DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 73 of 237
Antithrombin111 Deficiency
Posted by Penny
Last Reply July 20, 2013 at 01:54
Started September 6, 2010 at 06:06
I have this condition and want to know if anyone on here has it and if they have had any DVT's or not and what medications they are taking.
Any info would be great!
Thanks

2 replies...

Antithrombin iii Deficiency and Pregnant
Posted by Rachel
Last Reply July 20, 2013 at 01:52
Started March 13, 2010 at 19:22
Hello Everyone,

I am 20 weeks pregnant and have recently been told I have a bad case of antithrombin iii deficency. I have never heard of this before and after speaking with my family no one has ever had it that we are aware of.
I have been put on 40mg clexane injections twice a day for the duration of my pregnancy and have regular appointments and scans over next few months for it.
I am just wondering if any one has this and if any one has had this and been pregnant. I am concered for my baby (little Girl :o))as there is so little information online that I can understand! And I always forget to ask the doctors at the hospital.

All help and advise welcome!!

Thank you for your time :o) x

2 replies...

wARFARIN & EXTREME ANXIETIES
Posted by Ron
Last Reply July 18, 2013 at 14:36
Started June 3, 2013 at 09:11
I am a 68 year old male ... have had two DVT's in my legs ... am on warfarin for the rest of my life ... have been quite successful with maintaining proper INR levels ... over the last two years of use have developed extreme anxieties & for the first time in my life am taking tranquilizers ... a recent medical procedure required going off warfarin for a week ... the first day after no warfarin I awoke feeling normal with no anxieties ... now am back on warfarin & tranquilizers. Would appreciate hearing from anyone with similiar experiences.

1 replies...

DVt and pe pain
Posted by J Morey
Last Reply July 17, 2013 at 20:31
Started July 17, 2013
I've bin on warferin for over a month just switched to Coumadin couple dys ago
suffering from some pretty bad anxiety attacks when trying to drive been
prescribed Paxil but haven't took it yet I'm always alil touchy bout taking new
meds still having a lot of pain in my leg and for passed three weeks developed
similar pain in my left leg doctor says they dout it's a another dvt but I'm 80%
sure it is my pe still gives me a lot of discomfort I've been pretty much glued to
my couch for a month but loosing wait like crazy am I even healing I mean the
swelling has gone down but shouldn't the pain be a lot less by now?

4 replies...

Eliquis -- may soon have approval for DVT use
Posted by Patricia
Last Reply July 13, 2013 at 11:40
Started July 1, 2013 at 19:37
The blood clot preventer Eliquis, sold by Pfizer Inc and Bristol-Myers Squibb Co,
proved as effective as widely used warfarin in treating a dangerous condition
known as venous thromboembolism and caused far less bleeding, according to
data from a large clinical trial.

The Pfizer and Bristol-Myers pill met the main goal of the study by showing it
worked just as well as conventional treatment with warfarin, a generic blood
thinner, in reducing recurrence of the condition and related deaths.

Eliquis also led to a nearly 70 percent reduction in the risk of major bleeding and
more than a 50 percent reduction in a category known as clinically relevant non-
major bleeding. Bleeding is typically the most troubling side effect of extended
use of blood thinning drugs.

Dr. Giancarlo Agnelli, the study's lead investigator, called the bleeding results "a
remarkable real advantage" for Eliquis.

"This is to me the most striking finding of this study in terms of potenti... read more

3 replies...

Synergistic effect of supplements
Posted by Isabelle
Last Reply July 7, 2013 at 14:05
Started July 7, 2013 at 10:50
I have recently had a DVT and placed on Coumadin however memory loss and
early onset dementia symptoms have made me look for a herbal alternative.
When reading about natural anticoagulants I have read turmeric, ginger, garlic,
cranberry, C0Q10 and vitamin E all have the ability to thin blood. Do I take them
all at the same time in supplement form or take the therapeutic dose of one
particular supplement to achieve the desired effect?

1 replies...

Only heparin jelly?
Posted by Meryl
Last Reply July 7, 2013 at 11:04
Started July 7, 2013 at 11:04
Hi,
Asking for my husband who has been diagnosed with DVT. He has been
given heparin jelly to rub on the vein (clot is in a varicose vein)
which is only 200 IU strength. I have read about people being given
heparin via injection or 1000 IU strength jelly - 200 IU sounds
woefully insufficient!
We live in the Maldives and the only hospital here is not very good so
I am not very confident in their treatment plan.
Could anyone tell me what the standard dosage is and if it's normal to
be given only heparin jelly?
Thanks in advance,
Meryl

0 replies...

DVT's While on Lovenox
Posted by Bobbie Lawson
Last Reply July 6, 2013 at 15:12
Started March 18, 2008 at 22:32
Last June I broke my ankle and was placed on Lovenox for three weeks until the cast came off. Two days later, I could hardly breathe and had no energy, not to mention extreme pain from foot to groin in the leg with the broken ankle. Having had a DVT and PE (which almost killed me about 22 years ago), I went back to the hospital and was told that I had clots too numerous to count in the leg as well as in both lungs. Was hospitalized for a week, given more Lovenox and discharged on Warfarin which I continue to take now. What I am wondering is has anyone else formed DVT's and PE's while on Lovenox?

4 replies...

dvt lovenox
Posted by paul
Last Reply July 6, 2013 at 14:22
Started July 6, 2013 at 14:22
Been on luvenox for 3 weeks when should swelling go down

0 replies...

Chronic Blood Clots Part 5
Posted by PAD
Last Reply July 5, 2013 at 21:19
Started June 29, 2013 at 12:53
Last week I went to the hospital and Dr. Garcia managed to remove my blood clots in my left leg. He only does one leg at a time, and since I was having the most issues with the left Ė swelling, pain, spider veins, typical Post Thrombotic Syndrome (PTS) Ė the left was done first. On the first morning he went in and removed what he could, but it was discovered that my iliac stent was completely occluded with an extremely hard clot. This explained why I was having those PTS symptoms. I was connected up overnight to the EKOS machine to hopefully help soften up the clot. I canít say it was the most pleasant 21 hours being connected, but I would do it again in a heartbeat. The next morning I went back down to the procedure room and Dr. Garcia managed to break through the clot in the iliac stent. It wasnít easy, but he did it. He also placed stents in my femoral vein and then 2 more in my iliac system. He used Supera stents. I also had my Cook Celect Filter removed from my Vena C... read more

4 replies...

Suddenly low INR level
Posted by billibob72
Last Reply July 4, 2013 at 18:56
Started October 28, 2011 at 18:08
Hi all,
I've been taking warfarin since Dec 2004 when I got a bloodclot in my lung and was diagnosed with protein s deficiency. My INR level is usually quite stable staying between 2 and 3. Recently it has dropped to 1.6 then gone upto 3.9 and back down to 1.3 in four weeks. I have had some teeth out at the dentist and therefore had to have a bloodtest before each extraction (three).

My question is could this be affecting my INR level?

5 replies...

Some Information from a seasoned 27 DvT and
Posted by Nigel
Last Reply July 3, 2013 at 11:54
Started July 3, 2013 at 11:17
Hi, I have had 27Dvt's in my legs and 5 Pe's in my lungs, I am now disabled as a result of my health condition getting worse over the past 25 years. I was initially 27 years old when it started I got up at my usual time to go to work in the double galssing factory and I couldnt put my feet to the ground I usually cycled the 7 miles to work and back again every single day and yes I was smoker until recently, otherwise I was quite a fit young man taking part in biycycle track racing twice ever week and sometimes 3 times a week,I simply could not stand up my right leg gave way I coughed and brought up some blood I phoned the doctors and I was asked to make my way to the surgery it was a good mile away from home so I rode my bike to the GP surgery and parked it outside I then collapsed in the front door way of the doctors they wanted to call an ambulance but I insisted if I was going to stay in hospital they should give me a letter and let me go home and pack a bag first. which is what ... read more

1 replies...

DVT & PE Guides - answers to many questions
Posted by PAD
Last Reply July 3, 2013 at 07:45
Started July 3, 2013 at 07:45

Two great informative guides on the diagnosis, treatment and prevention of deep
vein thrombosis (DVT) and pulmonary embolism (PE) are available on Clot
Connect.

First one is only 2 pages and just gives the basics:

http://files.www.clotconnect.org/Clot_Basics.pdf

The second one is much more comprehensive and answers many of the
questions we all had right after we were diagnosed. Deals with everything from
the anxiety we may have to the new blood thinners that are coming onto the
market. I wish I had been given this guide when I was first diagnosed with a DVT.

http://files.www.clotconnect.org/DVT_and_PE.pdf

0 replies...

pain in right calf
Posted by lynsey
Last Reply July 1, 2013 at 07:34
Started July 1, 2013 at 07:31
hi there

i am very very worried i have been riding horses all my life but over the last two year my outter right calf mucsle starts hurts after 30 mins in the saddle and after my ride hurts for day i rode a lot for three days a month ago and my calf felt numb for about four weeks i could walk etc but i rode yesterday and last night and same now its so painfull feels rock hard to touch but also i small lump in the middle its hard to explain i just am getting p'd off i dont wanna stop riding i love it and i love my horses so much i do suffer with lower back also but i had accopuchture on it and he said its nerve damage i am not sure my legs linked in but need advice


1 replies...

Compression Stockings
Posted by Rachel
Last Reply June 30, 2013 at 11:44
Started June 30, 2013 at 11:00
I am a midwifery student working on an essay about VTE prevention. Could anyone please tell me when the NHS started using compression stockings as a prevention for VTE/DVT's.
Thanks

1 replies...

Chronic Blood Clots Part 4
Posted by PAD
Last Reply June 29, 2013 at 12:49
Started June 29, 2013 at 12:49
In early May 2103 I have my 12 month Doppler. There is very little improvement from the 6 month Doppler. I am told nothing more can be done. I have clots in the femoral veins and behind the knees of both legs. On my left leg there is concern it may go into the iliac even. I am told they are hard now and permanently attached to my veins. I immediately call Dr. Garciaís office and make an appointment. At this point, Iím not sure if he can help me, but I will always wonder if more could have been done if I donít at least see him. None of my current doctors were aware of what Dr. Garcia is doing, so I see him as a ďsecond opinion,Ē and I go without a referral. That being said, I donít blame my doctors that treated me for the past year for the blood clots I still have. I was given excellent standard care. At times I received more aggressive care than many people that have similar blood clots receive. I will admit that sometimes when I read posts on this site, I have been... read more

0 replies...

Chronic Blood Clots Part 3
Posted by PAD
Last Reply June 29, 2013 at 12:44
Started June 29, 2013 at 12:44
I do as Iím told. I religiously wear my compression stockings Ė I even get used to them and donít mind them so much. They help keep me warm in the winter, which is a plus because on the Warfarin Iím constantly cold. I buy an adjustable bed so that I can easily keep my feet elevated while I sleep. Elevating my legs at night reduced the swelling better than the compression stockings. Some of the small spider veins that appeared after the DVT even disappear in less than a week after the bed arrives. An added bonus, my husband loves the bed too Ė we got a split king and he can now easily read in bed. I take my Warfarin everyday on schedule. I hate the Warfarin though. My hair starts to fall out, almost 25%. I managed to stop the hair loss by taking 5mg of biotin a day and it even grows back. If I stop taking the biotin it starts falling out again. If Iím outside in the sun for more than 10 minutes without a sunscreen my skin develops a hivey rash that badly itches Ė not so... read more

0 replies...

Chronic Blood Clots Part 2
Posted by PAD
Last Reply June 29, 2013 at 12:41
Started June 29, 2013 at 12:41
Everything was going well, I had been taken out of ICU and put in a regular hospital room, and then the day before my release my platelets suddenly plummeted to a dangerous level. Turned out I had developed Heparin Induced Thrombocytopenia (HIT). HIT is basically an allergic reaction to Heparin. Now instead of keeping me from getting more blood clots, my bodyís reaction to the Heparin had caused my platelets to form more blood clots. I now had extensive blood clots back in my left leg and in my right leg too. I was ďluckyĒ that all the new blood clots were in my legs and below the IVC filter that had been put in place earlier. After all, the platelet clots could have formed anywhere in my body Ė my lungs, my brain, you name it.

Back to ICU I went, and even though it is not recommended, my platelets had dropped so low I get a transfusion of platelets because there is serious concern that Iím going to start bleeding internally or at my recent surgery site. Iím sent back to... read more

0 replies...

Chronic Blood Clots Part 1
Posted by PAD
Last Reply June 29, 2013 at 12:35
Started June 29, 2013 at 12:35
Iím writing this because I want to let other Chronic DVT suffers know they should not give up. If they have been told nothing more can be done, donít believe it unless you have taken the step to go see a doctor that specifically deals with Chronic Blood Clots. If you are in the early stages and have only seen one doctor Ė go get a second opinion if you are not happy with what you are being told. At least here in the United States, most insurance plans do let you get a second opinion. Iím sorry this is to long and several postings, but my DVT story started 14 months ago.

In late April 2012 while working 12 to 16 hours in front of my computer for about 2 Ĺ weeks, I started suffering from what I thought was Sciatica on the left side. Lower back pain with pain shooting down the back of my leg Ė classic Sciatica. I didnít think much about it since I have had the issue off and on since my mid 20ís. Since Iím allergic to Ibuprofen I started taking 2 to 3 Aspirin every 4 hours. Ab... read more

0 replies...

pain and shortness of breath
Posted by Sandra
Last Reply June 28, 2013 at 20:19
Started June 26, 2013 at 11:17
Hi. I am a 44 yr. old woman not overweight or on birth control pills.
Since February of this year I have been short of breath. The shortness
of breath is all the time not just when I do physical activity. I did
notice pain in my left calf but had no swelling or redness. But I did
notice a blood vessel in that area. Well the shortness of breath seems
to be getting worse and for the last few days in that same leg I have
pain but now behind my knee on the right side and up the front of my
leg. But there is still no redness or swelling. When I try to take a
deep breath I become very dizzy and feel like I'm about to pass out.
Could this be dvt that has been going on since February?

4 replies...

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