DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 79 of 237
What is the side effect of WARFERIN
Posted by DIpti Ranjan
Last Reply November 3, 2012 at 08:09
Started July 23, 2007 at 07:31
Hello,

I have a DVT on my left lower limb for the last 5 years. And I am on WARFERIN for last 6 months. I read different articles and everywhere I found the same thing that do not Vitamin K contained foods and balanced your diet. But still I am confused about What are the side effects of WARFERIN in the long run as I have to be under this medicine for my life long. Can anybody helps me regarding this?

34 replies...

Coumadin/Warfarin and Blepharitis
Posted by Michelle
Last Reply November 3, 2012 at 04:01
Started November 3, 2012 at 04:01
Hi guys! for those of you on anticoagulants (Warfarin/Coumadin), any problems with blepharitis (eyelid inflammation) or any problems with your eyes? I did a google search on it and got a FEW hits, was wondering if this is common at all? I've been on it for about a year and 3 mos.... for the past year I've had problems with chalazions, styes, pink eye (conjectivitis), etc......... anyone else?!?!? Just curious if there's a connection there at all........
Thanks guys!

0 replies...

Pelvic congestion syndrome
Posted by Karen
Last Reply November 2, 2012 at 21:47
Started November 2, 2012 at 18:02
Thoughts? People going through it
I have varicose vein in pelvis - now stomach pain ,
Lower back pain, what feels like menstral cramping,
It's brutal - please anyone else!!

2 replies...

Idiopathic dvt events
Posted by John in Dallas
Last Reply November 2, 2012 at 20:57
Started August 21, 2008 at 15:33
Hey everyone,

Most discussions in posts here concerning causes of dvt stem from already known diagnosed disorders. My dvt was idiopathic with no "known cause" according to the doctors. All blood work came back normal except for an elevated INR at the beginning. All genetic predisposing factors were ruled out. CT scans of chest, abdomen, and pelvis all came back normal. I had a colonoscopy 2 years ago and that was normal. No "known cause" has really been determined. I was diagnosed 1/11/08. First symptoms appeared 12/11/07 but I thought I had a pulled calf muscle.

However, there were some things that happened just prior to the onset of symptoms that I pieced together and probably triggered something starting the process toward dvt.
1) I had maxillary sinus surgery 10/18/07 and prior to the surgery was prescribed a medrol dose pack which is a corticosteroid.
2) I had the surgery repeated 11/20/07 and again prescribed the medrol dose pack prior to the surgery. Normall... read more

14 replies...

warfarin -how long to take
Posted by jerry
Last Reply November 2, 2012 at 20:07
Started November 2, 2012 at 17:56
I have a deep vein clot in my left thigh and calf. Above my knee to just below my knee. It has been six months and the clot is not dissolving. The Vascular surgeon I see told me to stay on the blood thinners for six more months for a total of 12 months and have another ultrasound to see if the clot is shrinking. He said then I will come off of the blood thinner for a month to see if the clot grows without the blood thinner. If it does grow I have to be on thinners for live. If it doesn't grow I can come off it.

1 replies...

Post DVT Pain
Posted by Tracy
Last Reply November 1, 2012 at 23:35
Started November 1, 2012 at 23:35
10 years ago (I was 19) I had a DVT. I was told that there was clotting from my ankle
up into my abdomen. I was in the hospital for 11 days, and on coumadin for a year. I
still have a great deal of swelling, and some pain. It has been pretty much tolerable.
Last week I had a severe pain in my hip (at the front... like where your jean pocket sits).
The pain is less now, but still pretty bad. Ultrasound showed no DVT, but the tech said I
had very narrow veins. MRI showed a white spot right where I had mentioned the pain.
The doctors figure that since the deep veins were damaged by the clot 10 years ago my
body has rerouted the majority of the blood flow into a sort of bypass route. The white
spot was a just prominent blood vessel, but they don't know why that would cause
pain. I tried to do a little google research, but I've come up empty handed. Has anyone
else heard of something like this, or does anyone know where I could find more
information?

0 replies...

vein stent after 5 years
Posted by shawn
Last Reply October 31, 2012 at 22:28
Started November 1, 2011 at 23:30
I just had a stent placed in my innominate and subclavin vein 5 years after DVT.
Dr Frank Arko in Charlotte, NC did they surgery. I just had first rib resection 5
days after stent placement. All is great so far except for seriuos surgical pain. I
have a follow up ultrasound at the end of the month. After 5 long years of pain
and swelling I now see a light at the end of the tunnel. Never give up, it just
takes finding the right DR.

8 replies...

At risk for another DVT in other leg?
Posted by Vicki
Last Reply October 30, 2012 at 15:30
Started October 29, 2012 at 16:27
Three yrs ago I developed a DVT in my left groin while pregnant. I was on Lovenox for about 8 months during the pregnancy and after due to having a C-sect. The clot is gone, as I have had probably about 5 more ultrsounds since then in the left leg due to my paranoia when ever I developed any type of pain (w/ the initial clot my leg was swollen, hot, red and painful). I have always been worried about the left leg. I take a daily aspirin....Now, my RIGHT calf is causing me some pain. Just a little spot in the back. If I push on it slightly it hurts pretty bad. I am on pain meds for chronic back and right knee pain. I do try to exercise on the elliptical so I thought I pulled something. My worry/question is I thought my increased risk factor would only affect the LEFT leg where I had the first clot. My left leg never really went back to its normal self...some slight increased size and soreness...my husband is sick of my medical bills, paranoia and anxiety so before I rush off... read more

1 replies...

DVT and Pregnancy
Posted by Jo Johnston
Last Reply October 29, 2012 at 08:39
Started October 29, 2012 at 08:39
Hi all.
My first blood clot was at age 15, it was by chance it was diagnosed. After having
a massive pulmonary embolism and near death the doctors advise an IVC filter
would be best to ensure no further clots breaking off going to my heart and
lungs. My condition is due to an anti thrombin 3 deficiency, my liver doesn't
produce enough of a thinning agent. I have had numerous clots while on high
doses of warfarin and a goal INR of 4.0. After research into what could be done to
help, they have found my IVC filter once a life saver has now proven to make my
condition worse. The removal of the filter is out of the question now as clots have
formed around it. A liver transplant was looked into but found to much of a risk
factor. The purpose of all my research is that I want to carry a child, I would of
course have my eggs tested for the condition. Has anyone experienced a
pregnant with blood clots? I am soon to move country to seek more advise.

0 replies...

stopping warfarin and starting aspirin
Posted by jane
Last Reply October 27, 2012 at 03:42
Started October 25, 2012 at 20:22
Has any body else stopped warfarin and who now takes aspirin suffered with tinnitus???

2 replies...

Warfrin and getting off
Posted by Trevor
Last Reply October 26, 2012 at 14:34
Started September 27, 2009 at 03:02
Had second major DVT this January. 1st one was a year or two ago. Doc says I will need to stay on Coumadin indefinitely. I am an active on the go person. I have constant swelling in right leg and am on me feet most of the day. In the past 2 weeks I have been given a knee hi compression stocking 20/30, but I now get edema above the band on the stocking. Second DVT was ankle to Groin. Has anyone been able to come off blood thinners and have swelling subside and get back to easier routien. Did not want to say normal because with DVT there is no normal. I am careful about not getting cut but I get some really severe looking bruising. INR is 2.4 to 2.8 on regular checks every 3 to 4 weeks. Doc says because of DVT I have developed Venious insufficency.(Shitty return circulation I guess) I have dark skin areas on lower leg shin mostly. Anyone have ideas how i can brighten or improve my outlook on this mess.

6 replies...

Does Warfarin change the veins in your arms?
Posted by Ken
Last Reply October 25, 2012 at 22:07
Started January 18, 2011 at 04:18
I've been on Warfarin for 4 1/2 months now and have noticed that the veins in my arms are standing out more and are developing little balls or knobs (small pea size) every inch or so in places. Anyone else experience this?

6 replies...

Sam
Posted by Head cold and Warfarin
Last Reply October 25, 2012 at 12:30
Started October 25, 2012 at 12:29
I am suffering through my first head cold since starting Coumadin 11 months
ago. I am taking some Tylenol but that's about it. Pharmacist said I could take
claritin (the one w/o a decongestant) but that is pretty useless .
I know there HAS to be a way to handle a run of the mill (but debilitating) head
cold while on Coumadin. It is very difficult to find info online basically it says 'be
careful, dont take anything". Any lifers have some ideas? What has worked for
you? Any changes in INR?
When I am off the warfarin, I will NEVER take OTC drugs for granted again ;)


1 replies...

continure warfarin?
Posted by Jerry
Last Reply October 25, 2012 at 12:23
Started October 24, 2012 at 14:19
Deep Blood clot in my thigh and superfical clot also in thigh. Family Dr. wanted me to come off warfarin after 3 months so I went to a vascular surgeon to get a second opinion and he said I should stay on it for a total of six months. After six months I requested a ultrasound and found out the clot is not dissolving. He told me 6 more months and then another ultrasound. Then I will come off warfarin for a month to see if the clot grows. If it doesn't grow I can come off warfarin if it starts to grow again I will have to be on warfarin for live. Anybody else have this happen to them?
Seems like family Dr.'s don't know how to handle blood clots.

2 replies...

2 months after DVT diagnosis...
Posted by jen
Last Reply October 23, 2012 at 17:04
Started June 23, 2010 at 03:28
I have no prior history of DVTS or blood issues. On 4/19/2010 I was diagnosed with a DVT in my right femoral vein extending down to below my knee. A couple weeks ago, I was almost back to normal and went on a pain free (yay!) 2 mile walk. As of last week, my leg pain is slowly coming back, and my leg is even swelling a little. I had a ultrasound today and the tech indicated that there has been no change to the clot and it still remains.

I have had a pretty regular INR of about 2.9. Still taking coumadin, I was only on the Arixtra for a few days back in April.

I have a couple questions...

1. Why would the pain come back after seeming to go away previously?
2. Besides the Coumadin, does anyone recommend another treatment?
3. Being 2 months on the Coumadin, am I still at risk for PE?
4. Should I continue with my regular activity, or should I be taking it easy?
5. Does anyone suggest Catheter-directed thrombolysis? What are the risks of doing it?

Thanks!
jen

14 replies...

What next ?
Posted by Jimmy uk
Last Reply October 23, 2012 at 12:58
Started October 23, 2012 at 12:58
DVT after Peripheral artery bypass operation, right leg the size of two, now got badly bruised stomach and lumps under skin, INR up and down like a yo yo. Together with 95% loss of use in both shoulders and arms, Stage 4 Chronic kidney disease, crippled left leg,...think I need a holiday on a nice sandy beach. Knowing my luck a shark would get me he he


0 replies...

After stopping Coumadin
Posted by william
Last Reply October 20, 2012 at 08:00
Started October 17, 2012 at 06:29
My fiance has been off Coumadin little over a month. She's been having
headaches daily and hair loss its been thing since the last week she was on it.
Has anyone else had these problems. We are getting married in a week and
can't stop crying due to the hair loss.

3 replies...

I NR level is 1.1
Posted by Dave
Last Reply October 20, 2012 at 01:12
Started October 19, 2012 at 23:41
Need help with I N R Level

1 replies...

Power port for medications
Posted by Annie
Last Reply October 19, 2012 at 18:38
Started October 17, 2012 at 03:01
Has anyone else had to get a port (bard's power port in my case) so that blood
draws, ivs and ct scans can be done? I was hospitalized again over the last week
for yet another DVT in my subclavian and PE. After 8 horrifying hours and 7
people (4 iv team members, with an ultrasound machine and 1 doctor among
them) I still had no IV access to deliver the heparin I so badly needed because my
upper extremity veins are so bad from the clotting and scar tissue. At this point I
was in so much pain and becoming unable to breathe they decided I needed a
port so that access would be available. My husband and I discussed it and
decided at the time it seemed the only option. My concern is two fold. One is I
know that port are an added risk for clotting, which I don't need. So how often do
you have it flushed with heparin? And have you had any further problems from
having the port in? And two. I have read horror stories about the Bard power port.
Does anyone have one and ... read more

3 replies...

DVT and Weight Training
Posted by Matt
Last Reply October 18, 2012 at 10:10
Started October 18, 2012 at 10:10
Hi all,
first of all, sorry for my English, I'm Italian so I may make some (a lot) errors!

On July I was taken to the hospital because of DVT on my left thigh.
I'm only 27 years old, so I've done some examinations and I've discovered that I suffer of a form of vena cava agenesis.
I've been performing weight training for 10 years and I've been taking supplements (whey proteins) every day since 1 year.
I would like to know if bodybuilding and a protein-rich diet could improve the chance of suffering of DVT.
I've searched a lot on the web, but I found no article that prooved the relationship between bodybuilding/proteins and DVT.
Could anyone help me?


I've stopped going to the gym since July, but now some doctors told me that I could start excercising again, beacuse the agenesis makes me "immune" to EP.
On the contrary, Some other doctors forbade me to exercise until the end of the therapy (6 months or more).
Who should I trust?
After 3 months I still have chances of ... read more

0 replies...

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