DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 8 of 237
DVT
Posted by Debbie
Last Reply May 26, 2017 at 07:15
Started May 26, 2017 at 07:15
I have a history of hypertension, but my Blood Pressure has been all over the place. I have been adjusting my blood pressure medicine according to my blood pressure, my Cardiac Dr. is aware of this, he knows I have been an R.N., for 47 years and he said he trusted my judgement regarding this. I now have had a discomfort in my Left calf area, no redness, no swelling, no warm to touch, but discomfort when I apply pressure. What should I DO ?

0 replies...

New blood clot on warfarin possible?
Posted by Karen
Last Reply May 25, 2017 at 12:48
Started January 2, 2012 at 03:20
Okay so what would I do without this forum? Ha, I don't know!
I do have a question though, and I hope it's not just paranoia as this
blood clot has for sure scared me. I have had a few tinges and pains
in my right calf now, and throughout for the last 2 weeks or so. My
clot is in my left upper thigh and I've been on warfarin for over a
month now with that one. Never really stable on my meds, been 2.5 and
2.92 for one or two times, the rest of them 1.7 or around there.
My question is can i have another blood clot in my right leg while i'm
on warfarin? It is so achey, but I keep thinking that maybe I have
just used that leg so much for weight balance since my left one feels
heavy that I;m just pulling and using muscles...but god it feels odd.
Anyway I'm babbling and I'm nervous. So can you get another blood clot
in the opposite leg while on warfarin? thanks.

54 replies...

Hi New here. Post surgical DVT right calf
Posted by kristin
Last Reply May 25, 2017 at 01:39
Started May 16, 2017 at 22:27
I had a diastasis recti repair and abdominoplasty 2 weeks ago. Two days ago I woke up with a tight feeling in my right calf. No redness, pain, swelling, but I googled (!) and read that dvt may present as a cramp. Told my surgeon, who sent me for an ultrasound, and here I am. I am 42 and otherwise healthy. I am on xarelto 2x/day for 3 weeks, then will probably stay on it once a day for a couple months, or possibly switch to another due to cost. I have young children and am terrified of every ache and pain now, worried that the clot is traveling to my lungs or brain. I worry that this is going to affect my otherwise active lifestyle and that I'll have to be on bloodthinners forever or risk this happening again. Any hopeful stories appreciated!

1 replies...

DVT & May-Thurner Syndrome
Posted by Donna
Last Reply May 25, 2017
Started January 15, 2007 at 21:38
Has anyone who has experienced a DVT been diagnosed with May-Thurner Syndrome? If so, did you have a stent or stents put in your Iliac vein?

139 replies...

New here and just diagnosed with DVT
Posted by Cheryl-Lee
Last Reply May 23, 2017 at 12:10
Started May 23, 2017 at 12:10
Hi everyone

I'm new here so hope no one minds me
posting here. I originally had superficial
thrombophlebitis last March and was given
2 courses of Rivaroxaban then 6 months of
Apixaban. The last few days, my right leg-
where the superficial thrombophlebitis was
- started giving me grief.

I was sent for a leg scan and the
sonograpger found problems with the blood
flow and also DVT. I've been prescribed
warfarin indefinitely and also got a
referral to the anticoagulant clinic amd
thrombosis clinic. The pain is unbearable
and I'm struggling in my work with it.

Just thought that I'd share my story.




0 replies...

What will happen if I drink Alcohol?
Posted by Carl
Last Reply May 23, 2017 at 08:59
Started May 22, 2010 at 19:57
The worst thing affecting my life since being diagnosed with extensive DVT is being told that I can't drink alcohol, what a nightmare!
What are the risks if I continue to drink whilst on the injections and Warfarin? Does it affect the treatment from working or is it just a case of potential liver damage?
Surely a few good sessions would be ok?
Why do they tell us not to drink except keeping within those silly government guidelines?

Thank you in advance for your answers!


23 replies...

Smoking and DVT
Posted by Sarah
Last Reply May 23, 2017 at 08:10
Started June 19, 2008 at 16:31
So I was diagnosed with DVT in January. Had a clot from my ankle to my kidney. Doc said to quit smoking and stop all birth control pills. I did quit for about a month then things got hectic and I started again. My husband is really on my case. He thinks I will die from smoking. I take 10mg of warfarin a day and have an IVC filter stuck in my neck. Will smoking really affect me that much??? My INR has never really been normal. It usually ranges from 1.5-1.9 They want it to be between 2.0 and 2.5. This never happened even while I was not smoking. When it is low my nurse always asks if I missed a dose, and I tell her no, but I do not mention that I started smoking again. Is this to blame??? Is my husband right? Will it really kill me? I am 27 and I guess in a little denial about the whole DVT thing.

35 replies...

pain in thigh
Posted by scouser
Last Reply May 18, 2017 at 13:18
Started March 30, 2017 at 13:28
i am on xeralto after having 2nd dvt in a year. i did not get any
original pain but now i am having pain in top of thighs into groin
and getting very sleepy. do i need to go to doctor or is this normal?

3 replies...

Do I have a blood clot?
Posted by missjg1322
Last Reply May 18, 2017 at 11:50
Started May 13, 2017 at 21:00
I have a mild pain in my left leg. Its not
constant or severe, just annoying. I have
no swelling or redness either. Ive had it
for 3 days though and nothing seems to
help it. Ive tried painkillers, magnesium
and applying heat. Could it be a blood
clot? Im a 30 year old female, I dont
smoke and Im.not on birth control. I also
havent been on any long flights lately. I
cant recall doing any injury to my leg
either

1 replies...

Vein Transplant
Posted by Mel
Last Reply May 17, 2017 at 14:50
Started April 2, 2007 at 11:38
Hi guys. I have been suffering with DVT for 6 years now and have constant pains and pins and needles in my legs. Both my legs, from the tip of my toes into my pelvic area are completely clotted. After 6 years the clots are still there and have not been disolved.

From having constant problems with my legs, and having to be on warfarin for life I was wondering if there is anyway a vein transplant can be done? Is there such a thing?

13 replies...

How long does it take for the clot to go away?
Posted by Sue
Last Reply May 17, 2017 at 12:06
Started July 4, 2010 at 18:11
I was diagnosed with a DVT in my left leg in Feb this year. I've been taking
warfarin since then and using compression tights and initially all my symptoms
went away. They started to come back though as my blood count went down in
early April (it went from a steady 2.5 down to 1.6 before they changed my warfarin
dose at the end of May despite me telling the nurses at each visit my leg didn't feel
right). I met with the consultant last week (first time I've seen him since initial
diagnosis) and explained return of my symptoms - he referred me for another
dopler ultrasound and I was told the clot has gone from my thigh but is still quite
large behind my knee and into my calf. Depending on who I speak to I'm told
either the clot will disperse (again either within a matter of a few weeks or could
take a long time) or it will remain in my vein and my body will cope with it by
diverting blood to other veins in my leg. Does anyone know which is right? I think
... read more

145 replies...

Recovering/from DVT & PE
Posted by With hold
Last Reply May 17, 2017
Started May 17, 2017
Hello, first I would like to say to everyone
facing with this conditions! My deepest sincer
to all that are dealing with this illness. As I
have experience with the same just differeley.
I'm recovering and getting my self educated the
best and more for self care. I give thanks to
this site and the people that give ur story.
Thank you so much! I think lets get all the
knowledge that is best for our care. Let's
continue our love on self to find the cure.Be
well everyone. May we all find in gods hands
the best care!! Be well, be care active.

0 replies...

Questions about May-Thurner
Posted by Sarah
Last Reply May 16, 2017 at 10:42
Started May 1, 2008
Well hi. I've just recently started posting here, have been on a couple other dvt support sites but this one seems to get a bit more daily action and feedback...

I'm 33 and got my dvt on February 14th (happy valentines day to me!) It is in my left leg, groin to below my knee, probably closer to my ankle, and the whole thing was hugely swollen and purple/blue. Blood tests before going on coumadin came back normal except for protein s deficiency, which my hemo said could be attributed to birth control. Will test again in a few months. So, I seem to be a perfect candidate for May-Thurner, altho no one mentioned this to me during my hospital stay or during follow up with my hemo. My GP of course didn't even know what it was when I asked him about it yesterday. I know there is quite a group of people on here who have M.T. and was curious what type of doctor diagnosed you. I could make an appointment with my hemo but thought maybe I should start looking for a vascular specialist or int... read more

13 replies...

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Posted by jolique1
Last Reply May 15, 2017 at 08:48
Started May 15, 2017 at 08:48
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0 replies...

Wear compression stockings when running?
Posted by Athenian
Last Reply May 13, 2017 at 05:07
Started April 14, 2017 at 04:08
Should they be worn or not? I had contradictory advice from different
vascular surgeons. One stated that the blood when running goes up
really fast in the veins and that wearing stockings could create skin
problems.

I have femoropopliteal DVT (diagnosed 5 months ago) and use class II
thigh-high stockings. Again, here some suggest knee-high instead.

1 replies...

How Long for Pain?
Posted by Michele
Last Reply May 12, 2017 at 14:05
Started June 3, 2009 at 14:28
I am 32 years old and a very active person who was diagnosed with DVT in my right calf about 2 1/2 weeks ago. I was on lovenox for 10 days and am obviously still on coumadin. My question is, how long does it take for the pain to go away? I am still barely able to walk. And definitely unable to drive. My doctor doesn't seem worried and says to allow for a few weeks. I guess the pain gets slightly better each day, but it is still extremely sore and hurts to walk. Not to mention that when I do walk, I move so slowly because of the pain. I've been using crutches to get around too. Does this sound "normal"? How long does it typically take for the pain to go away?

Thanks so much for all your thoughts.

Michele


17 replies...

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Last Reply May 12, 2017 at 09:01
Started May 12, 2017 at 09:01
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0 replies...

Why is high INR dangerous?
Posted by Michelle
Last Reply May 12, 2017 at 07:28
Started September 24, 2009 at 12:41
Hi guys,

I know this is probably basic basic, and I know what have a high INR means...I just don't know the complications well enough to understand.

I know I have thinner blood, which is potentially dangrous if I were to get cut, fall etc...

I remember the doctor's talking about internal bleeding...can that happen spontaneously, or does it have to be provoked by some kind of blow?

I feel so much...saer with a high INR than with a low one for some reason and I don't know if that's logical.

To top it all off, I am studying abroad right now which complicates things if anything were to ever happen....god forbid.

Thanks!

53 replies...

Alcohol and long term warfarin
Posted by Amandajane
Last Reply May 12, 2017 at 03:58
Started December 15, 2008 at 10:42
Hi, Does anybody else out there enjoy a glass of alcohol every now and then. I find it doesnt change my inr much. Has anybody got any idea of why some doctors say no problem and others say only have one. I am confused and dont know if I am drinking too much while on warfarin. Im on it for life. Thanks

13 replies...

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