DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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post knee surgery dvt prevention
Posted by kb
Last Reply September 29, 2015 at 09:47
Started November 12, 2009 at 22:39
Hello all...anyone have experience with DVT prevention measures before and after a knee surgery?
History: I had a DVT in my left calf, bi-lateral PE's, about a year ago. Did the coumadin treatment for 6 months and got the all clear. The cause of the DVT was a torn MCL in my left knee combined with long haul air travel. I got the MRI done this past spring to prove the tear, but my knee doctor wanted to wait until I was off warfarin before surgery. I decided to wait until summer was thru and now I am planning the surgery this December.
Since I have had a DVT now, I am concerned about getting another. Knee surgery's can be an easy cause of DVT's...of course we have an advantage of knowing and taking precautions. I believe I will be back on coumadin for a few weeks after surgery...just would like advise from anyone that might of gone through this and see your recommendations.
Thanks. kb

32 replies...

Thrombectomy Surgery
Posted by Heather Fiorillo
Last Reply September 28, 2015 at 13:05
Started September 28, 2015 at 13:05
I developed a DVT at the end of August. Due to insurance problems, I ended up
not scheduling the thrombectomy till 3 weeks later. I lived with swelling and pain
until I couldn't stand it anymore. I went into the ER a week before my scheduled
surgery and found out the clot was larger. I was on xerelto, don't think it was
working well 😓 they did a day of dripping clot buster medicine in the vein, they
next day they went in to remove the clot. It was much larger than they had
originally thought so they stopped surgery and scheduled it again for the next
day. They said it was a success, all the clot was removed and two stents placed.
The next day things started going downhill though. I wasn't able to move my leg
at all. They took me off my heparin IV and did a shot of lovanex in my stomach. A
couple hours or so later my stomach started to feel tender and swollen. They did
a cat scan and discovered I was bleeding internally. My levels were also so low
they... read more

0 replies...

T-Complex Try creating an illusion
Posted by T-Complex
Last Reply September 28, 2015 at 05:24
Started September 28, 2015 at 05:24
T-Complex Try creating an illusion that you are bigger than you actually are. You can achieve this by focusing your training efforts on your chest, shoulders and upper back. By doing this, you can cause your waist to appear smaller than it actually is, which can also make you appear to have greater size. Plyometric exercises are a great way to build muscle. These particular exercises let your body develop the fast-twitching muscle fibers that encourage growth of muscle mass. Plyometric exercises are a different kind of exercise that rely more on acceleration than strength. For example, when you're doing plyometric push-ups, you let your hands jump from the floor to explode as high as possible.

Read More >>> http://www.muscleperfect.com/t-complex/


0 replies...

Tattoo - Coumadin
Posted by Figboot
Last Reply September 26, 2015 at 15:16
Started September 26, 2015 at 15:16
I've been on coumadin for thirty years (DVTs). I currently wear a
"Coumadin" bracelet and would like to replace it with a "Coumadin"
tatoo. Where should that tatoo be placed?


0 replies...

Tattoo - Coumadin
Posted by Figboot
Last Reply September 26, 2015 at 15:15
Started September 26, 2015 at 15:15
I've been on coumadin for thirty years (DVTs). I currently wear a
"Coumadin" bracelet and would like to replace it with a "Coumadin"
tatoo. Where should that tatoo be placed?


0 replies...

Should I be worried?
Posted by Katie
Last Reply September 26, 2015 at 11:15
Started September 23, 2015 at 17:15
Wondering if anyone can offer insight: I am 5 weeks postpartum and have been experiencing some leg pains. Two weeks ago I called my GP because I still had cramping/pain from a charlie horse a few days ago. He told me to go to the ER. At the ER they did a US doppler and said negative for clots.
My calf started to get a little better, but still had some tightness/uncomfortable in certain positions.
Last Thursday, I went back to the ER as I had been experiencing pain behind my knee. A tightness/achiness that wouldn't go away. Another scan, again negative. The next day my leg felt a little better, but then was back to the same after that. Until today. Today I barely notice it, although my leg still feels "funny". I have also been experiencing some thumping/spams in both legs, more in the one in question.
I am also having shortness of breath doing regular things and chest tightness and fast pulse. I think this is due to anxiety.

I am so scared that I will go to bed and have a pu... read more

3 replies...

Fever from 7 days
Posted by Ishtiaque Ahmed
Last Reply September 26, 2015 at 09:55
Started September 26, 2015 at 07:53
I am DVT patient left leg.I have
fever from 7 days.so what tablets can
I use.

1 replies...

New DVT 7 years later
Posted by Karen
Last Reply September 26, 2015 at 06:03
Started September 20, 2015 at 19:48
Had DVT in calf in 2008 after long surgery and week in hospital, ended up getting PE's also, (they say I kind of cheated death). Had a vena cava filter and was on warfarin for over a year. Now out of the blue, no good reason, no long travel still moving, walking and I get 2 DVT's in my ankle, 7 years later. Back on warfarin, PC dr. thinks I should be on blood thinners permanently. Not sounding good to me, I prefer not to. Did I get these because veins are never normal again, do filters cause clots or I have something new, blood disorder, cancer? Thoughts?

1 replies...

Dvt malpractice suit
Posted by Ronald
Last Reply September 23, 2015 at 18:39
Started March 30, 2008 at 22:11
has anyone try to do a malpractice suit after having a massive DVT.could you please E-mail me with any results at
rblaski@verizon.net

28 replies...

Leg cramps
Posted by Juliet
Last Reply September 20, 2015 at 03:52
Started June 29, 2009 at 23:14
Hi all, recently ive been experiencing some painful cramping in my left thigh. The pain
goes from the top of my knee and shoots up my thigh, the cramp always seems to be
there, although it peaks and its very painful. Its always in the one leg, the right one,
which is were my large clot was. It got so bad, i was crying last weekend and ended up
in A&E, they told me it was muscular and to go home and take some paracetamol. Ive
had the pains again yesterday and today. Im on Warfarin for life. Im just wondering if
anyone else has experienced this type of pain? Thank you.

11 replies...

Heparin and Warfarin not working
Posted by Scott F
Last Reply September 18, 2015 at 18:48
Started January 7, 2011 at 21:06
I was diagnosed with a DVT 12 days ago. I have been taking the 10mg heparin shot daily and 5 mg of warfarin (we've upped my warfarin to 10 the last 3 days). I've had my INR taken three times in the last 8 days and each time my reading was 1.2. It has not changed. The nurse at the CardioVascular Surgeons office I've been going to doesn't know why nothing has happened but says to change to the brand Coumadin and up dosage to 12.5. I am still taking heparin shots 12 days and the INR hasn't changed. Has this happened to anyone else? Does anyone know why this happens? I'm not extremely concerned, but it is an aggravation.

12 replies...

INR - Please help
Posted by Abbi Cooper
Last Reply September 17, 2015 at 23:41
Started September 10, 2007 at 20:03
Am all new to this, have had my 1st blood test and warfin introduction today and have been told my INR needs to be between 2-3 and its today its 1.6, is this a long way from 2 or quite close, am on 10mg of warfin for the next two days and fragmin every night, blood test again on Wednesday, any advise gratefully received, thanks.

60 replies...

DVT or PTS?
Posted by k
Last Reply September 17, 2015 at 16:34
Started September 15, 2015 at 07:47
In 2011 I had a knee to pelvis DVT which was put down to
pregnancy, bed rest and a flight 3 days post partum, I was on
warfarin for 15 months and since then have had no real problems
yet the swelling never went down, with the left leg being 1inch
bigger than the right and slightly discoloured.

In the last few months as it was 4+ years later I stopped wearing
compression socks as much and my leg started aching more, so I
bought new ones a few weeks ago. However in the last few weeks
despite wearing them I've still had quite a bit of pain. In
general unless raised my leg is feeling heavier and quite achy
compared to the other and on occasion there is a sharp twinge,
which quickly comes and goes. Once I raise my leg the
heaviness/aching mostly goes away. I've measured my legs and its
still the same 1 inch difference so no increase. Is this likely
to be another DVT or PTS starting?

2 replies...

How long for vein to return to normal?
Posted by Rincer
Last Reply September 17, 2015 at 13:04
Started September 17, 2015 at 13:04
A couple months back I had what I think was an episode of SVT. I had swelling
and redness on top of my foot that was tender to the touch, at the time I
thought it was because my new running shoes were too tight so I didn't go to
see a Dr, but just applied some cold compresses and went back to running in
my old shoes.

After a week or so the pain and redness went away, but I could feel what felt
like a thin 'cord' just under the skin going across one of the bones in my foot
where the swelling was.

Now a few months later that 'cord' is still there and after doing some reading I
realize that it is the inflamed vein.

My question is if it was SVT does the fact that there is no pain or swelling
anymore mean it is resolved? And would my vein ever get back to normal and
if so how long would it take?

Thanks

0 replies...

Venowave -- PTS scam or solution?
Posted by zpg
Last Reply September 16, 2015 at 12:42
Started October 27, 2010 at 13:41
This is a serious request for experienced advice preventing PTS and the Venowave.

I was diagnosed with a DVT a few weeks ago after doing too much long haul driving. As most of you know, there was a lot of initial pain and bed rest combined with the ususal heparin (5 days) and warfarin (ongoing for 6 months). I am thrilled to be feeling almost normal after just three weeks. However, when I try to stand or walk for any length of time (over 5 minutes), it is clear my ankle and foot are not draining as well as they should - and a little uncomfortable.

A support stocking helps wonders, but after a couple of hours it gets itchy and I am developing a slight rash. I am worried about the possibility of PTS and ulcers etc., leading to my question about the Venowave.

I've seen multiple posts throughout this forum touting the Venowave for prevention of PTS. The posts are in many cases duplicated/identical across several threads, by the same one or two authors, and written in a to... read more

44 replies...

DVT AFTER 5 YEARS
Posted by D
Last Reply September 15, 2015 at 03:12
Started December 12, 2009
Its been five years since i developed a left lef calf dvt and a right groin dvt. Was treated with warfarin for 6 months then treatment finished

I was told i wouldnt need any more treatment and should be fine and they didnt even do an ultrasound scan

Moreorless the whole time, ive had a lot of pain and swelling in both legs, and dreadful discolouration in my feet. Ive now got vascular excema dots all round my purple feet

My GP didnt take my concerns seriously but i pestered him enough that after about 18mths, he refered me back to vascular surgery

They immediately said, oh its post thrombotic syndrome and we cant do much about it. Come back in 6 mths

After my symptoms became much worse, the next time i went they done a duplex scan. They found ive developed more clots in my main leg vein and was having trouble pumping blood back up my leg as there are some valves damaged in my main vein

So i was surprised when they told me it was chronic dvt and there would be no med... read more

10 replies...

1ST TIME DVT
Posted by ROSEYROSE2000
Last Reply September 13, 2015 at 07:36
Started September 13, 2015 at 07:36
MY husband has a dvt in his leg.(calf.) He has had it now for 2 weeks, was hospitalized for 1 week and inpatient rehab 1 week. he is still in severe pain and swelling, walks with a walker very slow. is this normal? i was assuming the severe pain would go away. Its gone from a pain scale of 20 to a 10, but still severe pain. he is on coumidan now and his inr is 2.8. From all that i have read, this is a long-term painful process, but i am afraid since its so sever that he may develop post thrombotic syndrome. Please help me understand this as i am having a hard time grasping this and so is he. He get out of rehab today and we both feel hopeless, although i am trying to stay strong!!My husband has had a bad back for 15years and finally has surgery.(he is 52). However i truley think this blood clot was preexisting because for a couple of months his calf has been tigh and hurting.

0 replies...

pain does it ever go away
Posted by cathy
Last Reply September 13, 2015 at 06:54
Started September 14, 2006 at 11:17
hi there i am 34 an took my 1st dvt at 16 then another at 24 and the 3rd at 33 my question is does the pain ever go away i find i cant walk more than 5 -6 metres without my leg being painful my leg is still about 3 inchs bigger than my other and my foot is larger and very swollen i am on warfarin 18 mg daily and live in the uk

11 replies...

waxing and DVT
Posted by debbie
Last Reply September 11, 2015 at 15:46
Started August 10, 2009 at 14:30
Hi
Just wondering if anyone has experiences with waxing whilst on Warfarin? Prior to my DVT I used to get my eye brows waxed - have gone back to plucking since then as I am too scared to get them waxed in case I get massive bruises on my face! Is this just me being totally silly??? What are people's experiences with waxing?
Thanks

10 replies...

Tooth extraction while on warfarin/coumadin
Posted by Michael
Last Reply September 10, 2015 at 23:10
Started October 30, 2008 at 14:14
Hi guys,
Just want to know if anyone of you had experienced tooth extraction while on warfarin/coumadin? Is the risk of bleeding too high?
Because I have a severely painful tooth which I wanted to be extracted asap. I am on my 3rd month of warfarin. My hematologist wants me to finish to 6 months.
Thanks!
Michael


72 replies...

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