DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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8 Months after DVT and new pain
Posted by Lori
Last Reply December 11, 2013 at 11:10
Started September 16, 2009 at 22:29
I had a DVT 8 months ago, which is now chronic. My doctor said to stop Coumadin (which I did about 6 weeks ago). I now take an aspirin every day. This week I have noticed a familiar pain/ache in my DVT leg which eases when I have my stocking on. My leg is not red or swollen more than usual. I did do a lot of walking last week. I try to remember if I had these aches before, but every little thing makes me wonder. Do you think this is normal? I know I should expect some pain/discomfort, but I'm just not sure. Thank you.

4 replies...

36 weeks pregnant with DVT in groin
Posted by Jen
Last Reply December 6, 2013 at 19:36
Started June 26, 2010 at 14:12

I'm hoping someone can help. I have struggled to find much information
and the doctors and midwives etc seem to be a bit confused by my
situation too.

I am 36 weeks pregnant and had a DVT in my groin confirmed this week
just gone. I'm in a lot of pain and am struggling to walk and to even
move from the sofa or in bed. With only a couple of weeks to go before
I'm due to give birth, this has completely thrown me off track as
there is still plenty to do, but I can't do anything!

I'm on clexane injections, and am having to take 2 paracetamol's and a
codine every 4 hours just to take the edge of the pain, but I don't
think this is something I should be doing every 4 hours for the next 4
weeks. Especially only a small about of codine is ok for the baby.

No one seems very clear as to what my birth will be like and whether
or not I can or can't be induced or whether or not I can have a C-
section. My initial birth plan was a home birth with no pain kill... read more

11 replies...

what is a safe cumadin level with a DVT
Posted by rona altschuler
Last Reply December 4, 2013 at 14:10
Started July 18, 2008 at 14:17
post arthroscopic surgery I developed a clot in the calf. Also a staph infection in the knee. I am post antibiotics for the infection and am dealing with knee inflamation and pain. I take 7.5 mg. of cumadin daily and my INR is usually 1.0. My doctor does not want to increase the dose. Am I ok. I am becoming more active and exercise with weights daily and walking.
Also can one fly on cumadin safely?

16 replies...

Dvd and PE
Posted by Carol
Last Reply December 2, 2013 at 16:15
Started December 1, 2013 at 14:09
Hi I am soooo pleased to find a
site that talks about what I am
suffering from. I have over
the years suffered many clots
that have sometimes even gone to
my lungs. I have been on
warferin this time for 5 years
and have just development
another clot. So I have been
taken of warferin and put on
another drug. They now think
that I have a form of
trombophillia I have had a load
of blood taken, I find out next
week. But does anyone know if my
hair will grow back I am so thin
at the front. As I have always
loved my thick hair, and now it
has gone!!!!!

1 replies...

time to take warfarin
Posted by sue
Last Reply December 2, 2013 at 14:24
Started October 24, 2008 at 13:46
I know this is a really silly question but with the clocks going back this weekend do you still take the warfarin at 6 oclock as i usually do, or does it make a difference if it was taken 5 oclock. Think ive got that the right way around.

11 replies...

Posted by John in Dallas
Last Reply November 29, 2013 at 18:36
Started November 16, 2013 at 21:52
I have posted on this forum several times and really gone out of my
way to help individuals. However, I am not going to post anymore
because it seems no one really wants to discuss their condition, and
they just want a miracle cure. If I answer members posts, and ask an
earnest question about their condition with the possibly of maybe
giving them some help, rarely is it responded to.

That is not to say I have met several people in the forum and told
them of my experiences with dvt intervention surgery. Two of these
individuals I spoke to over the phone. They listened to my
experiences and sought treatment, and the outcomes were very
successful. However, don't post your phone number in the forum crying
for help, and when I respond to you I get completely dissed. I just
may have info that might help you, because you are completely ignorant
of dvt intervention surgery and do not have a clue.

I have had three dvts and intervention surgery on all three wit... read more

3 replies...

Compression stockings due to DVT (TKR Patients
Last Reply November 27, 2013 at 01:10
Started November 27, 2013 at 01:10
My father has got DVT after TKR, he is now advised to wear compression stockings to the right knee(DVT) at the day time and to take it off at the night time while sleeping. Since from 15days he is wearing the compression stocking to the right knee, now he is getting some unavoidable pain above the thigh. Please anyone can advise us whether this pain is normal or we should concern the Doctor for the clarification?????

0 replies...

Getting another clot while on warfarin
Posted by Sue
Last Reply November 25, 2013 at 14:29
Started January 18, 2010 at 12:08
I've been told that it's possible to get another clot whilst taking warfarin.
Has anyone experienced this and if so, what is the treatment ?

10 replies...

DVT: foot numbness
Posted by Chris
Last Reply November 23, 2013
Started November 23, 2013
A little over a month ago I pulled a hamstring that swelled up so much it caused a
dvt. My quad and calf started hurting as well I thought nothing of it, finally my
foot went numb and I went to the hospital. Spent 9 days in the hospital got lysis
and the procedure to remove the dvt, the dr got all of it up to my ankle than put
me on xarelto. Since the procedure and starting the xarelto my foots still numb
for over 3 weeks

Will I get feeling back in my foot? Will the numbness go away? Am I too

0 replies...

dvt blood clot
Posted by donna
Last Reply November 21, 2013 at 17:19
Started November 21, 2013 at 17:19
My partner has a blood clot he is on the injection his been taking meds for 3 days now but I want to no how long will it take when the blood cot bursts his breathing is bad can't seem to sleep in bed his on the sofa iam on the reclined arm chair I just need more info

0 replies...

Chronic DVT treatment
Posted by MP
Last Reply November 20, 2013 at 18:44
Started November 20, 2013 at 18:44
I just wanted to share my story so that others who have been told that their DVT is "too old" to treat aggressively might be helped. I had an iliac vein DVT (down my whole leg) 11 years ago, with two recurrences both times I stopped warfarin. Two attempted stent procedures 10 years ago failed..."vein is too scarred and clot too hard to open up." One month ago, I had another procedure using TPA to dissolve the clot, then stents placed successfully. I have heard/read that so many doctors declare their is a "window" for TPA therapy (very short, like 10-20 days?) and they won't use it after that.

Anyway, my chronic pain is gone, no leg swelling, and no activity restrictions. I was diagnosed with May-Thurner syndrome, but now the narrow section of vein is opened up and I'm hopeful that I won't have any more problems.

Dr. Keith Sterling, Inova Alexandria hospital in Northern Virginia/DC suburbs, performed my procedure. He's an interventional radiologist, and he said that many prima... read more

0 replies...

Controling INR
Posted by Danielle
Last Reply November 19, 2013 at 12:21
Started January 25, 2007 at 17:09
Hi All,

Getting to the point I am having problems controling my INR levels. I was at 2.6 my 2nd week of treatment and since then leveled off to 1.5 for 3 weeks in a row. They are rising my dosage to 10mg twice a week and 7.5mg the other days. I control my vit k intake and I am really confused as to why this is doing this????

Has anyone experienced this and why?


P.S- I am not responsable for mispelled words as it is very early in the states and have'nt slept very well since I have gotten this DVT!!!!!!!!!!!!!!! Sorry

69 replies...

Looking For Advise
Posted by Tiggs
Last Reply November 19, 2013 at 03:50
Started November 19, 2013 at 03:50
I was diagnosed with a DVT in my left calf 2wks ago. I have been on Fragmin which
was stopped on friday, I am now taking oral anticoagulants. This morning when I
went to bend down my calf feels like it is hardening again. I was wondering if I am
just panicking or if I should call the hospital and talk to someone?

0 replies...

Chronic Regional pain syndrome after DVT
Posted by Linda
Last Reply November 17, 2013 at 06:30
Started November 17, 2013 at 06:30
Hi All,
After an knee injury that caused several dvt's & multiple pe's, I have since been
diagnosed with CPRS ( chronic regional pain syndrome) Wondering if anyone
else has has this debilitating condition?

0 replies...

Warfarin - How to live with it
Posted by Douglas H
Last Reply November 12, 2013 at 05:02
Started November 12, 2013 at 05:02
Having had an Aortic Valve replacement 12 years ago and been taking warfarin ever since. I have learned a lot of useful information for warfarin users. I've been to hell and back health wise because of it's and other effects.
I have now published in an Ebook available via kindle. This will interest all you warfarin users. I have found much health benefit by increasing my raw vegetable and fruit diet, plus ways to balance the negative effects of warfarin and thus feel healthier.
Check out my story on my web www. warfarinwizard.com site where you can also access the book or read the preview.

Warfarin How to live with it and reclaim your Health, Vitality and your life.

If the subject inspires you, you may be inclined to encourage others to learn how my story and experience can help them!

Thank You
Douglas Hicks
Brisbane Australia

0 replies...

having a dvt and flying
Posted by ann
Last Reply November 10, 2013 at 09:50
Started November 10, 2013 at 02:03
I have a dvt in my calf have had it for 3 weeks now I am due to fly in 3 weeks 9 hour flight I am on warfarin but the hospital cannot get me to my target of 2.5 don't know what to do can anyone please give me some advise
thank you

1 replies...

Posted by ann
Last Reply November 6, 2013 at 10:16
Started November 4, 2013 at 02:02
please can anyone help me are you allowed to fly with a dvt in your calf I am on warfarin
thank you

4 replies...

dvt in arm
Posted by sheila
Last Reply November 5, 2013 at 04:20
Started November 5, 2013 at 04:20
I have dvt in my left arm! on fragmin injections for 6mnths, started 2wks ago,
due to fly to spain on the 1st of jan, will it be okay to fly?

0 replies...

flying with a dvt
Posted by ann
Last Reply November 5, 2013 at 02:30
Started November 2, 2013 at 03:28
hi all
new to this forum 2 weeks ago I got a blood clot in my calf I am on warfarin and get my blood checked every couple of days my levels are never stable I am due to fly out on holiday in 4 weeks would it be safe to travel and advice would be appreciated and anyone who has flown with a dvt what was your experience like
thank you in advance

1 replies...

Last Reply November 4, 2013 at 22:52
Started November 1, 2013

2 replies...

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