DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Can i wear my compression stockings twice ?
Posted by Taibat
Last Reply May 23, 2013 at 16:28
Started May 22, 2013 at 23:59
I am new to compression stockings. My doctor prescribed knee high
compression stockings for my odema/venous problems. I have started using
Sigvaris compression stockings but I am not quite sure how to use them. I was
instructed to wear the stockings when i wake up every morning and off them at
night. I realise that one has to wear a new pair of socks daily. I wake up very early
in the morning to observe my prayers and have my bath about four hours later.
This is my normal daily routine. My problem is that If i wear the compression
stockings as soon as i wake up, can i remove the stockings four hours later to
enable me have my bath and then wear the same pair of stockings after the bath
since it is still the same morning or am i suppose to wear another pair of
stockings? Is it better for me to delay wearing the compression stockings for four
hours until i have my bath? I am really confused because i want to ensure that i
use the stockings correctly so that i c... read more

1 replies...

Yaz Lawsuit
Posted by Rose
Last Reply May 22, 2013 at 10:39
Started April 1, 2010
Since I've tested abnormal for APC Resistance and have to have further testing later this month, when I saw one of those commercials for a class action lawsuit against the maker of Yaz, I called and had my info taken. The law firm is taking my case and fedexed me paperwork to sign. They were interested in the fact that I tested abnormal for a genetic clotting disorder.

Initially, I held off contacting any law firm until I had the result of my genetic testing. However, something told me to give them a call anyway and I'm glad I did. They are trying to push for the drug manufacturer to add to the Yaz prescription instructions that patients should be tested for genetic clotting disorders that they may not be aware of before being put on Yaz. Somehow having the disorder, although possibly dormant coupled with the Yaz is what may be causing DVTs and the associated problems.

Just wanted to share this with everyone. I'll keep you posted as this develops.

Other side effect ... read more

8 replies...

How does congestive heart failure fall
Posted by pandra bozeman
Last Reply May 21, 2013 at 17:50
Started May 21, 2013 at 01:00
I have congestive heart failure my doctor told me it because of the blood clots
how is that?

1 replies...

Menstrual cycle after DVT
Posted by Leona
Last Reply May 20, 2013 at 11:43
Started May 20, 2013 at 11:43
First thanks for all the great information on this forum, I have been reading for a
few years now.

About 3 years ago I was diagnosed with DVT in my leg and had a few minor PE's,
it was misdiagnosed at first so by the time I made it to hospital things were pretty
bad, after a few weeks in hospital and 2 years on warfarin, I am almost back to
normal now. Other than the constant ache in my leg my biggest worry in that my
menstrual cycle has still not returned to normal. I live in a country where English
is not the first language so it is a little difficult to talk to my doctors about this.
Wondered in anyone else has had a similar problem or has any ideas about this.

Thanks in advanced for any help

0 replies...

Torn Meniscus, DVT
Posted by Tom
Last Reply May 19, 2013 at 06:42
Started May 19, 2013 at 06:42
I had an accident while playing basketball of March 2012. I do not
have insurance, so I was forced to heal and rehab the knee myself.
With much research, I've realized I had torn my meniscus. I wore a
brace for the following months with light exercise, until I felt
strong enough for heavier exercise such as playing basketball again 3
months later. My knee has felt fine for the most part, although me
knee does shift and feel unstable, for the most part it is strong.
During January 2013, I had increased pain in my thigh, which lead to
my calves. The pain subsided a month later and I felt fine. During
February, I have noticed that a bump was forming from the back of my
knee. I researched what it might be and it turned out to be a Baker's
cyst. During this time, my calves were swelling up. I thought it was
due to the fact that my body was producing more muscles to support my
knee. Well long story short, I checked into the hospital with a severe
DVT from my ca... read more

0 replies...

Update - now on Lovenox
Posted by Bob
Last Reply May 18, 2013 at 12:47
Started May 18, 2013 at 12:47
The last 18 months as I worked through the broken healthcare system in America,
I feel once again that I dodged another bullet. I spent several hours in the ER last
night only to find the rat poison, Coumadin, is not working. Well its working and
keeping my blood thin, but I find now I need Lovenox.

So why does it take an ER doctor to find this stuff and take action?

Lately, I've been having problems with my leg and foot wanting to fall asleep.
Feels achy, heavy, tingling, numb, hot. Feels like it did when I got the first DVT 18
months ago. No swelling. Pulse in my leg is excellent.

Not sure exactly why - my INR was 3.2 a month ago, and yesterday read 4.4 at the
Coumadin Clinic.

Maybe the sharp increase in INR was due to my orthopedic surgeon shooting
cortisone into my shoulder two weeks ago? I guess the surgeon is perplexed why
the two packs of steroids he ordered back in March to knock out the inflammation
from the rotator cuff and bicep tendon su... read more

0 replies...

Natural sleep without pain
Posted by Karen
Last Reply May 16, 2013 at 21:18
Started May 29, 2012 at 04:20
I had knee surgery on 26th April this year and 5 days later was rushed to the Er with a clot that had travelled from my ankle to my groin. The pain I had in my calf I though was due to the bandages, unfortunately not. Since then I have been having Clexine 2 x daily along with Warafin. INR levels peaked at 3.2 then have gradually dropped backed with the latest being back down to 1.3 on Monday. I wear a compression stocking and have been told that I will need to wear it for the next 2 years. I was just wondering if anyone had any suggestions for sleep. I sometimes go for up to 2-3 days without sleep due to the throbbing in my legs and the headaches brought on by the Warafin. My doctors have given me Mersyndol Forte for the headaches that the warafin is bringin on and Oxazepam to help me sleep, but I am concerned about becoming dependant upon the oxazepam so I try to use it sparingly. Add to this that the warafin akes me pee so much that just when I do manage to get to sleep my... read more

1 replies...

Gym help
Posted by Diane
Last Reply May 15, 2013 at 18:29
Started May 14, 2013 at 19:18

My DVT is 2 years old and veins still about 50% occluded. I have fragile control on PTS. I'm looking at joining a gym and wondering if there is any equipment to avoid/specifically use. Has anyone any advice/experiences to share?

I was thinking of the treadmill to measure distance and speed and avoiding cross trainer/bikes because of pressure on calf/thigh muscles.

Thanks in advance


3 replies...

Posted by Brandy
Last Reply May 15, 2013 at 16:14
Started May 15, 2013 at 16:14
So on march 9th of 2013 i had a baby all was fine went home then all of a sudden went in with excesive vaginal bleeding so had to get a dnc which led to me being diagnosed with dvt and pe still healing from having baby vaginally was fine for awhile after the dnc then started having excesive vaginal bleeding everyday once a day until one day i went in to get checked and never stopped bleeding was rushed to regina where i found out that my uterus wasn't doing it's job in contracting to get rid of the vessels that were attached to the placenta and some of these vessels were pumping out blood like crazy so had a procedure done where they went in through a punture hole in my groin and incerted mesh coils into these vessels to stop the heavy bleeding anyways this procedure happened near the end of april of 2013 and now it is may 15th and i am still bleeding not bad but having this bleeding for over 2 months and still going since my baby was born is getting to me and was just wondering if ... read more

0 replies...

Welcome back!
Posted by Chris
Last Reply May 14, 2013 at 18:24
Started May 3, 2013 at 20:36
Welcome back everybody. Rob and I worked together and got the system working
again. We are back up and running and will remain so. Look for some new
changes soon where we will have FAQ section for questions we see a lot of

9 replies...

Ultrasound Scans after Diagnosis
Posted by Bob
Last Reply May 14, 2013 at 18:20
Started May 11, 2013 at 02:44
Hi, Just been diagnosed with massive DVT after being fobbed off by Doctors for weeks. Have started Warfarin and daily Heparin until INR stabilised. Just wondering how often I should have scans to see if clot / clots are breaking down. Am in BUPA through work, so considering asking to be referred, as I have lost faith in NHS. Thanks

8 replies...

Off the Wall Question
Posted by Terry
Last Reply May 14, 2013 at 10:46
Started May 14, 2013 at 10:46
I know this is an off the wall question, but since I've been watching
some of the trials on television, and I have a blood clot in my leg
myself and the blood clot is on my mind 24/7, I was wondering, wouldn't
prisoners who are confined to their cells (especially those confined to
their cells 23 hours a day and only allowed out 1 hour a day) be more
prone to blood clotting?
Strange question, I know; Just curious.

0 replies...

surgeons in Canada
Posted by Karen
Last Reply May 13, 2013 at 15:30
Started August 21, 2012 at 23:59
Hey everyone, I'm looking for any help or direction in finding a
vascular surgeon in Canada that will help me with my old clot.
I had a DVT happen in left leg, knee to pelvis, and came off warfarin
around the 1st week of July. I was doing fine, but always suffered
from PTS, which unfortunately has gotten worse. I have chronic pain in
my leg now, and because of the swelling I tend to overcompensate with
my right leg which causes me pain in both. Fun times. Sarcasm.

So I live in Newfoundland, Canada, but am willing to travel anywhere
really to get someone to look deeper into my issues, and hopefully
find a solution for me whether surgery, or a valve to open up my
damaged veins. I can't seem to do anything hear so Im reaching out to
anyone here that lives in canada that has found anyone that will help
me. I don't care if its outside canada, but would like to stay within
if I can. So I guses that's it - Im a 34 year old otherwise healthy
female who got struck... read more

31 replies...

hallucinations on lovenox?
Posted by Lauren
Last Reply May 13, 2013 at 15:12
Started May 12, 2013 at 15:11
My friend is taking generic lovenox and has started having
hallucinations. She is taking no other meds except 10mg prednisone
every day. Has anyone heard of lovenox causing halluciations? People
living in the basement, children running through the house, movie shoots
in the living room at night...that sort of hallucination.

2 replies...

DVT Advice please please
Posted by Sarah
Last Reply May 13, 2013 at 14:45
Started May 13, 2013 at 13:12
Hi had right calf pain on outside of leg by a big vein for last few weeks pain
heightened when driving or sitting. Had an ultrasound today and have left feeling
very confused and a bit worried. The doctors (there was 2 present at the scan)
said they had never seen anything like it ( always encouraging) my Soliel ( not
sure how to spell it) vein was heavily dilated I asked them to explain basically
they said its not a DVT at the moment but it could turn into one. It's very painful
but no redness or swelling. They of course said come back if its more painful or
turns hot or red! Also was concerned because Gyne put me on hormone tabs and
have taken them for past six weeks but now stopped as was concerned! Any help
or advice greatly appreciated was referred from ER so at moment got no
specialist to refer back too. Thanks guys!

1 replies...

Treatment for Post Phlebitic Syndrome
Posted by Micheal Munro
Last Reply May 13, 2013 at 14:43
Started April 29, 2011 at 18:40
Does anyone know if there is any surgical treatment for Post Phlebitic Syndrome?

7 replies...

Posted by Denise
Last Reply May 11, 2013 at 13:56
Started May 6, 2013 at 19:45
I had my kidney removed last week and have been prescribed Clexane for 28
days, no problem. However I have also been advised to wear compression
stockings 24 hours a day fro two weeks. One week one, the weather is warm and
at night they are very uncomfortable. Does any one know if I really need them if I
am taking blod thinning medication?

3 replies...

possible 2nd dvt after pe?
Posted by Von
Last Reply May 9, 2013 at 13:46
Started May 8, 2013 at 20:52
4 years ago, I was diagnosed with dvt to my left leg, after 2+ weeks in hospital released, but on Warfrin for 1 year.
After 2 years from the dvt, I had multiple PE in my lungs. I was then tested for blood disorders. I am factor V positive.
I have been on 11 mg of warfrin for the past 3 years. Yesterday, after a day of being out with my daughter, I have the most severe pain in my right leg, just under the knee. I am concerned as to whether or not if it is possible blood clot. It hurts if I move the leg slightly, and almost impossible to put weight on it.

1 replies...

Dabigatran (Pradax) - Info Needed
Posted by DianneH
Last Reply November 20, 2012 at 06:47
Started January 10, 2010 at 15:30
Hi all,

Is there anyone out there taking PRADAX®(dabigatran etexilate) and or anyone with knowledge about this new drug?

I first found out about dabigatran, from a friend, who's mother-in law was recently prescribed it after surviving a clot induced stroke. She said it has no side effects and requires no INR monitoring.

From what I was able to find on line, here in Canada, dabigatran has been prescribed for people who have hip and knee replacement surgery to ward off DVT/PE and is all the information I can find.

So why am I stuck with Warfarin and all it's wonderful side effects?

I'll be asking my GP about this next week and will post what he tells me asap.

40 replies...

Blood clot removal possibilities in the UK
Posted by Chris Mellor
Last Reply November 20, 2012 at 03:34
Started November 19, 2012 at 11:50
I'm a recent DVT sufferer researcher possible clot removal possibilities o=in
the UK and norther Europe. Any advice would be much appreciated.
Best wishes,
Chris Mellor

3 replies...

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