DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Lovenox and fatigue?
Posted by zara
Last Reply September 4, 2017 at 22:50
Started January 11, 2007 at 23:53
I am wondering if others have found fatigue to be a side effect of Lovenox injections? This is my third time doing the Lovenox injections but the other times I stopped at 10 doses/shots. This time I am on about my 14th shot of a 20-shot course and I am SO TIRED. It's not like a sleepy, not enough rest tired, I just want to lie down all the time, almost like having a mild case of the flu. I was wondering if others have experienced this.

34 replies...

Could i calm down?
Posted by Jett
Last Reply September 4, 2017 at 10:59
Started August 23, 2017 at 13:42
2 weeks ago i had pins and needles below my knee down to my
foot...it wasn't major but a weird tingly sensation...so went to
ER and get ddimer and full leg scan and both were negative....the
pain progressed to actual calf pain and then ankle pain (as if i
sprained my ankle) so i saw a cardiologist that also handles
vasular problems...she doesn't see it as dvt and after i begged
her for one more scan, she won't do it...

The pain has now gone up to my groin...i feel pain in the side of
my calf, back of thigh, inside groin...ankle pain is gone but i
get shooting dull aches in my calf, thigh and groin every so
often.

should i trust the testing and could it possibly be a pinched
nerve? Or should i just go to another doctor that will can me?

1 replies...

Help
Posted by Lee
Last Reply September 2, 2017 at 16:27
Started August 30, 2017 at 20:37
A few weeks ago my ankle doubled in aize and was really itchy. I assumed
it was an insect bite. Prior to this 2 weeks before I went to the
hospital as my foot and ankle were causing a lot of pain and discomfort.
The xray showed there was no break.

6 weeks on and I still have a pain in my foot and ankle. Could this be
DVT? I fly long haul in two weeks and am now paranoud something baf will
happen. Any advice would be welcome

1 replies...

MAY-THURNER SYNDROME FORUM
Posted by Diane
Last Reply September 1, 2017 at 21:57
Started February 2, 2008 at 02:46
Hello to all posters who have shared their diagnosis of May-Thurner Syndrome.

I am thankful to this forum for bringing us together, but it has become clear to me that we need our own forum. Our MT situation is quite rare and because there are many unknowns that continue to trouble each of us about our future, such as the longevity of our iliac vein stents, I feel we need our own forum.

I have developed an easy to navigate forum that is by invitation only. All you have to do is send me your e-mail and a brief description of yourself (name and city/country) and I will send you an invitation to our forum. It is on Google Groups so if you are serious about joining it wouldn't be a bad idea to join Google Groups first as it is our umbrella website. Easy to sign up.

My e-mail, dedicated to May-Thurner is: woodcreek12@aol.com
I look forward to hearing from you if you are interested in joining our unique support group for May-Thurner Syndrome.

43 replies...

Warfarin
Posted by Madeleine
Last Reply September 1, 2017 at 15:40
Started May 28, 2017 at 07:31
Do the new anticoagulants, apixaban,dabigatran and rivaroxaban also cause hair
loss and interfere with hair colour.



1 replies...

D DIMER TEST
Posted by PAULINA
Last Reply August 30, 2017 at 14:08
Started August 30, 2017 at 14:08
HELLO EVERYONE,
I RECENTLY HAD AN ER VISIT BECAUSE OF CHEST PAIN, EKG WAS NORMAL,
CHEST XRAY NORMAL AND BLOOD WORK NORMAL INCLUDING D-DIMER. WELL THE
NEXT DAY I STARTED LEFT LEG PAIN/CRAMPING. WOULD A BLOOD CLOT SHOW
IN THAT D-DIMER TEST THE DAY BEFORE EVEN IF I STARTED FEELING PAIN
THE DAY AFTER I WAS TESTED? MY PAIN IS NOT EXCRUCIATING, IT WAS
MORE LIKE A CHARLEY HORSE AND JUST SORENESS AFTER. I WALKED FOR A
FEW MINUTES AFTER AND IT HELPED WITH EASING THE PAIN. BLVD I WOULD
APPRECIATE ANY FEEDBACK. I'VE PLACED A CALL TO TALK TO MY DOCTOR
ALREADY AS WELL.
THANKS EVERYONE! OH FORGOT TO MENTION THAT I'M 39, BESIDES
ANXIETY, NO OTHER HEALTH ISSUES.

0 replies...

Elevated d dimer w/out cause??
Posted by Chris
Last Reply August 30, 2017 at 13:59
Started December 31, 2011 at 17:15
Hello eveyone. Thanks in advance for any advice. I'm extremely concerned about my g/f. Here's the story. I will try to make it fast. For the last several weeks my girlfried has had extremely elevated blood pressure and a rapid heart beat. We went to the ER last weekend where her BP was 215/115. Treatment was given and her blood pressure returned to non life threatning levels (155/95). She left the hospital with a rx for Lisinopril. The med seems to be working for the BP but her pulse remained at about 110-130 constantly. Well, yesterday at work she had trouble breathing and went back to the ER. Heart test came back normal (chest xray, enzymes, stress test). However, her D Dimer test was way elevated at 2.6. I believe normal is .50. So she was immediately rushed in for CT scan of the lungs cause they suspected a pulminary embolism. The CT scan came back clean. Today they are gonna release her and told her not to worry. No blood clots, or DVT (although they did not test). The doc says... read more

82 replies...

Bad leg pain
Posted by Glynis morgan
Last Reply August 29, 2017 at 06:08
Started August 29, 2017 at 06:08
Hi I take warfarin for blood clot in lung and 3in my leg I
would like to know it I can take quinnin as legs are very bad
at night

0 replies...

Stents in the Iliac Vein and exercise
Posted by Donna
Last Reply August 29, 2017
Started April 20, 2008
Hello,
Are there any restrictions to do strenuous exercises if you have stents in your Iliac Vein (Abdomen)?

15 replies...

shortness of breath on coumadin / warfarin
Posted by Claire
Last Reply August 27, 2017 at 23:20
Started May 14, 2010 at 01:56
has anyone noticed a shortness of breath being a side effect of being on
warfarin/ coumadin ? this happens to me sometimes, it really started after I had a
panic attack & that awful feeling of not being able to catch my breath freaked me
out. I know I can breathe because when I'm busy I forget about it.
it's horrible .

11 replies...

Skin Lump at Injection Site
Posted by Jeannette
Last Reply August 26, 2017 at 16:22
Started April 9, 2008
Is anyone familiar with this side effect from subcutaneous injections? I have been on 1st Lovenox for 1 week and then Fragmin for past 3 weeks, and am injecting myself in my stomach. I noticed after one bad bruise, a small, round, hard lump formed under the skin. It is tender to the touch, and has not gone away after a couple weeks. Then yesterday I got a bad bruise after an injection in another site, and now I have a 2nd lump in this new location. Am I doing something wrong? Or is this a normal side effect? Do you know if they go away? Compared to my DVT/ PE symptoms, this isn't a huge concern (LOL), but am just wondering if anyone else has experienced this or knows how to prevent? Thanks to all.

86 replies...

Leg pain for months
Posted by Jt
Last Reply August 25, 2017 at 11:08
Started June 2, 2017 at 11:23
Hello I am a 22 year old male. Since early January I've had pain in my right leg
and foot. The pain moves. A lot of the time it's a stinging pinching pain on the
back of my knee. Sometimes a burning pain or ache in my calf. Sometimes a
throbbing pain in my buttock or a dull pain and/or tenderness in my groin or
thigh. Sometimes pain shoots into my heel or toes or top of foot. The pain is most
noticeable at rest but is also present during exercise and everyday activities.
Often my leg feels stiff and my calf feels more firm than the left which is softer.
Sometimes my right knee gets hot to touch as well, and I get a strong pulse in my
right foot.

A little over a month ago I was so scared of a clot that I got an ultrasound of the
entire leg. It came back negative for dvt and bakers cyst. I am at a loss, my
orthopedic says its sciatica but I have no lower back pain, no injury, and the
occasional tenderness/warmth/firmness/pain on front of thigh are not common ... read more

2 replies...

How long does it take DVT swelling to go down
Posted by Lucy G
Last Reply August 24, 2017 at 13:30
Started January 1, 2012 at 13:19
I developed a DVT in September after I sustained some serious knee
damage which left me very immobile. Despite me seeing the doctors
about it a number of times it wasn't diagnosed until I had a PE, about
4 weeks after the leg swelling started. They did a dopler scan and
said there was a clot behind my knee and started me on warfarin which
has delayed my surgery to fix the original knee injury. It is still
red and swollen (especially my foot) if I don't wear a support
stocking and the nurse at the DVT clinic said it would probably always
be a bad leg but that she wouldn't do a repeat scan. What I want to
know is whether it is likely to improve at all now or whether it will
be like this forever. Might it improve a little as the months
continue? I am hoping that once my knee is unlocked, that might help
but I can't get any information from anyone.

16 replies...

Could this be DVT?
Posted by cvc
Last Reply August 18, 2017 at 18:04
Started August 17, 2017 at 20:52
I'm 20 years old and female. About 3 weeks ago my calf on my left leg started scratching, I was out, wearing jeans and couldn't see what it was. When i came home there was a swollen light pink spot about 2 inches in diameter and the spot was warm.It eventually got really red and slightly bigger. I went 2 doctors and was told it was a bacterial infection. They gave me Fucidine ointment to use. After of using the ointment for a few days, the swelling went down and it got significantly lighter. However, there is still a mark on my leg, and I realize when I stand it gets a bit of darker, also if I press my finger on it, it gets lighter. As of now there is no pain. I'm still really worried. When I tell my mom she says it should go away within a month since the severity of the spot. Please help. I'm worried.

1 replies...

stubborn DVT = lifelong meds?
Posted by JK
Last Reply August 18, 2017 at 17:59
Started August 18, 2017 at 17:59
Hi all,
This is my second post on this forum. I was diagnosed with an
extensive DVT that starts behind my knee and blocks two veins in
my calf. The pain began while I was waiting for knee surgery (torn
meniscus) in March. An ultrasound before my surgery came up
negative, but 6 weeks after my surgery another ultrasound revealed
the mess. I immediately began taking Xarelto (30mg twice a day for
3 weeks, then 20 mg once a day ever since) and consulted with a
hematologist. It turns out I have Factor V Leiden (single
mutation). After 3 months on the Xarelto, a follow up ultrasound
showed that the clot had not changed. With that, the hematologist
referred me to a vascular specialist. 2 weeks later I met with the
vascular surgeon and his office performed another ultrasound.
Again, the DVT is still there and very much intact.

Long story short: Both specialists have recommended indefinite
anticoagulant therapy due to Factor V Leiden and the continued
presence... read more

0 replies...

Garlic prevents blood clots
Posted by Bob Anderson
Last Reply August 17, 2017 at 09:38
Started July 1, 2011 at 20:36
Garlic is a natural treatment that is very effective, inexpensive and has no real unpleasant side effects. Garlic is probably the best of all foods at inhibiting platelet aggregation; that is, preventing blood clots from forming.

People who eat garlic every day develop a natural ability to inhibit the formation of blood clots as long as the garlic is in their systems. When they quit eating the garlic, it takes a few days for the effects to wear off and then the blood clots normally again.

If one is taking Warfarin or any other anticoagulant, it is wise to inform your doctor you are eating garlic, especially if you eat a lot of garlic and that your prescription may need to be adjusted downward some to compensate. Your doctor can do a prothrombin time (INR) test to adjust your prescription. Same thing if you are taking garlic pills. Most doctors don't really understand how garlic works because herbal medicine is not taught in med school.

Garlic is not approved by the FDA for... read more

20 replies...

ultra sound test would it show blood clot?
Posted by bev
Last Reply August 17, 2017 at 02:33
Started January 23, 2010 at 13:49
Plz help at my wits end had severe calf pain for 3 weeks now had an ultra sound 10 days ago and came bk negative no clot. Should i b reassured by this?

47 replies...

work accommodations w/DVT
Posted by JK
Last Reply August 16, 2017 at 19:43
Started August 14, 2017 at 16:39
Hi all,

I am new to this forum. I was diagnosed with DVT in May. (It
developed either right after I injured my knee or after the
resulting knee surgery.) After 3 months on Xarelto, the latest
ultrasound has revealed no change. I see a hematologist and am in
the process of scheduling with a vascular specialist, as I am only
in my mid 30's and find it difficult to accept the prognosis of
blood thinners for life!

Anyway, I am an elementary school teacher preparing to return to
the classroom in just a few weeks. I plan on asking my doctor for
a note to excuse sneakers and to allow for time to sit and rest
throughout the day, both due to continued issues with swelling.
(Some administrators NEVER want to see an elementary teacher in
their chair!) I am wondering if I should also request air
conditioning, since my classroom reaches 80-95 degrees on hot days
and tends to get really humid, too.

Does anyone have advice or experience regarding requesting
acc... read more

1 replies...

Does exercise increase inr?
Posted by Kerri
Last Reply August 15, 2017 at 08:33
Started March 3, 2011 at 06:11
I have finally started exercising again but now my inr has shot up from 1.9 to
3.7. Could this be from the exercise?? Nothing else has changed??? Thanks :)

17 replies...

Increased heart rate on Xarelto
Posted by DeeDee
Last Reply August 15, 2017 at 06:42
Started May 11, 2014 at 08:22
Need some advice please cause now getting a bit scared. Was
diagnosed with PE March of this and have been put on Xaŗelto
for treatment. The problem I'm having is my racing heart beat.
I can't even walk up the stairs without being out of breath
and my heart thumping and feeling like it wants to come out my
chest. Before my PE i was very active but now I do nothing in
fear of having a heart attack. My last visit to my DVT clinic
I told them how I was feeling and was told it was nothing to
worry about but now I'm scared my hearts gonna stop. Has
anybody else had this experience. I just want to get back to
some form of normality as possible. At present I'm om 20mgs of
Xarelto a day and be up till about June this year but don't
know i can take these meds for that long and even more so if I
have to take them for longer.

Many thanks

5 replies...

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