DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Normal Post-DVT Condition?
Posted by Bryan
Last Reply July 29, 2015 at 23:22
Started January 28, 2011 at 05:14
I had deep vein thrombosis in one of my legs six years ago. I have been quite active, aerobically, since that time -- as I certainly was before the clot. I run several miles a week, and have for years. But there is still a problem.

I was told, by health care professionals, that my leg would "probably" never be the same again, after the clot. And, well, my leg hasn't been the same, either. My leg will "shrink" back to its normal size when I go to bed at night; but then, after I wake and am up and about for just a little while, my leg starts to swell -- and the bruising, which I've also had since the clot, starts to darken (and may even be expanding).

Tell me, please, if anyone can, is this truly a normal, post-DVT condition? Will I have this swollen, bruised leg for the rest of my life? Any light that can be shed on this will be greatly appreciated.


7 replies...

Thrombophilia screen/ Pradaxa
Posted by Rob- UK
Last Reply July 29, 2015 at 19:55
Started July 13, 2010 at 12:51
I have been on Warfarin since January this year, and it looks as if I will be kept on it until the haematologist decides it is 'safe' for me to come off it so he can undertake a thrombophilia screen. He believes that there may be a family history of clotting that needs to be investigated-however, if I come off warfarin totally, am I not then at risk if I do indeed have a clotting problem? Is there not another test that can determine this without the possible risk associated risk of coming off warfarin altogether ?
Also, I was wondering if any of you have changed over to Pradaxa as an alternative to warfarin. I have approached my GP about this possibility if I should have to stay on drugs for life, but was not given a definitive answer.
Many thanks .

5 replies...

Lifetime blood thinner prothrombin II mutatio
Posted by Wendy
Last Reply July 28, 2015 at 15:19
Started July 28, 2015 at 15:19
Five months ago, I had a DVT related to being in a cast for a
dislocated ankle. Further testing showed I have the Prothrombin
II mutation, heterozygous. I have now been prescribed a lifetime
of Xarelto, which makes me very uncomfortable. I don't feel well
at all since starting on the medication. Body aches, fatigue and
have gained 20+ pounds but haven't had an appetite. All of that
plus ther is no antidote in the case of excessive bleeding. I am
wondering if after only one event (I am 47 years old), what are
the chances of a reoccurrence if I stop the medication. Over the
years, I have had 12 knee surgeries, 2 abdominal surgeries and
have been on birth control pills and have never had a blood clot!
I have gone from being a very active former professional athlete,
to feeling like I am 90 years old! Help!!!!

0 replies...

If you heard about the Weight Loss System
Posted by Andrew Hughess
Last Reply July 28, 2015
Started July 28, 2015
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0 replies...

Sodium triiodo-L-thyronine
Posted by tcsgroupk
Last Reply July 27, 2015 at 05:59
Started July 27, 2015 at 05:59
Thyroid hormone drugs are natural or synthetic preparations containing tetraiodothyronine (T4, levothyroxine) sodium or triiodothyronine (T3, liothyronine) sodium or both. T4 and T3 are produced in the human thyroid gland by the iodination and coupling of the amino acid tyrosine. T4 contains four iodine atoms and is formed by the coupling of two molecules of diiodotyrosine (DIT). T3 contains three atoms of iodine and is formed by the coupling of one molecule of DIT with one molecule of monoiodotyrosine (MIT).

Both hormones are stored in the thyroid colloid as thyroglobulin.

Thyroid hormone preparations belong to two categories: (1) natural hormonal preparations derived from animal thyroid, and (2) synthetic preparations. Natural preparations include desiccated thyroid and thyroglobulin. Desiccated thyroid is derived from domesticated animals that are used for food by man (either beef or hog thyroid), and thyroglobulin is derived from thyroid glands of the hog. The United... read more

0 replies...

Enhance weight management
Posted by White Kidney Bean Extract
Last Reply July 25, 2015 at 06:52
Started July 25, 2015 at 06:52
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0 replies...

Compare side effects of warfarin
Posted by Amandajane
Last Reply July 24, 2015 at 13:23
Started November 14, 2008 at 07:16
Hi everyone,
I read all the time how you guys dont feel well on warfarin. I have been on it for over 5 years and dont suffer from it. I am curious to know what your side effects are. I used to get alot of headaches in the first year or so but not so much any more. About the only side effect I have now is the fear of a brain bleed!
Amandajane Queensland

21 replies...

DVT Discovered last night!
Posted by Abbi Cooper
Last Reply July 22, 2015 at 13:01
Started September 5, 2007 at 17:57
Hello, I just found this site, I have had a very sore claf for 3 days and last night my partner came home from work and looked at it and said it could possibly be DVT, I phoned NHS Direct who asked questions and then advised me to go to A&E which I did and was seen immediately! They think its DVT as I had blood test which came back positive to thickening blood and have FRAGMIN to inject each day into my tummy, I have to go on Friday for a scan, can anybody tell me what will happen after the scan etc etc? Thanks very much, Abbi -

12 replies...

Going to doctor for calf pain?
Posted by LaurenR
Last Reply July 21, 2015 at 13:12
Started May 13, 2010 at 09:48
I'm wondering if anyone who has been diagnosed and had calf pain can help me.

I woke up yesterday morning and my right calf felt extremely sore. At first I thought
that I had just pulled something but as the day went on it got worse and now I am
having serious trouble walking. It feels like I need to stretch it but it only makes it
worse. It also hurts when I press my calf. It doesn't feel like the cramps you get when
you're low on certain vitamins, etc. And I haven't exercised recently (seeing as my
finals start tomorrow) so I know I didn't strain anything while running or anything.

I was thinking of going to the doctor because I am on birth control pills and I know
that that could be something that puts me at risk. The only thing is that I do not have
any other symptoms, besides the increasing pain. No redness, noticeable swelling, etc.
Do you think that going to the doctor is too premature seeing as it has only been two
days? Has anyone had these same s... read more

10 replies...

Warfarin Weight Gain
Posted by Claire
Last Reply July 21, 2015 at 04:41
Started June 2, 2014 at 06:44
I have visited this site a number of times throughout my treatment and have found it such a comfort to not feel alone. I believe that there is not enough information out there for people going through the diagnosis, treatment for DVT. I am a mum of two, 41 years old, non smoker usually slim and active I have been on Warfarin since Dec 13 following a large DVT in my right calf. It took a long time to get my INR stable. I am so relieved to read all of this -
The worst thing for me has been the fatigue and joint pain, my knees, hips and lower back all give me a lot of trouble - I feel about 100 years old some days. Initially I lost weight but now think that that was the shock and stress of being diagnosed. I am due to end my treatment this week and cannot wait for the day to arrive. I have gained at least 30 pounds and my breast size has also increased considerably. I have always been slim and can only describe the feeling as being unbelievably bloated and uncomfortable. I am hopin... read more

1 replies...

Blood clotting disorder
Posted by Savannah
Last Reply July 20, 2015 at 02:31
Started July 20, 2015 at 02:31
Hi I am 18 years old and I had a DVT back in January that ran from my calf to the
base of my vena cava. They removed it through surgery and now I am taking
xarelto and wearing compression socks. When they did the surgery they found
out I had May thurners syndrome and now I may have to get stints put in my leg.
My doctor wants to test me for lupus anticoagulant and I was wondering if
anyone else was or is getting tested for this and if they have any symptoms. I
always feel light headed and I have the purple laced skin rash that I think is called
livedo reticularis (I know I spelled it wrong) it's on my hands feet and thighs. I
also have been having heart palpitations lately and I passed out the other day.
Can someone please help me if they have this disease or know someone with it.
Thank you. Ps I go to the doctor soon

0 replies...

stiffness
Posted by Dolores
Last Reply July 20, 2015 at 02:16
Started July 13, 2015 at 18:59
Hi,
I had a dvd 2 years ago. Took warfarin for 6 months. My leg still
swells, although not a lot. Well, it's enough to bother me, I guess:(
The big problem here is stiffness. Around the calf area, the DVT leg
is stiffer than the "good" leg, so it looks more swollen than it
really is. When I wake up the legs seem almost similar but with the
hours going by the DVT calf gets kind of hard and it seems that my
right leg is really swollen:( I wear compression stockings during
Autumn and Winter but now (here) it's Summer, I can't stand them! And
I don't feel good walking with a swollen leg. I'm only 23 and I love
shorts and short skirts...Will this get better? Is there something I
can do to help?
Thank you so much.

3 replies...

18 and had my first DVT
Posted by chloegawlik
Last Reply July 20, 2015 at 02:10
Started April 10, 2015 at 16:52
I am 18 and I'm in my first year at uni and I had my first DVT in march. I was
diagnosed with two blood clots, one behind my left knee and the other in my left
thigh.
I was in a lot of pain and kept in hospital for 5 days whilst they figured out why I
got these clots. They narrowed it down to the fact I was on the contraceptive pill.
Fortunately i had a CT scan and they found that I had no artery from my left leg to
my heart, instead I have my own system of veins and arteries all around my body.
The doctors said this saved my life and otherwise I would of had to have had
surgery to remove or filter the clot.

I have now been on warfarin for 3 weeks and I have finally got into the range of
INR that they wanted me in. I have also finally started to be able to walk again
without pain and the pain has disappeared all together which fills me with hope
that my clot is dissolving.

The fact I cannot drink more than 3 units of alcohol for 3-6 months is upsetting as... read more

1 replies...

Heavy periods
Posted by Ivelisse
Last Reply July 19, 2015 at 08:57
Started July 19, 2015 at 08:57
Hello, I've been on warfarin since Nov
since then I have been getting my period
not once but twice a month this is
horrible the cramps are immense and the
flow is so heavy every time I get up or
even take a breath I feel it coming down
I'm so depressed right now can't catch a
break

0 replies...

Heavy periods
Posted by Ivelisse
Last Reply July 19, 2015 at 08:54
Started July 19, 2015 at 08:54
HellI I've been on warfarin since Nov
since then I have been getting my period
not once but twice a month this is
horrible the cramps are immense and the
flow is so heavy every time I get up or
even take a breath I feel it coming down
I'm so depressed right now can't catch a
break.

0 replies...

DVT - No signs?
Posted by Jimbo
Last Reply July 18, 2015 at 01:10
Started July 17, 2015 at 03:52
Hi all.

I've been having some very minor discomfort in my left leg.

I recently quit my job and then went to Vegas for a week. On the
way, I broke the drive up and stopped a few times. On the way
back, I just drove 5 hours straight to my house, no stops. The
next day, I had some tingling in my leg. Not really numbness, a
tingling feeling. That was two weeks ago. The last few days I've
had pins and needles type discomfort in the same leg, with sharp
pain coming on suddenly and then disappearing. Still, it is pretty
minor, not really too painful.

There is no swelling or discoloration. It is not at all difficult
to walk. I think I actually notice the discomfort much less when
walking.

Like I said, I am between jobs right now, starting a new one in a
few weeks. I have been laying around a little too much being out
of work and have been worried I might have developed a DVT.

A quick search tells me that many people with DVT's don't show any
symptoms ... read more

1 replies...

swelling
Posted by Erin
Last Reply July 16, 2015 at 14:46
Started August 17, 2006 at 15:51
looks like someone got spammed here...

In any event, I'm not experiencing pain anymore after being on this warfarin for two weeks but the swelling is horrendous! My ankle is three to four times it's normal size. ANy ideas how to get this swelling down? It sometimes feels as if my bones will bust through the skin if I take another step!

5 replies...

COMPRESSION HOSE
Posted by Diane
Last Reply July 16, 2015 at 14:30
Started August 9, 2008 at 22:30
Please see Pattymary88's post on compression hose use. Her thread is titled "back from the test" and it is very interesting. Pattymary has been advised against wearing them, in fact her hematologist called compression hose a "death sentence."

Has anyone else been told this? I responded to Pattymary on her thread, but I think we really need a whole lot of input on this subject. I am shocked by what her doc told her as I have not seen this opinion anywhere else and I have done a whole lot of reading on blood clots and May-Thurner Syndrome.

24 replies...

Standing after dvt
Posted by Pete
Last Reply July 14, 2015 at 18:39
Started July 14, 2015 at 18:39
Hi all
Would be interested in feedback of how long it took everyone to stand (
stationary) comfortably after dvt. I am 8 minutes months out- swelling is minimal-
clot is dissolved but still very quickly need to shift my weight to non dvt leg.
Waiting in a line is very difficult. Thanks in advance.


0 replies...

DVT full right leg
Posted by Marlye
Last Reply July 13, 2015 at 12:12
Started July 13, 2015 at 12:12
11 years ago I had a dvt in my full right leg. I have two stents in the groin area and I had it cleaned with surgery,I have been on werfen since then. The past 3 days my leg from the knee down has been tingling, feels like I'm being bitten but bugs. Should I contact my doctor and be concerned? This past Jan I did have a pulmonary embolism
Thanks for all help.

0 replies...

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