DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 85 of 237
Posted by Diane
Last Reply August 19, 2012 at 14:19
Started June 2, 2008 at 16:44
This post was in response to Sharon's post on another thread, but I think it merits a new topic. Here goes:

Wow, Sharon, that is a horror story about the woman losing both legs from vein stripping. What year did that happen and do you know where it happened? Very sad story.

I have something to add about this subject as I suspect there are many post-DVT people who also suffer with varicose veins.

I had my varicose vein removed exactly 2 years after my DVT and my diagnosis of May-Thurner Syndrome. I do not have a blood clotting disorder, which may have factored into the surgeon's decision that I was a good candidate for Vein Closure.

First off, I don't think they do vein stripping anymore. My vascular surgeon told me (18 months ago) when I had my Vein Closure procedure that "stripping" was still done in Russia and sighed heavily as he said it.

I had Ultrasound Vein Closure, whereby using ultrasound the physician inserts a "Closure Catheter" into the diseased vein throu... read more

10 replies...

is this dvt?
Posted by mark
Last Reply August 19, 2012 at 09:46
Started February 22, 2012 at 14:43
Hi All,
I work from home and sit down at my desk for few hours a day, I sit crossed legged somtimes. I have intermittent ache in my left leg, mainly my hamstring and somtimes my calf, but that pain has gone now. When i bend down to stretch my hamstrings, I can really feel them hurting, but I'm worried about dvt

My leg isnt swollen, red or warm.. but yet theres always that feeling it could be dvt.. could it be I just have tight hamstrings?

4 replies...

best INR for healing dvt in calves
Posted by martin
Last Reply August 18, 2012 at 10:11
Started August 18, 2012 at 10:11
Hello, thank you for the forum,
Have question whether anyone has any idea on the best compromise for a first dvt recovery in calf, ie INR and length of treatment.
Was quite sports active and trying to see best treatment.
Been researching issue and there's many views, even amongst the medics and professionals and academics.
Seems to be ongoing research to find better medications with less complicated side effects and health dangers.
Standard response seems to be initial Heparin/LMWA with a VKA-inhibitor (Coumadin), 3 months Coumadin with 2-3 INR but even this is varied between individuals.
Someone may have scan showing thrombus cleared after several weeks and comes off anticoagulation treatment. Some stay on it as a precaution, but Coumadin can have long-term ill health issues.

Something I cannot quite understand about Coumadin is that it's supposed to retard clotting, and as such it slows the rate at which healing can take place at the site where a thrombus had occured.... read more

0 replies...

leg twitching
Posted by Sheryl
Last Reply August 17, 2012 at 20:55
Started August 17, 2012 at 20:55
dvt in left calf diagnosed in June 2012. Thankfully, Doc says small one. Warfarin therapy and compression stocking since. Can a side effect of warfarin be twitching and aching in the legs? Even the leg unaffected by the dvt?

0 replies...

Jobst, Sigvaris, Mediven, Juzo Stockings
Posted by DLG
Last Reply August 16, 2012 at 23:34
Started July 7, 2008 at 03:17
If anyone at all has any questions on compression stockings, feel free to ask them here. I will do my very best to assist you with your questions or concerns. We have been fitting these stockings for nearly 38 years dating back to the early 1970's. We currently sell them online at http://www.foryourlegs.com and our knowledge and experience in this industry have quickly helped us to become the largest online compression therapy retailer in the country.

We deal mainly with Sigvaris, Jobst, Mediven and Juzo brands, but are incredibly knowledgeable when it comes to the "off-brands" as well such as Therafirm, Activa, Futuro, Truform, Ames Walker, Allegro and many others. We focus on the 4 brands listed above as these are the endorsed brands and the ones physicians recommend. They may cost a bit more, but when it comes to health one should never compromise efficacy for price.

Anyways, we would love to assist anyone with... read more

8 replies...

Weight loss/leg swelling
Posted by Kirstin
Last Reply August 16, 2012 at 20:28
Started August 15, 2012 at 09:41
I was diagnosed with a thigh DVT last April and my left leg has always
been more swollen than the right, no matter what I tried leg
elevation, extra walking, tighter compression socks it was still
always just over an inch bigger. I lost some weight this week (4lbs),
I wasnt over weight to start with (138lbs) and I have noticed my left
and right leg almost look the same. At first glance you wouldn't
notice the difference whereas this time last week the difference was
very obvious. Will the weight loss have helped the swelling go down? I
had a scan on my leg about a month ago which found my veins were still
blocked but starting to clear.

1 replies...

DVT in arm
Posted by Nathaniel
Last Reply August 15, 2012 at 23:10
Started August 15, 2012 at 23:10
Hi, all. I am approaching the one-year mark of when I was diagnosed with a blood clot in my right arm. I am 23 years old now, and was told I had pec minor syndrome. I am an avid weightlifter, and apparently my pec minor grew too large and pinched a vein in my arm. I lost 38 lbs. of muscle that took me 9 years to gain, and am desperately trying to return to my previous form. I realize this is going to be a slow and arduous process, but I’m wondering if anyone out there has experienced anything similar, or if anybody knows of anything… exercises?, stretches?, supplements?...that can help with my condition. My vascular surgeon told me that surgery was not necessary, and that the clot has fused to my vein wall and should not break off. However, he also stated it would be with me forever, and to think of it as scar tissue. Just so people are aware, it has been a year, and my symptoms have gotten slowly better, but nowhere near satisfactory. I refuse to be limited by this for the rest of... read more

0 replies...

Compression socks...
Posted by dero/www.lifeafterdvt.forumotion.com
Last Reply August 15, 2012 at 18:18
Started May 28, 2008 at 21:14

Check the prices on these...


5 replies...

Strange colour??
Posted by andrea
Last Reply August 15, 2012 at 18:15
Started December 9, 2008 at 11:15
I developed a small dvt behind my knee 16 weeks ago and since then my leg has turned a slight shade of pink/purple when i get out of bed in the mornings. Does anyone else have this problem. No pain in leg just this strange colour. Also i dont wear compression stockings just ordinary support tights. I was never offered them and dvt nurse said its not their procedure to supply them. No one has ever suggested i needed them. Any help please?

14 replies...

Compression Stockings
Posted by Jassmin
Last Reply August 15, 2012 at 18:13
Started June 29, 2009 at 18:29
Okay it is summer here in ohio the buckeye state WooHoo! GO BUCKS! Okay well it is warm and I wear thigh high compression hoses they have to be special made becasue the strength is higher than the highest strength I have may thurner syndrome and quite a bit of swelling in my whole left leg and sometimes groin and hip area so I wear stockings all through out the day then I use a pump and sleep in a reid sleeve but anyways Is it just me or when you go out in public in shorts with your stocking on do people give you crazy looks or what? I'm just wondering but after awhile it is kinda funny :)

9 replies...

Compression stockings Users
Posted by Celine LELIEVRE
Last Reply August 15, 2012 at 18:02
Started October 28, 2009 at 08:39
Dear Madame,
Dear Sir,

I have been asked by a manufacturer of medical compression products, to carry out a study among end-users of medical compression stockings in United Kingdom.

The purpose of this study is to better understand the utilisation and behaviour of end-users of medical compression stockings, regardless of the level of compression required. Our objective is to improve our response to the needs and expectations of people who use these products.

I am looking for people who use the following products : Activa (Elastic Hosiery, ActiLymph), BSN / Jobst (Jobst Opaque, Jobst Bellavar, Jobst Elvarex), Credenhill (Credalast,Venosan 4000, Venosan 5000, Legline 20, Legline 30), Haddenham (Veni, Star Cotton, Doktus, Goldpunkt, Gottfried, Pertex, Ven Microfine), Juzo (Dynamic, Hostess, Soft), Medi (Mediven Plus, Mediven Elegance, Mediven Forte, Mediven Active), Sigvaris (Attrait, Audace, Bambou, Club, Cotton, Détente, Diaphane, Eclat,...)

If you are willing to answe... read more

4 replies...

Doctor Referral
Posted by SteveO
Last Reply August 15, 2012 at 04:49
Started August 15, 2012 at 04:49
Could anyone refer me to an exceptional HEMOTOLOGIST in northern N.J. to treat my DVT? Been on cumadin for 1 year and in and out of hospital. I think only a specialist can save me.

0 replies...

do you experience pain if you die from a blood
Posted by ashtyn
Last Reply August 14, 2012 at 17:22
Started March 18, 2012 at 10:51
No comments

5 replies...

Should I worry about a clot?
Posted by Svea
Last Reply August 14, 2012
Started August 5, 2012 at 05:20
Okay so ive had this pain for almost three years now. Always in my left calf,
comes out of nowhere and sticks around for a week to two weeks. I got the same
calf pain a few days ago, but it went away then started yesterday behind my knee.
But it was different! Its like a painless tight feeling all the time. Its so weird....

I have a terrible phobia of blood clots, Ive had 7-8 negative ultrasounds on my
legs. I saw my regular doctor yesterday who felt my legs and pulse on my foot
and said it was muscular. But I was still freaking out this morning when I woke
up. So I went to patient first. The doctor really took his time and checked my leg.
Felt it, moved it, make me walk around ect ect.... He said I shouldnt worry about a
clot unless it gets swollen and hard to walk on.

3 replies...

Posted by Annie
Last Reply August 13, 2012 at 12:17
Started August 11, 2012 at 02:53
Has anyone else had a TIA while being treated for a PE?
This is new for me and extremely scary. Any experiences, advice etc would be
greatly appreciated.

Thank you

3 replies...

Do clots dissolve or not??
Posted by Susan
Last Reply August 13, 2012 at 04:43
Started August 11, 2012 at 11:51
I've been reading your entries here, as well as doing some ("research", haha) online. The first doctor with whom I spoke about my DVT ( in my calf, with symptoms not nearly as severe as many of you have,it seems) examined me about 10 days after beginning Xarelto (which I subsequently replaced with Lovenox) told me that the vein looked much better, that he could still see traces of the clot but that blood was going through it.
The next doctor just shook his head, said that the vessels in that part of my calf were closed, that clots do NOT dissolve, and that the body just makes new vessels to replace the blocked vessel, which simply stays blocked. I have heard this from a second doctor as well.
I still feel the clot when I walk, a very minor spot of cramp-like pain: if I didnt know about the clot I would simply ignore the mild discomfort. I have been wearing compression stockings since day 1. Hate them, but understand the necessity for them.
So I am really confused as to how a cl... read more

2 replies...

May-Thurner, Pregnancy, IVC filter and stents
Posted by barbara
Last Reply August 12, 2012 at 22:44
Started August 12, 2012 at 22:44
Hello. I am just over a month into my pregnancy and curious about other's
experiences. A year and a half ago, I had a DVT. Their best guess to the cause is
May-Thurner Syndrome because I had no other risk factor, though I had
recently miscarried. They inserted two overlapping stents into my vein and an
IVC filter. I don't wear compression hose, wear heels-though not lately, an am
not on Warfarin. I was lucky in that the DVT was really bad and I walked out of
the hospital several surgeries, transfusions and a week later and resumed my
life style immediately. Now though, with the baby, I am freaking out. I have
had 3 successful pregnancies. I don't want anything to happen to this one. My
surgeon tried twice within a year to remove the filter and both times was
unsuccessful. He said there was some risk of the legs of the filter rupturing the
uterine wall, when I asked him about pregnancy immediately following the
DVT. Anybody have complications during pregnancy ... read more

0 replies...

Newbie to DVT
Posted by Rudy B.
Last Reply August 12, 2012 at 21:32
Started August 12, 2012 at 14:37
Indianapolis IN, USA ...Male 61 ,non smoker, 285lbs @6'4" ,type-II
Comments about Brusing after injections?
Diagnosed last week of having right calf redness @ swelling , prone to edema, have sit-down job 9+/hrs a day as inside salesperson.
DVT is upper right above knee femoral location
Doctor seems indifferent to whether or I use compression support
Any sugesstions or prefferences open to advice?
My Father Had extemely bad varicose veins

4 replies...

Differences between cramp & clot?
Posted by Muffy
Last Reply August 12, 2012 at 20:52
Started August 12, 2012 at 05:13
I'm at the computer alot, but i move around, get up, walk around quite a
bit also. I have no symptoms of a supposed dvt besides just a slight
dull nuisance in my left inner calf. It doesn't hurt to walk, no
redness, no pain, no sensitivity & I don't want to go to the emergency
without any symptoms. I am a bit of a hypochondriac but i'd like to
think i'm just taking precaution. Is there a difference between the
symptoms of a dvt & cramps? Should I be on the lookout for anything?
Thank you

1 replies...

smoking and dvt
Posted by mike
Last Reply August 12, 2012 at 01:22
Started March 14, 2012 at 23:16
Does anyone know if there id any
proof that smoking by itself can
cause ? dvt

6 replies...

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