DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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new forum
Posted by Rob
Last Reply May 31, 2007 at 18:43
Started August 6, 2005 at 14:15
I was shocked to read in the papers that, lives are lost at the rate of 25,000 a year, half of them unnecessary as a result of deep vein thrombosis! Wow, much more serious than I had imagined. So I searched for any existing discussion forums and couldn't find any, so hence I have setup a new open forum for this serious disease of the circulation.

7 replies...

Travel Insurance
Posted by Donna
Last Reply May 31, 2007 at 14:22
Started May 20, 2007 at 22:22
Had dvt for 7weeks and been told on warfarin for 6months.Going to Cyprus in August,should i tell my insurance company i have dvt?

4 replies...

DVT
Posted by vicki
Last Reply May 30, 2007
Started January 20, 2007 at 04:35
my husband was in the hospital approx. 6 wks ago with pluerisey pnemonia, and now he has a blood clot in his groin area and his lung. I really think he had the blood clot in his lung when he was in the hospital 6 wks ago. Can anyone tell us what to expect. it has been approx 3 weeks since his leg swelled up and he still cannot stand for more than a couple of minutes without his leg turning red and hurting. We are seeing out lung doctor who is also a GP, and will seek the help of a vascular doctor or a hematologists soon, but we are very discouraged at the fact that the doctor just raises his eyebrow when we tell him there is still lots of pain and my husband is not up and around living a normal life could someone who has been through this shed some light?

14 replies...

differing information
Posted by gail jones
Last Reply May 22, 2007 at 11:49
Started May 20, 2007 at 19:42
What a fantastic forum.Its so interesting and a god send that people are sharing their experiences.I'm on my 4th DVT over a period of 40 yrs and strangely the treatment remains the same after all those past years.But my problem is conflicting prognosis of my current femeral/hepatic substantial clot (hosp. words ) 5 months down the line Im still in a lot of pain,limp and can't walk far and I have been told by the consultant that 50 percent of individuals with a DVT remain with the pain,whereas my GP states it will get back to normal ? Im confused and frustrated because my recovery seems to be so slow, I just want the truth of the matter. I feel sometimes as though the condition is trivualised and its not understood by some healthcare professionals the pain,the depression,the feelings of uncertainty and the lack of clear answers to sufferers of thrombosis.I've gone from a fit and active person to a person that feels disabled, but again is it recognised as a disability ? Please help me... read more

3 replies...

post thrombotic leg ulceration..
Posted by nebil
Last Reply May 21, 2007 at 14:11
Started May 21, 2007 at 14:11
hi guyss...i have just read some topic about dvt..I have also DVT too and i m trying to recover.But i really wonder how many years later could my leg improve leg ulceration? because this is the major problem of post dvt syndrome.Is there anyone who has same condition?

0 replies...

should i work
Posted by frank
Last Reply May 21, 2007 at 08:45
Started December 6, 2006 at 19:39
i knelt on somthing at work ,went to docs. he gave me pain killers , so i went back to work , 2 days later i took myself to a@e where they decided to send me to the dvt room , i was sent to have ultra sound and was told yes you have a dvt and some old ones , i was amazed has i dont drink ,smoke and am very active, out come one week of going to the dvt room every day for injection in my tum and blood taken to see how much warfin i had to take , now i go to the anticoagulant clinic once aweek i am at 3.0 at the moment ,and i have just been for a ultra sound of the pelvick and tum , the thing is but for a little very litle pain in the legs i dont feel any different, i am 56 years old, and i want to get back to work , i am a window cleaner / plumber, should i go back to work or take it easy for bit ,



2 replies...

dvt and depression
Posted by taylor
Last Reply May 20, 2007 at 19:26
Started May 10, 2007 at 02:19
i developed a large dvt after an accident to my calf,did't get it treated for 2 weeks and it was a shock to find out what was causing my symptoms.11 days of heparin and 10mgs daily of warfarin have left me feeling upset and scared.does it get better with time?

4 replies...

Accupuncture - Alternative Medicine
Posted by Rassega
Last Reply May 15, 2007 at 04:20
Started May 12, 2007 at 06:31
I have had a massive blood clot during my only pregnancy. It went from my stomach to my knee. I have a lot of residual clot in all the parts involved. I also have reflux problems as the valves are damaged. My clot is about 16mths old. I am wondering if any one has seen an alternative medicine Dr. after being diagnosed with DVT. I am considering accupuncture as a last resort to just living with the ongoing symptoms. However, insurance does not pay for any of the proceedures so it could get a little $$$. I am very fit and healthy other than the DVT. Please Help!

4 replies...

dvt in infant
Posted by stephanie
Last Reply May 14, 2007 at 06:51
Started March 13, 2007 at 19:04
my daughter is 2 mos. old and had a DVT at 3 days old from a cath. She had a doppler done on her groin and they say there is no clot, but her leg is still swollen. Can anyone tell me why ?

1 replies...

Factor V Leiden
Posted by Di
Last Reply May 12, 2007
Started October 24, 2006 at 15:13
Genetic tests last week show I have the hetero version of Factor V Leiden. At the time my clot was found (late September) I was on the birth control pill, but I stopped that as soon as I started the warfarin. Originally they said I would be on warfarin for 6 months due to the large size of the clot, but now that they know about the Factor V Leiden my doctor says I will be on it for life.

Several medical journals have articles saying that a single DVT episode with a single risk factor should not require life-long warfarin. Does anyone have other advise or information?

I am on a fairly low dose (2.5 mg 4x/week and 1.25 mg 3x/week) but it appears the risks of a major bleed are higher than the risk of another clot so long as I stay off the pill. If it matters, I am 49 and fairly active - walking 10-20 miles per week and hoping to get back to the gym for weight training again soon.

2 replies...

Anti-Coagulation in Practice, UK conference
Posted by NB
Last Reply May 10, 2007 at 13:09
Started May 1, 2007 at 22:22
Anti-Coagulation In Practice, 26th-27th April, UK
First Joint Scientific meeting of 3 anti-coagulation groups

The agenda and slides are available on the web-site:

http://www.anticoagulation.org.uk/dates-info_aip-2007.php

To get to the presentation you need a username and password I am checking with the organisers if its ok for me to give this out. Alternatively, I have downloaded the pdf files and could post them somewhere SJRawden maybe I could email these to you and they could go up on your web site ?

The conference was attended mainly by healthcare professionals; Haematologists, Research Scientists, Anti-coagulation nurse specialists. There were a small number of patient attendees.

As this forum is focussed on DVT, I will limit my comments to DVT related matters, although anti-coagulation is related to wider range of medical conditions.

I will cover the main topics of... read more

6 replies...

Symptoms of a 2nd DVT?
Posted by Michelle
Last Reply May 7, 2007 at 17:53
Started April 30, 2007 at 03:33
Can anyone tell me what it feels like to get a 2nd DVT in the same place where the 1st one was?

For the past 4 days I have had severe pains in my thigh (where the DVT was) my leg colour is normal, there is no swelling. The pain shoots up to my left hip, to the point where I can hardly walk on it. The 4 days also just happened to be when I was also suffering terrible cramps (PMS) making it one of the worst weeks of my life.

My family GP sent me for x-rays and thinks it's muscular pain related to my knee (b/c no swelling / discolouration). The thing is I never had any swelling with the 1st DVT! It's hard for me to know if this pain is a result of the vein no longer working properly, or if it's another clot forming. If anyone can describe their symptoms I'd greatly appreciate it. (PS: I went to the ER twice and told it would be a 16+ hour wait both times so I figured I'd wait until Monday to see family GP again).

2 replies...

screening for familys
Posted by hazel
Last Reply May 6, 2007 at 05:12
Started March 27, 2007 at 01:39
hi i hope someone knows something about screenig familys that could be at risk from thrombosis, my husband recieved a letter that should have gone to his gp but came to him .it was asking him if they could screen immediate family members for i think it was factor vor something simalerand help would be greatfully recieved

4 replies...

Aspiration Thrombectomy
Posted by Sheldon
Last Reply May 3, 2007 at 09:55
Started May 1, 2007 at 15:04
I have DVT from my groin to my ankle caused from an industrial accident. The onset of the DVT started in 2003. I went through the blood thinner routine and went on to taking 81 mg aspirin. I am in constant pain and have moderate to severe swelling daily. My activities have limited to standing, setting or walking for short periods of time.
I am currently actively looking into having the clot removed by the " Aspiration Thrombectomy " method. Information can also be found on the net by searching Google using key words " Rapid Lysis ". The procedure has been used for clot removal going back into the early 1990's. The success rate has a low of 82% and a high of 92%. Most patients resumed normal activities shortly after the procedure.
I have an appointment with a Vascular Surgeon today 5-1-07 to discuss the procedure. I am optimistic that I will be able to have the surgery. I will post more information as things progress.

2 replies...

Thrombosis in the brain
Posted by Julie
Last Reply April 28, 2007 at 15:07
Started April 28, 2007 at 07:49
My 17 year old daughter is in hospital, having just been diagnosed with a clot in the central vein in the brain. She had suffered for 2 weeks with a blinding headache, blurred vision and numbness in her arms, and was told by 4 different GPs that she had a virus. We took her to hospital where a brain scan and MRI showed the thrombosis. She is now on heparin and will be put on warfarin soon. We are in shock. I have searched everywhere for information on this condition, but as it's rare, I haven't found much. I was wondering if anyone out there has had it, and how you have recovered or coped with it since?

1 replies...

DVT Website for Patients - Written
Posted by SJRawden
Last Reply April 27, 2007 at 20:26
Started February 6, 2007 at 13:16
Dear All,

I suffered with DVT 18 months ago and as I couldn't find what I was looking for on the web, I've written a website to try and explain the main terminology used in DVT and what it is all about.

I'm a biochemist so had some idea of the Scientific terms and I've just tried to make it easier for others.I've put my DVT "Story" on there as well.

Really hope it helps!!! Would appreciate any comments!!

Web address is:-

www.dvtawarenesscampaign.com

5 replies...

2nd Pregnancy after DVT??
Posted by Rassega
Last Reply April 25, 2007 at 06:41
Started April 25, 2007 at 06:41
I had a massive clot during my first pregnancy. I have been to multiple Drs. and found that I have MTHFR Mutation, but it does not manifest itself because my homocystine levels are normal. I am wanting to have a second child but am having a hard time assessing risk for a second DVT. I have Post DVT Syndrom, but have recovered with occational swelling.
I just can't get any Drs to be totally straight with me. Most say I should be ok with Heprin, but I just do not know what to think. Has anyone else had experience with a second pregnancy after a massive clot? What was your experience?
Please Help!

0 replies...

My experiance
Posted by Peter
Last Reply April 13, 2007 at 20:56
Started April 9, 2007 at 18:43
HI well this weekend was my 4th week since diagnosed with a DVT behind the knee in the femaral artery.
For two weeks could not walk very well and in alot of pain but the pain had eased and I am walking well now this morning been for my first proper bike ride did around an hour on the bike doing about 15 miles an hour so really pleased.
I wear my full length stocking during the day which is bit of a pain i still have some swelling in the calf but not much in the way of pain I am on 11 mg of warfarin at the moment.
I plan to start jogging three times a week and cycling 3 times a week from tommorow I really think fitness and movement is the key.

1 replies...

Michelle I have my results
Posted by Christie
Last Reply April 13, 2007 at 14:06
Started April 11, 2007 at 04:30
I do have pulmonary vascular disease. I knew to be prepared for this however, I'm not. I just had my INR today so I asked for the results and read the report. I will see my dr on the 24th. She is requesting more tests which most likely will be the radioactive dye test. I really think you should ask to be tested. Your symptoms sound so much like mine. I will chat more later. My computer crashed and I am using my in-laws.

3 replies...

DVT or Blood Clot
Posted by Jayne
Last Reply April 13, 2007
Started April 2, 2007 at 18:50
Hi, my Dad was admitted to hospital last Wed because of intense pain in his lower leg. His leg is not swollen but freezing cold to the touch and he has no feeling in it apart from pain....
Doctors have dispersed a clot and he has been on heparin to thin the blood and now plasma to make it clot - The docs found another clot below the knee today and will decide tomorrow what to do next, as after drugs leg still icy cold and blue!!!!
Since december my dad,who is 71, has suffered a mini stroke and been diagnosed with brain lesions, this problem is just another to add to a log list.
Have any of you suffered with icy coldness of a limb as I am confused that this isnt a symptom with DVT's....
Any advice greatly accepted

Love Jayne x

1 replies...

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