DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 43 of 237
at a loss of living
Posted by lisa
Last Reply March 21, 2015 at 23:01
Started March 17, 2015 at 14:54
This is my third round with having DVTs and now and have of it I have
PEs they are both legs and both lungs my right leg is in excruciating
pain they sent me home from the hospital in unbearable pain like it was
some joke I can't even make it to the bathroom I live alone and I feel
like I'm gonna sit here and alone I have nobody to go to my INR
appointments I've called everything I could think of to beg for help I
can't sleep at night or during the day because the pain. I hate to be
such a downer but my dad killed the south 10 years ago because of leg
pain I was so mad at him for doing it leaving but at this point I can
totally understand why he would want out of pain like this I just feel
like a chicken because I can't do it he did I was is one person out
there one Dr. One caregiver that could understand the pain that Im in.
While I was in the hospital my ex roommate stole my gun I'm starting to
wonder if that was a good thing or a bad thing because I swea... read more

3 replies...

rivaroxiban after bloods investigation for 2nd
Posted by donury236
Last Reply March 21, 2015 at 15:15
Started March 21, 2015 at 15:15
Got a letter today saying that they want me
back on the rivaroxaban asap due to the results
of the investigation.

I'm so upset as I ride- horses and bikes!its a
huge part of my life and I can't bear the
thought I'll never do either again!

I had 1st clot after a c section which healed
bad and left heamoragic sacks behind the wound
which leaked for a month...The I got the clot a
week later- on the scan I said it was extensive
and running from groin to belly button.... and
was laid up in bed for near 2 weeks...and on
warfarin for 3 months...then called and told
just to stop it. Nothing from Sept 2013 to a
ugh 2014 when I had a sore leg again....and low
and behold either a clot or scar in my
groin...right in there...not going to lie it
was so sore when they pressed to scan it I
almost kicked the guy.

So I was on rivaroxiban from Aug until end Jan.
..off for a month then the blood tests. 8 am
still not takin git.


I have no difference... read more

0 replies...

swollen cold foot ankle and leg
Posted by doug
Last Reply March 18, 2015 at 22:13
Started March 18, 2015 at 22:13
My boyfriend has a left swollen foot leg and ankle it is ice cold pain
up to groin and can't put pressure on it

0 replies...

blood clots
Posted by donna
Last Reply March 16, 2015 at 21:08
Started March 16, 2015 at 21:08
Hello I am 49 years old I was admitted in the hospital in sept.2014 I went in emergency with arm pain they found a blood clot in my left lung don't no where it came from but I was put on warfarin 10mg.and will be on for the rest of my life because I can get more clots so if ur dr. says he is taken u off of it I would question that because u can get more clots and not no it this med.can protect u from more clots forming I would rather stay on the med. rest of my life for safety it also helps protect u from stroke and heart attacks but not 100%but u never no also u have to have enough vitamin k everyday I drink NUTRAMENT COMPLETE NUTRITION DRINK I drink 1 in the morning when I get up and 1 at nite it does what I need my INR LEVELS is to be 2.0 -3.0 I stay around 2.4-2.5 level so I hope any one reading this it helps you and god bless


0 replies...

Can I kneel with a calf DVT?
Posted by Madeleine
Last Reply March 16, 2015 at 11:39
Started March 14, 2015 at 05:54
After hip replacement, a small DVT was found in my calf. I'm on warfarin and things are going well and I'm near my INR. I'm desperate to do some gardening, but am slightly worried that it might compress my calf and do some damage. My Haematology nurse says it will be OK for me to kneel. Is it?

3 replies...

New to DVT
Posted by Phil B
Last Reply March 14, 2015 at 18:35
Started July 10, 2014 at 16:16
I'm a new DVT sufferer, just diagnosed two weeks ago. I raced a 5k on a Sunday
morning (I was in the middle of marathon training for my 10th marathon - was at
about 30 miles a week), felt fine Monday, left leg felt tingly Tuesday,
Wednesday left leg began swelling, and Thursday could not walk! D-dimer test
showed abnormality so had ultrasound Friday morning, DVT from just blow the
knee to the groin (not sure if it went above that).

Immediately on Xaralto and compression bandages. Followed up with hematologist,
who said forget the bandage for a few weeks until the swelling goes down (he
says it's a lifetime problem that won't really be impacted by delaying this
several weeks - anyone else hear this?). He also said elevation is my friend
until the swelling is down, so I put it up at night and at work during the day.
Then he ordered a dozen tests to try to figure out the root cause might be -
said this is super rare in marathon runners (although I have found so... read more

28 replies...

I think im ok !
Posted by Amar
Last Reply March 11, 2015 at 19:38
Started March 5, 2015 at 14:16
Im 19 years old and i've had DVT 7 months ago in both my right and
left leg, at first i couldn't walk at all i had excruciating pain in
my legs and it lasted for about one month after the diagnosis, then
gradually the pain was gone and i went back to my normal life.

Now its bean seven months and i feel great my legs dont swell and i
dont feel pain at all not even when i walk long distances and im set
to have a doppler test to see the state of my blood clots in two
months.

I was wondering what are my chances that the blood clots dissolved
completely, when will i stop using compression socks and what to
expect in the future with DVT ??

5 replies...

Wedge Shoes/Boots
Posted by Roni
Last Reply March 10, 2015 at 04:05
Started March 10, 2015 at 04:05
DVT Sept 2014 - since I found wedge boots (not too high though) my leg pain has decreased significantly. If I wear flats I have calf pain and heels, well forget heels! I had several clots in top half of leg and back of knee which had me on crutches for 2 months, anyway just wanted to share this as its been so much easier since I came off crutches to wear wedge boots or shoes.

0 replies...

Deep vein Thrombosis
Posted by fare
Last Reply March 8, 2015 at 14:07
Started March 5, 2015 at 15:29
my mother has a deep vein thrombosis in the mesenteric diagnosed for 2
months she takes coumadin and is very weak, she vomited, problem
breathing ect she will stop coumadin and I want she takes natural
treatment, I want her to take nattokinase I read this post: http:
//www.dvtforum.com/index.asp forumID = 18638 & subject = Nattokinase-
use-in-dvt-tx?
Even said that the treatment to work well. I want to know where to buy
nattokinase, and your experience with this treatment

2 replies...

Just diagnosed with DVT
Posted by Nicole
Last Reply March 8, 2015 at 09:47
Started March 7, 2015 at 13:35
Hello all! I hope that I can get some info from you guys that have experience with
DVT's. On Monday I had surgery on my knee for a torn meniscus. On Thursday I
was diagnosed with a DVT behind my knee. The ER doctor scared me to death,
telling me I would be in the hospital for a few days, and not to put any pressure
on my leg and admitted me. I saw the hospitalist at the hospital and he told me
now that I am on Lovenox that I am free to do as I please I can even play
basketball if I want because I am on Lovenox. He did not want to do any more
bloodwork to see if the Lovenox was working, he says that those levels would not
go down for three months so there was no need to test for them again and
discharged me. I'm shocked at the difference of opinions. He told me to make an
appointment with a hematologist. So hopefully this week I can get some better
answers. I came home from the hospital with a sore throat and chills and a fever
that comes on and off. I am hop... read more

2 replies...

Correlation DVT and Gout .
Posted by Bob
Last Reply March 7, 2015 at 18:45
Started January 15, 2012 at 08:47
I was wondering if anyone developed gout as a result of DVT. Ive never had gout my entire life until this nightmare unfolded. Talk about pain, it felt like I had a dagger in my ankle, three months and two trips to the ER finally revealed my uric acid was 2x the normal level. Not sure if this is a side effect from the Coumadin or the injury has cause my body chemistry to go bazzirk.

Its under control now, Id like to know your thoughts and if anyone experienced the same.


3 replies...

Periods on warfarin
Posted by Becky
Last Reply March 7, 2015 at 06:41
Started January 22, 2010 at 08:30
I had pulmonary emboli in October, and was put on warfarin. I had a
period in November and December, but so far, have not had one in
January. I was on birth control prior to the clots (which combined
with crohn's was the reason for the clots). I'm wondering if it's
just the birth control being out of my system, or something else. My
first period after being on warfarin was horrible. I was dizzy, and
for 2 days had to lie in bed with my legs elevated. I'm worried that
if my period is later, it's going to be worse, and considering how it
was the first time on warfarin, I'm scared.
There's NO way I could be pregnant (haven't had sex in over 5 months
and had pregnancy tests while in the hospital) so I'm just wondering.
Can warfarin make your periods more irregular? Anyone else experience
this?

43 replies...

possible DVT?
Posted by Sharon
Last Reply March 5, 2015 at 14:34
Started March 5, 2015 at 09:09
Hi. I am in the medical field. I know a
little about DVTs, but not much.
a little background; I am a medical coder.
I sit for my job all day long. I also
smoke. I am not on any BC. I have noticed
over the past two weeks that when I stand
in an upright position, the back part of
my right knee hurts, toward the top of the
calf. Also, I am getting a tingling
sensation while sitting in this same leg.
I do not exercise (like i should), so
there is no injury there. My question is
if I should be concerned for a DVT or is
there another logical explination? I can't
tell if there is any redness or swelling
because it is behind the knee and hard to
see to compare to the other leg. Any
thoughts?

1 replies...

use of Cod Liver Oil as anticoagulant
Posted by Mike - Australia
Last Reply March 5, 2015 at 04:30
Started December 31, 2013 at 19:37
Because of the side effects I have read here on this forum and damage that Clexane/Harapin/Warafin etc cause in diminishing vitamin K, I am wondering whether there is anybody who is able to confirm the authenticity of the below "natural remedy" I believe somethings are missed when there is no companies profiting, but it still has to be true, not just some sort of miracle cure that is false but totally sucks in gullible believers who swear they work, even though they have taken a sugar pill.

http://www.healthiertalk.com/natural-alternative-coumadin-2230

copied from above link on cod liver oil as used as an anticoagulant.
Dr. Wright: Coumadin is one of the all-time worst "hangovers" from the "heyday" of patent medications: No matter how many alternatives there are for it, it just won't go away. It certainly thins the blood, but it does so by "poisoning and killing off" the vitamin K in ... read more

2 replies...

Aches in Kidneys
Posted by Matt
Last Reply March 1, 2015 at 22:56
Started January 11, 2008
Hey all!

This forum is great. Thanks for all of your input.

Have any of you felt aches in your lower back? I think thee aches are probably related to the kidneys as it feels similar to when yo have to urinate and/or have been sitting in an uncomfortable seat for too long. It's not a constant or severe ache...but annoying. Just wondering if it might be related to LMWH or perhaps Coumadin.

Best wishes to everyone!

Matt

26 replies...

Heparin/Warfarin differences??
Posted by Steve
Last Reply March 1, 2015 at 13:09
Started January 9, 2009 at 17:22
Hi All,
I can see on the site that some people are on warfarin and some on heparin (or their respective trades names) long term. When my DVT was diagnosed 3 weeks ago I was started on shots of heparin, then heparin with warfarin and now just 5mgs of warfarin a day.
I have read online (maybe incorrectly??) that warfarin has a lot more side effects than heparin (I seem to get a rough stomach and a sore throat/roof of my mouth for a few hours after taking it) and that with heparin although it does the same job as warfarin it doesnt affect your INR and so you dont have to go for blood tests. So I was just wondering why it seems that most people are put onto warfarin, does it do a better job than heparin, is it just cheaper or doesn't it make a difference?? Only asking as I am due to go and see my GP on Monday and if heparin is a less risky drug to take that does the same job as warfarin I would chat about it with her.
Thanks in advance for any advice,
Steve.

16 replies...

Chronic DVT help
Posted by Rich Daniel
Last Reply February 27, 2015 at 03:27
Started February 11, 2015 at 13:57
I'd like to share something very significant with you all. A good friend said he had an
important story to capture and he asked if I would help. A long journey with seemingly
insurmountable odds was coming to a close. Over the course of these last few months I
have found Jenny McDaniel to be a courageous woman . Her story has since inspired
The DVT Hope Project .
Jenny underwent an experimental surgery to reopen veins in her legs that had shut
down more than a year ago due to Deep Vein Thrombosis (DVT) saving her leg and
her life. After two failed traditional surgeries, this experimental technique restored
nearly normal blood flow in her legs in less than three hours.
The public and the wider medical community seem largely unaware of this
breakthrough procedure. Only 200 operations using this technique have been
performed to date; yet there are up to 1,000,000 patients in the U.S. for whom it could
bring immediate relief. I encourage you to visit WWW.DVTHO... read more

2 replies...

Pain when I walk
Posted by Aki
Last Reply February 26, 2015 at 21:26
Started February 14, 2015 at 10:53
Should I be walking and doing light exercises ?i just finished injecting my self 10
times in 5 days.. I'm down to two wandfine pills (or whatever it's called) I just feel
this pain in my leg and I don't like it. Is it good to keep walking on it ?

2 replies...

right side bellybutton pain
Posted by Jo
Last Reply February 26, 2015 at 16:12
Started February 26, 2015 at 10:56
Ok well last year June to October I was on warfarin and cleaned
injections, I did have lumps/bruising as one expects but now 7
months later I am experiencing pain in the same place, like a
stinging sensation that hurts to the touch. I don't know if it's
related? I am about to have a hip operation in 2 weeks what should
I do? I don't want my op cancelled again and I'm not sure if it's
related. Can't get go appt as fully booked and may not really be
urgent? Any ideas? It's a couple of inches right side of
bellybutton

1 replies...

help please
Posted by Amar M
Last Reply February 26, 2015 at 06:57
Started February 13, 2015 at 15:50
I was diagnosed with DVT in my right and left leg seven months ago, i wanted to know if anyone had fever during firs few days up to two weaks of diagnosis? and how long do i have to wait until i can run again or play basketball?
I walk every day and i wear compression socks and my legs dont swell at all, i dont feel pain but my doctor said i couldnt run for few years and i dont believe it takes that long.


2 replies...

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