DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Posted by Slimera
Last Reply August 25, 2015 at 07:18
Started August 25, 2015 at 07:18
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0 replies...

Clexane
Posted by Peter
Last Reply August 23, 2015 at 12:37
Started August 23, 2015 at 12:37
My wife has a Clexane injection every 24 hours, here in UK at 6pm. Soon flying to
Florida, they are 5 hours behind us. How should we adjust the timing going out,
while there and on our return?

0 replies...

lovenox, warfarin, and birth control pills
Posted by Amber
Last Reply August 21, 2015 at 01:46
Started August 21, 2015 at 01:46
I had back surgery on July 8, 2015. I was diagnosed with a DVT the following
Thursday. I then found out August 18, 2015 it had gotten bigger. I went to a
vascular surgeon that stated taking birth control pills was ok to take because I am
in a "therapeutic stage" I am taking Lovenox shots every twelve hours and 10mg of
Warfarin every night. I have always heard NO to any birth control hormonal
treatments after a DVT. Can anyone help?! Have you heard this is ok?

0 replies...

Pls Explain
Posted by Bharati
Last Reply August 20, 2015 at 22:08
Started February 24, 2009 at 04:26
Hii Friends
I got Low INR In my last blood checkup. [ 1.4 to 1] now after changing my tablet into 5 mg it showed two days back my INR as 1.7
i was totally avoided carrot and root items and spinach and took plenty of water and glucose also perday two times [ totally 8 spoons glucose]. i kept watching my diet without rice much and i took chapati instead. within 8 days i got result as 1.7. my question is due to my tab5mg or due to my diet? really dont know the logic of this DVT. i m willing to work soon. so naturally i have to be away from my family and will have outside food. so i need some suggestion regarding food taking from outside. will it affect my INR level? if anyone comeacross any problem like this pls let me know.
thanks in advance.

11 replies...

vara carva geenfield filter
Posted by diana smithson
Last Reply August 20, 2015 at 10:57
Started March 13, 2009 at 05:39
Just before I was to go in for surgery to have a breast cancer tumor removed, we discovered I had a blood clot in my right calf. I started blood thinners right away and postpone the surgery two weeks.
Before I was wheeled into surgery I was to have a greenfield vara carva filter installed to catch the clot if it started to travel to my lungs and heart during surgery. The non-removeable filter did not open. Another one was installed and opened. They did a scan on the filters after the surgery to see the loudge placement of both filters.
Then 5 months later they looked at the filters again and the unopened filter had not moved. I am limited in activities the rest of my life as not to jar the filter and it spring open to rip the vein.
I am on coumadin since the surgery March 18 '08. I have all the nasty side effects and unreal pain in my lower back and legs, toes..I feel awful every morning..They say I am cancer free but keep me on the coumadin..my levels have been good the las... read more

24 replies...

DVT and damaged veins
Posted by Alison
Last Reply August 19, 2015
Started October 19, 2010 at 04:44
Hi again
As per my previous post - i was diagnosed with DVT 2 months ago.
I have just noticed that on the back of my leg above my knee i have an area about 1 inch in diameter which looks like varicose veins. In addition to the dark blue vein, the skin would appear to be indented as opposed to sticking out as with a varicose vein.
Have anyone else experienced anything similar - should i be concerned?
Thanks in advance
Alison

10 replies...

what meds to use for chronic pain
Posted by Linda
Last Reply August 16, 2015 at 12:29
Started August 11, 2015 at 18:08
Hi everyone,
Haven't posted here in a long while. I had my first DVT in 2002, second in 2012 and today was diagnosed with DVT #3 which came as a complete shock and surprise as there doesn't seem to be any reason for another clot to have developed.
Anyway, I have chronic pain in my knee and have been taking two Aleve every day in order to cope with the pain.
I know that I will not be able to take Aleve or ibuprofen.
Tylenol just doesn't cut it.
Any suggestions?

2 replies...

Any alternate for warfarin for DVT & Hughes
Posted by kelly
Last Reply August 16, 2015 at 12:20
Started March 27, 2015 at 16:32
Hi, I am 28 years old, after 2 severe dvt incidents and
pulmonary embolism, I was detected with anti phospho lipid
antibody syndrome or hughes syndrome.prescribed lifelong
warfarin.i would like to know if there are any alternates to
warf.i am getting planning to get married and start a family
soon. Any solutions? Pls suggest.

1 replies...

DVT/PTS and Running (Advice?)
Posted by Rob A.
Last Reply August 16, 2015 at 02:02
Started August 9, 2015 at 17:40
Hi all,

I was diagnosed with a DVT in May of 2015. When I try to run, I go roughly 1/2 mile and my leg is swollen, tight and difficult to run. Does anyone have any suggestions? Thanks!

3 replies...

Calf Pain After Warfarin
Posted by Karen
Last Reply August 15, 2015 at 16:27
Started February 24, 2011 at 22:42
I had a DVT in my left thigh back in October. I spent 4 months on Warfarin and stopped taking it just 2 weeks ago. At the time of the DVT, I had a horrible pain in the calf. A blood test and ultrasound were done and the clot discovered. Now, 2 weeks after stopping Warfarin, I'm experiencing some nagging cramping in my left calf. Certainly not the kind of pain I had at the time of the clot, but naggy enough to make me worry. I understand I will have some pain in the thigh from scar tissue and maybe some swelling and pain in the ankle from the poor circulation, but this feels different from those. Has anyone else experienced this? Thanks!

2 replies...

Question about dvt
Posted by Njoy704
Last Reply August 13, 2015 at 19:12
Started August 11, 2015 at 13:38
I've been having some pain in my left leg
for 5 days now. It started out as a very
mild calf cramp after waking. I figured it
could be due to dehydration so I drank a
lot of water and gatorade. The cramp
seemed to have gone away. I even went to
the gym the next day to walk on the
treadmill. The following day I had what
felt like sciatic pain... still was able
to walk around the mall but was limping
around. My leg felt better the next day
after resting but it's been getting random
pains from back of the knee , inner thigh,
groin, and on top of thigh. Muscles also
seem to twitch. I'm able to walk on it, no
swelling, no redness and can bear my
weight on the leg. I was worried so I
ordered a d dimer test for myself. The
results were negative at <0.2 the normal
reference range is <0.5 ... so I'm way
below. My worry is that I was on a 4 hr
plane ride 3 weeks before my leg pain. I
made sure I got up and stretched my legs
though every 30 mins to... read more

1 replies...

Timeline
Posted by Laura
Last Reply August 13, 2015 at 19:02
Started April 25, 2015 at 19:21
Two weeks ago, I woke with a leg double its size and toes turning blue. Since
then, the swelling is coming somewhat down because of the Lovenox and
Celebrex. I still cannot wear any of my previous shoes though since my foot and
leg are still huge. Question: for a healthy 34 year old woman with a blood clot out
of the blue, how long can I expect my leg and foot to go back to normal?

2 replies...

First DVT - How long to stay on warfarin?
Posted by Marie
Last Reply August 13, 2015 at 18:57
Started December 10, 2014 at 19:11
I've been diagnosed with my first DVT in my left leg, and I was wondering how long do people usually stay on blood thinners with their first DVT diagnosis? I am worried about possible future blood clots. And I would rather stay on warfarin than stop taking it and end up having to go through the process of diagnosing a new clot later on.

5 replies...

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Last Reply August 12, 2015 at 01:35
Started August 12, 2015 at 01:35
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0 replies...

Extensive DVT and PE question.
Posted by Jenny
Last Reply August 11, 2015 at 08:59
Started August 11, 2015 at 08:59
Hi everyone
This forum has really helped me in understanding more about DVTs. So thanks to
all of you! I was diagnosed with a DVT in my left leg, beginning at my knee and
extending all the way above my belly button, in oct 2014 (I was 30 yrs). It is
concerned to be a very large and extensive one. I was pregnant at the time, and
so couldn't recieve the standard intervention. My baby was also born very prem
so I was on clexane for about seven months (because I was breastfeeding). I then
moved over to warfarin. After about five weeks they could not achieve adequate
inr levels despite being on a very high dosage. I also had some pretty bad side
effects and so my doctor decided to stop all treatment as I had been treating the
Dvt for 9 months. The Dvt has healed in my leg, however it has stagnated and
remains from my groin upwards, showing no improvement. This past weekend I
had a "small PE". I had severe shortness of breath, felt as if someone was
standing on my... read more

0 replies...

bunching on ankles of compression socks
Posted by compression stocikings
Last Reply August 10, 2015 at 17:28
Started July 29, 2015 at 07:49
I was diagnosed with dvt in my left leg last
October but am only now getting compression
stockings. I was just looking for some advice..my
socks are bunching when I stand on the bend by
the ankle on top of the foot. Is this ok or have
I got incorrect sizing? Also I wear stockings on
both legs even though only my left was diagnosed
with dvt is this safe to do?
Many thanks


4 replies...

What to ask the Doctor
Posted by Lore
Last Reply August 6, 2015 at 15:47
Started May 2, 2008 at 07:41
Hi,

I had multiple DVTs in my left leg and a PE at the beginning of March after a flight and while on low estrogen birth control pills. I am going to a follow up appointment with the cardiologist from the hospital tomorrow in order to get the results from all the tests they ran. I would like to make sure to check that they have covered all the testing I need. If anyone has suggestions as to what I should ask about please let me know.

So far I plan to be sure that they checked for:

May-Thurner syndrome
Factor V Leiden

Anything else?
Thanks,
Lore



7 replies...

Leg swelling and diet.
Posted by Jeff
Last Reply August 3, 2015 at 21:17
Started August 3, 2015 at 21:17
Hi, I had four clots in my left leg back in 2007. I eat a very healthy
diet and get regular exercise from strenght training and cardio. On the
rare occasions I don't eat healthy ( holidays,receptions, or party's) I
get swelling in my left leg. Mostly in my foot and ankle. For the next
day or two it feels like I am walking on a pillow. My diet is normally
pretty low in sodium, I can only link this swelling to higher sodium
days and only in my left leg. Can anyone relate or have ideas of what it
could be?


0 replies...

2nd DVT in 11 Months & Possible PE? Grrr...
Posted by Brian S
Last Reply August 3, 2015 at 19:27
Started August 3, 2015 at 19:16
Hi all,

I am 30yrs old and my dad (63) & brother (33) have both had blood
clots and were tested positive for Leiden Factor V, so last year at
the end of August when I was getting my blood drawn I mentioned to the
Physician's assistant that I'd like him to order a test for Leiden
Factor V as my brother and father both had it so I just wanted to see
if I had it or not.

That was a Monday I believe. The next morning I woke up with the worst
"Charlie horse" I'd ever experienced in my left calf. I figured the
pain would go away and on thurday afternoon when it was still there
and had swelled quite a bit I made an appointment for friday
afternoon. The new PA I saw for the first time got freaked out when
she saw my leg and said I believe you have a Clot, I'm sending you
straight to the emergency room.

It ended up being a DVT in my left calf and I was put on Xarelto. Oh
and BTW, I did have leiden factor V which I found out from the DR a
week after the DV... read more

1 replies...

warfarin tablets
Posted by marino
Last Reply July 29, 2015 at 23:47
Started December 5, 2010 at 01:19
I was diagnosed with DVT 6 days ago and put on clexane 80 mg. twice a day for 10 days. i do not trust the doctor who saw me because twice he wanted to send me home for a leg pain and slight swelling. If my wife did not push for an ultrasound the DVT would not have been found and i might have just ended up dead. I will have another appointment to my regular doctor this monday.
when should the doctor put me on warfarin treatment? in the leaflet it says within 72 hours with clexane but the stupid doctor told me it means 72 hours before the last dose of clexane. also how about the blood test monitoring? i know it is very important because i might have too much and bleed.

17 replies...

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