DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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DVT and Work
Posted by Stephanie
Last Reply February 25, 2015 at 17:47
Started February 23, 2015 at 20:06
Hi everyone
I am 44 years old. I was diagnosed 3 weeks ago
with a right DVT and 2 pulmonary embolisms. I was
in the hospital and I am home now. I was put on
zerato and I go back to see my doctor soon. I am a
nurse and I work on a busy unit 12 hour ling shifts.
My leg is still a bit swollen and I have pain in my
leg and I get short of breath easily. I was wondering
how long should I be off from work? When should I
go back to work? Any suggestions?

1 replies...

Does Water intake effect INR
Posted by M. Dean
Last Reply February 24, 2015 at 05:29
Started August 14, 2013 at 19:15
My INR stays withing range usually, meaning they have not changed my dose for a couple of years. Last week when I went in my INR was 3.2. I remembered that I had had a salad at Olive Garden, but that should have made the INR go down. I have been drinking an extra amount of water the last few weeks.

I work out in the hot usually and haven't been drinking enough water, which may be the base cause of the DVT that I experienced. I am just curious. My doctor says that I will be on Warfarin for the rest of my life, so I want to be sure to take proper care lest the stuff tries to kill me.

2 replies...

Anti-embolism/Compression Stockings Study
Posted by A
Last Reply February 23, 2015 at 12:37
Started February 23, 2015 at 12:37
Hi All! I am doing a final year pharmacy project looking into the use of anti-
embolism/compression stockings.
I would be really interested to hear patients' views on these stockings and have created
a short questionnaire. It takes less than 10 minutes and will be kept completely
confidential and anonymous.
If you would be interested in filling out my questionnaire, the link is here:
Just 1 thing: if you're not from the UK, please can you just state that. (Near the end,
there's a space for any other comments, so jet write which country you're from there.)
Thank you!! :D

0 replies...

heparin, whilst flying
Posted by Sue from England
Last Reply February 16, 2015 at 22:15
Started September 26, 2009 at 11:30
Come off warfarin next week after being on for 15mths. I have been told i can only fly if i learn how to self adminster heparin and inject 2 hrs before each flight i take.Is there anyone else out there that has to take heparin to be able to fly? is it safe? How do you go on at the airport with your injections?getting them through customs? How do you have to present them? is there a room available? or do you do it in the toilets? Its just about getting my head around it all.

3 replies...

Flying after dvt
Posted by Linda
Last Reply February 14, 2015 at 22:39
Started February 14, 2015 at 04:41
Hi there! I've had 2 blood clots in the last two years in my lower left leg,and both
times was treated successfully with heparin & warfarin. My last clot was February
2014, and I was wondering if it would be safe to fly long haul in the future? Will
ask my doctor when I next visit, but was wondering if anyone on here as
experienced this? Thanks

1 replies...

balance issues/back of knee pain
Posted by pamela
Last Reply February 14, 2015 at 22:22
Started February 13, 2010
Two questions for those of you sometime out from your DVT. Mine was 4th toe to
thigh in July 09. I am now working out regularly, have even taken some other steps to
help my health, such as going to a physical therapy class to deal with knee pain going
back to working out (beginnings of patellofemoral syndrome, probably no association
to my clot, and mild in both knees.) Feeling some discomfort at the HR/cardio level I
was at before, I've stepped back just a bit a few days a week and have attempted to
return to a little balance, reincorporating strength training and yoga.

Does anyone else have balance issues with their DVT leg, as if muscle, soft tissue, etc.
just aren't working together properly?

My DVT was diagnosed after 3 1/2 weeks of swelling, I endured at least 3 weeks more
before the swelling went down by any noticeable amount. One of the triggers that
made me go back to the doc was the pain behind my knee every time I bent it. Does
anyone else... read more

1 replies...

Physical Damage of DVTS
Posted by Stuart
Last Reply February 9, 2015 at 06:40
Started May 20, 2008 at 20:40
I have two had two DVTs in the same leg over the past two years. i have been off work for several months and i am permanently on warfarin now, the leg i had the clot in still feels weaker is bigger than the unaffected leg. i have been advised by a medical professional that DVTs have no physical effect on leg strength etc and that there is no reason not to return to work. as there is clearly a difference between both legs i am confused and wondered if anyone could clarify this for me as i had been previously told the valve in my leg had been affected with my first clot.

11 replies...

Teens and DVT
Posted by Maddie
Last Reply February 7, 2015 at 21:33
Started January 3, 2015 at 23:56
Hi everyone. I am seventeen years old and was diagnosed last week with severe
DVT--my entire leg was clotted. I went to the ER after severe swelling and a slight
purple tinge alerted my GP that something was wrong.
I have no medical conditions, was pretty active, and in a healthy weight range. As
far as we know, no genetics contributed, except a rare pro-thrombin gene. I went
from self sufficient senior in high school to barely able to stand in a matter of five
days. Now I must use a walker to get around the house, inject myself twice a day
with Lovenox, and am on heavy pain medicine because this hurts so bad!! I'm
angry and totally unprepared for this. I also had a small pulmonary embolism, and
an interventional radiologist put an IVC filter in my vein to prevent any more
serious issues.
The questions I have:
How long am I looking at in recovery time?
When will my mobility return?
Will this give me any long lasting health issues?
When will my swelling go do... read more

10 replies...

Sharp twings after stent procedure
Posted by Lori
Last Reply February 7, 2015 at 19:47
Started February 5, 2015 at 02:00
My son recently had a stent put in for his DVT. He is now having sharp pain twinges in that area. Is this normal?

2 replies...

Mum has Extensive DVT - worried daughter
Posted by Tracey
Last Reply February 7, 2015 at 19:16
Started February 2, 2015 at 04:26
my mum has just been diagnosed with an extensive occlusive thrombus in her left common illiac vein, left external illiac vein, left common femoral vein and left popliteal vein.
Her symptoms came on suddenly and she noticed a slightly swollen left leg and it was reddish. She left it for a night, and by the next morning she could barely walk and her groin was very painful (and still is)
She is deeply concerned as to why she has developed this. Mum had been ill 2 weeks prior with a flu that pretty much knocked her out for a whole week. On the 7th day, she thought she was feeling better, got up and had a shower but suddenly became faint, and fainted. She had hurt her left side and her lower left back, she pretty much squealed if they moved her. Urine test and blood work was done but came back as all normal and they put it down to dehydration and the flu. They also did a chest xray and CT scan of her head to ensure no concussion.

Since fainting she said she hasn't felt righ... read more

6 replies...

Curcumin and blood clots
Posted by Margaret
Last Reply February 3, 2015 at 22:09
Started February 22, 2009 at 07:09
I read a fascinating article yesterday in Science Daily ( http://tinyurl.com/449vm3 ) about curcuminís ability to reduce the size of blood clots. Curcumin "may reduce the size of a hemorrhagic stroke, say Medical College of Georgia researchers. They are using animal models to study curcuminís effect on intracerebral hemorrhages, bleeding in the brain caused by ruptured vessels."

You learn something every day. I didnít know that patients suffering from hemorrhagic strokes are treated for symptoms (nausea etc.) but not for the actual cause. The reason is that the blood clot must usually be removed surgically, a procedure that is not advisable, for obvious reasons, in the case of hemorrhagic strokes, which account for about 17 percent of all strokes.

The researchers are studying how to solve this problem using animals (sigh). And here is the interesting part. They dissolved curcumin in corn oil, injected it into the abdome... read more

9 replies...

repeat lower leg swelling with 2 month old DVT
Posted by Elaine
Last Reply February 2, 2015 at 14:50
Started February 2, 2015 at 14:50
Is anyone aware of why my lower leg would return to normal only to swell again 2 months later? The doppler did not show any new clots, in fact no real change from the 1st one. The swelling and pain have been much reduced from the initial onset. I have been taking Warfarin for 2 months. Coagulation studies will be done in the next few weeks.

0 replies...

DVT and insurance
Posted by William
Last Reply February 2, 2015 at 10:29
Started February 2, 2015 at 10:29

Do I need to declare to insurance companies that I've had a DVT/PE?

0 replies...

Sharps Safety? Injection Advice?
Posted by Maddie
Last Reply February 2, 2015 at 09:44
Started February 2, 2015 at 09:44
Hi all!

I'm 17 and was diagnosed a month ago with a massive DVT. I'm on 70 mg of
Lovenox twice a day; I have to inject subcutaneously. I will be on this medication
for the next five months or longer! Since I am on a strict schedule of shots at 7
am and 7 pm, I started stressing about going out and such; I tend to be forgetful
until the alarm on my phone sounds.
My friend made me this really cute case to carry my shots in recently; I keep two
in there at all times with my alchohol wipes; it really helps me breathe easier, I
can just grab it when I head out the door, and it looks like a clutch, very discreet.
However, the "style" of my syringes just changed...now the measurements of the
package are completely different.
I was wondering if I could take the syringes out of the package and transport
them that way? They have very secure little caps over the needle area, which
don't come off easily at all. I know never to just toss a used disposable shot in the ... read more

0 replies...

post DVT ski holiday
Posted by Shaun
Last Reply February 2, 2015 at 06:08
Started February 2, 2015 at 06:08

I had a DVT & PE mid December 2014, I've been put on Warfarin for six months.

As a family we ha planned to go skiing December 2015, 12 months after the DVT/PE, assuming I won't get another on will it be safe to ski and be at altitude in 12 months time?

Has anyone else on the forum skied after a DVT?

Thanks for looking.

0 replies...

Compensation / Solicitors
Posted by Bob
Last Reply January 30, 2015 at 03:44
Started January 30, 2015 at 03:44
Hi, Has anyone sued NHS for late diagnosis / negligence for DVT. If so can anyone recommend a good solicitor / claims company. Thanks, Bob

0 replies...

Venowave and Post Thrombotic Syndrome
Posted by Rayah
Last Reply January 28, 2015 at 10:57
Started September 22, 2010 at 17:07
I was hoping to find anyone else who is using the Venowave to help treat
Post Thrombotic Syndrome. I love my device and it has helped so much.
I believe it is the only medical device approved to reduce the symptoms
of PTS and ALSO prevent new DVTs. I was hoping that this be a place
where we can share our thoughts, complications etc with this device.

24 replies...

post natal DVT
Posted by CherBee
Last Reply January 28, 2015
Started January 23, 2015 at 01:20
My daughter gave birth to her 3rd child, first daughter, a month ago and a
few days ago went to the ER with a swollen and pinkish left leg. She was
diagnosed with a DVT in her femural vein in her upper left leg near the
groin. She is on shots and coumidin right now. She is also part time nursing
her baby. They want to give her something new that is stronger but said she
would have to stop nursing as they don't know the side effects. She is
pretty stressed about all of this. Any advice? Anyome have this experience.I
am so worried about her on so many levels. She is 34 and slightly
overweight. This was after her 3rd C section.

2 replies...

Unknown Cause of DVT and PE
Posted by Amber
Last Reply January 27, 2015 at 02:50
Started January 23, 2015 at 11:13
My husband has been in and out of the hospital 6 times from the last day
of August 2014 to Thanksgiving day 2014......it started as a small blood
clot in leg.....which they say caused his PE's....then the small blood
clot grew into to a DVT that runs the entire length of his leg. They
have him on coumidon 15mg and 10mg alternating.....they say they do not
know what has caused any of his problems and can not run any blood tests
until he is off blood thinners but cant get off of them because of
DVT....there is no history of blood clots in his family, he has Crohns
also....does anyone have any info that could help us out?

1 replies...

Go to doc or not?
Posted by Luz
Last Reply January 26, 2015 at 18:34
Started January 26, 2015 at 13:34
Hi all- I was hoping to get the opinions of some people who have experience with

I have a protein C deficiency, so I'm at a heightened risk of developing clots. Last
night I got a pain in my left calf that hurt worse when I stood up and made me
limp. I don't remember hitting my leg on anything. The pain is still there today
plus my thigh feels achy.

I have no other symptoms- no redness or swelling.

I would normally wait at least a while longer before thinking about going to see a
doc (who I think will send me to the ER). But, I'm we're expecting a big blizzard
here so If I don't go within the next few hours it may be another 24 hours before I
could get to a doctor. This changes my risk calculus a bit.

What would you do? Thanks!!!!

1 replies...

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