DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 59 of 237
Terminology and functional life with DVT
Posted by imateacherofmusic
Last Reply May 8, 2014 at 10:46
Started December 9, 2009 at 14:59
Okay, as a "newbie," I am truly grateful to have found this forum (It took about 3 days of searching online before this popped up in my search!).

Anyway, would you mind telling me the terms I need to really know (so I can have educated discussions with my doctor and not leave appointments feeling frustrated)?

Also, I am struggling with my daily life. My PCP refused to script me a wheelchair ("You don't need one! WALK!"). As a result, I walk around the United Center in Chicago, I walk around Chicago, I walk around the mall, I walk around my house. I walk everywere. My surgeon told me to become a mall walker!

Ok, so I walk and my leg becomes numb. It becomes sore. It becomes MASSIVE and swollen. I am in misery. After yesterday (walking around the mall), my leg told me it had had enough and plumped itself to a lovely size. I even developed a "cankle."

I sleep each night with my foot elevated, so last night was no different. I woke up, looked at my leg, and it ... read more

14 replies...

Sudden Pain
Posted by Heather
Last Reply May 7, 2014 at 11:07
Started May 4, 2014 at 14:07
I was diagnosed in the beginning of January with a DVT in my left arm.
I have no clotting disorder, do not smoke, have not been on birth
control, etc. so the doctors have no idea why I have this. I have been
on warfarin and things have been slowly improving.

In January, the vein was fully occulated. On April 14th, it was down
to 50%, so there has been improvement; slowly but surely. My pain and
swelling have decreased, as well. That is until this week. I started
to have symptoms in my arm again so I was told I should get an
ultrasound to make sure the clot hadn't moved or gotten any bigger.
According to the radiologist, it is the same. Now this weekend, I have
had so much pain, numbness, and discomfort that I can hardly function.
I this normal? Have I over-worked my arm? Is this part of the process?

Any advice or experiences would be appreciated. I am not sure why I
would have these bouts of feeling almost symptom free and then have
days where it all ... read more

3 replies...

Risk of bleeding...
Posted by Chris
Last Reply May 7, 2014 at 11:02
Started May 7, 2014 at 11:02
Here's another set of interesting links. Hopefully this will help
people feel better about, and understand better their individual risk
of bleeding on anticoagulants. As with all of this, ask your doctor to
help explain this to you.

http://www.globalrph.com/has-bled-score.htm

https://circ.ahajournals.org/content/126/7/860.full

Your individual risk of bleeding will vary with what specific drug(s)
you are on, your health, age, sex and lifestyle.... some of which is
under your control, and some not.



0 replies...

Anticoagulants and NSAID's
Posted by Chris
Last Reply May 7, 2014 at 10:57
Started May 7, 2014 at 10:57
Here's an interesting link. It appears that using Ibuprofen, Aspirin, or
Acetaminophen may double your risk of bleeding if you are on an
anticoagulant.

http://www.medscape.com/viewarticle/823628

0 replies...

Pregnancy with IVC filter in
Posted by Emily
Last Reply May 4, 2014 at 18:44
Started April 13, 2011
HI All,
Has anyone ever had a baby with an IVC filter in? My doctors say it's okay but they would need to monitor me, but I'm just wondering if anyone else has experience with this. Any input would be great!!!

2 replies...

New calf pain while on coumadin
Posted by Anne
Last Reply May 4, 2014 at 13:10
Started June 26, 2008 at 02:40
Hi, I am just wondering about experiences where people have had a DVT while on Coumadin. I've been on coumadin now for 4 months (inr between 1.4 and 1.9 despite constant increases and taking it regularly). I'm active, otherwise healthy 37 yo, +FVLeiden (hetero); first DVT was post-surgical.

Just this morning, I developed a new pain in my left calf, where the extensive DVT was, and it now feels like I have a clot again. I'm feeling frustrated and scared, will call my doctor in the morning. I thought the pain would go away during the day but it feels just like the clot did when it first started! I wonder what could be causing such a sharp recurrence of pain where I have had no pain for a few months now. I wonder if PTS would create such a localized pain, how common it is to form another clot while on the coumadin, etc. Just curious about other's experiences.
Thanks.

8 replies...

Dvt
Posted by Badluck
Last Reply May 3, 2014 at 21:40
Started May 3, 2014 at 21:40
Hello everyone...
On April 24th morning my leg was swollen and had a terrible pain. Went to the ER
and it did not take long to be diagnosed with massive DVT and PE. the clots are
tons as my doctor described. Many in my left leg and many in my abdomenan ang
lungs. Befor that I had the symptoms since 3 weeks but ignored them completely.
Two days ago I had an intervdntion to remove clots from my leg because it was
too swollen and painful.
Before that I was top healthy man in his 28. Doctors are still unable to find any
causes.
Wanted to share my sad story from the ER.


0 replies...

DVT and flying
Posted by Kylie
Last Reply May 3, 2014 at 13:37
Started April 27, 2014 at 08:20
I wanted to share my experience. I am a 41 year old female, I flew long distance
last September 2013 from London to Australia and when I arrived home I started
to experience mild calf pain. I slept on and off the whole way home on the plane
and was therefore immobile for many hours at a time. In addition, I didn't do any
stretching exercises, nor did I drink much as I like to avoid getting up and down
to use the restrooms on the plane. Several days after I got home the pain in my
calf was so severe it was keeping me up at night. I assumed it was just a pulled
muscle. The first doctor that I saw sent me on my way with nothing more than
prescription anti inflammatories and told me that as I am not overweight, nor do I
smoke or take contraceptive pills that I am not a candidate for a DVT. The second
doctor that I saw the following day sent me for an urgent leg ultrasound that
showed significant clotting in the left calf. I was immediately fitted with
prescriptio... read more

7 replies...

PE Recovery Advice Needed
Posted by Optimistic
Last Reply May 2, 2014 at 21:11
Started May 1, 2014 at 15:49
I had PE in February 2014 from a DVT that was in my left arm. The doctors think the
clot was due to a surgery that I had to remove lypomas in my arm several months
ago, but they are not sure. The PE itself was relatively small and did not cause any
damage to my heart. Even though it was small, it felt like I was dying when it
happened and the first few weeks of recovery were scary for me. I was the picture of
health prior to the PE and I'm in my early 40's.

The recovery has been tough and I just need some reassurance that I'm on the right
track because I still have significant symptoms that impact my daily life. I'm on
coumadin.

I have constant headaches and have never had a headache before my PE. My ears
ring also. Sometimes, the headaches get bad and I experience some difficulty
breathing, heart palpatations and and some mild weakness of my arms or shaky
hands and I end up going to the ER. Whenever I go to the ER all of my vitals check
out... read more

6 replies...

Newly diagnosed confused
Posted by BonnieC
Last Reply May 1, 2014 at 02:40
Started April 30, 2014 at 13:13
I had ACL repair surgery and on my follow-up appt 10 days later, Ortho had me have an
Ultrasound done because of some calf pain in the ACL leg. It came back as a clot in the
posterior tibial vein. Ortho told me it's a "superficial vein" and I'm not in as much danger of
a PE because of it's location. EVERYTHING I read online says it's a deep vein. Primary care
doc is treating the clot with Lovenox twice daily and Coumadin. Four days into treatment
INR was 1.5. Coumadin was increased, blood work being done tomorrow to test new levels.
Meanwhile, Ortho doc says start PT, Primary doc says NO PT until Lovenox is discontinued. I
wish these docs would communicate!!
Has anyone experienced a clot in this vein? Do you know if Ortho is telling me the real
truth here? Is this really not as serious?

1 replies...

I dont know if i have DVT
Posted by Nita
Last Reply April 29, 2014 at 23:21
Started April 28, 2014 at 04:26
I'm 36 years old,2 weeks ago i got myself admitted due to palpitation but no dizzy spell or shortness of breath.After all sort of test,they could not find a reason to why i had palpitation, concluded it could be due to stress.Now that I'm reading thru this forum i realize i have been having this pain on my left calf for almost 5 months.The pain gets worst when I'm sitted and only lying on bed can ease the pain,sometimes it gets bad i will swallow some muscle relaxant.I use to have the pain when I'm at work but now i have it all the time and for the palpitation i get it every now and then. Should i be worried about it.

4 replies...

DVT, calf pain 2 weeks after start of treatmnt
Posted by Dale
Last Reply April 28, 2014 at 02:11
Started April 27, 2014 at 17:38
Read this forum many times in past several months, but finally posting a question.

Brief history. I'm an active 40-year old male. I had a silent DVT and sub-massive PE in early Dec 2013. Spent several days in the hospital. Was put on Lovenox/warfarin, then warfarin once INR in range. Things went well, heart recovered, and I generally returned to normal. Flash forward to March. PCP takes me off warfarin, even though specialist recommended at least six months of treatment. Within three weeks, DVT and PE symptoms are back. Fortunately, PE was low risk. But DVT was a lot worse, with a lot of pain running from groin to knee. Testing confirmed both DVT/PE. I opted to not go back to ER, but immediately started on Lovenox/warfarin regime.

After five days of being back on meds and my INR up to 1.9, the pain in my left (DVT) leg had improved substantially. After a week, INR is 2.1 and I'm feeling fine. Up and moving around, back to work, etc.

Finally, to my question. A... read more

4 replies...

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Last Reply April 28, 2014
Started April 28, 2014
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0 replies...

Warfarin and Pepto-Bismal
Posted by DianneH
Last Reply April 26, 2014 at 16:39
Started October 28, 2009 at 02:24
Hi all,

Just want to pass on some info I recently found out about the effects of taking Pepto-bismal while on Warfarin.

My INR has been fine for weeks then suddenly dropped to 1.6 and 1.7, my Dr kept asking me if I was taking my meds! Couldn't figure out what happened until I realized that I had reflux a couple of times in the past few weeks and had taken Pepto to sooth it.

Turns out that if you take Pepto AFTER you've taken Warfarin it just washes it out of your system. Unfortunately my stomach doesn't know this, when it decides to act up while I'm sleeping.

Best to just stick to milk to coat my throat, and a nibble of sugar to get ride of the burning.

Can't wait until my 6 months are over! Augh!!!

5 replies...

Left arm,chest and jugular DVT
Posted by Kerrie
Last Reply April 25, 2014 at 22:24
Started December 21, 2008 at 07:57
Hello everyone

I have just found this wonderful forum and I am so excited because I have discovered others with an upper extreminity DVT. I was diagnosed 2 years ago with an Idiopathic DVT which started in the brachial vein of my left arm, continued into the subclavian vein and finished in my left jugular vein. I was on clexane for 12 - 18 months. Most of the clot disappeared but is still have residual clot in the subclavian and jugular veins. I no longer take any medication. Doctors tested me for many things and monitored me regularly for cancer. What I found interesting from reading others peoples stories, was previous to my clot I had been tested for MS as I was exhibitng many symptoms of MS and was tested on more than one occasion. I had periods of passing out and on one occasion doctors thought I may have had a stroke. However, scans gave me the all clear. Since the clot I have tested low positive on all my blood tests for the past two year for antiphospholipid syndr... read more

18 replies...

DVT FRROM JUST SLEEPING
Posted by Mark
Last Reply April 25, 2014 at 03:56
Started April 23, 2014 at 17:15
Ok se all know long periods of inactivity can cause a DVT. Flights, car travel
operations etc, so can a DVT form during the night when we are asleep? It seems
to me plausible as when asleep we are largely immobile, slow heart rate, similar
to being on an operating table where we know they can form.

4 replies...

SeverePain DVT - Calf
Posted by John
Last Reply April 23, 2014 at 13:32
Started April 21, 2014 at 16:39
A little background....I suffer from numerous medical conditions
including Avascular Necorisis, Chronic Pain, Depression, Multiple
Joint Replacement Surgeries, etc. I have been taking Morphine Sulfate
ER and Oxycodone for pain for the last 6 years. My doses hasve
increased from 30mg twice Daily to the current dose of 200mg Three
Times Daily (600mg per day) on the Morphine and from 5mg 8 times daily
to the current 40mg 8 times a day for the Oxycodone (320mg per day).

I seem to do fine with the MS as it works fairly well and only
occasionally have to take more than prescribed. The Oxycodone, on the
other hand does not work as well at the prescribed doses and I find
myself taking much more than I should and my tolerance has gone
through the roof!

Last week I was diagnosed with a DVT in my left leg. I am no stranger
to DVTs as I have had several in my legs arms and 2 in my lungs. This
particular DVT is extremely painful....I am restricted to my recliner ... read more

2 replies...

Duration of anticoagulant therary
Posted by LeoDN, 44, NY
Last Reply April 20, 2014 at 06:01
Started April 18, 2014 at 17:34
Hi all. This paper is relatively new (February 2014). It is the first
I found that clearly states clear guidelines for extended
anticoagulant therapy (to be fair, other also do, but there was always
something in the others the seemed a bit gray to me). Given the side-
effects of anticoagulant therapy, the risks of bleeding and the risks
of recurrence if one is not taking anticoagulants, this is a very
important topic for us who had DVTs and PEs. I personally think that
it is too important of leave the decision to the doctor alone. The
paper is relatively easy to read (and like all papers one does not
need to understand everything to make good use of it).

"Duration of anticoagulant therapy for deep vein thrombosis and
pulmonary embolism" by Clive Kearon http://www.ncbi.nlm.nih.gov/pubmed/24497538

2 replies...

Brown spotting
Posted by Francisco
Last Reply April 20, 2014 at 05:58
Started April 15, 2014 at 19:22
I'm a 25 year old male and had a DVT about a year ago (genetic
predisposition to blood clots). About a month ago I started getting
brown spots all over the leg, specially in the ankle part. There's
also a little bit of swelling at the end of the day but no ulcers or
anything like that.

I know the brown spotting is a sign of PTS and fairly common after a
DVT but I'm wondering if I can go away with exercise and/or losing
weight. Has anyone with the brown spotting have had it decrease/go
away completetely? Anyone know why it happens?

3 replies...

Wasting Lovenox
Posted by Jen
Last Reply April 20, 2014 at 05:54
Started April 18, 2014 at 20:19
I have the prefilled generic lovenox. It has 6.0 but only need 5.0. How do you guys
dispell the extra?

1 replies...

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