DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Pain only when resting or sitting
Posted by Jay88
Last Reply March 9, 2014 at 22:08
Started March 9, 2014 at 22:08
hello I been having pains in my lowe leg for a week now I mainly only feel it when I sit down or lay down I can run and walk fine no problems at all after getting up tho I get these pains in back of my thigh and leg but go away after walking a bit feels like a cramp I have no redness no swelling in my leg been going on for a week

0 replies...

Posted by Kay
Last Reply March 9, 2014 at 13:28
Started February 25, 2014 at 06:59
Hi to all. I am looking for some advice/help if possible.

I woke up 2 mornings ago with a niggling pain in my right calf
slightly towards the inner side about 2 inches up from my ankle, the
pain goes up to about an inch below the knee. It is very very painful
to walk on its not so bad if i stay flat footed and not bend ankle but
still painful, and flexing foot upwards is near on impossible -
extreme pain when trying. If I cup the back of my calf and squeeze
gently it is unbearable. It has gradually worsened over the last few
days despite taking painkillers and resting it. I went to my GP last
night (waited 3 hours) and was told that there is no swelling no
discolouration - hence there is nothing wrong. I have also been
feeling very nauseas, lethargic and light headed this past week or so,
and a general feeling of something doesnt feel quite right. Doctor
gave NO diagnosis at all, just told me to continue taking pain killers
and rest it. A little previous... read more

12 replies...

Pain in lower leg & swelling on pelvic area
Posted by James
Last Reply March 8, 2014 at 22:37
Started March 8, 2014 at 21:41
hello for past week now been having pains in my lower left leg I get these pains in back of my thigh when get up afer sitting and moving doesn't hurt walking or any swelling in legs I went to er they did a ultrasound on my leg and saw no DVT but I got home saw swelling in my left side of my pelvic area side of butt area on left side same side as pain I have no clue what could be I only get pains there if I move sometimes but not always it just werid got me worried

1 replies...

Compression Hose Discomfort
Posted by Nancy Houtz
Last Reply March 7, 2014 at 06:52
Started March 1, 2014 at 12:29
Many people who must wear Compression Hose have heavy thighs and/or
legs and find the hose is miserable to wear at the top -- cutting into
the leg/pinching and/or rolling down.

After this happened to me I invented a product that stops this and put
it on the market a few years ago with limited funds. The buyers
feedback shows for 90% of these people, they work! Only sell from
website at www.ComPfys.com. Plan to change and reduce pricing in near
future, so don't buy now. I'm 77 yrs old and built my own website and
have to figure out how to change the shopping cart prices!

3 replies...

Posted by OG
Last Reply March 7, 2014 at 03:47
Started March 7, 2014 at 03:47
WOW! Don't know where to begin. Other then it
really stresses n scares me to b going threw this.
All because of a car accident. I'm to young to b
going threw this n a family to take care if. Don't get
me wrong I'm glad God gave me a second chance n
I'm still here with my kids n hubby. But just going
threw this stress n worries about taking my meds
is to much for me... I'm glad I caught my PE on
time. It put me in ICU again after being in ICU
already because of the accident. But it could have
been worse... I just hope things get better soon.
I'm not a fan of taking meds. But after reading the
previous post know I know how important it is to
take my Warfarin meds. I will say I'm so glad that I
don't have to do the Lovanox shots anymore thank

0 replies...

Lung capacity post PE
Posted by JamesNY
Last Reply March 4, 2014 at 14:35
Started March 2, 2014 at 16:29
I am 47 male and 3 months post PEs and still my lung function is only about
1700ml (on that lung exerciser they give ya in the hospital). I don't exercise much.
Myndoc suggests walking but it's too cold. Was wondering if people could share
how long it takes to get full lung capacity or is this the way it's gonna be from
now on.


4 replies...

Insurance and testing for clotting disorder
Posted by James NY
Last Reply March 4, 2014 at 14:26
Started February 14, 2014 at 23:44
I have Cigna PPO. For some reason the 2nd time now I brought up asking
about getting tested for clotting disorder I was told "It's very
expensive". My reply was that is what I have insurance for. Does
anyone have any info on whether insurance companies do not cover this?
I can see no reason why they would not. Personally, I don't care how
much it costs. I will just pay them 5.00 a month for every to keep
myself out of collections if need be.

5 replies...

Volunteers for video programmes
Posted by Richard Cobourne
Last Reply March 4, 2014 at 07:01
Started March 4, 2014 at 07:01
Do you have or have you had DVT (Deep Vein Thrombosis) or PE (Pulmonary Embolism)?

Are you prepared to talk about it on-camera for the internet, not for TV.

'OSP Healthcare' is producing case study type, educational video programmes to help others to understand DVT and PE what they really mean and how they affect you, your family and your life.

All responses will be treated in strict confidence. Please do not post replies here.

If you would like to help please send a brief overview, telling me a little about yourself and your life (including your contact details) to: Richard [at] OSPHealthcare.com

NOTE: No fees are payable. Reasonable expenses only will be reimbursed.

0 replies...

Two Thrombectomies
Posted by ttill04
Last Reply March 3, 2014 at 17:23
Started February 28, 2014 at 07:57
I am curious as to how long it takes to recover from a thrombectomy. I had an extensive dvt in my right leg. I had a thrombectomy on Feb. 3rd. While in the hospital, I was taking Coumadin and lovenox shots. When I was discharged, the doctor told me to just take Coumadin. Somehow, even though I was in therapeutic levels, my body resisted the Coumadin and within one week, I developed another clot in the exact same spot. I had to get another thrombectomy in the exact same spot 8 days after the first one. I am now giving myself lovenox injections daily. My question is, how long does it take to walk "normally" again. I am not able to stand up straight with my legs straight. My heel will not come down to the floor. Will I need physical therapy?

2 replies...

Suspected 2nd dvt
Posted by Paula
Last Reply March 3, 2014 at 15:51
Started March 2, 2014 at 14:53
Hi just found this forum and would be grateful for some advice. I'm 39 and have
protein c difficiency. My Nan died of a pe and my mother has had two dvts and is
now on warferin. My Mum was tested for protein c and diagnosed as having this
blood condition and her Mum probably had the same. I was tested and have
protein c too. I've had two children and all ok, took clexine during both
pregnancies. February 2013 I began to get lower calf pain, I'm slim a non smoker
or drinker and excersise regularly and am border line protein c think 50%. I had
no redness or swelling, so only pain. Went to doctors and thankfully because my
protein c they took it seriously and had d-dimer which came back 670 and
scanned leg to find to lower leg clots. I then went on warferin for 3 months.
I've started to have groin pain, went to a&e and d-dimer came back 299 so am
having another scan this thurs, I'm on clexine until scan confirms. Very worried
as having pain in the chest but no s... read more

4 replies...

Post THA rates
Posted by Ro
Last Reply March 2, 2014 at 09:10
Started March 2, 2014 at 09:10
Hi guys! I'm a medic doing a health cost analysis of (un/cemented) hip replacement surgery as part of an MPH in London.
Essentially, I've been trying to find evidence in the literature of:
Perioperative proportion of DVTs; anyone who isn't treated (is possibly post mortem)? Of those who are treated, what proportion survive?
Sorry to bother the forum with this but proving surprisingly difficult! Any periop info or info(within say 1 year) would be most welcome. Thank you very much.

0 replies...

three PEs with no DVT found
Posted by Kate
Last Reply March 1, 2014 at 12:18
Started February 25, 2014 at 02:02
Shortness of breath upon mild exertion took me to the clinic where I expected to be told I had anaemia.

A sky-high D-dimer sent me to the ER and a CT scan showed three PEs. I've had Doppler two separate times on my legs, once at admit and once a month later - neither showed clotting.

My risk factors were smoking (not lifelong, but at the time of the clot) and extreme sedentary lifestyle. All genetic and other testing has been negative.

The doctor is not convinced the clot was provoked since I *was* not a lifelong smoker but rather a stress/social smoker; and that the movement to get up from a chair to at least use the restroom etc would be normally be enough to prevent a clot. I've previously done complete bed rest and long haul flights and no clots.

Anyone else out there without any signs of DVT who's had a PE? I quit smoking altogether on my admit to hospital and am on my fourth month of Coumadin.

My ultrasound tech did say that many females clot in pelvic veins... read more

1 replies...

Denied a job due to factor v leiden
Posted by Derrdic3
Last Reply March 1, 2014 at 08:10
Started February 28, 2014 at 23:50

I got diagnosed with factor v approximately 2 years ago after finding
out i had a dvt and got put on warfarin 7.5 mg right away and have
been on it ever since.

I never have any symptoms that Im even on warfarin and would never be
the wiser. Im active, workout 5-6x a week. state champion xc mountain
bike rider, crossfit, if its active and you name it i can do it. Im a
guy, I fall on my mountain bike, get all scraped up and dont notice it
bleed any more then normal. hell, i dont even bruise. I literally dont
even know I have the condition until I take my medication in the

I am a paramedic, trying to be a firefighter and earlier today had a
pre-hire physical examination that I aced in every way except when it
came down to the fact that they knew I had factor v. They said I would
never be able to be a firefighter due to the simple fact that I have a
fully controlled clotting disorder and have to be on warfarin. I dont
want to get into ... read more

1 replies...

Things that cause leg pains when on Warfarin?
Posted by Duncan (2.5 6mg)
Last Reply March 1, 2014 at 02:48
Started December 28, 2007 at 23:22
After the 2 allowed clots and PE I am on long term Warfarin and for most of time no appreciable right leg pain/post thrombotic syndrome.
However recently I have 'self' caused some leg pain along with that awful 'tension' feeling in ones wellbeing without really expecting it - most of us Warfarin takers know I guess about the general things -dark green veg,alcohol, aspirin etc, but have we any specific instances of actually what we shouldnt take or what might be bad for us warfarin takers?

Mine are:-
1. Putting on some weight this year, I tried a mini Atkins diet of a cooked breakfast (worked once before and before I had my clots). After 2 weeks a slight nagging burning ring of pain below my right knee. 2 days after stopping the b/fasts the pain diminished but left with on/off twinges and pains over last 3 months. Just had to learn to put up with these. 'Googling' high protein and INR came up with some evidence that says a high protein diet tends to absorb the Warfarin - hence e... read more

2 replies...

Posted by kdcurtiss
Last Reply February 28, 2014 at 18:04
Started February 28, 2014 at 18:02
A Little Over A Month Ago I Had Further On My Broken Ankle. 5
Weeks After, I Developed A DVT in My Right Calf In The Same Leg.
Doctor Put Me On Xeralto Instead If Coumadin Which I Had For A
Different Clot 5 Years Ago. I'm Now Experiencing A Bit More
Swelling In My Toes Than I Had BefoRe. Is This Normal?

1 replies...

Risk of PE while being treated?
Posted by Mark
Last Reply February 28, 2014 at 15:25
Started February 28, 2014 at 15:25
Hi, I recently got a DVT in my left thigh and from the way the doctor reacted I felt
lucky that I had not had a PE. Turns out the likely cause was dehydration from
exercise followed by a five hour car trip. What I don't get is from being at
imminent risk from PE apparently my risk dropped right away as soon as I
started Coumedin and Heperin. As these drugs prevent clotting but do not
dissolve clots how does the risk drop so quickly considering the clot is still there
and not yet reabsorbed? The only thing i can think of is the risk of embolism
must be associated with new clots not established ones? The swelling has
mostly gone but still slight so I guess there is still something going on in my leg.

0 replies...

Long length compression stockings
Posted by ergomaniac
Last Reply February 28, 2014 at 07:45
Started March 1, 2008 at 13:42
Being a relative newbie to the old DVT and PE experience I am after some advice about compression stockings. I have been advised to wear them day and night and that they must be the full thigh length ones. I was issued 2 pairs by the hospital but they don't stay up!!! For all of you UK readers they keep doing a norah batty on me!! I am relatively tall at 5'10" and have been trying to find a supplier of long length graduated compression stockings but the only ones I've found so far are in the UK. Any advice, suggestions, help? I've got to wear these for quite a while and I'm getting REALLY fed up already with the stupid things! Thanks :)

43 replies...

DVT- in left leg
Posted by Kelsey
Last Reply February 27, 2014 at 20:59
Started February 25, 2014 at 16:41
Hi all! I am a 33 yr old with a DVT in left leg from groin to knee caused by pregnancy. It
was discovered on Jan. 11 and my Labor was induced on the 12. I am currently
therapeutic at 2.5...I have been very active my whole life and have slowly been walking
again for that last week. Today I walked a little further and at the end of my walk a felt a
sharp pain behind my knee. Could it be another clot? do I need to worry about a PE?

3 replies...

Mental health after clotting
Posted by berger
Last Reply February 26, 2014 at 15:57
Started January 7, 2014 at 22:24
This is kind of dark, but... How have your blood clots affected your
mental health, and how do you cope with it?

I was recently diagnosed with my 2nd PE. My first clot happened a
year ago (Jan '13), and since then I've had 2 DVTs and 2 PEs. Prior
to this, I was a very healthy, active 24 year old. No reason has been
found for my clotting-- no FVL, APS, etc.

I have found myself very anxious. I no longer sleep thru the night
but wake up every hour or so. I didn't even know I had the 2nd one; I
thought it was the flu until I had a chest xray and then CT. 1 in 3
PEs are fatal and, well, I'm up to 2. I can't stop worrying that my
luck is going to run out, and I'm scared of dying in my sleep. I want
to get an IVC filter, but for complicated reasons that is not an
option at this time. What can I do?

6 replies...

Posted by Mark
Last Reply February 26, 2014 at 01:05
Started February 22, 2014 at 17:27
I had a DVT in my left leg diagnosed three weeks ago. Prior to the diagnosis I had
two weeks with mild pain, swelling in my calf and a rash. Once diagnosed and
treatment - (the usual heparin injections for two weeks in parallel with Coumadin)
- I am really symptom free. I am wearing my flight stocking 20-30 mmHg during
the day. I exercise cycling, running and golfing. As my symptoms did not last
long, does this mean less likely to end up with PTS? After reading the horror
stories ideally hope not. Anyone else out there who had symptom relief so

2 replies...

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