DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 77 of 237
chest pain
Posted by sue
Last Reply November 19, 2012 at 20:23
Started November 19, 2012 at 17:58
I finished 6 month of warfarin 2 weeks ago,id
had dvt,pe due to broken tib and fib,i am
having the same chest pain today as i had
when i was diagnosed,i am finally due to have
surgery to fix leg now off warfarin,is it
possible i have got a new pe,anyone had this
problem? Thanks

1 replies...

Drugs that cost less than Lovenox?
Posted by Kristi
Last Reply November 19, 2012 at 20:21
Started November 19, 2012 at 18:36
My husband doesn't qualify for assistance with the cost of Lovenox because you must earn no more than $37,825 for a family of 2. They look at Gross Income. We're self-employed & our monthly insurance premium is $1,200/month - and that's with a $10,000 deductible. Once we meet that, the insurance pays 100%. We paid $920 for his 1st week of Lovenox. So, if he ends up being on it for 11 weeks, the insurance should pay 100% after that...unless there is some clause that allows them to weasel out of paying. The box of supplies he was given only list the generic name for Lovenox...not sure if that means he's on the generic version of it. Is it even available as a Generic? He was recently diagnosed and hospitalized for the first time. The hospital uses "hospitalists", so he did not see his Primary Care Physician until he was discharged. She was disappointed that he wasn't seen by a Hematologist while in the hospital. We live in a town of 30,000 so there aren't many Hematologists in our area... read more

1 replies...

DVT Study Now Enrolling-1-866-974-CLOT
Posted by Dr. Suresh Vedantham
Last Reply November 19, 2012 at 17:49
Started November 19, 2012 at 17:49
Hello. My name is Dr. Suresh Vedantham. I am a board-certified physician and I specialize in the care of people who have DVT (blood clots). I am a Professor of Radiology & Surgery in the Interventional Radiology Section at the Mallinckrodt Institute of Radiology at the Washington University School of Medicine in St. Louis, MO. It is a pleasure to contribute to this forum. If you would like to round out your knowledge about DVT with additional information from national physician DVT experts, then I encourage you to visit www.attract.wustl.edu, where you will find useful information about DVT including a description of what DVT is, a list of common risk factors, common symptoms and signs of DVT, ways to prevent DVT, short-term and long-term complications of DVT including pulmonary embolism (PE) and post-thrombotic syndrome (PTS), and conventional and newer treatment options for DVT. You will also find information about the ATTRACT Study that is being performed to evaluate new clot... read more

0 replies...

Rash - 8 days Post Op
Posted by Crystal
Last Reply November 19, 2012 at 13:58
Started April 1, 2010 at 19:28
I had arthroscopic knee surgery on 3/24/10. Surgery went fine and my knee is feeling great. I developed a rash on my thigh and lower calf on 3/28/10 and the rash is only on my surgical leg. My calf is becoming sore. I have no swelling and the pain is not worse in my calf when I bend my foot. The Physical Therapist looked at it yesterday and agreed that it was not the redness from a clot but redness from a rash. However - Has anyone else ever had a rash with DVT?

10 replies...

Post warfarin/clexane symptoms
Posted by Sam N
Last Reply November 19, 2012 at 05:46
Started November 19, 2012 at 05:46
Hi.
I was diagnosed with a large blood clot in my calf and was prescribed warfarin which made me feel very ill with fatigue, drowsiness,confusion and lost a lot of IQ! and felt just generally miserable. After several months, I was prescribed clexane/lovenox injections and began to feel somewhat better. However, I have been off the medication for 6 weeks and the fatigue, slowness of mind persists.
Is there anyone who has similiar experiences after you have ceased taking the medication?

0 replies...

Blood Disorders caused PE
Posted by Kage
Last Reply November 19, 2012 at 01:53
Started November 16, 2012 at 06:15
Hi!
I was diagnosed with PE in June 2011 when I started coughing up
blood. After a huge amount of poking and prodding they realised it was
sue to 2 blood disorders I have (generously passed on one from my
mother and one from my father) neither of my parents blood disorder
effects them but apparently the combination is the sticky part. So now
I have joined the warfarin lifers.
I would like to know if anyone knows what the long term side effects
can be when on marevan warfarin? The Doctors cant really tell me if it
has side effects after 10, 20, 30 years..I am only 29.has anyone been
on it that long? Also, if there are side effects, how have you
treated them? I am fair skinned and live in Australia so I am used to
wearing sunscreen etc but for some reason I have developed what I
think they call melasma, which is hyper pigmentation just above my
cheek bones around my eye sockets...the same on both sides and a
couple of random patches on my forehead. This ... read more

1 replies...

Perscribed Lovenox Once Daily???
Posted by Tony
Last Reply November 18, 2012 at 16:35
Started November 15, 2012 at 22:03
Hello All,

My Vascular surgeon said i have a very small clot below my knee and gave me a prescription for once daily shot of Lovenox. Im a 150 pound male and was told to take 100mg shot in the morning once daily. She said she would adjust the meds based on my next ultrasound next week.

Has anyone given Lovenox for once a day to treat a DVT?

4 replies...

2nd DVT :(
Posted by Tony
Last Reply November 18, 2012 at 13:50
Started November 13, 2012 at 20:21
Got scanned today because my leg felt a bit stiff and what do you know they discovered a Dvt. I am 26/m athletic and i had a previous Dvt 2yrs ago in almost the exact same spot (lower left calf). It was treated with lovenox andd coumadin over 3months and it dissolved. The technician said the clot is small and is right below the knee. The doctor said if i wanted i could use aspirin to treat it... But I opted to go the lovenox/coumadin route being that its what i used before which worked to dissolve the clot.

I work a desk job and i felt my leg tight after a long session of work where i stayed in my chair for about 3hrs straight. I should of taken aspirin and walked around more...too late for that now.

I luckily caught this very early because i recognized the exact pain behind my knee from my first dvt.

Thought id share this. Il update this thread throughout this tedious process.


Tony
My main doctor was not in so this new doctor told me to take

3 replies...

Only on prescription (UK)
Posted by Les
Last Reply November 18, 2012 at 11:21
Started November 13, 2012 at 13:46
My GP has prescribed made to measure below knee compression socks but
my local chemist is not very efficient so although they would be free
of charge on prescription I thought it would be easier to buy them
direct.
To my surprise (and great irritation) I was told that they are only
available on prescription and have to be ordered via the chemist.
For goodness sake, these are not drugs!!
Life does not need to be this difficult.
I should be able to place an order with my own measurements, on-line,
and take delivery within a few days. Why is this not possible?
End of rant.....
Les

3 replies...

Stopping Coumadin
Posted by Peggy
Last Reply November 18, 2012 at 03:45
Started November 18, 2012 at 01:22
I have had so many side effects with Coumadin. I started on March 8 of this year, full leg DVT and in lung. One thing after another it has been. Weight gain is there also. Has anyone or does anyone know about just coming off of it. I am just fed up and want my life back. Thanks Peggy

1 replies...

Arm dvt
Posted by Marni
Last Reply November 17, 2012 at 19:35
Started November 16, 2012 at 01:03
Hey guys, I've been reading a lot of posts and the majority on here have a dvt in
their leg. I have a dvt in my arm, and if anyone has the same I would REALLY like
to hear your experience. I'm having a lot of pain in my neck, my arm is still
swollen after nearly 4 months of warfarin, I have no idea what happens after I
finish my treatment and I have no idea who to ask.. Please answer! Anybody!

4 replies...

HELP...neg tests but I know there's a new clot
Posted by Marie UK
Last Reply November 16, 2012 at 15:45
Started November 11, 2012 at 20:48
Hi
I have posted before, and need some more advice. I have a year old full length
clot, stopped warfarin and have suffered terrible pain since, this im learning to
live with, but My new problem is the other leg...I have servere pain, swelling and
cramps...I had a negative USS and a borderline d-dimer... Doctors feel there is no
clot... I had very few symptoms for the old clot, just the odd cramp at night, this
resulted in me collapsing and spending a fortnight in hospital. I'm convinced I
have a new one, but can't get anyone to take me seriously. Any suggestions? I
can't go through it all again and am scared stiff that my number might be up this
time...help please...

5 replies...

new to dvt
Posted by kevin
Last Reply November 16, 2012 at 01:42
Started November 14, 2012 at 19:09
Being treated at home. Giving myself lovenox inject. and started on warfarin.
Some family members fell I should have been hospitalized. What are your
thoughts. Also, does the clot just dissolve. Mine is located from mid calf to
groin area.

4 replies...

hives
Posted by khulzad
Last Reply November 15, 2012 at 11:07
Started November 15, 2012 at 11:07
before i am diagnosed with dvt on both legs i start having mouth sores
and hives on my both legs and arms( hives comes and go)( doctors says
they are not related with dvt),seen hematologist, dermatalogist now will
see alergist,by some reasons i think they are related.i wonder anybody
else here experienced the same things,

0 replies...

INR Monitors
Posted by Ken G
Last Reply November 14, 2012 at 22:57
Started November 12, 2012 at 01:54
I want to buy a INR monitor so that I can do self testing at home. Can anyone tell me
which brand is the best?

Thank you so much!

http://www.google.com/search?
client=safari&rls=en&q=pt/inr+monitoring+system&ie=UTF-8&oe=UTF-
8#q=pt/inr+monitoring+system&hl=en&client=safari&tbo=u&rls=en&source=univ&tb
m=shop&sa=X&ei=oFWgUP6cLsWJiwLZsIH4BA&ved=0CKcBELMY&bav=on.2,or.r_gc.r_pw
.r_qf.&fp=fcbaa548d73558a5&bpcl=38093640&biw=2260&bih=1400

4 replies...

Phlebitis?
Posted by sj
Last Reply November 14, 2012 at 15:46
Started August 2, 2007 at 01:44
Ok, this is going to be pretty long, but I am really worried.
I am on my feet, on cement, for 8-10 hours a day. For 10 months now. It never hurt my feet or legs, I never thought about it. The last few months have been not nearly as much walking, more standing.
About 2-3 months ago I got spider veins, or red veins beside my knee on my left leg. They didn't hurt. I seriously thought it was from constantly putting my leg on that knee when I was on the computer.
2 weeks ago just above my knee caps became painful and tender, like I couldn't put any kind of pressure there. I could feel that it was my veins hurting. I got spider veins in my right leg, by my knee. By the mid of the week both of my calfs were in A LOT of pain. I went to the doctor, a new one for me.
The morning I went to the doctor I went to take a shower, noticed I had a green bruise on my side. I took a shower, got out, the bruise was gone.. instead it was a spider vein!?
The doctor stared at my side for 3 minutes... read more

6 replies...

slight heart pain
Posted by Jason
Last Reply November 13, 2012 at 13:33
Started November 13, 2012 at 07:21
I have a clot in calf muscle, not deep vain. Just started medication and wearing comp
sock, however i fill as if my heart is burning, like being squashed slightly. Any advice
please.

2 replies...

Pregnancy after DVT due to c-section
Posted by Ryzyim
Last Reply November 13, 2012 at 04:10
Started November 13, 2012 at 04:10
I had my baby through c-section on July 3rd. Ten days later developed a DVT
and stayed at hospital for five days with lovenox and coumadin. Then stayed on
coumadin until september 27 (aprox 2 months and a week). Got my first and
last period after having my baby on september 24 until the 30th. Yesterday I
practiced a home pregnancy test and came out positive. Which are the risks of
having a baby so soon after a c-section and a DVT episode?

0 replies...

Vascular Interventional Radiology
Posted by Linda
Last Reply November 13, 2012 at 01:46
Started November 6, 2012 at 20:12
Who is a candidate for vascular interventional radiology?
I have suffered PTS for ten years after a DVT in the right leg.
I was just diagnosed with a DVT in the left leg over the weekend and I am not happy about the prospect of having to suffer with this again. I am wondering why the course of treatment is Lovenox and Warfarin. It seems that not much has changed in the past ten years. Does anyone know if the procedure is so risky that it is not discussed?

4 replies...

Calf Pain After Treatment
Posted by Lindsay
Last Reply November 12, 2012 at 10:14
Started August 23, 2011 at 01:07
I just completed a week long hospital stay for a DVT in my left calf. I was told it
occurred due to all my years of taking birth control pills coupled with the fact I was in
a bad car accident a few months ago. While in the hospital I was on a constant IV drip
of Heparin and of course Coumidan (which I have continued). I had severe leg pain
when I started my hospital stay, to the point where I was almost unable to walk. While
the pain has gotten somewhat better, I am still in a lot of pain. The only time I am not
in pain is when my legs are elevated. When I am walking, standing up, or even sitting in
a chair, my calf feels tight, constricted, and like the muscles are burning. The nurses in
the hospital told me that leg pain for a few months is normal, but my doctor made me
feel a little crazy today when I went in for my first INR check after the hospital. Is this
pain normal? Is there anything I can do to decrease the pain? At 27 years of age I never
thought ... read more

12 replies...

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