DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Dale? Stefan? Advice place
Posted by Chris
Last Reply August 31, 2014 at 23:42
Started August 30, 2014 at 19:25
Hello all. Dale & Stefan or anyone that can help, if your reading this. You both
have gave me very helpful advice. You both didn't know the extent of my DVT. On
my report it says "extensive left lower extremity DVT involving the whole length
of SFV and the pop vein which are not compressible" I'm not sure if you guys
remember me but I was in the hospital for ten days and got out close to a month
now and I'm on 10mg of warfarin and inr is steady at 2.9. How bad is this? Long
term problems? Will I make a full recovery? Are there any other options to get rid
of it? And I'm feeling some discomfort in my other leg for about two days now, is
it possible to get another bloodclot while on warfarin? Sorry for all the questions.
Any info anyone can give me I'd appreciate it ALOT!! Thanks a ton!

6 replies...

Long term breakdown?
Posted by Kay
Last Reply August 31, 2014 at 20:02
Started August 25, 2014 at 01:34
I am a 20 year old girl who was diagnosed at age 15 with a pulmonary embolism
DVT I currently still have it and I am using arixtra to keep blood clots away.

Going on 4 years of taking arixtra with no side effects.

However, I am to be on it for the rest of my life and at age 20 I am already failing
to continue to inject myself every 24 hours. I understand the value and risks and
sometimes that still isn't enough. I am in search of advice of how many of you
who take arixtra for a long period of time deal with it and if you have any ways of
helping you stay on top of it?

My biggest mistake was skipping my very first time, which lead to a lot of
skipping and now it seems so hard to break habit of it. I have only been
consistent with 3 days before I fail again.

Any advice is much appreciated?



7 replies...

Braces
Posted by Mick C
Last Reply August 31, 2014 at 03:49
Started August 31, 2014 at 03:49
I wear braces to keep my trousers up.
Well what is this to do with DVT one might ask.
Im injecting Tinzaparin into my belly and are having problems with bruising.
This morning I have noticed that the bruising is the same pattern as the braces.Ouch
Problem solved don't wear braces. Now what do I do to stop my trousers falling down

0 replies...

INR levels
Posted by Emma
Last Reply August 29, 2014 at 20:04
Started January 26, 2010 at 02:52
So far my INR has never made it up to 2, so I understand I am not at a theraputic level yet. Would this mean, that the warf would have not had any affect on my DVT? I'm pretty annoyed at my Dr, she just tells me to keep on with my 4mg even though Im only 1.4 - 1.7., so as of this week Im just going to do my own warf dosage, because I don't see the point of being non theraputic, I've put myself on alternating 4 - 5mg daily and Ill see how that goes.

23 replies...

Upper limb DVT cause and effect
Posted by Shaun
Last Reply August 29, 2014 at 07:48
Started August 29, 2014 at 07:48
Hi, I am a regular masters swimmer and weight lifter. About a month ago I woke up with a COMPLETLY dead right arm after sleeping on my side all night. Its happened before but now I have a near constant aching under my armpit and sometimes elbow. Ive been seeing physios for a year with trap,lat,romboid and teres major tightness from repeated training and i know the artery goes through a small gap between these muscles.

I have found my right hand is sometimes allot colder and sometimes goes dead when swimming. Online (patient.co.uk) says: '80% occur in dominant arm', 'also seen in otherwise young healthy individuals who participate in repetitive upper limb exercises', 'more likley to be younger with a lower bmi'. This is all me but dont want to jump to conclusions.

Any help would be good as its really hurting

0 replies...

flying after being diagnosed with DVT 7days ag
Posted by mair
Last Reply August 28, 2014 at 10:54
Started August 28, 2014 at 10:52
I'm stressed to the Max at the moment on Tuesday I was diagnosed with
small blood clot in my right leg under my knee. I'm taking clexane 150mg
daily but I am meant to go on holiday next Thursday 10 days after the
diagnosis first doctor said it should be OK but the blood nurse told me
I shouldn't be flyin so I rang my gp and he said that I should be ok
aswell . I don't know what's best any help would be grateful

1 replies...

is flying without clexane safe?
Posted by Jenny
Last Reply August 27, 2014 at 19:17
Started August 27, 2014 at 04:32
I had a DVT in April eight years ago. I have no risk factors, no
medication. I was on clexane 6 months. Have had no problems since.

I am going on a 2 hr international flight in a few weeks. I have
compression stockings to wear but my doctor said I need no clexane
injections. Is that OK? Iam worried..

any advice would be appreciated, thanks.

5 replies...

Nattokinase and Warfarin
Posted by Megan from New Zealand
Last Reply August 27, 2014 at 14:00
Started November 5, 2013 at 23:09
I have just been diagnosed with a second blood clot in my leg (10
years after the first). I have two - one in my calf and one behind my
knee and two prothrombins Factor V Leiden and Protein C deficiency.
As I'm extremely active I want to get back to exercise quickly and am
exploring options to break down the clot. I'm on Warfarin for the
next 3-6 months but wanted to check out maybe combining this with
Nattokinase. My concern is that the Nattokinase will cause bits of
the clot to break off and head upwards or that there will be issues
with the Nattokinase and INR tests. Is there anyone who has combined
the two? What sort of dosage did you use for the Nattokinase?
Anything to watch out for?

2 replies...

stubbed toe and on Warfarin
Posted by jo uk
Last Reply August 26, 2014 at 18:47
Started August 25, 2014 at 20:07
Hi all, about an hour ago I stubbed my little toe on corner of furniture. I'm on 10.5mg of warfarin daily my last INR was 2.5 (finally settled) although may of changed as I can't eat much at the moment! Should I be concerned? Its starting to bruise and feels warm. Don't want to make a fuss but just don't know if I should just leave it. I have 2 thrombophlebitis in opposite leg have been on Warfarin for 3 months. It will be ok won't it?? Thankyou

1 replies...

DVT newbie
Posted by Chris
Last Reply August 26, 2014 at 17:35
Started August 24, 2014 at 13:57
Hello DVT world..About a month ago I found out that I have DVT. Had pain behind
my knee and calf and didn't think anything of it because I'm 27 and I always hurt
or sprain myself due to my heavy lifting job at times. But pain got much worse
second week where I was limping at work barely bending my ankle so I don't feel
that horrible sharp pain in my calf. Went to the dr and they did a sonogram and
found a "bad" DVT by my groin. Sent me straight to the hospital and stayed there
for ten days getting shots in my stomach and started coumadin 3rd day. Even
though I was getting both the shots and coumadin. My inr would not increase
until my 7th day there and that's because they bumped up my dose to 15mg of
Coumadin. Got out the tenth day and now on 10mg of Coumadin at night and inr
is at about 2.8-3.0. I'm on the no vitamin k diet. My whole stay in the hospital and
now my second week out seems to be worse mentally then the actual process of
healing. I think maybe ... read more

11 replies...

Prickly Rash on Feet post DVT
Posted by CJ
Last Reply August 26, 2014 at 04:16
Started May 9, 2012 at 12:47
Hi All i was diagnosed with a DVT in left and right leg in feb this year i was started on cleaxane injections and warfarin i then went onto have a PE which again i was started on clexane injections as my blood was out of its theraputic range. I was on bed rest and have just returned to work after a slow recovery. I have woken today to a red prickle unraised rash on my feet has anyone else had similar experience? Any advice/help would be great thankyou

2 replies...

Nattokinase Therapy Length
Posted by Shana
Last Reply August 25, 2014 at 19:02
Started June 18, 2008 at 13:02
I figured I would start a new thread - I've ask this question in some of the other forums but I think I may get lost with receiving a response! I was a little hyper asking questions last night.

Anyhow - I've been on NK for 11wks now and the last leg scan I had did not show any improvement to the clot, which I was a little surprised. I didn't expect the NK to have taken it away completely certainly, but I thought maybe there would be something new.

The only new thing is I'm bordering on high blood pressure...so I have to lose 10/20lbs before August to see if that helps. I was hoping the NK would address that also, but it only keeps getting higher.

Any thoughts? I Googled trying to find NK therapy and how long before I should see results possibly with this clot, post 10mths now and couldn't find anything.

Sharon do you have any ideas?

21 replies...

3rd PE
Posted by JamesNY
Last Reply August 24, 2014 at 18:04
Started August 15, 2014 at 10:02
I had my second PE back in Dec. I did Xarelto for 6 months. I feel my lung
function never recovered even with exercise. My doctor took me off the Xarelto a
month ago and within a month I was back in ICU with multiple PE.

I can't get straight answers from the docs or conflicting info from different docs. I
also have an IVC filter from my last PE so how did I wind up with another PE?

This is crazy and I have over 50k in hospital bills. My job let me go because my
work performance suffered and much time off for pointless Dr visits.

I'm only 47 and 3 PEs. I can't work but the discharge Dr said I could go back
to,work. It's so freaking crazy I don't know what to do.

20 replies...

DVT & Castor Oil Pack?
Posted by Kathleen
Last Reply August 24, 2014 at 12:09
Started August 24, 2014 at 12:09
Has anyone ever used castor oil pack to reduce swelling caused by DVT? I have a
broken ankle and calf DVT. & My toes and foot are swelling a lot and the whole
foot turns red. I hear that massage is not good for DVT. & am wondering if Castor
oil would have similar effects as massage.

0 replies...

How Long Did You have a clot for be diagnoses
Posted by Andy, UK
Last Reply August 21, 2014 at 22:51
Started August 18, 2014 at 20:21
Hi

If you don't have swelling or redness, how do you know you have a clot or how long you have had it ?

I was diagnosed in February with multiple PEs in my right lung, how ever I think I had something effecting my breathing from a year before, I wasn't collapsing but when exercising I felt I couldn't get a full lung full of air. I then thought I had a clot when I had a heaviness in my leg last June 2013 and went to a medical drop in centre and was told "thats not a clot" so thought just forget about it.


I was then lying in bed last September and got a pain in my calf and then my heart started bursting out of my chest and sweating badly. I then developed a ache in my right chest.

As I was feeling wierd I went for a health check at a private, hospital, they did ECG and at them end told me there was nothing.
When I got the lung test results in it said lung age was 58, and being only 37 and never smoking I thought this was strange.

I then got to last December and once ... read more

2 replies...

swelling & tightness
Posted by cindy
Last Reply August 17, 2014 at 20:36
Started August 15, 2014 at 17:26
Hello,

I had a femoral-popliteal DVT in August 2013. A year went by and my
right leg still differs 1cm form the other one. And if I take off my
compression stocking (which I was advised to wear during two years)
the leg swells a little bit and it gets so tight in the calf
circumference. I get so disappointed with this. I was always
complimented by my beautiful legs and now I'm so sad that I never wear
skirts... Last week I had another doppler done. Doctor said the valves
are functioning almost as if nothing happened, but the popliteal vein
is narrower now because there is evidence of some clot left there. He
also said that it will stay like this forever...
From your experience, do you have similar outcome after a year?
Healing stops at one year of recovery? I wish that won't be the case.
I'm a yound woman and for us legs are an attraction factor. At least I
felt that way up to last year:(

Thank you all,
Cindy

6 replies...

Caffeine, Aspirin and Whitewillow Bark
Posted by Greg
Last Reply August 14, 2014 at 11:19
Started August 14, 2014 at 11:19
Caffeine tabs and aspirin along with white willow bark supplements have worked wonders for me. After a broken tib/fib, clots began forming. Severe headache, neck pain, numb arms, chest constrictions, coughing, and difficulty breathing all were signs of a clots on the move. I immediately began taking 100mgs of caffeine, 150mgs of aspirin, and 800mgs of white willow bark. Within 20 min. all symptoms disappear and I can resume my normal day. I take this combination with food 2-3x a day as needed. This has worked for me, but you should consult your physician before relying on this method of blood clot control.

0 replies...

Coffee for DVT
Posted by INFO
Last Reply August 14, 2014 at 11:11
Started August 4, 2008 at 01:10
I know this thread will cause controversary as caffeine is not advisable for DVT patients due to dehydration... Other reactions may also affect how caffeine would react with DVT patients however here is my story.

I am an athlete and am on blood preasure medicine... I am currently not on warfarin... I have had clots in my legs twice...

While my blood preasure is typically 140/90 sometimes after a long work out my blood preasure will drop to 110/60...My BPM will also fall to 50.... as it DID last night... This was the cause of my two previous clots....

When this happens the blood is NOT flowing fast enough and the stasis of the blood causes a clot... I could feel the pulls in my calf and knew I was going to form a clot.... MY usual routine is to walk thru low blood preasure and BPM episodes (elivating) my heart rate, but this was 2 o'clock in the morning... I was exhausted.... I though,how could I keep my BPM and blood preasure at a normal level ... Normally I DONT drin... read more

2 replies...

Post Thrombotic Syndrome
Posted by lynne
Last Reply August 14, 2014
Started August 4, 2014 at 15:02
I was diagnosed with a massive iliofemoral dvt exactly 8 weeks ago. I could not walk for over a week and had to use crutches for a fortnight.

I pushed myself back to work after two weeks but just couldn't cope (partly blame the intense hot weather).

I still have to use a stick to walk any distance. My leg is achy with sharp twinges and goes purple and swollen after I've been on it for a while.

I wear a compression stocking but sometimes feel that this stops my calf swelling but makes my thigh worse (it is a knee high).

I have spoken to my GP and anti-coagulant nurse but they just say to take painkillers.

I am only in my thirties and am not seeing any improvement. Is it normal to still be like this after two months? I am getting very down and am worried about PTS but is it too soon to know if the symptoms will go or be permanent.

Doctors just seem to be bothered about my INR and don't seem bothered about quality of life - that I can't walk far, have to use a stick... read more

35 replies...

Dark urine
Posted by James
Last Reply August 13, 2014 at 22:20
Started June 9, 2008 at 10:04
I know one of things people taking Warfarin have to watch out for is dark urine, or pink.

Since I left hospital I have been drinking quite a lot of water, I don't really know why because I've never been one to drink that much fluid.

But it seems now that I'm more thirsty then I used to be. As you can imagine you would normally expect urine to be light in colour when you're drinking a lot, in my case this is not happening.

Now as I mentioned before in the past I didn't drink that much so my urine has had a tendency to be dark in colour, now I'm drinking more it is still the same, So I was wondering if anyone else on Warfarin has experienced the same the thing, or is it just me?

4 replies...

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