DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 88 of 237
What is this sharp pain???
Posted by Sharon
Last Reply July 18, 2012 at 20:36
Started July 5, 2008 at 05:32
Hey those of you who have had PE, I had really strange pain yesterday and almost went to the hospital, but it finally went away. It feels like it is in my back at or just above my kidney--very, very sharp stabbing pains. Seems too low to worry about PE. Kind of like a pluracy pain when it is stabbing and I can't breath or talk, but it isn't started by my breathing or talking. In between the sharp pains, it just kind of grumbles back there. Very strange. The worst part lasted maybe 15-20 minutes off and on, thankfully so I could get a breath. But the lower level pain maybe 30-45 minutes, but I was so grateful that the other was gone, I didn't care about that.

Later in the day, off and on, I did have a sharp pain here and there in the front under my right lower ribs. This is similar to what they called an acute gallbladder attack years ago at the end of my first pregnancy w/ my son--tho not nearly as prolonged or intense. I had the same kind of pains then at 23 y/o and had to call... read more

13 replies...

how long does it take for swelling to go down
Posted by carmel brigid
Last Reply July 18, 2012 at 19:11
Started July 18, 2012 at 18:29
hi can anyone tell me how long it takes for swelling to go down. i had a dvt 2 weeks ago, although my leg is not as hard it feels like there is fluid in it, when i press on the skin it feels squashy and takes a while for the impressin to go. is this normal when swelling is going down.

1 replies...

short haul flight & clots
Posted by L
Last Reply July 18, 2012 at 09:49
Started July 18, 2012 at 09:11
My husband has clots in his left calf, knee,
groin area and lower abdomen (below his
navel). These have been in existence since
2008. We are due to fly tomorrow, short haul
(2.5 hours) and I wondered due to cabin
pressure changes etc, if there was any risk of
the clots breaking up, especially the one in his
abdomen? He is on 9mg warfarin daily & has a
consistent inr of around 2.5. We flew for 5
hours in 2009 but at that point he didn't have
the clot in his abdomen. Help!?

1 replies...

Permanent DVT/Pradaxa/Weather=more pain?
Posted by Jan
Last Reply July 17, 2012 at 18:17
Started May 29, 2012 at 20:48
Hi All, I have just discovered this forum and think it is a great source of information. I had a large DVT in my groin which extended up to my naval last July even when on Warfarin. I had an IVC filter fitted. I have had scans since and the clot is still there, just as big and has now hardened so is now permanent. I am wondering if anyone else has a permanent DVT and that continual 'pulling a ball and chain' feeling? Also...is anyone else pushing to be put onto Pradaxa instead of warfarin? That way regular INR checks wouldn't be needed. Lastly, is anyone experiencing more pain in the warm weather? My leg is killing at the moment and as the clot is so high it effects my stomach and back too. I get pain in my left side and also stomach cramping. Is anyone else experiencing anything similar? It would be great to hear from someone in a similar situation. Thanks, Jan

2 replies...

Elevated D-Dimer
Posted by Tami
Last Reply July 17, 2012 at 16:13
Started July 17, 2012 at 05:34
I have had left calf pain on and off for over a year and now my left
foot tingles when I walk on it. I went to the ER a couple of days ago.
They did an ultrasound from groin to below the knee that came back
negative for a dvt. I also had a VQ scan that was negative but my d-
dimer came back elevated. The Doctor said there is no evidence of a
blood clot and just keep an eye on it. Should I still be worried? Can
you have an elevated d-dimer test and not have anything wrong?

1 replies...

Should he stop warfarin?
Posted by Billybags
Last Reply July 16, 2012 at 13:17
Started July 10, 2012 at 14:04
My husband had another heart attack 16 months ago, his heart is badly damaged and was prescribed Clopidogral and small aspirin, he was doing fine until 5 weeks ago. He was told to stop taking the clopidogral, you are only supposed to take it for a year.2 weeks later he ended up in A&E with supposed small heart attack and has been put on warfarin. The last 2 weeks on warfarin he has had blinding headaches,tiredness, his speech can be a little slow, itchiness and he feels thoroughly shattered. I understand drugs take a while to get into your body but when we tell the nurse she says it is not the warfarin it must be another drug he is taking. I don't believe this.He is thinking of stopping this and taking his chances.and going back to aspirin.What makes me smile is the doctors do not put this down to stopping clopidogral.

3 replies...

dvt
Posted by thakkar
Last Reply July 15, 2012 at 16:38
Started August 12, 2011 at 10:27
Hi..
I have spinal cord injury from last 5 years, so i am on wheelchair and
from last one year,I am having of deep venous thrombosis (DVT) and
having tablets warfarin 10 mg every night but there is still colt in
my left leg , i wanted to know for how many months still i have to
continue with this tablet and second thing is my INR ratio is not in
range some times it goes up till 5.96 and sometimes it goes down till
1.01.

Can any one suggest how to maintain my INR ratios?



1 replies...

pain and swelling
Posted by sue
Last Reply July 15, 2012 at 08:46
Started July 15, 2012 at 08:46
I broke tibula &
fibbula 3 months
ago then
developed dvt
and pe, could not
operate because
of clots so bones
just healed
although not
totally in line
which i was
warned
about.just had
pot off and are
intotal agony
start physio next
week,cannot get
a shoe on even
very a loose sock
digs into me and
causes pain i am
worried ill stay
like this i am
limping really
badly im hoping
this will imprve
after physio,i
have had no
follow up about
clots 6 month on
warfarin and
thats it, but im
worried incase
the pain and
swelling will
go,anyone had
similar?


0 replies...

Natural Blood Thinners after Warfarin
Posted by Evanna
Last Reply July 13, 2012 at 15:14
Started July 10, 2012 at 10:48
Hi everyone, I had a DVT in my right leg (calf and lower thigh) 4 months ago and have
been on warfarin since. Today I had another ultrasound and my doc told me the clot
had dissolved completely and I could go off the warfarin.

Good news, however I'm a bit worried that I might get another DVT once my blood
thickens again. They didn't find any genetic blood thinning issues and blame the DVT
on the birth control pill that, of course, I'm not taking anymore. Still, I'm
apprehensive...

Does anyone know of or have experience with any natural blood thinners? I think
having a natural replacement would give me some peace of mind after going off the
warfarin.

Thanks a lot for your help!

6 replies...

inr fluctuation
Posted by jarrad
Last Reply July 13, 2012 at 09:53
Started July 13, 2012 at 09:53
Hi all

I am 23 years old and suffered a fractured knee cap went to the doctor to book an operation,the operation was booked for a months time and three days later had a DVT in my calf.Im on warfarin for three months now and have never been thereuputic.. i would just like to know is it possible my INR was low before my knee cap and is it bad to be so young and have these kind of issues with my blood,i have never taken any drugs!

0 replies...

inr fluctuation
Posted by jarrad
Last Reply July 13, 2012 at 09:52
Started July 13, 2012 at 09:52
Hi all

I am 23 years old and suffered a fractured knee cap went to the doctor to book an operation,the operation was booked for a months time and three days later had a DVT in my calf.Im on warfarin for three months now and have never been thereuputic.. i would just like to know is it possible my INR was low before my knee cap and is it bad to be so young and have these kind of issues with my blood,i have never taken any drugs!

0 replies...

Bloodshot eyes and flushed face
Posted by Judy
Last Reply July 13, 2012 at 07:36
Started April 29, 2012 at 20:44
Hi
On Friday night I had over half of one of my eye balls was completely red. It was only the white bit, not the iris. I wasn't doing anything unusual or eating differently. It didn't hurt and only knew about it when a friend told me. Googled it and apparently normal and nothing to worry about. Its fading already. Then this morning, I woke up and my face is really flushed, a bit like roseacha. Again, I haven't been doing anything out of the ordinary to have caused this.
Could it be a warfarin side effect? Or a problem with bleeding? My last IRN was 2.6 a couple of weeks ago. Anyone had anything similar?
Judy

4 replies...

Intervention surgery on old clot
Posted by John in Dallas
Last Reply July 12, 2012 at 06:21
Started April 23, 2008 at 23:20
Has anyone had intervention surgery on an older clot like myself? My clot was two and a half months old at the time of my procedure. I like reading the discussions about recovery times and think that intervention surgery would be the way to go, but it doesn’t seem like anyone else is having it done on an older clot. I feel like I am all by myself and would like to compare notes with someone else.

I just want to get information out to everyone that interventions are being performed on older clots despite traditional treatment methods with anticoagulants. There are individuals doing other than this “gold standard” of treatment with an older dvt. Complete recanalization or opening of the vein rarely occurs with the body absorbing the clot such as the one I had in my upper leg.

My surgeon made it real clear that without the surgery I could have a myriad of problems down the road that might be avoided if I had the surgery. However, there were no real guarantees with such a... read more

12 replies...

Gunther Tulip & Pain?
Posted by Jeff
Last Reply July 12, 2012
Started January 31, 2010 at 15:01
Greetings,
and thank you for this forum. I was diagnosed with DVT-PE Dec 21 and received a gunther tulip on Dec 22 in my groin area. The pain from the blood clots has slowly gone away but I got severe pain in my back/hip directly behind the filter. Has anyone experienced any pain with the filter? I also have shooting pain through my groin and down the front of my thigh. I couldn't even walk for a week, went to the dr - he checked for bleeding and said there wasn't any. Still tremendous pain so I went to a Chiropracter, he seemed to help me some howerever wasn't happy about working on me. The pain remains but not as stabbing and I can get around. I feel funny in my groin area and back/hip. Any info from someone with a filter would be greatly appreciated. We have searched the net to no avail and found no helpful information.

3 replies...

What's your ongoing experience of NHS in UK
Posted by Alan Butterworth
Last Reply July 11, 2012 at 14:39
Started May 26, 2011 at 10:39
I live in Bury in North Manchester. Very briefly, a DVT in 2007 has left me needing to wear a stocking on my right leg. I was treated at the local hospital (Fairfield Hospital) and received my stockings through the Orthotics Dept. In 2008, I ordered replacement stockings in 2008 through the same department, paying the said prescription charges. I didn't go back to the NHS until 2010 (still very pissed off with them for the treatment I've received). Anyway in Sept 2010 I went to my GP after increasing pain through PTS. I was then after months seen at Manchester Royal Infirmary (about 15 miles away from my home) and eventually started seeing the vascular nurse there who arranged getting full length and knee length stockings. It's not really suitable because of the distance, but I was told that the Orthotics Dept. at Fairfield would not be supplying the stockings in the future. Apparently GP's are going to be supplying stockings in the future, or so I was told?
Like everything in the ... read more

7 replies...

Options for removing blood clots
Posted by Chris
Last Reply July 11, 2012 at 12:10
Started July 7, 2012 at 16:44
The best outcomes occur when you get the clot removed within two to
the most three weeks from onset. The specialist you need is an
Interventional Radiologist. You can find listings of them in the US on
this web site:

http://chronicdvt.com/find-a-doctor/

There are also some doctors who will work on old clots. There are some
early studies showing up to 90% or so of people with chronic clot are
getting some, to almost complete relief. For me however, I was
unlucky. I had the surgery and now my femoral vein is fully clotted.
worse than before. However I have less pain and can walk more as other
veins were cleared out. So it was still a slight positive.

4 replies...

vena cava filter
Posted by Ali
Last Reply July 11, 2012 at 12:05
Started July 11, 2012 at 10:35
Hi!
My sister in law was diagnosed with a massive dvt on sunday. They are now talking about instering an umberella filter but to her good leg. Why might this be? Her clot runs from her stomach to her left foot!

1 replies...

numb fingers
Posted by watto
Last Reply July 10, 2012 at 21:55
Started July 10, 2012 at 17:30
hi iv been on warfarin for 9weeks ,for the last week o so i cant feel my 3 fingers on my left hand is this normal ? my clots r also in my left leg , should i b worried ? appreciate any replies thanx x

3 replies...

dvt
Posted by paula
Last Reply July 10, 2012 at 18:45
Started July 9, 2012 at 16:56
hi my names paula im 40 yrs old ,i had a dvt 7yrs ago due 2 a fractured ankle but have been fine since ,i recently had a laproscopy and told the nurse id had a clot in the past ,she told me 2 tell the anaethesist ,which i did ,n sed they wud probz inject me wiv fragmin ,she never injected me and now i have 2 clots and cannott walk at all cos my leg is so swollen and the pain is unberable ,should i complain ?

4 replies...

Pregnancy
Posted by Emily
Last Reply July 9, 2012 at 22:46
Started January 3, 2011
Hey,
Has anyone had a DVT and PE's and then later had a baby? After having my now five month old son I always thought I would have more than one child. After having my son, my husband and I were already talking about having another one after a year. We really enjoy being parents. Anyone have a baby after DVT?

16 replies...

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