DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 83 of 237
pelvic dvt
Posted by debra
Last Reply September 22, 2012 at 14:02
Started October 10, 2011 at 18:31
hi was diagnosed 5 weeks ago with a big clot in my external,inner and common iliac veins. i am on warfarin now but still have pain and swelling in my left leg and sometimes severe pain in my left pelvic side . i was wondering has anybody else had this kind of dvt and when i will i be well enough to return to work as iam a care assistant in a nursing home and work 12 hr shifts usually on my feet.there is no apparent reason for the dvt as i,m 45 yr female not taking the pill and no family history of dvt. i would find it helpful to talk to people in the same boat as myself thank you debra

9 replies...

Severe groin pain 5 yrs after resolved DVT
Posted by Koshka
Last Reply September 22, 2012 at 09:39
Started September 22, 2012 at 06:09
Hi, I had right femoral DVT 5 yrs ago.  Symptoms were shortness of breath and
aching leg, particularly ar night, which led me to get a work up, which led to cath
to check heart.  Heart was fine, but following procedure had severe pain in leg
and that is when they found 6 inch clot.  I have history of horrible headaches as
well and have tested on the low positive end off anti phospholipid antibodies.  
Also, the cath caused pseudo aneurism in adjacent artery.   Treatment was 1
week inpatient then 7 mos warfarin, all fully resolved.  Fast forward 5 years:  have
severe pain in right side pubic area of groin, and have noticed shortness of
breath and some intermittent chest pain and much more frequent headaches over
last few weeks.  Groin pain started last night only.  Head pain, chest Pain or
tightness and shortness of breath, I have been attributing to increased workload
and very high stress job, but now with bad groin pain, I am a bit concerned.  No
leg swelling... read more

1 replies...

New dvt while on warfarin
Posted by Sue
Last Reply September 22, 2012 at 09:24
Started September 20, 2012 at 07:25
Hello,
About 3 weeks ago i woke with a sore leg, i went to my local hospital, thinking i had a clot, my inr was 1.9 as i had tested the day before.I have been on warfarin sence 2007.The hospital sad it was unlikley,so i left, two days latter i went to enother hospital, and sure enouth after test i had a dvt.Has any body else had a clot while on warfarin?? i might say this is my third dvt, first one traveled to my lung, after six months i went off warfarin, six weeks latter i had enother dvt, so now on warfarin for life.I do not have the clotting factor as they tested me for that. Not feelin really safe now while on warfarin!!!!!

4 replies...

DVT in one leg -- now pain in other?
Posted by Victor
Last Reply September 21, 2012 at 13:52
Started December 16, 2008 at 03:19
Hi, not sure if I'm being too worried about this, but thought I'd check to see if anyone else has had this feeling. I am about six weeks into a DVT on my left side (due to a broken bone) and have been on Lovenox (10 days) and Warfarin (INR of around 2.0 for the past 4 weeks).

Last week I started feeling a tingling pain every few hours while walking in my right leg (non-DVT leg). Now, I feel it a little more often and a few times a day I feel a slight pinch in the thigh (I feel that on the other leg as well). The leg hasn't swelled at all, turned colors or temperature. And the feeling is much less than when I had the DVT on the left side.

I plan to get another Ultrasound done in the next 2 days to verify if a clot has developed there or not, though my doctor has told me already it's doubtful since I've been therapeutic already on Coumadin.

Has anyone else who has had a DVT in one leg noticed similar symptoms in the other leg? Could it be the Warfarin that is causing th... read more

27 replies...

Is there ever a point in life....
Posted by Claire
Last Reply September 20, 2012 at 22:34
Started September 20, 2012 at 20:37
Is there ever a point in life that one day you wake up and say to yourself 'you've got this issue, so deal with it', and you do!

I was diagnosed in June and I still havent come to terms pyschologically with it. Do you ever?

I understand its a life-changing event ( a lot of people dont understand that) but is there a day when you stop worrying about if your going to wake up in the morning, am I going to clot again, will it be worse the next the time round, stop worrying about every litte pain be it in your leg or anywhere else in your body.

I wish I could wake up tomorrow and be in that frame of mind

3 replies...

European vs. American compression levels
Posted by susan
Last Reply September 20, 2012 at 18:57
Started September 18, 2012 at 13:20
Hi all.... I live in Europe and was prescribed compression stockings, level 2. They are quite thick, hot and of course very tight.(nasty, I hate them, but thats another story...)
Recently I was in the States and wanted to buy some stockings there, as they are not as expensive as they are here. (which is strange, as they all seem to be German or Swiss-made.)
I was unsure of the American equivalent to compression level 2: I googled quite a bit and found both 20-30 and 30-40 mentioned as equivalents.
At a well-known U.S. online shop I was told to purchase 30-40, but after buying a pair at a local pharmacy I had a signifigant amount of pain. I never had this here in Europe: my feeling was that the socks were much tighter than what I had been wearing, so I purchased 20-30.
The doctors here in Europe tell me that the 20-30 socks from the U.S. arent tight enough: they dont mean the fit, but rather the resistance that they feel when they pull on the sock that I am not wearing: they are... read more

5 replies...

self-management of INR and dosing in the UK
Posted by Olga
Last Reply September 19, 2012 at 21:42
Started September 14, 2012 at 13:13
Hi everybody! I am new to this site and I have found it extremetly useful. I am 42 and I have been diagnosed with spontaneous proximal dvt in my leg about a month ago. It was a long journey as my GP dismissed it and it took me three weeks of worsening symptoms to get to a private consultant who finally diagnosed dvt. I am on six months of warfarin but I understand that a life-long treatment may be considered. So far, my experience on NHS has been very poor: late diagnosis, not seeing a consultant, no further tests planned. My INRs are not stable: it took me two weeks on warfarin to get to the required range (2-3), then it was 3.3, and a week after 3.3 I am back to 1.3 for no evident reason. My dose has not been massively different (7-8 mg all the time) and no majour changes in diet or lifestyle. I am considering getting one of those self-testing machines and managing my dose myself. I wonder if anyone in the UK had experience with that? Do you find it easy? Is it reimbursed or you p... read more

3 replies...

why no replies?
Posted by martin
Last Reply September 19, 2012 at 11:51
Started September 17, 2012

I've posted couple times seeking some help or response but
no-one replies.
Every other post seems to get at least couple replies about
anything.

Is ther some problem? Maybe moderator can enlighten me.

Afterall what is the purpose of this forum, if people are ignored?



4 replies...

HIGH dose Clexane
Posted by Annette
Last Reply September 18, 2012 at 21:51
Started May 24, 2012 at 22:52
Hi,

I advent posted here in a few years but I was wondering if anyone had some
experience of high dose clexane and pregnancy.

Ok a bit of history, 12 weeks after baby number 1 I had PE's, 5 weeks after baby
number 2 I had sub massive bilateral DVTs. Was on 40mgs prophalatic dose
clexane thru out the pregnancy but it obviously didnt work.

Have been off warfarin for 2 years.

This week I discovered I am pregnant again so immediately called my GP who
called my haematologist. They decided 40mgs isn't enough and prescribed me
clexane. When I picked my prescription up, the pharmacist said she thought it
was an extremely high dose to have and it's now completely freaked me out.
Anyone else been prescribed this amount during pregnancy.

Scared about everything. Thank you in advance.

6 replies...

The end of the warfarin road..
Posted by Sam
Last Reply September 17, 2012 at 21:00
Started September 17, 2012 at 03:31
After 10 months of warfarin therapy due to DVT/PE, the doctor has said
simply...stop taking it. The clot has partially dissolved. I asked for referral to
hematologist for clotting studies, but they have said they aren't going to do them.
I had the tests done in the hospital but every other doctor I have seen has said
that those results are not reliable because I had an active clot and was already
receiving lovenox injections. Genetic tests were fine but I am concerned about
the Protein C and S.
It seems so anticlimactic. After dozens of INR tests, a boatload of doctors
appointments, 3 ultrasounds, and 10 months of symptoms, a nameless, faceless,
"specialist" says to stop the meds. Not expecting a parade, but maybe an actual
discussion with a hematologist and some reassurance or at least a plan for the
future. Anyone else stop warfarin with no further testing or visits? Is this
normal?

3 replies...

to change or stop the medicine
Posted by Luther
Last Reply September 17, 2012 at 15:03
Started September 17, 2012 at 09:18
im 22 had my DVT diagnose last year when i was 21 had all the treatment done and now on meds the original doctor to gave me the medicine said i was only suppose to be on it for 6months he gave me pradaxa it was ok but later on i been having joint issues and i am extremely overweight the thing is i cant straighten my knee so as you could imagine how hard it is for me to move now i am continuing treatment with a different doctor issue is i told the doctor i need to have my medicine change or be off pradaxa for good since its hell on my joints so which is better decision be off it which seems like a good idea but i still have a small clot which is why the doctor refuse this until this is resolved he wont take me off meds so i feel a change of medicine will be better can any of you other DVT patients give me an idea what medicines i should suggest my doctor because i am thinking lovenox or xarelto since i cant take coummadin for some reason

1 replies...

11 year old with dvt
Posted by michelle
Last Reply September 17, 2012 at 06:18
Started February 22, 2011 at 17:39
My 11 year old daughter was diagnosed 6 months ago with a dvt in left femoral vein.She was on lovenoux for 2 months, was told she could come off 1 month early because, the sonogram said she was born with two femoral veins instead of one, so the other was fully functional.She really wanted to get back to her sports, she is extremely athletic. I have done so much research on dvt's, and have noticed that alot of athletes develop clots. Not sure why that is. My concern is, now she has a higher chance of developing another, and if so I was told she would need medicine for life.I can't imagine an 11 year old on this medicine for good and not being able to do sports that she loves and has a future to do in in college. i am devestated by all this. I worry every day, attend all her practices for fear something will happen.She has been tested for everything and there are no blood disorders. We did travel in a car for 8 hours, three weeks before the clot, is it possible for the clot to show sy... read more

13 replies...

Measuring INR at home
Posted by Teresa
Last Reply September 14, 2012 at 13:56
Started August 9, 2012 at 07:39
Does anyone know if there is an affordable machine to be able to monitor INR at home, or when I travel?

6 replies...

The rollercoaster that is INR
Posted by Jane
Last Reply September 14, 2012 at 03:49
Started September 12, 2012 at 13:48
I was diagnosed last week with a DVT in the left politeal vein behind the knee. They started me on Coudmadin and Lovenox. When I was admitted my INR was 1.0 They tested it on Monday and it was 1.6. I was happy and felt better about things and thought I might make 2.0 by Wednesday. They raised my Coudmadin from 5 to 7. So yesterday they did the INR again and it was 1.4....why? I thought I would be up since they raised the Coudmadin. I am taking the same same vitamins, everything.

1 replies...

blood clot and where they form
Posted by jolly
Last Reply September 13, 2012 at 15:01
Started September 17, 2009 at 03:25
yes i was told i dont have a blood clot but my leg swells really big and hurts i have been for times to rule out blood clot all which are negative i say it swells big it gets about 2 cm bigger then the other but it goes down when i set. but my pain is in the calf and back behind the knee and on the left side of my leg not on the inside of the leg what should i think

44 replies...

Arm compression
Posted by Julie
Last Reply September 13, 2012 at 11:47
Started February 16, 2009 at 19:33
I was diagnosed with a DVT in my Jugular vein, subclavian vein and into my left arm in December. It was mentioned that if my swelling continued I should wear a compression sleeve. I just wondered if anyone else with arm DVT has been advised to wear one and if anyone in the UK knows where I could get one? I am no longer under the care of the Vascular Surgeon who advised this, and Anti-Coagulation Nurse is not sure where to get one from! Thanks for any help.

6 replies...

SURFING :)
Posted by sian
Last Reply September 10, 2012 at 03:31
Started December 5, 2010 at 23:01
Hi All,

I'm struggling to get some info on whether I should/could be surfing with my DVT. I have DVT in left leg from ankle to above the knee, PE's throughout both lungs. Initially got the pain in July but was continually misdiagnosed until October. Finally have been on Warfarin for 7 weeks now. I have been walking and swimming/body surfing and my lung capacity is definitely improving. But I tried to surf yesterday with sports compression tights on and my leg is in the most pain since I've been on the Warfarin. It's also hot and swollen again (which I've not had for a couple of weeks).

I'm mainly scared about making things worse or dislodging the clot again. I don't mind the pain so much as I did some surfing, snorkelling etc before I was diagnosed- and the pain was excruciating then.

Does anyone know if I'm at risk of dislodging the clot? I have a surf helmet now to protect my head so apart from fin cuts I'm not too worried about the bleeding.

thanks!

4 replies...

Newbie with DVT
Posted by Jane
Last Reply September 9, 2012 at 22:57
Started September 9, 2012 at 14:26
Hi - I broke both my ankles in July. The left was in a hard cast and the right in an aircast boot. They gave me Lovenox in the hospital for 3 days and then in rehab for 4 days. I got my cats off lst Tuesday late in the day. Wednesday morning I noticed my left eg was like twice the size of my right. I called my MD who told me to watch it for a day as it migh tbe from exercis. It was still the same on Thurs so I called again and he had me come in. Took one look and sent me off for an ultrasound which showed a clot behind the left knee. They admitted me overnight and started me back on Lovenox and added Coumadin. I came home Friday and I have to admit I am very frightened of this. I keep thinking the clot is going to break off and kill me (my brother died of a pulmonary embolism). They tell me it would be unlikely. I got different answers from the MD's as to whether to rest or be somewhat active now - is there not one general rule? Are there things I should be doing to preven... read more

1 replies...

Aches and swelling 2 years on
Posted by Dawn
Last Reply September 9, 2012 at 20:39
Started September 9, 2012 at 20:39
In june 2010 I was diagnosed with a DVT behind my right knee at the end of my pregnancy. I was prescribed clexane injections for 6 months, but ended up taking them over a year due to a seocnd pregnancy. Since then I have had the occassional ache in that leg if I've bee stood up too long, walked too far. I was warned about this by the DVT nurse as they said I will always have scar tissue there now. However this last week or so I have noticed it is aching a lot more. I am on the floor a lot playing with my daughter , so probably sat on my legs too much, which I know is a stupid thing to do. My leg also seems to swell a little which I've never noticed before unless I've been on them too much. I'm not too worried about other DVTs as after going to bed my legs are fine the next day, and I know the other symptoms, colour, temp etc to watch out for. But just wondered if aching and swelling 2 years on is actually common to anyone else who has suffered a DVT. THank you.

0 replies...

can coumadin damage your blood
Posted by martin
Last Reply September 8, 2012 at 12:34
Started September 8, 2012 at 12:34

is anyone able to help me with this question?
can the use of coumadin (warfarin) do damage to your blood?
had blood tests when went on the treatment initially.
the tests were all within normal ranges, all levels OK.

this pill causes allergic reactions to some people or they are not able to metabolize it without getting ill feelings.



0 replies...

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