DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Clinical Trial - DVT
Posted by Suresh Vedantham, MD
Last Reply November 4, 2013 at 18:41
Started January 5, 2012 at 20:51
Hello. My name is Dr. Suresh Vedantham. I am a board-certified physician and I specialize in the care of people who have DVT (blood clots). I am a Professor of Radiology & Surgery in the Interventional Radiology Section at the Mallinckrodt Institute of Radiology at the Washington University School of Medicine in St. Louis, MO. It is a pleasure to contribute to this forum. If you would like to round out your knowledge about DVT with additional information from national physician experts, then I encourage you to visit www.attract.wustl.edu where you will find useful DVT information including a description of conventional and newer treatment options. You will also find information about the ATTRACT Study that I am leading to compare the best traditional way of treating DVT with a newer approach that includes a clot removal treatment. This study is sponsored by the U.S. National Institutes of Health (NIH) and is open for patient enrollment in over 40 hospitals nationwide. The trea... read more

9 replies...

thrombolysis clot removal on below knee?
Posted by Mary
Last Reply November 4, 2013 at 01:42
Started November 3, 2013 at 11:04
It is my understanding that thrombolysis can only be preformed on proximal
clots (above knee) not distal ( below knee).

I have a clot that starts in popliteal and goes down into calf.

Can the new procedures be used on these type of clots???? What are the pros
and cons?

Please if anyone has additional info or has had thrombolysis on a clot that starts
behind the knee and goes down into calf let me know!!!

Thanks
28125


1 replies...

Skin discoloratio
Posted by Ken
Last Reply November 3, 2013 at 13:54
Started November 3, 2013 at 12:07
I've been treated for a PE and a clot in my left leg for about 3 weeks. The pain in
my leg is almost gone and I can barely feel the clot with my fingers. I noticed this
morning that the skin below my ankles has suddenly turned a solid, dark blue
gray. Does anyone know if this is a big problem or not? It's Sunday so can't call
my doctor. It doesn't hurt and isn't swollen. Kind of shocking to see.

2 replies...

I just got tired of my DVT
Posted by evilabeth
Last Reply November 3, 2013 at 11:39
Started November 2, 2013 at 18:56
So,I'm 19 and last year I was diagnosed with DVT in my left foot,from
arteria iliaca communis to v.saphena magna..so I'm on xarelto cause I
have thrombophilia and my foot is still really swollen..this situation
really makes me miserable..I know that there are people who have bigger
health issues as mine,but I still feel sad..I just want to talk with
people who have the same problem and ask how you live with it

2 replies...

hep C and DVT and acne & pain meds for DVT?
Posted by hope
Last Reply November 2, 2013 at 03:16
Started November 2, 2013 at 03:16
I have all three DVT, ACNE, and HEP C does anyone know if they HEP C and DVT cause acne?? Also I don't want to get hooked on pain meds, is gabapentin (NEUROTIN) ADDICTIVE? also what other pain meds have been used for helping ease the pain addictive and non addictive?? please help me with these questions thank you

0 replies...

can i waitress being diagonsed with dvt
Posted by Hanna
Last Reply November 1, 2013 at 22:25
Started November 1, 2013 at 22:25
I was diagnosed a week ago with DVT and did the lovenex and am on blood thinners is it okay to go back to waitressing hard at a face paced restaurant only after one week, with it hurting really bad?


0 replies...

Anyone have an IVC filter removed?
Posted by melissa
Last Reply November 1, 2013 at 16:03
Started October 31, 2013 at 11:00
I was diagnosed with a DVT in my left leg
from my ankle to my pelvis about a week and
a half ago. It was provoked by pregnancy
and factor v. I underwent thrombolysis
surgery two days in a row, and was treated
with a hep drip and TPA. They also
inserted an IVC filter in my groin that I
am scheduled to have removed in two weeks.

Has anyone had this done? Is it as
involved/difficult as the thrombolysis
surgery itself? I am nervous and a bit
scared for them to go back in.

I am 35 years old, for whatever that is
worth.

1 replies...

Is it safe to have a mole removed on Warfarin?
Posted by Sophie
Last Reply November 1, 2013 at 14:29
Started November 1, 2013 at 14:29
My boyfriend had a DVT about 5 weeks ago. He has a large mole near his mouth which he finds makes it very tricky to shave (he had a beard until recently), he keeps ending up with cuts round the mole, and that was before the Warfarin. I've had a couple of moles removed on the NHS, and I know that it's simpler with the bobbly ones than with the buried ones, so I'm wondering whether it would be an option for him to have it removed, if that's what he wants. Can you have a mole removed while on Warfarin? Is it something they can work around?

0 replies...

compression stockings specifics
Posted by peter
Last Reply November 1, 2013 at 12:56
Started October 20, 2013 at 13:14
Hi, I have a recently found dvt; drs have indicated compression stockings of at least 20-30 should be worn for 2 years and more firm (30-40) if possible; Can anyone provide their experience regarding the specific compression stockings rec for dvt treatment in terms of length (thigh high/knee high), open toe/closed toe, and compression and best brands. Thank you.

3 replies...

Foot Numbness
Posted by Anita
Last Reply November 1, 2013 at 12:46
Started April 3, 2011 at 20:48
Has anyone dealt with numbness in their DVT foot after being taken off coumadin? I had a DVT in Jan 2010 and a superficial clot in Nov 2010 in the same leg. I have not been diagnosed with PTS, but I experience quite a bit of pain in my leg (bad enough that I had ultrasounds done to confirm that the veins were clear.) Now I am experiencing numbness in the sole of my foot, running from toes to heel, and my ankle is somewhat swollen. The numbness is constantly there, but the swelling increases throughout the day, even though I am wearing my compression stocking, and there is is an achy soreness by evening. I am a teacher, so I spend the biggest part of the day on my feet.

My leg is not red, there is no other swelling in my leg, and the pain is not any worse than normal. So I am not too concerned that it's another clot. The first appt that I can get with my doctor without having to miss school is not for another 2 weeks, so I was hoping maybe someone would have some insight and... read more

4 replies...

White Atrophy
Posted by Graham
Last Reply November 1, 2013 at 07:12
Started June 19, 2012 at 18:47
I have had DVT for about 8 years now starting when I was 30 years old. It has been a
life altering struggle to say the least. For about a year now I have had what appears to
be white atrophy on my lower ankle. There are hard, white spots that are sore to the
touch. I am going to get this confirmed by the doctor tomorrow, but I was wondering if
anyone else has this and how you heal it and deal with it.

1 replies...

Doctors in Colorado?
Posted by Manuel JB
Last Reply October 30, 2013 at 14:12
Started October 30, 2013 at 14:12
Hello all,

I am approaching 40 and have 4 separate dvts starting at around age 20. The first one was after I was really sick and laid in bed for several days. The 3rd one was after a very long trip to India and back. The other 2 really don't have any explanation. Well, after the last one, my doctor has sentenced me to a lifetime of anti-coagulants. I have had plenty of bloodwork done to determine if there is a reason for me to have this happen, especially since they started when I was young. I don't smoke.
A lifetime of blood thinners is just not something I'm ready to accept. I don't want to live as if I'm extra fragile.
My questions, does anyone know of a Doctor in Colorado that is especially knowledgeable about DVTs, causes, and prevention by other means? Thanks.

0 replies...

Can a scan miss a clot?
Posted by Colleen
Last Reply October 29, 2013 at 13:47
Started October 10, 2013 at 20:30
It's 3.15 am here in uk! I'm in so much pain in my left leg, my ankle. shin (outer
side) behind my knee, above my knee, thigh (outer side)& hip! I feel pain in my
roin area & left side abdomen! I'm crying with the pain & very worried on top of it
all!
I can describe the pain like labour but in my leg!!
I cannot get upright without sever pain like cramps down my leg.
I've been unwell like this for over a week- I went on monday, with great difficulty
to my GP. (very short distance literally 2 min drive) she said she thought it could
be Bursitis - gave me anti inflamitries & painkillers! my blood pressure was up
172/115 pulse 103 & feel short of breath!
The doctor came out this/ yesterday afternoon- upped the dosage of pain killing
tables BP still up- upped dosage of BP tablets as its got no better! I can't bear this
much longer!
The thing is - I went in June to A&E sent by my GP practice (one of the other
partners) with similar pain- they did the blood test but ... read more

8 replies...

numerous blood disorders
Posted by April
Last Reply October 29, 2013 at 12:54
Started October 28, 2013 at 17:15
Has anyone had surgery go forward while on lovenox injections. I have
developed a number of large bruises covering my stomach, some of which
have lumps under the skin. I take a long time to heal but need surgery
quickly. What was the outcome if this if it happened to you?

2 replies...

Xeralto and Sports
Posted by John
Last Reply October 29, 2013 at 07:00
Started October 10, 2013 at 11:17

I am 34 and had my first unprovoked PE two years ago. I was on coumadin for the first 6 months and went off it because I wanted to be able to play competitive soccer again (and I had a hard time being therapeutic INR )
I played soccer for about 4 months and after some long travel I had a second unprovoked PE. I have been on Xarelto for about 4 months.
I started playing soccer again recently although at a much less competitive level.
I'm sure my Doctor would not be a fan of this so my question is does anyone have any experience through their doctor regarding light contact sports and Xarelto?

I know it's always a danger but playing is my release... Anyone who plays a sport they love I'm sure understands.

6 replies...

i am concerned i have a dvt/pe
Posted by Holly
Last Reply October 29, 2013 at 05:09
Started October 27, 2013 at 12:27
i just had 12 hours sleep and am still completely exhausted and feel weak and
faint.

i have been having shortness of breath just from walking ever since i had blood
drawn last thursday - i am wondering could it be a clot from the iv or from
sitting in the er for 6 hours?

my calf hurts especially when squatting or putting weight on it get a stabbing
crushing pain. also getting tingling and numbness in that leg.

dr said no swelling = no dvt.
had a normal d dimer but still not convinced.
want a scan of lungs but had one 6 months ago dr say too much radiation
because im only 20 years old.

also want an ultrasound but hospital does not scan calf area only thigh, which
isn't helpful.

have an appt with cardiologist tomorrow and want to ask gp for ultrasound.
however i am worried the clot will have moved by that time.

i do not feel myself at all. im only 20 and feel like crying because nobody will
listen to me.
nhs are useless no chance of testing unless b... read more

9 replies...

cardizem and coumadin
Posted by joy
Last Reply October 24, 2013 at 22:22
Started October 24, 2013 at 22:22
I have just been diagnosed with svt very fast heartbeat,so I have been put on Cardizem. went to hemo yesterday,inr was4.4..wondering if it has anything to do with new heart med..take 5mg of Coumadin for previous dvt because of genetic issue

0 replies...

how long does pain last
Posted by susie
Last Reply October 24, 2013 at 21:48
Started June 23, 2008 at 22:13
i was diagnosed 3 weeks ago after 11 hour flight had fragmin
now on warfarin, tests every 3 days, but how long does the pains last in legs my legs are not swollen they look normal
,my doc just gives the impression to just get on with the side effects of warfarin but its the pains in my legs in the evenings anybody else going through the same at mo can you shred a little help my way

9 replies...

Diagnosed DVT 1 Week Ago and SEVERE calf cramp
Posted by Sean Libbert
Last Reply October 23, 2013 at 23:03
Started May 15, 2008 at 05:05
Hey everybody, I am new here. I have a question for the experienced or non-experienced if you can relate or can shed any light.

Okay, this sucks for one. I just wanted to get that out of the way.

I went to the ER with a swollen leg about a week ago and they diagnosed me with DVT in my left leg. They admitted me, placed me on Heparin and Coumadin, I was there for 4 days, and now I am home on just Coumadin with INR of 2.4. I have to be on Coumadin for a year, so they say.

My question:

I have the worst f-ing cramp / constant charlie horse in my left calf that I have ever had in my life. I literally cannot walk. I have to use crutches and a wheelchair to get up to my office.

I just got compression stockings today (they're sexy) and just started taking some Magnesium and Vitamin E.

Will this pain fade or go away or am I going to deal with this forever?

Please, any light at the end of this tunnel will help.

Sean

53 replies...

Pain in my whole leg
Posted by Colleen
Last Reply October 23, 2013 at 20:34
Started October 9, 2013 at 14:24
In Dec. 2000 I had a P.E. I was in hoo
Ital 10 days.n I was on heparin & came home taking Warfrin - after a number of
months the doc. Took me off Warfrin- I don't know why!
This June 2013 I had pain in my left leg so after a a couple of days (awaiting a
docs app.) the Doc sent my to hospital!. I had no swelling but had a couple of
slight red patches (10psize) at the outer calf! After the blood test was negative &
then a scan to make sure they sent me home with pain killers. The pain in my leg
did subside a little but not completely & my holiday was rather misareble as I
didnt do the family walks!
3 weeks ago I noticed the pain much more increased- then last week I was unable
to put my foot down to even walk 2yards without sever cramp like pain in my calf!
My blood pressure is 172/117 & pulse 100+ ( my bp is still over 100 distolic even
with increased dosage Linsiniprol! My pulse is racing. I have a constant pain all
through my leg , groin & into my left si... read more

1 replies...

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