reply June 22, 2007 at 21:41
Started June 22, 2007 at 21:41
have just come out of hospital after treatment for dvt to right thigh had ultrasound tests before i left & have been told by hospital i need a ct scan is this normal for dvt?

0 replies...

how can i tell if mum has another dvt
Posted by chris b
Last Reply June 22, 2007 at 18:00
Started June 22, 2007 at 18:00
hi ,
my mum has a history of mutiple emboli , and will be taking warfarin for the rest of her life , when she was diagnosed she had no symptoms other than crushing chest pain , my question is , mum went to a and e on monday with stabbing pain under her lung when breathing out , told she had pleursy and sent home with painkillers , been today , friday and her leg and foot is swollen up to knee . she usually has red skin at front of shin , but her calf area is red as well not normal ,leg swollen not normal , could this be another dvt , and would she get one while taking warfarin , inr on monday was 2.9.
any advice would be appeciated ,
thanks chris.

0 replies...

DVT & Private Health Care
Posted by Vanessa
Last Reply June 20, 2007 at 08:40
Started June 19, 2007 at 23:17
If any of you have Private Health Care, I strongly recommend you use it for following up your DVT. As many of you know the NHS will not do a 2nd scan. Although the blood test nurses tell you the basics that a DVT in the leg takes 3-6 months to clear up, you mind is still filled with worry and every little twinge makes you think the DVT is still there or will return. I checked with my private health care and was told originally that I was not covered, after speaking to a more senior person they told me I was. I have had an ultrasound on my leg, pelvic scan and thrombophilia screening all done private. The service has been fantasic and I feel more at ease. The most valuable thing to me was the scan, I was talking to the doctor as it was being done and they talked me about what they were looking at so I was able to ask extra questions. I have been told that my DVT has cleared up however there is damage to the vein mainly in the calf area. The outcome was more about how I can pr... read more

1 replies...

Repeat DVT's
Posted by Criss
Last Reply June 20, 2007 at 04:05
Started June 20, 2007 at 04:05
I am 23 I got my first DVT in my left leg when I was 20 and pregnant. Now I have another one..this makes it the third time since then!! I am coumadin and warfin resistant. I have to take 100mg lovinox injections every night for 6 months atleast. Does anyone know of any alternative forms of anticoagulation? I am work for a sheriff's department and it concerns me to be taking that much because I have a high potential to get injured every day and I need a job...

0 replies...

PE?
Posted by Concerned
Last Reply June 19, 2007 at 21:58
Started June 6, 2007 at 19:02
My father has severe coronary artery disease and goes in for routine angioplasties. A few years ago he felt a hard lump in his chest, he went to the doctor and the doctor mentioned something about it being a blood clot (maybe from the surgery?) Anyways, we are concerned whether it could turn into a PE? Although the clot itself cannot be felt anymore we are worried that it could still be there. Is it possible that this could turn into a PE, or anything of the sort? How long does it take for a PE to develop?

1 replies...

Hospitalization
Posted by Jim
Last Reply June 14, 2007 at 14:53
Started June 1, 2007
Found out I had a severe DVT that never went away, should I be in the hospital? The sent me home on belly shots?

5 replies...

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