DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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anyone had a false negative d dimer?
Posted by Holly
Last Reply October 23, 2013 at 20:26
Started October 23, 2013 at 20:26
I've been having pain in my calf that worsens when squeezed or kneeling. I
have been feeling the spot moving upwards towards my groin.

i had a d dimer on Sunday night that came back at 215 cutoff is 250 at my
hospital. i have had it a few months ago and it's always around the 240 mark.
one time it was 267 so they actually scanned my lungs and did doppler and it
was negative. so with that in my history i doubt they will do anything else

I've also been feeling very breathless.
my doctor says the d dimer wouldn't miss it but im seeing people who had false
negatives and it scares me.

what are the chances the test could be inaccurate? im working myself into a
fret here.

0 replies...

Heparin-induced thrombocytopenia (HIT)
Posted by Patricia
Last Reply October 21, 2013 at 14:28
Started August 7, 2013 at 17:58
Wondering if anyone else has had Heparin-induced thrombocytopenia (HIT).
Specifically the one that is sometimes called Heparin-induced thrombocytopenia
Type 2 or Heparin-induced thrombocytopenia and thrombosis (HITT). This type
causes abnormal antibodies to form and turn on your platelets and next thing you
know you end up with more thrombosis/blood clots than you started with. It is
often called an allergic reaction to Heparin, but it is not a true allergy. If you have
had it, have you ever been given Heparin or Lovenox again?

I had HIT when I got my DVT last year in my left leg. As a result I clotted up in my
left leg again. And my right leg clotted up too. I was told I was ďluckyĒ because I
just got leg clots and that the new clots didnít form in my brain, lungs, heart or
some other more serious place than my legs.

Iím asking because there is some thought that I may need to be put on Lovenox
for a month and Iím more than a bit worried about it.

1 replies...

skin rash
Posted by KK
Last Reply October 20, 2013 at 04:41
Started October 20, 2013 at 03:54
I was diagnosed with DVT 12 months back. I still have some swelling and pain when i walk. I noticed skin discoloration(rash) appeared on my dvt leg yesterday.
Will it ever go away ?

1 replies...

anxiety - leg pain + shortness of breath?
Posted by lena
Last Reply October 19, 2013 at 20:21
Started October 19, 2013 at 20:21
can anyone tell me exactly what kind of shortness of breath they experienced
with pe? i feel like i can't get enough air and some pressure is on my chest.

hello, 2 weeks ago i went to a&e for chest pain and all blood results came back

since then I've developed leg pain but no swelling and in the last 2 days have
become quite short of breath - very unusual for me. i went to gp and
o2saturation was 98% so he was unconcerned. he refused to repeat d dimer
because he said it's not worth it. also because i wasn't as he put it 'gasping' for
breath he didn't take on that symptom.

the shortness of breath is really scaring me. i am considering going to a&e
again but taking my girl who cried wolf scenario from last week it's highly
likely i will see the same doctor and get the same answer - no repeat d dimer
and you're just being a neurotic young girl.

i am very concerned with this breathlessness and feel close to fainting at

i don't know how el... read more

0 replies...

Spontaneous PE and attending the Gym
Posted by Andrew
Last Reply October 19, 2013 at 15:35
Started October 10, 2013 at 13:10
Hi everyone,

Just over 3 weeks ago I was rushed into hospital with a PE on my right side. Reading
the Dr's notes when discharged 4 days later, the 2nd and 3rd lower pulmonary
arteries had filling defects causing a fluid trace and a collapse. The pain was scary,
in turn, made me have panic pain attacks due to not being able to breathe properly. I
am 34 years old and live a very healthy life-style, attending the gym 4 times a week.
I went back to work 3 days ago, but felt extremely dizzy and experienced bad chest
pains, so I went to get it checked out. The Dr said my lungs sound ok now and
having an INR of 3.5 (still high) there is no more risk of having clots, however, i've
read comments that users have formed clots whilst taking Warfarin. I had the
injections for 2 weeks, and have been taking the Warfarin 5mg on since the 2nd day
of being in hospital. Both my mum and sister have had DVT's but i'm hoping the
haematologist can find out what caused my PE... read more

1 replies...

medicine for dvt
Posted by raj kumar kochar
Last Reply October 18, 2013 at 09:14
Started August 3, 2010 at 12:03
iam the chairperson of vishla agrotech pvt limited and we are manufacturing a medicine for dvt under guideline of dr thanki this is a pure herbal medicine this will dissolve the blood clots as well as if a person having job of sitting should be taken after one hour of its sitting this medicine will help to not to create thrombus in future.it is become a reputed brand and results are also satisfied.
our website add is www.vishlaagrotech.com and our e mail id info@vishlaagrotech.com and vishlagrotech@rediffmail.com
any patient who believes in ayurveda a ancient theory of medicine of india may contact us.
our product name is Dr Thanki`s DVT PROTECTAR ADD ON VITALISER

3 replies...

Post-DVT Maintenance
Posted by John W.
Last Reply October 16, 2013 at 20:43
Started October 10, 2013 at 15:47
I experienced a DVT in my left leg which gave way to a bilateral PE - for which I spent 5 days in the ICU and 18 months on warfarin. My hemo took me off warfarin and I've been free of recurrence. It was determined my clot was trauma induced after an injury and subsequent drain on the knee by the orthopedist.

My question isn't about current symptoms - but rather - I'm trying to find the best compression stockings to wear daily. I'd like to wear them to reduce residual swelling, and for the idea that they help blood flow and prevent future clots. I've worn thigh high open toe teds and regular (what I call 'grandma' stockings) compressions. I'm 30 years old, so I'm trying to be a bit more modern.

The problem is these stockings are annoying as all hell. They annoy me all day long. I was wondering if there were reliable brands that others can vouch for that I can look into purchasing. Any recommendations would help. Thanks.

3 replies...

if recent clot check out Attract Study
Posted by peter
Last Reply October 14, 2013 at 18:49
Started October 14, 2013 at 18:49
Hi, this forum is quite helpful; I recently visited stanford Hosp. in California to apply to get in the Attract Study but could not get in because the onset of my symptoms of DVT were more than 2 weeks old; persons with recently identified clots should consider the Attract Study--it is being run throughout the United States (just search goggle on "attract study") but have to get in as soon as possible from iniital onset of symptoms. Best, Peter

0 replies...

specialists for blood clot
Posted by peter
Last Reply October 14, 2013 at 09:44
Started October 4, 2013 at 08:35
Hi, diagnosed with ultrsound with blood clot; 69 in good shape, freq exercise, not smoke or overweight; calf swells up and warm; put on warm and injections; GP has not provided much info; are there specialists who deal with blood clots on a regular basis; what are they called; I am in Kaiser health plan in California; Thanks

5 replies...

Blue veins appearing on foot?
Posted by Simon
Last Reply October 13, 2013 at 05:14
Started September 20, 2007 at 15:32

I was diagnosed with DVT in my right calf about 4 months ago. I've had the normal treatments (injections in the stomach, Warfarin, stockings etc etc) but I've recently noticed thin blue veins appearing just below and above the ankle that hurt slightly. I've got an appointment with the docs in a few days because I'm due an INR test anyway, but has anyone else had these veins appear after/during treatment? I'm beginning to wonder if my stockings are too tight!


19 replies...

Warfarin and Supplements
Posted by Andrew
Last Reply October 10, 2013 at 14:14
Started October 10, 2013 at 14:14
I have been on Warfarin now for just over 3 weeks and was just wondering what
supplements are safe/recommended to take whilst on course.

I started a topic moments ago, and being into keeping fit/gym - I took a number of
supplements/protein shakes. I want to avoid taking a multi-vit due to the Vit K content,
but i've read B12 is good, something I was told to take for life as I had glandular fever
when I was 18. Any others good/bad


0 replies...

anyone help with my symptoms?
Posted by Pam
Last Reply October 9, 2013 at 18:53
Started September 16, 2013 at 11:51
Ive had right leg/hip pain for about 2 years now, keep going back to docs and they say Sciatica, had a scan on my back and they could only see degeneration from age, now recently after Iwalk a 100 yrds my leg goes really heavy and I have pain in my calf, have told the doc and he still says Sciatica,

Im getting quite concerned now that this maybe DVT, can anyone relate to it being Sciatica with these symptoms? also I get restless leg syndrome all the time.

I have made yet another apointment for tomorrow, but they will just say Sciatica again!


2 replies...

High Levels INR from Warfarin
Posted by Sheree
Last Reply October 9, 2013 at 18:24
Started September 24, 2013 at 18:10
I got a DVT in my leg after foot surgery this month, but also have Blood Cancer
(Essential Thrombocytosis,) & take 1000mg. Hydrea a day for the rest of my life. I
have also lost my kidney as a result if the Blood Cancer in 2008.
I have been in and out of the hospital regarding this DVT situation & now my INR
level is 8.0. Does anyone know what is normally done when it's that high???

1 replies...

Venowave, UK supplier sought?
Posted by Alan Butterworth
Last Reply October 7, 2013 at 09:49
Started May 23, 2011 at 15:03

About 6 months ago I looked into buying a Venowave device and came across a UK supllier, Kingsland Medical Ltd. At the time I'd had another scan to try to found a solution to my on-going Post Thrombotic Syndrome and the consultant suggested I try a full length stocking which I've been wearing for about 4 months. As anyone who's tried full-length stockings will tell you, they're a bitch to keep up. I've tried one's with elasticated bands, ones with a waistband and none of them are comfortable. I've gone back to wearing a knee length stocking today, but already can feel PTS back in my thigh and calf. I logged onto Kingsland to find that the company is no longer trading. After speaking to the MD, he suggested contacting Venowave in Canada which I've just done.

While waiting for a reply from Canada, I thought I'd ask here and see if any UK residents had bought one recently and from where?



9 replies...

Posted by Char
Last Reply October 4, 2013 at 13:39
Started January 16, 2009 at 17:57
Video from the Bayer Group concerning a new anti coagulant already approved in Europe and now Canada. Waiting for the FDA to stop protecting me from this new medication. It is OK with the FDA that others and I take rat poison daily.

13 replies...

DVT and Collateral Veins
Posted by Hannah
Last Reply October 3, 2013 at 23:38
Started October 3, 2013 at 16:30
Hey all,

I had a DVT diagnosed Jan 2013 (I was 24 at the time, from IVC to mid
thigh) and about a month ago had surgery to remove the clot. The
surgery was unsuccessful (the clot was too hard). The doctor says
while trying to angioplast the veins, he messed up one of my
collateral veins, which is causing increased swelling/pain, esp in my

My question is: does anyone have tips on how to build collateral veins
bigger/faster? I try to walk on the leg as much as possible, but it
is very painful. Does anyone know exercises that might help in
addition to walking?


3 replies...

Ache in non-DVT leg
Posted by MummyNic
Last Reply October 3, 2013 at 17:20
Started June 10, 2010 at 21:48
Hi, I had a right calf DVT diagnosed a week ago, and since Monday my left shin/calf have been aching.

I asked the haematology nurses about it today and if I could get it scanned, and they said there was no point as treatment would be the same even if it was a 2nd DVT. The nurse told me in her 10 years she had only seen 1 case of bilateral dvt.

I wanted to know as it would (a) give me peace of mind and (b) may help with identifying the reason.

Have many others had the 'good' leg aching shortly after starting meds ?

6 replies...

Help with DVT/PE
Posted by Denise
Last Reply October 3, 2013 at 13:10
Started October 2, 2013 at 14:46
My husband had neck surgery and in the days after surgery he didn't get up and move around. He ended up in the hospital with clots in his lungs, and was put on xarelto. He had a DVT ultrasound done before we left the hospital and they said there were no signs of clots. Upon discharge from the hospital, the Dr said he should stay on the thinners for 90 days, but our primary care physician wants to keep him on this drug for 6 month to a year. The thinners are making him very drowsy, and weak and he isn't able to take his anti-inflammatory medicine for his arthritis. He now has piriformis syndrome which is crippling him. Out of desperation one day he took one of his anti-imflammamatory medication and the pain from the piriformis syndrome was gone. He's been on the Xarelto for 4 months and he wants to quit taking the Xarelto so he can get back on his anti-inflammatory meds. Are there tests i should request to see if
he can safely stop this medicine? any advice will be greatly ... read more

2 replies...

Lovenox and Hand Cramping?
Posted by Becky M.
Last Reply October 2, 2013 at 14:27
Started October 2, 2013 at 14:27
Hi - last week they found a small clot that they believe was caused by a large baker's cyst i have behind my knee. have now been on lovenox 80 mg/ 2x a day for the past few days.

In the last day, I've started having cramps in my hands - it almost looks like some of the veins in my palm are bulging a bit. Not super uncomfortable, but definitely a little weird. Am wondering if it's a 'get thee to the hospital' side effect or one that I should just mention to my doc next time I'm in?


0 replies...

PE & DVT INR 1.5...scared
Posted by SueM
Last Reply September 30, 2013 at 07:32
Started September 27, 2013 at 09:02
Hi there everyone. To give a brief history - I was diagnosed with large PE and DVT
approx 5 weeks ago, I spent 12 days on hospital as there was a struggle to get my
INR between 2-3. I left hospital on 8mg of warfarin, but since I left, I have been
checked weekly. Over the weeks, my INR has decreased, and today it was
worryingly just 1.5. So...should I be worried - they've increased dose to 9mg?
Also, how does everyone cope with their recovery? Is it just a case of doing what
your body tells you? Feel a little 'on my own'. I'm 44 and female and pretty darn
fed up! Thanks everyone

3 replies...

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