DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 26 of 237
Possible DVT, help!
Posted by Aaron
Last Reply March 25, 2016 at 16:55
Started March 25, 2016 at 16:55
A week ago I started traveling in my car from the west coast USA to the east coast
in my car. 9-10 hour car rides with some breaks In between, took me 3 days. I
spent one day in my new place with no pain and then had to get on a plane the
next day to fly to LA and then to Tokyo. I flew first class and was laying down for
the most part and fell asleep for a few hours and I can only imagine the position I
was in for that long. I got up maybe twice to use the restroom. I know I should
have gotten up more and walked. When I arrived in Tokyo I was fine. No pain.
After waking up the next day my left leg was in pain. The left side of my knee. I
can stand on my left leg. Can walk on my left leg at times. When I bent my leg it
hurt. When I walked up stairs it really hurt. A warm bath helped and I could bend
my leg with relatively no pain. The next day I woke up with little pain and decided
to work out a little. I could only be on the elliptical for about 5 minutes befor... read more

0 replies...

my warfarin level has dropped to 1
Posted by sharon simpson
Last Reply March 25, 2016 at 02:58
Started March 25, 2016 at 02:58
I have been on warfarin for 9
months now.my one is usually
between 2.4 and 2.8.I went for a
test 3 weeks ago & it had fell to
1.8. I continued to take 4mg
.Yesterday I had another test and
the warfarin clinic called me to
say my inr had dropped to 1.so
they have increased my warfarin
to 5mg.I am going to Spain next
Thu & am very worried that my
levels will not be within range
by then.the nurse that rang me
seemed annoyed with me & told me
that it would be v dangerous to
fly .I have been on weight
watchers for 2 weeks & have been
eating more salad.I have to go
back for a test on Wednesday the
day before I fly .how can I
increase my inr and is it
possible to increase it enough in
a wk ? So that I can still go on
holiday .thanks

0 replies...

advice please
Posted by danni
Last Reply March 23, 2016 at 19:46
Started March 23, 2016 at 19:46
Hi guys I am a mother to a young baby, and after injuring my leg a month
ago severe sprained ankle, it took me a while to heal but was more or
less better about a week a go I woke up with muscle pain in the back off
my calf, It got worse over a few days and my leg is naw noticeably
bigger and slightly purple, also pain is worse when I sit or lay down
and I walk with a limp, also headaches my mum's suffered dvts and
although I'm only 27 and slightly over weight I am a smoker and had alot
of trauma in my labour, needles, failed epidurals, many drips etc and I
smoke so I know these are all risks, I have a dr appointment for the
morning but I don't have anyone to look after my baby if it is a dvt and
am really worried if I have to stay in hospital? I'm so scared of what
might happen I.am fully aware haw dangerous dvts are my question to you
all if you don't mind is what were your symptoms and treatment? Did you
have to stay in hospital? I also have a headache, ... read more

0 replies...

sleeping position while in treatment for dvt-
Posted by anamica
Last Reply March 23, 2016 at 13:08
Started February 4, 2009 at 03:09
im in treatment for dvt just returned from hospital. now in oral pill[ 4mg] i have dvt in my right leg knee to thigh curves. wearing always stockings in daytime. sametime not feeling strong pain in that leg.feeling little heavy if i walk by supporting that leg. is it a problem of still the clot is there or bec of the medicine? i started losing my hair n bleeding while brushing in the morning. doctor asked me to take this medicine for 3 to 6 months. every two weeks i have to check my INRlevel. sleeping time i should elevate my leg n is it ok if i turn and sleep right side? if i turn left side my left leg will be up on my right leg. if i sleep so my clot may move ahead? pls if anyone knows answer reply me.shall i take spinach? my doctor didnt say anything about diet he said u can eat normal food without oil but keep an eye in ur weight gain. thats all. pls let me know how can i sleep n shall i go out side normal walking and all without straining my leg?

7 replies...

Posted by biklktiyn pk
Last Reply March 23, 2016 at 04:32
Started March 23, 2016 at 04:32
I understand that you find this comment vexing, but even boast of
true knowledge and Bioch company and request in terms of training
accounts, as have real baggage that goes with it.
All comments who protest against the advice of Lucile Woodward
made me both laugh softly, and very scared.

When you know how some nutritionists and dieticians doctors are
brainwashed through training funded by the food industry or work
directly in the industry and are full of conflicts of interest
they will declare that hint, we can only doubt your word, which is
more particularly vehement.

Fortunately for everyone, you do not have the monopoly of
knowledge, whatever you may think, and you never stop people from
being curious.

0 replies...

Compression Stockings - Still Necessary?
Posted by Dan
Last Reply March 22, 2016 at 21:11
Started March 16, 2016 at 10:56
I was recently diagnosed with an acute DVT in my right leg on
2/27/16. The hospital assigned me a primary care physician as well
as a hematologist - both of which have said that I do not need to
use compression stockings. My hematologist even said that recent
studies have shown that compression stockings may have a negative
effect on DVT recovery. Is this true? Has anyone else heard of
this research or can you point me to any recent information about
the use of compression stockings? It seems that most sites suggest
using compression stockings for at least 6 months to ensure the
best possible recovery.

To be fair - I don't have much swelling in my leg, although I've
been trying to be more active lately so I've noticed some dull
pain. I tried some over the counter compression stockings that I
bought online which did seem to make my leg feel better, but since
my doctor said they don't work I have stopped using them for the
time being.


5 replies...

Switching Dosage Xarelto
Posted by Flower
Last Reply March 21, 2016 at 21:46
Started March 21, 2016 at 21:46
I was diagnosed with DVT a few weeks ago and put on Xarelto. For 21 days I took 15 mg twice a
day. Today I switched to 20 mg once a day. I am a little nervous about the change - has anyone
had any symptoms/changes/etc from this change? I somehow felt "safer" on the twice a day so
this is really about my peace of mind.

0 replies...

Vascular Eczema
Posted by becy_roberts
Last Reply March 21, 2016 at 02:45
Started January 9, 2007 at 12:35
My dad got his 2nd DVT in his left leg in Oct (2nd one in 2 years) and his INR is still all over the place although he has reached the theraputic rnage. His doctor say's that the discoloration and swelling on his leg will never truelly go away, but recently he started to complain of a constant itch on his leg and when he went the docs they said that it was vascular eczema caused by the blood clot, he was given steriod cream and a cooling cream but his leg has began to smell like damp straw from a rabbit hutch!! Has anybody else had any similar experiences? Were all really worried as we have not heard of this before.
Thank you

27 replies...

Upper extremety DVT in Lt Arm
Posted by Robert
Last Reply March 19, 2016 at 11:52
Started March 19, 2016 at 11:52
Hello all, I just turned 50 this January and less than a month later i noticed my left arm was swelling up in the morning but would go down by evening. Then on third day of this the swelling returned but would not go down. i looked like i had a lobster arm. The only symptoms preceding this was a stiff sore neck and shoulder. i was going to "man" it out and take some advil, but one of my sisters saw me with the lobster arm and convinced me to go to the Dr.
The Dr performed an ultra sound and found blood clots in my subclavian vein , mostly near the jugular.He was so concerned that he called all the nearest hospitals to find me bed space ASAP. The local Scott&White took me in and started me on clot melting drugs via a catheter inserted in my arm. The next day they mechanically removed the clots rotor rooter style with a "wire"and suction tool.I was awake during the procedure and it was an odd feeling while the work was being performed, but it was over quickly and i was out of ICU in... read more

0 replies...

Artery Damage
Posted by Iamstumped
Last Reply March 19, 2016
Started March 19, 2016
Went to ER with severe pain in my lower calf and left foot. After several US and
CT Scan, I was told I have no blood flow to my foot. Said I have several blood
clots in my leg from top to bottom. Angio was done and after staying in hospital
for 9 days, I begged to be released. Surgeons were talking about amputation of
my leg/foot. Did not respond to several blood thinning drugs at first, but was sent
home on high doses of Coumadin and lovenox shots. That's was January 10. I
still have pain and severe redness and swelling in my foot. I can't walk correctly,
and sleeping is only a few hours at a time. My dr says we wait and see if blood
returns to my foot. I am so frustrated with the weird side effects I get after
Coumadin. Wife calls it the "the Coumadin crazies". Just wondering if this is all
normal? Has anyone out there had this same problem? Is all the redness and
swelling mean I'm getting blood flow there? How long does this sort of thing
take? Will I e... read more

0 replies...

Upper Extremity DVT
Posted by Emma P
Last Reply March 18, 2016 at 17:36
Started December 10, 2006 at 18:23
I am 29, fit, non-smoker (quit about 2 years ago) and not on any oral contraception. In Sept I woke up with a very painful pink arm. I was very lucky and admitted to hospital by my GP that day. I have had a huge number of tests carried out and they are still unable to find out what has caused it. The docs told me that it should have gone within 3 months but I am still very aware that it is there.

There seems to be so little information about dvt in the arm (mine was found in the axillary vein) and I am finding it harder to deal with because the doctors seem to know even less. What I did find out on the internet the doctor even asked me for a copy of.

Does anyone know how you can be sure the clot has gone? I am so paranoid every time i get a slight twinge in my chest or my arm goes pink or starts hurting. I daren't go back to the gym or do anything strenuous. I feel like my doc fobs me off but if we don't look out for our own health who will?

What about having it surgica... read more

62 replies...

PE and Warfarin help
Posted by Kelly
Last Reply March 18, 2016 at 12:05
Started March 18, 2016 at 12:05
Hi. Last November I had bronchitis and had horrible pain when I
coughed. Not the normal pain you might get from coughing while sick,
but a very sharp pain. I ended up going to the ER, they did a CT and
said I had a small pulmonary embolism and put me on a blood thinner
and sent me home. Two days later I ended up back in ER, they did a
second CT which did NOT show a clot at all. Went to hematologist who
said I had to take Warfarin for six months, regardless of the second
scan that did not show a clot. I am four months in on Warfarin and
feel horrible. I have a lot of headaches and upset stomach most days.
I have also had a constant sore throat, but am not sick. The weirdest
thing is my face feels like it is on fire all day long. My face is so
hot and it makes me feel feverish, even though I don't have a fever. I
told my hematologist all of this and he seemed annoyed and told me
that none of these things would have anything to do with the Warfarin.
I did ha... read more

0 replies...

Posted by Tammy
Last Reply March 17, 2016 at 15:51
Started March 17, 2016 at 15:51
I have had a DVT for 10 years this year.. It starts in my knee and
goes all the way in to my stomach... I was on Vic 10s for years
well my back is injured and now they are waiting for surgery and
for some unknown reason Doctors believe everyone is out to get
DRUGS... I had to switch docs cause i moved oh my gosh i have been
at the hospital 2 times in a week the pain in my leg is so
bad....So im telling you PTS does not go away!! I have tried every
over the counter meds out there... I cant live a normal life
without Narcotics... Im scared of the stronger ones any ideas on
whats a little better than VICs but not gona make me an addict?

0 replies...

Right subclavian dvt
Posted by Barbara
Last Reply March 17, 2016 at 12:36
Started August 21, 2010 at 18:46
Does any1 have a chronic dvt in their subclavian area? If so how was it treated?
I am still on anticoagulant 1.3 yrs and my subclavian vein is completely
diseased? Can this spread or grow? Thanks for any info

63 replies...

Leiden Factor V
Posted by PAM
Last Reply March 17, 2016 at 10:40
Started July 18, 2009 at 15:38
I was wondering if anyone happens to have the genetic mutation Leiden Factor V? I had
multiple DVT's, and wanted to know if anyone who has this can give me some insight. I
only found this out last week, and I had my blood clots a few weeks ago. Thanks!!

6 replies...

Clot or not
Posted by Bob
Last Reply March 17, 2016 at 05:59
Started March 16, 2016 at 11:03
Hi, I have been struggling with breathlessness following illness earlier in the year.
Ddimer test at Drs showed level as 420. Before I got result I was rushed to
hospital struggling with breathing. Bloods that day showed level as 300, one
mark below a positive. Scan did not pick up a clot in lungs. Still not sure whether
to fly or not. Am I at risk? Any thoughts please? Thanks

2 replies...

Posted by Ryan
Last Reply March 16, 2016 at 21:47
Started March 14, 2016 at 13:54

2 replies...

Posted by Lyubasha, Russian
Last Reply March 16, 2016 at 05:05
Started March 16, 2016 at 05:05
Good afternoon! Can I ask you a question. They can form blood clots in patients receiving warfarin antikougalyanta?

0 replies...

Develop," the scientist Dr
Posted by omega kliften
Last Reply March 14, 2016 at 03:17
Started March 14, 2016 at 03:17
Develop," the scientist Dr. Len declared 't Hart of the University
Hospital of Leiden in the Netherlands probiotic America and Andreas
Fritsch from the German Center for Diabetes Research and the
University Tubingen. "But in our study, we were able to show why this
is so." GLP-1 (glucagon-like peptide-1) is a hormone which is.....


0 replies...

dvt-sign of cancer
Posted by John
Last Reply March 13, 2016 at 14:08
Started March 6, 2016 at 17:21
Had extensive dvt in calf in December. Now feeling breathless and have a
constant dull ache in my right lung. I have read that dvts can be due to
cancer of the lung. Now I'm starting to panic (been a smoker for 30yrs)
I also feel as if my heart is fluttering which ironically actually gives
me hope It's a small pulmonary embolism and not the dreaded C. I suppose
you have to laugh.
Anyone else with a dvt for no reason worried? I read that in 10% of over
40's a dvt is due to an underlying cancer (especially lung). It's scared
the hell out of me.

2 replies...

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