DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Old Clot Advice...
Posted by Bob
Last Reply August 10, 2012 at 01:54
Started July 20, 2012 at 08:28
Girlfriend posted this on some Web Site...

Large blood clot (DVT) in my leg for 10 months. I've been on Coumadine for 10 months - the clot has not decreased. Now what?

DVT caused from long airline flight. Male, 56 years old, 15 lbs overweight. No other prior chronic illnesses or diseases. Treatment so far for the clot has been daily Coumadine. I experience pain for gout in the ankle of the same leg as the clot. Never had gout prior to the blood clot. Doctor prescribed Indomethacine for the gout, which I take daily to help with the inflammation and pain. The clot was diagnosed 10 months ago. The ultrasound shows the clot has not decreased in size. Interested in finding an effective solution to at least reduce the size of the clot and or eliminate it if possible. Thank you.

ANSWER:
Cardiologist Said...

This is very difficult solution. I recommend you see a vascular surgeon and ask them to evaluate you for either thromolytics (which is a clot busting drug injected into ... read more

10 replies...

Blood clot
Posted by Jennifer G
Last Reply August 10, 2012 at 01:22
Started August 10, 2012
I am a 24 yr old female, i don't smoke but i do have a birth control implant in, i started having pain in the calf of my left leg six days ago, it was just certain times i moved my leg it would hurt but didn't hurt when i flexed my toes or touched my leg, but i was so terrified that i had a blood clot well i went to the doctor yesterday and he did send me for a Doppler of my leg but i still feel uneasy because they only started at the top of my leg and went behind my knee and the pain has been in the calf but they said that it still would have showed up because of the blood flow in my leg, does anyone no if this is true or not because i am worrying so bad about this because it still hurts

1 replies...

Warfarin resistance.
Posted by Annie
Last Reply August 9, 2012 at 22:10
Started August 8, 2012
I have been on lovenox/arixtra since may of 2009 due to being extremely warfarin
resistant. The lovenox and arixtra are no longer working well at all. I am deathly
allergic to the new drug pradaxa. I spent 6 weeks in the hospital on 24/7 heparin
ivs just to get my blood thin enough to allow me to leave. It did not even begin to
help the clot in my left arm. I've been told the clot will never go away and
hopefully over time my body will compensate by forming small veins around the
clot, but the pain is still ridiculous. Due to heart issues, I was born with 3 holes in
my heart, which have been repaired but still cause severe issues, surgery is out
of the question unless it's a life or death type situation.
Can anyone please help? I am feeling very discouraged currently and usually I am
very optimistic, but I am running out of options. Thank you for reading and for
any advice. Your time is greatly appreciated.



6 replies...

varicose veins
Posted by jamie
Last Reply August 8, 2012 at 23:17
Started June 19, 2009 at 20:01
My leg veins arent too bad i suppose. Its my stomach varicose veins im scared of, has anyone else got this problem?

6 replies...

Support
Posted by Mary
Last Reply August 8, 2012 at 04:45
Started August 5, 2012 at 21:10
I lost my sister(twin 33 yrs old) to a PE last July. It's been horrible to get over. I am making it a mission to help anyway I can. I search and research all day(well at least sometimes it feels that way lol). I have a facebook page called Forever Deborah. It helps me cope and deal with this. If any of you have a facebook I invite you to join and help as well. Any insite you have would be appreciated! I love that we can all support each other. On Forever Deborah I have alittle more of my family and sisters story! Thank you....Mary!

2 replies...

Important blood clot question
Posted by Anon for now
Last Reply August 8, 2012 at 03:27
Started August 7, 2012 at 13:18
IF you had a blood clot in your arms (and you aren't too skinny), would
it make it difficult for a doctor to find where to give you a shot in
the spot in between your arm and upper arm (I don't know what you call
it, on the other side of it is your elbow)?

7 replies...

Centrum Forte
Posted by Michelle
Last Reply August 8, 2012 at 02:44
Started August 19, 2008 at 13:23
Just thought I should mention to everyone that Centrum Forte contains 25 mcg Vitamin K. I found out the wrong way (my INR dropped) because I took them for 2 days.
I definitely will have to check the ingredients in the vitamins I buy next time. Just thought I should mention it to everyone here as well. As a pharmacist, I should have known better!

3 replies...

DVT
Posted by Alicia
Last Reply August 7, 2012 at 23:55
Started August 3, 2012 at 16:48
I was just diagnosed with a DVT in my abdomen should I start seeing a
specialist that deals with this? Cause right now I have been just seeing my
primary care and getting blood drawn once a week and I'm on cumoden.

4 replies...

post surgery pain...
Posted by Angela
Last Reply August 7, 2012 at 16:55
Started August 7, 2012 at 11:04
Hey there everyone, I had surgery 3 and a half Weeks ago on my ankle. For a
while the pain and swelling were getting better. And I am now wearing a cast.
Then 5 days ago I lost my balance and fell, several times during the day. I didn't
appear to sustain any new injuries. We are experiencing a heat wave here. For
the last few days my foot has been hurting and swelling. Now my calf is also
swelling. The pain is bad enough I am not sleeping and have even started
taking the dilaudid again. The pain is not at the incision. The outside of the
ankle was operated on. The pain is in the instep arch area. Fairly nervy and
tight there. There is also pain in the back of my calf just below the knee. It is
increasing as the swelling. I can barely go to the restroom without the swelling
and pain becoming agonizing. Specifically because of the amount of time it is
not elevated. I am worried that it might be a dvt. I am 40.

Should I call my Dr about it, or wait till my app... read more

3 replies...

rivoraxaban
Posted by mae
Last Reply August 7, 2012 at 13:59
Started August 7, 2012 at 13:59
has anyone else been put onto this new drug?

0 replies...

Clot Filter Question
Posted by Darren
Last Reply August 6, 2012 at 17:08
Started August 5, 2012 at 04:55

In August 2009 after a back injury I developed a clot I was told was behind my right knee and landed in the hospital for three weeks, during which time I also had back surgery. But before surgery a filter "umbrella" was placed in my leg.(I was on Coumadin until November 2010).

It's been difficult dealing with and getting straight answers from the hospital, but I still get some swelling in my lower right leg and there is now a smooth darkened area on the inside of my leg just above my ankle the is almost completely numb to the touch.

I was finally told that the filter was the reason for the swelling and when I asked when it was going to be removed I was told that it had been too long and as a result it would be difficult to remove it now. And now i have to wait again for an appointment to speak with a specialist about the matter.:-(

I'm not at all happy about this and would like to know if there can be any future problems with the filter. And also if it could be the cause ... read more

2 replies...

Seen a vascular surgeon
Posted by Karen
Last Reply August 5, 2012 at 03:32
Started January 26, 2012 at 02:39
So I got to see a vascular surgeon today, I was anxious, nervous,
excited, to see him...
DVT: november 24th, I thought I might have been able to go for
surgery, but not looking like that's a road i'll go down....
note to everyone here that has suffered from a DVT recently or even
awhile ago : GO GET COMPRESSION STOCKINGS!
the surgeon was so impressed that I had my thigh high stockings on,
that he caught me off guard, he says people dont believe in them
enough. He told me the reason I will heal is because i've taken the
measurements necessary to get better....the stockings don't just help
with pain and swelling, but with post thrombotic syndrome.

On another note, leg still swollen, 2 months in, and am told I will
always have leg damage, yeah me, but I should heal...that being said I
have read in a lot of places that my leg will be a little bigger
well....forever....anyone out there 6 months later, a year later,
with compression stockings, that still hav... read more

15 replies...

warfarin
Posted by linda
Last Reply August 4, 2012 at 19:07
Started August 4, 2012 at 19:07
i have been on warfarin for over two years my inr is very stable am i ok to fly to australia and what chance is there of ever getting a blood clot

0 replies...

dvt and driving
Posted by daisy
Last Reply August 4, 2012 at 15:00
Started October 2, 2009 at 21:43
hello everyone, i am really new to this site as i have just been out of the hospital after a dramatic dvt.
i am feeling well no more pain apart from light headaches and tiredness.
how long did you drive again after the dvt?
any replies appreciated as i don't really want to take any chances...

thank you for your advice!!!!!!!!

3 replies...

What are the chances I would have a blood clot
Posted by Peter
Last Reply August 3, 2012 at 04:11
Started August 2, 2012 at 14:29
An expert's opinion or an experienced person's opinion would be
appreciated, but if not, anyone's will. So, to start off, I 143-151
pounds, I'm 5'2-5'5, and not a lot of my weight is muscle. I'm
somewhat chubby, and I am obese. Honestly, I have been spending most
of my time lately sitting and laying in bed. It's not like I don't
walk around or go out, but I still sit and lay more than I go out and
walk. I'm not extremely inactive. I go to the park sometimes, but not
everyday. I don't really see swelling or redness, but I do feel heat
in my upper thigh. Yesterday night is when I started feeling actually
pains. They were at the top of my upper thigh. I felt it a little
earlier today. What are the chances I would have a blood clot? Even
though I have been sitting a lot, am I too young? Doesn't this have to
go on for years? Or could I have one now? Right now, the pain feels a
little sore-like, but I don't think that it's actually lactic acid. Or
maybe it is.... read more

12 replies...

Blueish aching vein
Posted by Sam
Last Reply August 3, 2012 at 03:47
Started August 2, 2012 at 01:39
I'm 27, female, and I had DVT 18 month ago. doctors said it may be
because of Syproterone I used to take (1/2, for 10 days a month).
I took Warfarin for 6 months. Now, I wear Sigvaris compression
stockings, but a vein above my knee aches most of the time. (I know
it's not the vein with the clot, because it was above, but behind my
knee)
I also know that some veins are visible depending on the skin type,
but I can see the aching vein in a blueish color, while the symmetry
vein (on the other leg of mine) is not visible.
Does any one know whether the ache is normal or not, or shall I see
my doctor?
Thank you very much


2 replies...

Should I be worried?
Posted by Claire Wood
Last Reply August 3, 2012 at 03:10
Started July 26, 2012 at 18:01
More paranoia!

Im just over a month in on warfarin and experiencing pain in the chest.

I had no pain in the chest when I was diagnosed just the usual leg pain. These pains only seem to have started since I started the warafin.
They are just above the left breast and round to the armpit or just below the left breast. Some are short and sharp others are short and dull

Is this just a side effect of the warfarin (chest pain is listed as a side effect in the note that come with the tablets) or should I be more worried :( like I say I didnt have this before going on warfarin.
I have a doctors appointment on Saturday to let him know about it

6 replies...

any body else felt neglected with their care
Posted by melly in england
Last Reply August 2, 2012 at 21:51
Started August 2, 2012 at 11:00
I recently posted my story on here as a form of therapy I guess....I'm
so angry that when I was first diagnosed I was told clots could not be
removed and didn't get referred to a vascular surgeon for 9
months...he informs me its too late to fix the vein...I'm angry and in
constant pain from the pant pulmonary embolisms and post thrombotic
syndrome.....some days with all the pain and lack of having my life
now I wish I'd died back then.....

Does anybody else feel this way or has anybody felt this way and feel
better now

1 replies...

Contraceptive Pill
Posted by Claire Wood
Last Reply August 2, 2012 at 17:24
Started July 29, 2012 at 19:08
My DVT was diagnosed in mid June. It came about due to a knee arthroscopy and immobility. But I am also on the contraceptive pill.

I need peoples views on whether I should come off the pill before I come off Warfarin.
I have been on the pill for ten years and the doctors arent really that sure what I should do. They think I will be ok, but really I want to erase every factor in me getting another DVT. And this is the obvious factor.

I was put on it due to horrendous period pain when I was in my teens and it has helped. This actually frightens me as well, having that pain back, but I suppose Im going to know when it happens and can prepare myself for it. Dealing with that has to be better than getting another DVT

4 replies...

treated for DVT since yesterday
Posted by BRUCE GAIRN
Last Reply August 1, 2012 at 21:55
Started August 1, 2012 at 21:18
Had pain in calf for almost 3 weeks and thought it was calf strain, however, on attendance at ERU yesterday ,outcome was anticoagulant injections which I have to get for 7 days then a leg scan.
Highly likely that I have a DVT,,, the pain is excruciating and I an struggling to walk..can anyone advise when this shou;d subside
Also like to ask if people in similar situ had to take time off work.. I am a lorry driver and have had to take time off due to pain...

1 replies...

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