DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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What are the compression stockings for?
Posted by Shelley
Last Reply June 13, 2014 at 05:47
Started June 11, 2014 at 12:58
Hi all, I was diagnosed with dvt 5 weeks ago but have had no pain and only a little
swelling that lasted for four days. I've asked the dvt nurse and my GP what is the
purpose of the compression stockings but can get no answer other than "it's

Are they to relieve symptoms or to help to treat the clot? If I have no symptoms
can I assume that the clot has dissolved?

Thanks in advance....

4 replies...

Multiple DVT's
Posted by Claire
Last Reply June 8, 2014 at 05:55
Started March 24, 2010 at 21:39
I am a 33 year old lady with recurrant DVT's. This started 8 years ago and I have now had 15 DVT's. I have had clots in the arm and leg and a stroke 18 months ago in the corroted artery in my neck. I have had 2 venoplasty's which one was 3 weeks ago and I am trying to get back to work but finding it really hard this time. I still work self employed inbetween going to the hospital 3 times a week but I dont want to give up work as i feel it keeps me going.
I am desperately trying to find someone who has had lots of clots like me as I am told I am a rare case and how they have been treated and by who to see if there is anything else I can do?
Many Thanks

10 replies...

May Thurner's
Posted by Donna Edgerley
Last Reply June 6, 2014 at 07:37
Started June 6, 2014 at 07:37
Hello fellow DVT sufferers.Has anyone else been diagnosed with May-Thurners?I was diagnosed in February 2014 after a DVT for thirteen years and now chronic venous insufficiency and May-Thurners. I would like to know how people deal with the pain. Thank you.

0 replies...

Prior DVT in pregnancy
Posted by Amy
Last Reply June 3, 2014 at 09:08
Started June 3, 2014 at 09:08
I had a prior DVT 4 years ago during my pregnancy and was given clexane to
inject twice daily and I had a planned c-section. I am now 12 weeks pregnant
again and I have bad leg pain in my leg again more like a bad ache and pressure. I
am due to be given a preventative dose I blood thinners . Is it worth seeking the
doctors advice anyway?

Thanks :)

0 replies...

what works bettter
Posted by kevin r
Last Reply June 1, 2014 at 15:42
Started May 31, 2014 at 21:17
what works better treat DVT, Warfin or Xeralto.

2 replies...

When to Worry?
Posted by Leah
Last Reply June 1, 2014 at 08:20
Started May 31, 2014 at 11:08
So I'm an uber healthy 44 year old, no smoking, vegetarian diet, slender, regular
workouts, and ended up getting DVT after a shoulder surgery (yoga injury)
despite being up and walking around the neighborhood the day of surgery. I've
been on Xarelto but that three month course is coming to an end. I'm a science
education professional with a PhD so I'm analytical by nature and a bit of a
worrier so an objective view would be welcome. My primary care doc says it was
likely being on the pill that gave me the DVT and doesn't recommend a visit to the
hematologist. My ortho said that aside, it's still extremely extremely odd in
someone as healthy and athletic as me for shoulder surgery so is calling her to
tell her he thinks I should. Who do we think is right? On top of that, I fly long haul
often, and now am nervous for two trips US-asia and Mideast. I fly to London next
week... So am thinking of extending the xarelto until I get back just in case. Every
time I... read more

4 replies...

Clots dissolving
Posted by Shana
Last Reply May 31, 2014 at 23:15
Started March 27, 2008 at 04:14
This is another person's comment from a separate DVT site I go to online:

"I was even told by one er doctor that the blood clot never dissolves. The blood re routes itself through other veins and that there is always a possibility of the clot breaking off."

Is that true? I have never been told this. I was told it attaches itself to the vein wall, and your body works and dissolving it. It may dissolve enough to be off Coumadin eventually, maybe not. But I have never been told it would break off.

Any thoughts appreciated.


7 replies...

DVT on holiday in 3d world
Posted by Stefan King
Last Reply May 24, 2014 at 19:32
Started May 23, 2014 at 22:16
I went to the other side of the planet after a health check in my own country in north Europe where health care is free. I had a problem with numbness in my feet (soles and toes), and a neurologist checked me. This neurologist found nothing neurologically wrong with me, but since she was a neurologist she never thought about checking saturation in my feet and toes.

After 4 months on the other side of the planet (in Feb 2014) I get severe pain in left ankle, and it's also red and warm. After only some minutes in the web I understand that I must have a blood clot. The local hospital also find two clots in left leg after ultra sound of both legs. It is treated with bandage and Xarelto. It seems to help, and I'm happy for that since my expensive insurance only covered 3 months of health care outside EU. I didn't and don't have the money to become an inpatient and stay at the hospital. So I use Xarelto 3 weeks, then 12 days again in Mars/April when the left pain starts to ache.

Two... read more

2 replies...

Dehydration and blood clot
Posted by Alfredo
Last Reply May 22, 2014 at 23:20
Started May 22, 2014 at 23:20
I was disgnosed with dvt and pe for unknown reasons. A month Before that I
remember that I had a heavy vodka session that I woke up at night very thirsty.
My question, can dehydration alone cause blood to clot even though Im active?

0 replies...

Getting lab results back, who is responsible?
Posted by Skye
Last Reply May 22, 2014 at 20:28
Started May 16, 2013 at 17:27
I need help on what to do, could someone please tell me can i take action agaisnt my doctor or even simpler, who's responsibility is it to let me know about the results? Do I call them or let them call me?

I am on warfrin for the rest of my life for DVT. I recently was in the hospital for internal bleading. I believe the reason I suffered interanl bleeding was becuase my GP does not check up on my bi-weekly test that I was doing prior (without any instruction from her or not). It took my GP 3 weeks for them to call me back and by that time i was already in the hospital for internal bleeding. the anticoagulation center at the hospital had me going once a week to get my labs done. I have continued with this habbit but it has been 3 weeks since they discarged me to the care of my GP and i have yet to know what my levels are. I have called them multipul times each week and no call back.
Please help me!
I have searched the web on trying to find who is liable here but nothing is ap... read more

3 replies...

3 weeks of pain
Posted by Mrs. H
Last Reply May 20, 2014 at 17:31
Started May 12, 2014 at 16:20
Hello all. I have had 3 weeks of pain in my calf muscle. My symptoms are listed below:
1. Calf pain that comes and goes. It is not constant.
2. The pain moves from my calf muscle to behind my knee.
3. There is no swelling or discoloration and my calf does not feel warm. The calf is not tender to the touch.
4. My foot is tingling. Not numb, just tingles.
5. I have more pain when sitting still than when I walk around.

I have had a D-Dimer test come back negative and I also had a ultrasound come back negative.
Does anyone have any experience with a ultrasound and D-Dimer test coming back negative and still ending up with a blood clot?
My dr does not want to order another ultrasound. My dr wants me to go to a ortho dr.

I appreciate any comments and or advice you can give.

4 replies...

recurrent DVTs, negative for all clotting test
Posted by Tahoe One
Last Reply May 20, 2014 at 12:11
Started May 20, 2014 at 12:11
Hope this finds everyone well. I had an asymptomatic (no surgery, no
broken bone, etc...) DVT and PE in 2011. Prior to this I'd never had
any blood clotting issues and I was 40 at the time of the first
incident. Given the PE I was on coumadin until 2013 when I had a
kidney bleed (no stone, I had a blood clot in my ureter after being
scoped). Due to this they took me off coumadin. In April 2014 we
took a road trip to Utah (I live in Calif so it was an 8+ hour drive
but we stopped every few hours and walked around) and took Lovenox as
suggested by my hematologist, when I arrived there I could tell I had
a blood clot in my leg (unfortunately I can feel them now which
sucks). The first ultrasound was negative and they gave me the calf
sprain story (I'm sure you've all heard it...) but the second found
the clot two days later when I insisted on a re-test. They have now
put on Xarelto which is fine and is much better than taking coumadin
as there aren't t... read more

0 replies...

Blood clot?!!
Posted by Anna
Last Reply May 20, 2014 at 07:12
Started May 16, 2014 at 04:38
So 4 weeks ago I had an ankle operation. I was put in a cast and in my 4th week.

Since then I have calf pain on an off.
I've had an ultrasound 2 weeks ago to check for a blood clot nothing was found.

Since then I still have calf pain in one spot. It comes and goes. Feels like it burns
sometimes (not everyday time). I have the pain everyday but coming and going.
It's on the out side of my calf.
Today I had my cast changed and my calf looked ok before they put a new one on.
It was soft according the plaster lady and not a hard calf.
Would you see or feel changes if I had a blood clot?

Could I have a blood clot???
Or think just calf pain from muscle wastage or even nerve problem from my
back?! I have no other symptoms.

If you could please help me put my mind at rest or advice...

1 replies...

Pressure and tightness in ankle foot and calf
Posted by Pamela
Last Reply May 19, 2014 at 15:25
Started July 15, 2013 at 22:37
Why is there so much pressure and tightness in calf, ankle and foot.. I am 3 1/2 months post dvt diagnoses and this is killing me.. Does anyone else have this issue when on there feet a lot. What can I do to help this? Or do I just wait it out.

4 replies...

warfarin and dilantin
Posted by jerry
Last Reply May 15, 2014 at 09:47
Started May 15, 2014 at 09:47
Is anybody on warfarin and dilantin? I am on both and would like to
change to one of the new blood thinners but worried about the
interactions of the new blood thinners and dilantin. If anybody here is
on dilantin and one of the new blood thinners could you let me know if
you are having any problems?

0 replies...

dvt an dieting
Posted by wendy
Last Reply May 14, 2014 at 06:00
Started May 13, 2014 at 05:56
I have dvt an I'm on warfarin docs said i will be taking it for the rest pf my life
as they carnt understand why my blood clots ! I started slimming world last
week an have lost 4lbs which I'm happy about but my leg is realy achy could
this be down to the dieting or should i visit my gp ?

2 replies...

What Drugs are available besides warfarin?
Posted by James
Last Reply May 10, 2014 at 18:40
Started February 11, 2014 at 01:06
I'm having a terrible time on warfarin and would like to know what the alternatives
are. I'm going to see my hemo soon and would like to do some research. I find the
side effects of warfarin unbearable.

Thanks so much!

14 replies...

Dark circles around eyes
Posted by Mary
Last Reply May 10, 2014 at 01:14
Started May 10, 2014 at 01:14
Is this a side effect of warfarin...I have been on it for 9 months & I am 66 years

0 replies...

A question about DVT
Posted by Peg
Last Reply May 9, 2014 at 16:30
Started May 9, 2014 at 12:02
Hello, I need some advice as to not knowing if I may be experiencing DVT in my leg. Almost a year ago, I decided at 55 years old to take up jogging. After about 2 weeks into the program, I started experiencing pain and pressure behind the knee. It also was slightly swollen. I decided to quit the jogging to give it a rest, and that seemed to help for a while, but anytime from then on that I did any excessive walking or standing, the pain and swelling would come back. I went to see my primary doctor and she said it may be a baker's cyst and just to rest it. Well months later..no good! I went to see an orthopedic dr. He did an MRI of the knee. No tears and he just doesn't have an answer..seems to be guessing at what it good be. There is no blueness, but some redness on the inside of the knee. I have also started having severe leg cramps at night in the calf. My question here is...can this go on this long without getting worse? Could this be the beginning of a DVT? Anyone else experienc... read more

3 replies...

Posted by John
Last Reply May 9, 2014 at 12:43
Started May 9, 2014 at 12:43
Was on Lovenox for years. Doctor switched me to Xarelto after my last
Hip Revision Surgery.

I have developed Bi Lateral DVTs in my legs while on Xarelto!

Anyone else have this experience?

0 replies...

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