DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Knee arthroscopy and DVT
Posted by christel
Last Reply September 8, 2012 at 01:02
Started September 7, 2012 at 18:08
I had a knee arthroscopy 6 weeks ago and things were quite good after 2/3 weeks. I felt the swelling going down but was still limping a bit. At the start of this week I felt pain in my again and it has started swelling up a bit. I had a DVT following the knee injury to the meniscus and was on warfarin for 6 months which ended in june. I am just worried that I may have another DVT!! I had a few false alarms following the DVT in the other leg and was told to stop worrying so I don't want to rush to A and E too quickly with this swollen knee and appear totally over anxious again.It just seems strange that after the op I got better and the swelling went down and now 6 weeks later it is sore and swollen. Not sure what to do?

3 replies...

DVT specialist in DC-Baltimore area?
Posted by Astra
Last Reply September 7, 2012 at 20:16
Started September 7, 2012 at 03:44
After experiencing pain, swelling, and warmth in one leg, my father has been
diagnosed with DVT in his calf. His primary care physician (internal medicine) has
done an ultrasound and put him on anticoagulants to manage the clot. She also
referred him to a vascular specialist who was, quite frankly, rude and completely
disinterested in consulting on my father's condition. He didn't even want to look at
the affected leg, and sent my dad right back to the primary physician to manage his

While his physician may be perfectly capable of managing anticoagulant therapy and
periodic monitoring of the clot, the rude and useless consultation with the vascular
specialist has left my dad feeling more depressed and hopeless about his DVT. I have
encouraged him to try again with a specialist, just to get a second, specialized
opinion on his particular DVT situation and any possible options for treatment and
future prevention. (I'd like to find a doctor with be... read more

1 replies...

subclavian vein Chances of warfarin for life
Posted by Janine
Last Reply September 6, 2012 at 12:45
Started September 6, 2012 at 12:45
Hi all, Im hoping you can all help me!
Im 24 and after a slightly swollen arm doctors discovered I've got a
dvt in my subclavian vein and ive been on warfarin for about a month. I'm apparently not going to be seeing any doctors or going to the
hospital for about 6 months. After that i see a specialist who
determines what caused it i think. What i wanted to know was if anyone
has any insight into the chances of me being on warfarin for the rest
of my life? I was working on a cruise ship when they disembarked me
because of this and i cant go back if im on anticoagulants. Has anyone
had this type of clot and returned to normal and off the warfarin
after 6 months? I feel like im stuck in limbo at the moment because i
dont really know anything and i cant go back to work!


0 replies...

DVT in calf after ankle fracture
Posted by Patty
Last Reply September 6, 2012 at 05:56
Started March 9, 2012 at 23:39
Hi there, Im new to this forum and wanted some advice. I fractured my
ankle 3 weeks ago and I developed a blood clot in my right calf. I am
currently on lovenox shots until I get coumadin starting next week.
My hemotologist says that Ill be on it only for 3 to 4 months, but has
anyone else had this happen? How quickly will the clot go away? Im
super scared because Ive never had issues before. My calf was pretty
swollen after the fracture, but exactly 10 days later I went to the
hospital and they gave me lovenox after finding the clot. The pain
has totally gone away, but when I touch my calf I can tell its still
there, a little bit of pain, but nothing major. Any advice?

6 replies...

Posted by Linda
Last Reply September 5, 2012 at 14:37
Started September 4, 2012 at 21:12
Clots in both legs, after finding with ultra sound, in Chemo, and clotting is a
problem, strange I know but can not take warfarin, , being supported with
platlets, and whole blood, IVC filter was placed after and embolisum in lung,
Should the use of alternation compression boots be used?

1 replies...

ivc temorary filter
Posted by Randy
Last Reply September 2, 2012 at 03:11
Started September 2, 2012 at 02:06
hello guys , i would like to know how long should i wait to get my
temporary ivc filter out & what are the risks of getting it out. by the
way i got this after having lower back surgery...:/ i'm worried.

1 replies...

Blood Clot
Posted by Margaret Painter
Last Reply August 31, 2012 at 22:25
Started August 31, 2012 at 21:56
I have had a blood clot in my left leg and have been being treated for it for a little over a month now. Both legs have extreme edema which still has not gone down. (It was for a while and then stopped.) I was unable to move my left leg at all and had (still have) absolutely no feeling from knee down. Now am able to move it. Am in a wheel chair. My husband was gone for awhile for business. He said when he gets back he expects to see me walking. Is walking safe? Whether I am able or not, is trying to wals safe? Also, does warfarin of neurotin keep the clot from moving? If it moves how can you tell? Please I have been trying to get answers. Help me!

1 replies...

On Coumadin still clotting
Posted by Megan
Last Reply August 31, 2012 at 19:53
Started August 30, 2012 at 18:01
Hi. My dad, age 59, was diagnosed with dvt in his legs two weeks ago. He was
put on Coumadin. He got worse. Had sono & discovered clots in his lungs. His
legs were swollen. He was hospitalized & put on lovenox. He went home. Put
back in Coumadin. Got worse. Went back in hospital & put on lovenox. Had
surgery (trellis procedure) in both legs & filter out in to keep clots from
spreading. He went home on Coumadin again. Had a PET scan which was
inconclusive. Now he's back in hospital with severe pain. Clots back in legs &
pelvis. What's going on? This seems to be ongoing w/o many answers. Thanks
you for any insight.

4 replies...

Inside ankle and heel pain
Posted by Marie
Last Reply August 31, 2012 at 19:35
Started August 31, 2012 at 18:46
Hi, I'm 11 months post full leg/thigh clot. It's been a ride I would not want to take
again. I finished warfarin 2 months ago and although in pain before since coming
off it I'm really struggling. The swelling I cn cope with with the aid of my full
length stocking, it's pain in my heel and inside ankle. Some days I can't put any
pressure on it..it aches and throbs, and is sometimes discoloured. I've recently
have a Doppler USS, which shows small channels opening in my thigh but small
occulsions..the valves seem to be ok..ish....Anyone got any ideas ? My consultant
is being a bit wispy washy and says PTS can be prolonged and painful...and may
order a venous Scan of the ankle and foot...I'm really fed up, the last year has
been horrible..and I can't seemed to see an end...any advice??

1 replies...

cause for concern?
Posted by Brad
Last Reply August 31, 2012 at 19:21
Started August 31, 2012 at 17:52
I woke up this morning and upon standing noticed a pain in my left inner thigh.
It feels like a bad bruise but I have not done anything I am aware of to bruise
it. It seems to go away after 30 seconds or so of moving around. It hurts the
same whenever I stand up and has gotten slightly worse thru the day. I had a
surgical proceedure on my pancreas 9 days ago and then came down with
colitis so have been mostly immobile for over a week. There is no noticable
swelling or redness and it is slightly tender to the touch in an area about the
size of a baseball. Any ideas if I should worry?

1 replies...

Cellfood prevents & helps unclot clotted blood
Posted by N
Last Reply August 31, 2012 at 02:37
Started March 14, 2010 at 11:25
General feedback from Health Practitioners:

Dr. Linet Stockdale, Hematologist:

"It doesn't matter what type of disease a person has. The addition of oxygen and hydrogen into the bloodstream, which Cellfood provides, will definitely bond in a better format to create a healthier cell."

Michel Coyle, Director of Research and Education, NuLife Sciences:

"The therapeutic effects of Cellfood are:

* Cellfood provides a steady flow of both oxygen and hydrogen-- by splitting water molecules-- to all parts of the body, thereby producing simultaneous oxidation and reduction.

* It enables the blood stream to deliver a minimum of 78 assimilable trace minerals and elements directly to each cell for complete and direct nutrition.

* It aids in the digestive process. It contains enzymes and also is catalytic to the activation of the digestive enzymes.

* It assists in the cleansing of upper and lower intestines, and in restoring normal bowel functions. This effect will be noti... read more

12 replies...

Posted by Donna - Edinburgh Scotland
Last Reply August 29, 2012 at 22:27
Started March 4, 2008 at 21:43

I am due to come off warfrin 0n 20th March and can not wait to come of it, but I also feel very scared, I am due to get a load of blood test done 29th May to check for any clotting disorders is this the normal time to wait for these to be done (2 MONTHS). I was at my GP last week and told him my concerns but sometimes you are better talking to people like ourselves who have been through DVT etc, my leg is still really swollen and I am losing hope now that it may not return back to it's normal size as I had my DVT just under 6 months ago. Just wondered if anyone has any info and the same concerns.
Thanks Donna

47 replies...

coming off warfarin
Posted by Andrea
Last Reply August 28, 2012
Started February 10, 2009 at 22:15
In two and a half weeks i will be coming off warfarin after 6 months following a dvt. I am sooo scared. My dr wont send me for a scan to see if the clot has gone, what he says is that i have had enough of treatment but what if the clot is still there? Any help please?

7 replies...

Violent headaches/Warfarinand Dalteparin
Posted by Cath Robert
Last Reply August 27, 2012 at 19:08
Started January 5, 2012 at 15:03
I had a DVT behind my knee and have been treated with Dalteparin injections and Warfarin tablets. A few days after starting the meds I developed the most violent headaches-migraine with flashing lights and then after was very sick. The pain got worse and worse until I could no longer handle it and called out the doc and got pain relief into vein and anti sickness jab. I was taken to A and E a few times as it was so unbearable. Sometimes had this 3 times a day. I was admitted for a few days observation and had a brain scan for possible bleed. Nothing showed up and was released and told to take regular paracetamol. I don't think the hospital doc realised how severe the pain was!! The doc said it had just been a migraine! Well for more than I week?! Well I continue daily to have these nightmare episodes and have to call for help. My own doc has now changed the injections as it always happened about 3 hours after having the injection. Last night the pain in my head was bearable for a ch... read more

3 replies...

Second time around
Posted by Cate
Last Reply August 22, 2012 at 17:22
Started August 4, 2012 at 21:49
I've got multiple bilateral PE, the second time I've had DVT & PE. Can't say I'm thrilled to be on the Warfarin for life now, but my reason for this post is to ask whether anyone else has breathing issues after PE. Last time I had a minor PE , just one in one lung; this time it's loads of the little beggars.

I have noticed, especially over summer, that when the air is still and muggy I have some troubles breathing. I don't mean I can't get my breath, and there's no pain with. I don't know how to describe it, it's like there's not enough air for me to breathe. Has anyone else had anything like that?

5 replies...

Pain in lung
Posted by Meredith
Last Reply August 22, 2012 at 17:12
Started August 22, 2012 at 15:04
2 years ago I suffered a PE and was put on warfin. The following year they took me off warafin and put me on baby asprin and 1 month after starting the baby asprin I had a clot go to the base of my skull and suffered a small stroke. During these past 2 years I have been so confused not understanding why this is happening to me. They put me back on Warafin for life but like most of you I suffer side effects. I would like to come off the Warafin and try something new and I am looking for suggestions?

Also, my biges problem is the constant lung pain. The PE was in my right lung and ever since I get sharp pains that radiat to my back. I am constantly going to the ER thinking I am having another one and no one can explain to me why my lung always hurts. Can you?

1 replies...

Warfarin and severe muscle/joint
Posted by Leslie
Last Reply August 22, 2012 at 12:40
Started August 19, 2012 at 02:29
I had a knee replacement last December with a DVT resulting in my thigh. I was on Warfarin for 6 months. because after experiencing muscle and joint pain, I really didn't know if the pain I was experiencing was from the surgery or the Warfarin. The doc took me off of the Warfarin. I developed post thrombotic syndrome and then this month another clot formed. I am back on the Warfarin and experiencing extreme low back pain and what appears to be thoracic outlet syndrome (pain in the chest/shoulder/neck). The pain is so severe I can't move, literally.I will take myself off Warfarin today.My doc has suggested an asprin regimin (2 @ 3xday).My question is has anyone tried Nattokinase with good results? It is a natural product that is supposed to break down fibrin in the blood (which increases risk of blood clots). If so, how much are you taking? I haven't heard a lot of good stuff about anti-coagulants, but realize we need to be on something! And Nattokinase hasn't been tested like drugs ... read more

3 replies...

One for UK sufferers
Posted by Claire
Last Reply August 21, 2012 at 10:22
Started August 19, 2012 at 06:58
As im sure all you guys on here from the UK know, the NHS has a policy of not rescanning after how ever many months.

How would I go about getting a scan done privately? would I have to go through a company such as BUPA?
Any idea on cost would be great as well.

5 replies...

stomach bleeding induced by Warfarin (to treat
Posted by vivaldibow
Last Reply August 21, 2012 at 05:20
Started August 21, 2012 at 05:20
Hi all, I am new to this forum. I am here to see if anyone can share some of their experience or opinions. My father who is 80 year old was diagosed to have pulmonary embolus and DVT deep vein thrombosis a week ago and was treated with injection medication and Warfarin. He doesn't have any symtom of pulmonary embolus including difficulty in breathing. Three days ago, he found the bowel was black and the doctors found an ulcer in the stomach that was bleeding (the ulcer might come from a strong dose of Tyleno to treat his knee pain). It's been three days and the bleeding hasn't stopped yet. We are a little confused to to do next? Should we treat the bleeding first by stopping the Warfarin or we let it go? Since my father doesn't have any symptom of pulmonary embolus, we incline to stop Warfarin first to stop the stomach bleeding but the doctor suggested to continue using Wafarin until the blood pressure is low (which is a dangerous condition).

Can anyone of you share some of your ... read more

0 replies...

Posted by Mike
Last Reply August 21, 2012
Started August 19, 2012 at 22:22
I was recently hospitalized with ongoing DVT's. This time, I had new thrombus in my left leg with a theraputic INR. they are baffeled. My IVC and both femerol/illiac veins are occulsive. They tried to open up and stent to no avail. Their telling me my veins are just scar tissue now and there is nothing they can do. I was first diagnosed 2 years ago. They dont know why I clotted either. Im so scared this will take my life. Im just a walking time bomb witin on a PE. My pain is constant and tremendous, even with pain meds. just looking for other people who are in simular situation. Its always good to find people who can relate. Take care to you all and good luck!

4 replies...

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