DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 60 of 237
PEs from DVT
Posted by Carole
Last Reply April 18, 2014 at 17:22
Started April 18, 2014 at 15:29
I have pulmonary embolisms in both lungs from a large clot in my right thigh.
Luckily, I'm alive because I've had this for several months, and I thought it was
severe asthma. I've been in the hospital for six days on blood thinner, and I think
my INR will be a 2 by tomorrow according to the doctor.

One thing I'm finding is every nurse is giving me a different picture of what I can
expect. One says there's a chance of forming new clots and sudden death, and
others say I'm okay now because of the blood thinners. I don't know what to
think. Last night I was searching the web, and I got really scared and had a lot of
anxiety. The main thing I'm going to have to do is calm down. It's out of my
hands.

1 replies...

Brown spotting
Posted by Francisco
Last Reply April 15, 2014 at 19:22
Started April 15, 2014 at 19:22
I'm a 25 year old male and had a DVT about a year ago (genetic
predisposition to blood clots). About a month ago I started getting
brown spots all over the leg, specially in the ankle part. There's
also a little bit of swelling at the end of the day but no ulcers or
anything like that.

I know the brown spotting is a sign of PTS and fairly common after a
DVT but I'm wondering if I can go away with exercise and/or losing
weight. Has anyone with the brown spotting have had it decrease/go
away completetely? Anyone know why it happens?

0 replies...

Synthroid and Warfarin
Posted by Rachel
Last Reply April 15, 2014 at 16:11
Started April 15, 2014 at 16:11
I had subclavian stent surgery and developed a blood clot in my jugular. I was put on warfarin. Besdides the fatigue, felling I was in a fog and hairloss I felt lightheaded to the point I couldnt get out of bed. I asked the surgeon, coagulatioin dept and my internist if this was the warfarin and was told no not a symptom. Well I had an appt with my endocrinologist and was telling him how I felt. He said did anyone bother telling you warfarin and synthroid do not play well together? He brought it up on the computer He validated how I was feeling and the reason why. I completed the 6 months of warfrain tho the blood clot did not go away, but 2 weeks later I felt I had come out of the fog AND no more lightheadness. I am posting this for anyone else experiencing issues with synthroid and coumadin. It is NOT in yoru head!

0 replies...

Lumbrokinase and Serrapeptase
Posted by LeoDN NY
Last Reply April 15, 2014 at 08:08
Started April 15, 2014 at 08:08
Anybody out there taking these supplements as part of his/het DVT avoindance strategy?

0 replies...

Night Cramps
Posted by Danny
Last Reply April 12, 2014 at 06:06
Started June 18, 2013 at 13:39
Hi, I was diagnosed as having a DVT in my right calf a week ago and since then have been injecting myself in the stomach daily and just started taking Warfarin. I am told that I should keep my leg elevated whenever I sit, which I do, but when I put my leg down the pain is excrutiating and it takes me a while before I can put my foot to the floor. I am using two elbow crutches to get around but cannot straighten my right leg fully. The pain seems to be getting worse not better and now I've started to get cramps in the muscle when I lay down and go to sleep. This is so painful I nearly pass out. Been advised to take Solpadol (Codeine/Paracetamol), which I started taking yesterday, but haven't felt any changes as yet. Afraid now to lay down and sleep because of the liklihood of more cramping. Any suggestions or do I just have to grin and bear it? Thanks.


5 replies...

Post phlebetic syndrome
Posted by Adam
Last Reply April 10, 2014 at 15:25
Started February 12, 2007 at 10:41
Hi All,after 2 massive DVTs last summer I have been told this week that I can stop taking Warfarin but I am still on heavy duty pain killers as my leg never went back to it's normal size and is still badly bruised.The doc at the hospital told me I have post phlebetic syndrome and that the valve in my leg was badly damaged and he is referring me to a vascular surgeon.Has anyone else experienced this?and did anyone have an operation of any kind?
Thanks.

7 replies...

Compression Stockings During Exercise for PTS?
Posted by alde3620
Last Reply April 8, 2014 at 22:32
Started February 28, 2014 at 11:51
Hi All,

The 20-30 mmHg compression stockings aren't relieving the PTS from my left iliofemoral clot (October 2013, pregnancy-related). On to the 30-40 mmHg compression now. Hopefully this will allow me to get back on the road bike!! Question for my fellow cyclists/runners/exercisers with PTS--what brand/type of compression do you use while exercising? Any thoughts regarding full pantyhose (hose covering the unaffected right leg as well) or chaps just on the affected leg? Is there a compression material that you think breathes better than others? Thanks!

7 replies...

Cortisone Shots in DVT leg?
Posted by Amerimex
Last Reply April 4, 2014 at 17:09
Started April 4, 2014 at 10:22
Has anyone had experiences with cortisone shots in their dvt leg? I haves a bum
knee.

1 replies...

Damaged Veins W/O reocurrance?
Posted by Amerimex
Last Reply April 4, 2014 at 03:25
Started March 22, 2014 at 19:50
Has anyone had vein damage without reoccurance of dvt? My peroneal vein is
now smaller, though no longer blocked. Just wall thickening that makes blood
pump harder through other veins. Coming off xarelto in a week. Scared the small
vein will clot again as soon as it can because it is thinner now.

Any success stories of a few years out with a damaged vein?

11 replies...

Problems 12 years on
Posted by Jo
Last Reply March 31, 2014 at 17:51
Started March 31, 2014 at 11:04
Hi there, I had a DVT in my right calf 12 years ago. Once i'd stopped
my treatment I had flare ups where my leg swelled and hurt which I
presume was from the damaged artery.

For the first time in 4 years my leg swelled last week, and although
the swelling went down the pain was sufficient to go and get checked
out. My bloods were checked and cam back fine but I am so anxious as
4 days later I still have the pain in my leg and am feeling short of
breath (I think that may be the anxiety). When do I get worried? Do
I accept it's just the leg playing up?

I was only 20 when I developed the original DVT and it came as a bit
of a shock.

Any advice greatly appreciated.

1 replies...

DVT Petition for Government Funding
Posted by Amerimex
Last Reply March 30, 2014 at 21:13
Started March 30, 2014 at 21:13
The government has not set aside any money for Blood Clot Awareness and
Research yet has set aside $30 billion for HIV/AIDs. More people die from PE that
HIV/AIDs.

Please help sign a petition asking that money be set aside for DVT Awareness
and pass along to your friends and family to help our patient community.

1 replies...

Compression stockings - what is the future
Posted by Someone_there
Last Reply March 28, 2014 at 15:28
Started February 24, 2014 at 13:08
Dear fellow sufferers.

First of all I want to thank you all for the support you are providing
- this forum is an excellent source for any topic, related to vein
problems.

Here is my short story and some questions follow.

In 2010 I was experiencing sudden sharp electrical pain in my left
leg. An MRI was made that revealed massive disk herniation. I was
treated with conservative treatment methods initially but nothing
happened and I was referred to some kind of microsurgery, which solved
the problem with the acute pain. However, some pain inmy leg remained
and everybody, inclusive of doctors thought that it was due to the
herniation unless one day i was diagnosed with dvt in my left
femoropopliteal vein. Treatment immediately followed and then i was on
blood thinning medication for some time. Howver the symptoms (pain,
tingling, heaviness) persisted and it was until recently (imagine -
more than two years) until one respected doctor in our country (I ... read more

7 replies...

Asthma Or PE??
Posted by Kelsey
Last Reply March 27, 2014 at 23:13
Started March 6, 2014 at 12:44
Hi all! I Recently had a DVT in January caused from Pregnancy. I have had on and off
asthma for the last 10 yrs. I recently had what I think is a flare up of asthma and when I
take my albuterol inhaler the systems go away as they should. I am afraid it could be a
PE but wasn't sure that my inhaler would actually stop the symptoms if it was? Has
anyone experienced this? I am currently on Coumadin and have been therapeutic for
almost 2 months. Thanks

5 replies...

Further surgery after a dvt
Posted by Brian
Last Reply March 17, 2014 at 20:28
Started March 14, 2014
I had a dvt and pe after a recent turp operation. It turns out that I have prostate
cancer and I need to make a decision about what treatment to follow. I would
prefer surgery but I am concerned about further dvt/ pe . I have had various
advice concerning how long one should wait prior to another operation. Anyone
out there who has had a similar dilemma?

2 replies...

Pain in calf and thigh
Posted by James
Last Reply March 17, 2014 at 20:11
Started March 15, 2014 at 21:10
Hello for two weeks now i been having this pain in my calf and thigh on left leg i mainly only feel it if i bend down to pick somthing up on ground on that side and get up from sitting down or laying down pain in back of my thigh down in my calf feels like cramp pain some times feel pain on my foot too it dont hurt when i walk or run only when sitting or gettin up i had two ultrasounds done within a week both came back negtaive im just worried about it thanks

1 replies...

Residual Clotting
Posted by Sarah M
Last Reply March 17, 2014 at 12:16
Started December 18, 2013 at 21:47
Hi all,
So I'm almost 6 months into my DVT ..and 3 months post thrombolysis, which
was able to restore some blood flow to my leg. However my most recent
ultrasound shows there is still some residual clotting in my popliteal vein and I
am still getting some good swelling, though no pain. I am wearing stockings
every day. My vascular surgeon has kept me on anticoagulants (Xarelto) and
seems to think that I may still get some improvement in the next 3-6 months.. But
everything I'm reading doesn't seem too positive in that respect. Can anyone
with residual clotting share whether there is any chance of improvement after 6
months and what other steps you have taken? Do you have to wear stockings for
life? Any help... Much appreciated

14 replies...

Cronic Hip Pain
Posted by Lisa
Last Reply March 14, 2014 at 23:57
Started July 6, 2007 at 05:44
I'm not sure if this is for everyone, but I had an extensive DVT in my left leg that extends above my hips. Luckily the doctors cleared what they could, however my calf and thigh are still slightly more swollen. I did have a stent put into place in my lower abdomen about 3 or 4 inches above my hip joint on my left side. My question is that, it's been a 1 year and my hip joint is still tender and I have continuous pain. Not throbbing pain but an ache pain inside. Also my hip feels tight. I would like to say that I do workout almost daily and I am on my feet most days for long periods of time. But this pain is persistant even when I sit. I can't sit in the car for more than 30 mins at a time and I cannot sit indian-style. Does anyone have this same problem? If so what would you recommend.

10 replies...

Stopping my Coumadin
Posted by Mark
Last Reply March 14, 2014 at 22:04
Started March 10, 2014 at 16:51
Hi, about a onth ago I was diagnosed with DVT in upper left leg. All the blood
tests show that there are no predisposing factors. After a week on Heparin I am
now on 13 mg of Coumadin and my INR is steady at 2.6. Apart from some slight
discolouration of my lower leg I have no symptoms. The DVT came two days after
I returned from a car trip (5 hours) with a 10 minute break. Before the car trip I
went for a 10 km run and did not rehydrate. My doctor said that this was a
possible cause but insists the DVT is "unprovoked" which means 6 months on
Coumadin, whereas if it had a definite cause eg operation or long flight it would
be a 3 month course. If you were me would you stop after 3 months if the scan
shows the DVT has cleared?

4 replies...

Heterozygous and HRT
Posted by Jan
Last Reply March 10, 2014 at 21:16
Started March 10, 2014 at 20:12



I am 36, heterozygous for factor 5 leiden and may need a complete hysterectomy for endo/adeno. I do not wish to go through menopause this early in my life due to a host of life-threatening conditions menopause will cause at my age further down the line (ie: heart disease, osteoporosis, dementia, etc.). My current gyn (who is hysterectomy happy) believes I can take a low dose of HRT. My gp sent referral to a hematologist who denied setting up an appointment as he stated this is contraindicated and I have no alternatives. Who should I believe? Oh, I was on the pill from 13 - 25 (and was a smoker) with no problems. However, my mother who is homozygous got her first clot within weeks of taking BCP's at 20. She had another when she broke her leg in her 20's and in her 40's she had 2 DVT's and a PE until she was put on warfarin when they discovered the gene mutation. I now know I carry one gene as I requested to be tested when I was pregnant at 31. I found out during the second trim... read more

1 replies...

I'm really scared
Posted by Ash
Last Reply March 10, 2014 at 17:27
Started March 10, 2014 at 02:38
For the past 10 days or so I've had calf pain and pain in the sole of
my foot. Kinda just all over my left lower leg and achinees behind
knee. Strange constant burping. It goes from achy to crampy to
twitching. Worse while at rest. I've always heard calf pain is DVT and
deadly so I'm terrified of a PE. Monday and then again on Friday I had
a leg ultrasound and two d-dimer test all negative. But I still have
pain with slight swelling and read that lower leg clots are hard to
diagnosis. Would you trust the Doctors? I read so many stories online
about those tests being wrong. I'm 25 F, don't smoke, no air travel.
Do sit around at desk with feet under me and crossed. Thanks for the
help! Does this sound like a DVT?

5 replies...

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