DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Xraleto + Pycnogenol
Posted by Steve
Last Reply September 14, 2014 at 11:57
Started September 14, 2014 at 11:57
Has anyone used the combination of Xarelto plus Pycnogenol? If so is there an increased risk of bleeding?

Has anyone used Pycnogenol with or without a blood thinner for DVT and/or PE?

I am 3 months out from my DVT/PE and still experiencing a great deal of leg swelling even with a compression stocking. Just wondering if adding Pycnogenol would have any benefit...

0 replies...

Can paddling trigger DVT
Posted by kayaker
Last Reply September 13, 2014 at 16:10
Started September 13, 2014 at 05:37
Hi,
3 days ago (10 Sep), after a week of persistent muscle pain deep in my right calf I was encouraged to go and show it at the hospital. They first took a blood test that showed some signs (?) of possible thrombosis and the diagnosis was confirmed by (doppler) echography. Several small clots in the area where I had the pain. I was given a heparin injection at the hospital and prescribed 3 months Xarelto (20 mg) along with compression socks.

I first thought it was just normal muscle pain or irritated achilles tendon. I only started wondering that it could be something else when I took 800 mg ibuprofein before going to bed and in the morning the pain was almost gone. It then returned as soon as jumped out of the bed and started walking around. There was no swelling nor redness of the skin.

Like many of you in this forum, I coulnd't believe that I would have a DVT that (I though) only affects elderly or inactive/overweight/smokers....

I'm 48 and former triathlete (10hr ironm... read more

3 replies...

5 weeks post DVT dx, & clear on ultrasound?
Posted by Nancy
Last Reply September 13, 2014 at 04:54
Started September 8, 2014 at 11:13
Hi everyone,

5 weeks ago I was dx with a DVT- posterior tibal mid proximal (I hope that makes sense.)
Because I was 20 something weeks pregnant, they put me on Lovenox and I saw a hematologist a few days later who took my levels and told me light duty for a month.
I was starting to feel better but then my calf started aching randomly- at the grocery store, at night. There didn't seem to be a pattern for it. I saw my dr again on Friday who immediately ordered another ultrasound to make sure the clot wasn't growing.
I went in today and the tech saw NO EVIDENCE of a clot in my calf. I asked the tech if it was possible for a clot to be completely gone after a month and he assured me it was- however why am I still having pain?
Has anyone heard of a DVT being completely gone after a month on ultrasound? Something just doesn't sound right to me.
Thanks! :)

6 replies...

is it possible to have a good outcome?!!
Posted by Philippa
Last Reply September 11, 2014 at 23:44
Started September 4, 2014 at 16:35
Hi,

I had a proximal DVT in June, last year. I've been on warfarin for 7
months, then off. I have protein S deficiency but doctor thinks it is
better be off warfarin because it is too dangerous, she thinks the
dificiency is not too dangerous. Anyway, I've found this forum and I'm
glad I did because I have not much information on this, no family
members had it so far (thank goodness). But I'm so, so scared from all
the information I've read!!! Almost NO GOOD OUTCOMES:(. One has to
deal with pain or swelling or both or tightness or a swollen leg or
all of these together. Isn't that possible that one can heal for
good?! I'm 25, female and I was hoping to wear my shorts and skirts
being proud of my legs as I was before:(:( My leg is larger than the
other one and the calf gets very tight if I take the compression
stockings. Will I have to wear these all my life?! Oh my God:(:( When
all this happened, the vascular surgeon told me that my leg would be
ok, I j... read more

5 replies...

Blood type and DVT -- Do they matter?
Posted by N
Last Reply September 11, 2014 at 21:16
Started February 28, 2010 at 15:00
Research out of the Netherlands has shown that your blood type can increase the risk of suffering deep vein thrombosis (DVT). Blood types in humans include A, B, AB or O. The study showed that people with blood type A, B or AB had an increased risk of DVT.

Researcher, Dr Vania Morelli, from the Leiden University Medical Center in The Netherlands, said "A non-O blood type strongly increases the risk in people who carry a variant of a protein (called Factor V Leiden) involved in blood clotting. This variant protein is found in around 3% of people of European descent".

"Our research suggests that information on blood type may have a role in the management of DVT, especially in carriers of this variant protein. It is obviously important to know what your blood group is!" said Morelli.

Dr Morelli will present this research at the XXth Congress of the International Society on Thrombosis & Haemostasis in Sydney tomorrow.

---

Throughout history, cocoa has been described as a ... read more

5 replies...

32 year old another DVT nod traveling on Xarel
Posted by Thomas
Last Reply September 10, 2014 at 09:53
Started September 9, 2014 at 14:54
I wonder why the DR said not to wear compression socks for my flight.. I'm
taking 4 fights this week and have Been on Xarelto for 4 days. My flights are
about 2 hours each and they said to just walk a lot.

1 replies...

Another DVT at age 32 on Xarelto and traveling
Posted by Thomas
Last Reply September 10, 2014 at 01:37
Started September 6, 2014 at 18:41
I had a car accident in October and developed a DVT within about 2 days (actually
3). I had to take Lovenox injections twice a day for three weeks and Coumadin for
9 months. The Dr took me off Coumadin in June or July and switched me to
aspirin. This last Monday, I started feeling the beginning of a new clot. I had an
ultrasound done yesterday and it turns out the clot, which my DR said was gone
after a d-dimer blood test, was still there. Additionally, I have a new clot forming.
The Hematologist started me on Xarelto (15 mg twice a day for 21 days then one
30mg tab a day after). This is day two on Xarelto and I'm just feeling strange.
Tired may be the only way to describe it. Any advise for the new patient taking
Xarelto? I have to leave the country for work for the remainder of the week and
I'm a little nervous even though they said it was OK for me to take the two short
flights. I don't want to over bleed, be too tired to work or die from this (as ... read more

4 replies...

Heat or ice for chronic dvt pain
Posted by Jennifer
Last Reply September 9, 2014 at 21:58
Started September 9, 2014 at 21:58
Hi all- have been getting conflicting advice on pain management for my 9 and 4
month old chronic clots. I like to ice my leg before bed. My hemo was horrified by
this. My vascular surgeon said heat or ice ( he didn't give it too much thought at
all) what are you all doing?/ have been told is safe for daily pain? Thanks!

0 replies...

Xarelto and fatigue
Posted by JimG
Last Reply September 9, 2014 at 08:50
Started September 9, 2014 at 08:50
Had my second DVT in three yrs this past May. Been on Xarelto ever since. My concern is fatigue when doing much of anything beyond basic activities. Last time I was on Coumadin and recovered completely. I think that Xarelto is messing with my blood chemistry or cells in a way that constantly drags me down. Anyone know of studies on this? Or experienced this themselves? I like the convenience of Xarelto, but I don't like the constant fatigue. Does anyone take just 10mg for DVT?

0 replies...

Venogram? Too risky?
Posted by Jennifer
Last Reply September 8, 2014 at 08:47
Started September 3, 2014 at 11:24
Hi all- ( and Stefan :),
I saw a new vascular surgeon at tufts medical center in Boston Ma.. Had
New ultrasounds looking at clots ( all distal 9 monthand 4 month old clots in
tibial and perineal veins)looking for hematoma & venous reflux.... I went there
seeking answers for my severe burning leg pain that came back after I had much
improved. I also have a difficult time standing for any length of time and I NEED
to elevate when sitting... Hematoma was ruled out...clots were all still there but
some recanalization had occurred. I was told it is difficult to test for reflux below
knee but nothing was refluxing back up into the popliteal so that is a good
sign.....Soooooo why do I have such debilitating new pain? This doctor wants to
schedule a veinogram next to see if there is an obstruction higher in my body that
was not seen on ultrasound...he said my symptoms sound like claudication and
he'd like to look for blocks that are hindering the blo... read more

11 replies...

Warfarin & pizza????
Posted by Chris
Last Reply September 6, 2014
Started August 30, 2014 at 16:56
Hello DVT world. I'm on 10mg of warfarin everynight and my inr has been
consistent at 2.9. My vitamin k diet is little to none(I know I should've continued
eating vitamin k. But didn't see myself being able to eat the same amount of it
daily). Would I be able to eat dominos pizza? Would tomato sauce or marinara
sauce effect my inr? I'm dying to eat a large dominos pizza with extra beef with
either tomato sauce or marinara sauce lol thank you!

4 replies...

stomach bleeding or just a bug on Warfarin
Posted by jo uk
Last Reply September 5, 2014 at 09:09
Started September 5, 2014 at 09:09
Hi all, I have been on warfarin for 3 months now in the past week or so I have been feeling really I'll with stomach pain,nausea and loss of appetite and when I do eat I still feel I'll. I admit I have had a few glasses of wine more than recommended allowance due to a recent stressful situation but im worried I may be bleeding in my tummy. I cannot tell by bowel movements as I am not going properly and I have not been sick, I just feel it. I am on 10.5 daily. Had one done today am waiting for results. Any advice if I need medical intervention or could it just be a side effect of it being taken on an empty stomach or just a bug. I feel rotten. Thankyou in advance.

0 replies...

Coming off Xarelto after surgical DVT
Posted by Shari
Last Reply September 4, 2014 at 16:23
Started July 14, 2014 at 07:36
Hello! New here….I developed a DVT in my calf following knee surgery. Took Xarelto
for 3 months. Family dr felt that amount of time should be sufficient for a provoked
clot. Went off Xarelto six days ago and now feel tightness in my calf where the clot
was. Is this normal? or could it be that the clot is really not gone and I should be
calling my dr? It is not the terrible charley horse pain that told me I had one in the first
place, but it is tight. That is the best way to describe. I am still doing therapy for the
knee so I am trying to decide if it is just a tight muscle, or clot….thanks Wondering if
anybody else experience tightness after going off...


2 replies...

pulmonary embolus (correctable risk factors)
Posted by Craig kevin Moore
Last Reply September 4, 2014 at 13:02
Started September 4, 2014 at 13:02
Dropping inr numbers

0 replies...

Warfarin - maximum dosage?
Posted by randa
Last Reply September 4, 2014 at 03:29
Started March 19, 2011 at 06:40
Hi,
I've got a DVT in my right arm (subclavical), discovered a month ago. So, the usual Lovenox shots 2x/day, and wait for the Warfarin to kick in. On 5 mg for a week, my INR was 1.1, On 10mg for a week, my INR was 1.5, 2nd week on 10 mg, my INR was 1.3. Then a week on 12 mg warfarin, my INR is 1.6!!! So, I'm now taking 14 mg of Warfarin... and STILL taking the Lovenox shots (bruised all over my mid-section).

I hear I may be reaching toxicity levels for Warfarin... anyone??


4 replies...

Nattokinase usage in dvt tx
Posted by eden
Last Reply September 3, 2014
Started October 28, 2010 at 06:54
Hi all, my 15 year old son was diagnosed with massive DVT two months ago. Once they found the problem, they tied clot busters but they did not help as it was already over two weeks by then since the onset of symptoms. His symptoms were very mild and vague which misled us all. I dont even want to start talking about the ordeal he has been through. What makes it even harder is that he loves soccer so much and I do not know if he will be able to play again. My heart is breaking everyday; but, I am also grateful that he is alive, and relatively speaking, ok, so far.

I would appreciate any iformation or experience anybody has with the use of Nattokinase which is said to have strong clot dissolving capacity.

Thanks and keep up the good faith!

15 replies...

no valve insufficiency = swelling?
Posted by Isabella
Last Reply September 2, 2014 at 16:09
Started September 2, 2014 at 09:40
Hi all,

I had a proximal DVT July last year. Lovenox 5/6 days & warfarin for 6
months. I had an ecodoppler las month that says that my popliteal is
now narrower, that is, it has thickened due to residual clot. But
that's all! It says that that I have no significant valve damage.
Nonetheless, I have a swollen leg all the time, and my calf
circumference is ALWAYS larger in the DVT leg, about an inch. I have
been told that if my valves were ok, then my leg wouldn't swell but it
seems that is not true. I'm so disappointed:(! I'm in my late
twenties, I was taking the pill but cut it right away, when the clot
was found. I do have protein c deficiency but the hematologist says I
shouldn’t be worried because it is not too low (however, I've read in
this forum that it is a big deal...I'm puzzled...) But my point is: is
it possible that my leg stops swelling one day? I wear compression
stocking all the time, as my vascular surgeon said I should wear it
for two y... read more

2 replies...

When to go back to gp
Posted by Ali
Last Reply September 2, 2014 at 03:34
Started September 2, 2014 at 03:34
I'm in week 2 of a dvt and i had one week of warfarin and clexane and now on just
warfarin, my pain disappeared for a while and is now back in my calf, do I need to
be concerned and contact my gp or not worry

0 replies...

Multiple distal dvt same leg
Posted by Jennifer
Last Reply September 1, 2014 at 16:33
Started August 18, 2014 at 18:30
Hi all- my dvt leg has regressed in the past 5 weeks or so increasingly becoming
harder to stand still.. Burning pain. By the end of the day I am useless. I am 39
years old 115 lbs was very athletic before dvt that came on because of minor calf
tear along with birth control pills . I was misdiagnosed for 5 weeks so my leg was
blue and cold before I got on warfarin therapy. After 3 months on warfarin my leg
was much much improved so I discontinued warfarin and boom new clot same
leg in 3 weeks time.. So back on warfarin and I'm about 2-3 weeks or do leg was
much improved again. One month later I have regressed terribly ( I did get an
ultrasound no new clot) I feeling hopeless that I won't be able to stand strong on
my own two feet again for any amount of time. This is affecting my life and
relationships big time. Doctors just shrug shoulders and say distal dvts usually
have good outcomes just elevate and take a hot bath. I do all that. Anyone else go
through... read more

27 replies...

Vitamin A
Posted by Mick C
Last Reply September 1, 2014 at 03:12
Started August 29, 2014 at 12:24
20 days ago I was injected with Vitamin K ,in hospital, as my INR was high at 3.5 but then discharged the next day.
I was immediately started on Warfarin again but despite increased dosage my INR has not gone higher than 1.3. My belly is sore with the Tinzaparin injections I am having to cover for the low INR.
How long does it take for warfarin to "kick in" after Vitamin K is administered

6 replies...

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