DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 87 of 237
its just so unfair
Posted by melly
Last Reply August 1, 2012 at 16:07
Started August 1, 2012 at 15:56
I had a c-section at 35 weeks that seems to
be the catalyst to the dot...without post op
stockings and clexane injections (had 4
irregularly spaced doses out of ten supposed
doses) I developed week 3 a huge swollen leg
when I got kit of the bath....now I was still
recovering from the surgery....had badly
infected wound ....and was tired nursing my
10th baby....my gp immediately sent me to
hospital where the fo.losing day a dopler
scan (veinalgram failed due to swelling) I
was told my calf....poplateal...general and
illiac where totally blocked with continuous
clot...I started on warfarin.
The following day my baby was rushed to
hospital with breathing difficulties so it
was decided I should be discharged to be with
her....unable to walk I was discharged and
spent some time with her and luckily bad
taken an older daughter as I couldn't walk or
carry my baby....at 7pm I started with chest
pain....at 9it was unbearable so I went to
that hospit... read more

1 replies...

Could be a DVT?
Posted by Muffy
Last Reply August 1, 2012 at 06:49
Started July 31, 2012 at 15:57
Hi Guys. I'm in Cape Cod which is a couple of states away from my
doctor so I'm unable to actually go to him but I woke up with a
minor/faint paint when i bend my left foot upwards in my leg. My job
does have me sitting quite a bit throughout the day, 6 days a week
usually but I'm adamant about moving around & getting up if not just
for 2 minutes to move around. I know that DVT & PE could show up
without any symptoms but I can't go to the emergency based on lack of
symptoms. I feel no pain, no redness, no tenderness but this leg has
been giving me the runaround for about a month now.

Could this be DVT or DVT related? What were your symptoms?
Thank you so much - Muffy

1 replies...

DVT and alcohol
Posted by karen
Last Reply July 31, 2012 at 09:36
Started July 27, 2012 at 08:14
Hi guys ive read up on a few stories here as i am now siffering myself with a calf
DVT due to immobility from a broken ankle :-\ im on warfarin now and at the mo
my INR has been at a max of 3.6 and going down ever so slightly to 3 which is
around where doctors want it 2.5-3ish. ive been told i put myself at high risk of
internal bleeding if i drink more than 2 units of alcohol a day. im nt a big drinker
but i do have a wedding and a joliday to tenerife in the nxt 4 weeks. has anuone
any advice for me as i tested this whole 2units rubbish and had 6 drinks one night
and felt fine and my INR didnt shoot up...help x

4 replies...

angiojet in uk for dvt removal
Posted by joella
Last Reply July 31, 2012 at 03:03
Started July 30, 2012 at 13:14
Hi I have had a dvt since 2007 in my illiac femoral vien and have been on wharfrin 12mg ever since. I wear stockings daily. I am 37 and 120 pounds fit and healthy. I got my DVT during labour. I initially communicated with Patricia Thorpe in Arizona re: running clot busting drugs into the clot etc. she was very helpful unfortunately I didnt manage to get the time to visit her in Arizona (life was manic in London U.K ) and continues to be ...I struggle with my leg...I have 9 & 7 year old boys...I have seen many specialists in London all of which just treat the condition with wharfrin. Does anyone know if the angiojet procedure is available in the U.K or even in New York? is it successful with old clots? I understand that once the valves in your leg are dmamaged they are irrepairable. Can any one help? Kindest Regards
Joella

1 replies...

Part two-denial
Posted by AlisonK
Last Reply July 31, 2012
Started July 31, 2012
Husband is driving me to the ER.

The ENTIRE way there I am saying: "If my leg looks OK by the time we get there, can I go home?"

Arrive at the ER...EVERYONE seems quite impressed. I keep saying that I am fine & I just want to go home. I remember a VERY cute ER doc saying" "ladies with blue legs don't get to go home."

Ok, dopplar lady comes and the INSTANT she puts dopplar to leg, she says "Blood clot."

My response? Fix it, I have a REALLY important meeting in Mexico the next day! The ER staff basically says, not only am I not flying to Mx, I am going to be admitted...I'm going to ICU.

WTF? Is this a joke? I'm going home!!!

YES, this is denial!



0 replies...

blue leg? No need to be seen?
Posted by AlisonK
Last Reply July 31, 2012
Started July 31, 2012
Part one...

I have many tales to tell related to my rather dramatic DVTs.

First off the really crappy "care" I received at the hands of my clinic.

Background, I'm 47 and VERY active. While I do a variety of exercise, running is my love. After a weekend of crazy running times, I developed what I thought was a shin splint. After no exercise for a week, I had no improvement...NONE. Now I'm pretty sure this is a stress fracture. I finally give in and call the clinic. They do an X-ray (bad choice as X-ray often doesn't show stress fracture) My Nurse Practitioner says, no fracture & clears me to run. After a couple of days I'm in so much pain, I call back. She sends me to PT for "strength training." After a week of this, I just can't bear it anymore. I go for a second opinion (with an MRI)and YES,I have a fracture. I get a boot & crutches. I am non-weight-bearing.

Fast-forward 2 weeks. I just get home from work. I take off my boot and prop my leg up. I was sort of ... read more

0 replies...

Frustrated with derth of info
Posted by Bill
Last Reply July 30, 2012 at 01:16
Started July 29, 2012 at 15:15
Developed DVT a couple weeks ago. Left calf sore, discolored. US revealed clot
from hip to ankle. Started lovenox shots and warfarin. Still
On warfarin. Next finger stick is Monday. Supposed to be on warfarin six months.
I'm 52 but pretty healthy. No classic immobilization, surgery, or family history.

I have been very disappointed with the level of good info being offered on the
web and by my doc. She's been my family doc for 20 years, and she's great. But it
seems that there is a lot of outdated and incomplete info out there. I got a brief
talk on the vitamin k thing before I left the ER. Got a pamphlet that listed the
green leafys and a few other things--oils, cheddar cheese, etc. included oatmeal!
My wife makes me chicken salad with yogurt dressing rather than mayo. Loaded
with celery and green onions (scallions). A few minutes later after eating three
sandwiches of the stuff, I see green onions on the no-no list somewhere on the
web! Yesterday, had sinu... read more

1 replies...

Warfarin- side effect
Posted by John
Last Reply July 29, 2012 at 15:21
Started July 29, 2012 at 15:21
I have been on warfarin for about 3 months.. the last couple of days, I have noticed my
skin itchy , eyes, different parts of my body, scalp, etc. Is this a side effect that has
arisen all of a sudden, or is it something else, perhaps a sign of cancer? I would
appreciate your comments.

0 replies...

My 3rd DVT/PE in 12 years
Posted by Bryan
Last Reply July 27, 2012 at 22:37
Started July 27, 2012 at 22:37
Hello everybody, I was just released from the hospital yesterday (7-26-2012 with my third PE, I just want to share mys story and experience. In April of 2001 when I was 35 I developed a clot in my left leg. I really had no idea what was happening. I was short of breath at times but I attributed it to smoking and being 325 lbs. I went to the hospital and they performed a veuns doppler and I also had to inhale this gas for a lung x-ray (dont know the proper medical term). After those test came back it showed a clot in my left leg and two clot pieces in my left lung, one being very close to my heart. I was immediately hospitalized and put on a heparin coumadin "cocktail" after a week I was released. Two months later in June I developed another clot in the same leg and was hospitalized again this time a greenfield filter was installed. I have been taking coumadin from that time to present, getting my INR levels checked sometimes once a week sometimes bi-weekly or once a month depending... read more

0 replies...

fully recovered people...
Posted by Karen
Last Reply July 27, 2012
Started December 18, 2011 at 02:32
hey everyone, I keep asking my doctors, slash hospital if I will have
any lingering affects from this blood clot. Mine is in my left thigh. I
keep hearing I'll completely recover from this, and that most people
do. But I read so many people here who have problems with this for the
rest of their lives....

does having a PE add to that possible lingering? i have no genetic
factors, etc. Will i more than likely recover 100 percent from this or
am I just kidding myself?

12 replies...

Gallbladder removal with clotting disorder
Posted by CB
Last Reply July 26, 2012 at 22:33
Started July 25, 2012 at 16:23
Hi all. I am a 28 y.o. female with an upcoming laparascopic gallbladder removal surgery. I have the prothrombin gene mutation and take daily coumadin. I am being weaned off of coumadin next week for six days and taking Lovenox up until (and after) surgery. My huge concern is regarding the odds of new clots after surgery. I have a year-old hardened clot from my ankle up through my IVC and a history of two PE's (that are now completely gone). My surgeon and hematologist say there are risks of new clots after surgery, but should be limited because of the Lovenox. I am still terrified and considering cancelling the surgery altogether. Have any of you undergone surgery while on Lovenox and still got a new clot or PE? Any advice for me?

2 replies...

Deep Vein Surgery
Posted by Tiago
Last Reply July 26, 2012 at 17:47
Started July 23, 2012 at 23:57
Has anyone seen this site before?
http://my.clevelandclinic.org/services/vascular_surgery/vs_valve_repair_venous_
disease.aspx

If they perform such surgery often they must be reliable for those here that suffer
from PTS-like symptoms but has no indication of actual DVT occurence.

I am from Brazil and any comment is welcome.
Thanks
T

1 replies...

Calf pain back?Muscular?
Posted by Claire Wood
Last Reply July 26, 2012 at 17:46
Started July 24, 2012 at 06:46
Hi guys,

Apologies, I am bombarding this site with questions.

I am just over a month in on the warfarin and pain has returned in my calf?? currently not as bad before it was diagnosed, this only hurts when I walk and bear weight. Before I couldnt put my foot on the floor and the slightest knock was really painful.
Could this be because I am just back at work after several weeks and maybe I have overdone it and pulled the muscle? I cant tell.
The pain went and is just back now I am trying to walk more. I thought there would be no pain in the calf while on warfarin.
Paranoid about all pains I get now. Im getting short dull aches in my thigh, forearm (on top and underneath) lower back, underneath upper arm, just under the left breast, some are short sharp pains. Only started getting these since going on the warafin, just paranoid about everything now :(

4 replies...

Do I have DVT?
Posted by Peter
Last Reply July 26, 2012 at 17:44
Started July 25, 2012 at 21:31
Before I start, just know that I am 5'3-5'5 and I weigh 143 - 150, and
honestly, I do not have too much muscle weight.
Yesterday, I had been sitting down on the computer without getting up
for 1-3 hours, when I had felt some type of pop in my upper leg and
tingling. There was pain, and the tingling, for that whole evening.
Today, I don't feel pain, but I feel tingling, now in both legs. At
one point I thought it felt like blood rushing down, but I'm not sure
about that. Could this be a blood clot? And please, IF YOU CAN, make
the answer bigger than "just go to the doctor or emergency room." I
want a real answer. I also think this is "DVT". My doctor is closed
today and I have already visited the emergency room today. Is there
anything I can do at home? And how long do you think it will take to
travel to my lungs if I do have it? My mother says she will take me to
the doctor's office tomorrow. Please help me out guys. I don't know
what to do and the man in ... read more

7 replies...

refused treatment
Posted by kat woods
Last Reply July 26, 2012 at 05:34
Started February 22, 2010 at 09:00
I survived a near-fatal car wreck in mid-October, 2009. I fell asleep behind wheel, was flung 30 feet from a smll car just before the top of the vehicle was sliced off, hence by a blond hair, evaded decapitation.

yes, i know there is something odd about my survival. i am 52 years old. had a punctured lung, broke every rib and finger, pulverized both wrists and forearms into dust, broke back and neck, smashed three disks in spine. i live in the most remote area of Calif. -- 70 miles from closest milk bottle. It's a nassty one-lane road, takes two hours to get home, not one light on it. Friends in the Panoche Valley heard the smash, came running, kept me from drowning in my blood, and I got chopper life-flighted to San Jose Regional Med.

I got kicked out of that so-called hospital after two months, the inch-thick inpatient report said i had DEEP VEIN THROMBOSIS in right thigh, but i was never treated. The reason they booted me was this, verbatim: "You NON-PAY. YOU NO ... read more

8 replies...

Thrombolysis CDT Surgery and postmortem
Posted by Brian
Last Reply July 24, 2012 at 21:23
Started July 23, 2012 at 23:14
I know a number of you have had the surgery with varying degrees of results. After researching I decided to have the CDT procedure recently. I am a 54 year old male, very active, with no predisposition (idiopathic). Like many of the responders on this forum with DVT, I was completely taken off guard and decided to pursue a more aggressive treatment. When I was first diagnosed, my doctor, an interventional radiologist was more inclined to take a conservative approach and so being ignorant of the options, I decided to try the simple path of anticoagulants and compression stockings which seemed to be the most advised. I also consulted with my general doctor and a vascular doctor who recommended the same. After 9 weeks my improvement was small and frankly, I wanted to get back to running and cycling in a more participatory level, rather than a few miles a day, so I pushed hard to get the surgery.

The IR doctor was able to achieve partial patency in the femoral vein but the p... read more

3 replies...

Return to work with DVT
Posted by Susan
Last Reply July 22, 2012 at 21:10
Started July 22, 2012 at 18:33
Hi everyone

I developed a DVT in my right calf a couple of weeks ago after fracturing my ankle (fibula bone only). It was confirmed with a second doppler scan a few days ago. I have been told that I should not drive or have any physiotherapy for the next couple of weeks. I am wearing TED stockings whilst waiting for the compression ones and am gently mobilising with crutches as my ankle fracture is still painful at times. The orthopaedic surgeon says he is happy for me to return to my work as a community nurse in a couple of weeks time and has discharged me from their care. He also said I didn't have a DVT as my leg was not hot and swollen despite the scan and my continual cramp-like calf pain. I told him that DVTs differ and some are silent. Wouldn't an orthopaedic surgeon know that?!!!!!! Even in the DVT clinic the doctors and nurses all told me conflicting things about BASIC DVT care which makes me lose confidence in them all. Anyways, I am doing okay and no longer have... read more

1 replies...

Re-scanning
Posted by Claire Wood
Last Reply July 22, 2012 at 20:59
Started July 21, 2012 at 18:10
To anyone in the UK, were you re-scanned a few months after your diagnosis to see if your clot had gone?
My DVT clinic told me they have a policy of not re-scanning!! I would want to know if its gone or not to be honest

5 replies...

DVT and the Combined Pill
Posted by Claire Wood
Last Reply July 21, 2012 at 18:08
Started July 21, 2012 at 08:12
Hello, Im 28 and was diagnosed with a DVT in mid June. This was caused by a couple of things. I had knee surgery in May, the immobility caused by this and I am on the combined pill. I have been put on the usual meds, 3 months of warfarin but Im worried about when I come off this.
Would it be better to stop the combined pill altogether? I have been on it for ten years and Im also worried about the side effects when coming off it. But I suppose anything has to be better than getting another DVT.
Any info would be greatly appreciated.

5 replies...

Venowave and insurance
Posted by Teresa
Last Reply July 20, 2012 at 05:40
Started July 20, 2012 at 05:40
I have left leg DVT and PTS. Anyone had any luck with getting their insurance company to pay for the Venowave? If so, how did you do it? My insurance company couldn't answer if they would pay for it because they did not know the billing/ICD-9 codes that my doctor would assign. This is the list of codes I got from the Venowave people.any of them "better" than others?
451.2 Treatment of thrombophlebitis leg
453.40 Venous embolism and thrombosis of unspecified deep vessel of lower extremity
459.10 Postphlebitic syndrome, treatment of posthrombotic syndrome (termed postphlebitic syndrome by ICD-9)
459.81 Venous (peripheral) insufficiency, unspecified chronic venous insufficiency


0 replies...

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