DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Does pts worsen over time?
Posted by jade
Last Reply June 30, 2012 at 03:49
Started April 27, 2012 at 22:51
I got an extensive dvt 2 years ago folliwing childbirth and have never recovered.
My leg is still bigger than the other and swells when walking, i cant walk up hills it
is painful, i get cramps, its itchy, heavy and have started developing varicose
veins now. My doctor didnt seem to care and discharhed me basically saying put up
with it just be glad ur alive (which i am)! I am wondering if pts eorsens over time
or is this as bad as it gets? Im only 27 years old a and im worrued that by time im
fifty ill have trouble walking anywhere. Is there nothing that can be done?? On
another note when i have been walking for a while and my leg gets really swollen
i feel very dizzy is thanyobe ever experienced this??

3 replies...

Warfarin has stopped - pain has started...
Posted by Christel
Last Reply June 29, 2012 at 13:41
Started June 29, 2012 at 13:27
I have now been off warfarin for just over a week and today I am experiencing pain in my calf and behind my knee where i had the DVT. I am just a bit anxious and wondered if this is fairly normal after stopping warfarin or if I should follow this up with my doc? Thanks

1 replies...

Low Blood pressure while on medicines
Posted by Hyfia
Last Reply June 29, 2012 at 11:51
Started June 29, 2012 at 11:51
A month ago I had a PE. It was the third time I was diagnosed with thrombosis/PE. In the US people are put on Warfarin, in the EU (where I live - in the Netherlands ) we use Acenocoumarol. It's about the same. Now I started to use the new drug Rivaroxaban. I have none of the side effects that are known for this medicine. But I recently found that my blood pressure has dropped quite a bit. It's now daily around 110/70 (used to be around 130/90). That's not a problem, except when I have eaten. After 30-60 minutes the pressure drops to 90/58 and my heart beats very strong. I found one other person in this forum on Pradaxa who had the same problems. See "anyone heard of the new drug pradaxa??" the answer of Lynn January 6, 2011. Is there any one else who experiences the same problem with their blood pressure?

0 replies...

Compression Hose-How they make leg feel...?
Posted by KJen
Last Reply June 28, 2012 at 09:45
Started June 14, 2012 at 16:40
I didn't know about wearing compression hose to lessen the chance of post thrombotic syndrome until after I got off a year of Warfarin. I had been diagnosed with a small clot in my lower inner calf in June of 2011. I was curious about some aches I had in my legs, a heavy sensation and what felt like swelling around the knees.

The feelings would go away after I elevated my legs and when I got up in the mornings. They were inconsistent, happening every few days and being more or less noticeable at times. I started looking for reasons as to why, after my doctor told me I probably had arthritis in my knee, but that didn't explain the rest of the feelings.

I've worn the compression hose when I flew last year, but this is the first I've tried wearing it daily. What have other people felt when wearing them? I can feel the most pressure at my lower calf and at the top of my knees. I was measured to get the right fit so don't know if that's normal or if I pulled/stretched th... read more

9 replies...

Dizzy, feeling of faint, unbalanced,(HELP)
Posted by Tara 2012
Last Reply June 27, 2012 at 15:57
Started June 27, 2012 at 15:57

HELLO EVERYONE,

IT’S BEEN A WHILE SINCE I LAST VISITED, AT ANY RATE; RECENTLY I’VE EXPERIENCED DIZZY SPELLS ALONG WITH UNBLANCED AND FEELINGS OF FAINT, AND SOMETIMES NAUSEA.NOT TO MENTION THE OTHER SIDE EFFECTS WHICH I'VE LEARNED TO DEAL WITH, (FORGETFULNESS, UNABLE TO SLEEP AT NIGHT, MOODY, TROUBLE CONSENTRATING, ETC). I HAVE BEEN ON WARFRIN SINCE MARCH OF THIS YEAR. ASIDE FROM THAT I TESTED POSITIVE 3 TIMES (ANA).WHATEVER THAT MEANS.
I WAS ADMITTED TO HOSPITAL AS AN OBSERVATION PATIENT. THE ONLY THING THE ATTENDING PHYSICIAN DISCOVERED MY CALCIUM AND POTASSIUM LEVELS WERE LOW. I WAS GIVEN POSTASSIUM INTRAVENOUSLY AND TOLD TO EAT A BANNANA EVERYDAY.
A VENOUS DOPPLER WAS DONE ON BOTH LEGS WAS TOLD THERE WERE NO SIGNS OF DVT,THAT THE CLOT HAD DISSOLVED.ALTHOUGH,I HAPPY THE CLOTS ARE GONE BUT THERE IS STILL SOME SKEPTICISM, ITS LIKE YOU GET RID OF ONE THING AND ATTRACT ANOTHER. I TRY MY BEST TO REMAIN POSITIVE AND UPBEAT, RECENTLY, RETURNED BACK TO WORK AND WORKING OUT. I MUST... read more

0 replies...

Treatment of Chronic DVT
Posted by David
Last Reply June 27, 2012 at 12:41
Started September 30, 2008 at 03:42
Our 16 Year old daughter was struck by a 4WD while crossing a pedestrian crossing 8 months ago. After 14 days in ICU and a further 8 weeks in hospital she is slowly rebulding her life. Unfortunately she developed a DVT in the Iliac vein that extends from just above her knee to just below the renal vein. Fortunately they had put a IVC filter just below the renal vein whilst she was in ICU, which prevented the clot from getting to the heart and lungs.
She now injects herself with Clexane daily and wears thigh length pressure stocking during the day. Given that she is looking at living with the consequences for the next 70-80 years we are looking for solutions that will give her the best quality of life. Without any further treatment the prognosis is leave the filter in and be in warfarin for the rest of her life. It will also limit air travel and present problems with child birth. We are hoping for something better. We are looking for ways of removing the clot and have seen there are... read more

32 replies...

How long does it take to stabalize the clot?
Posted by Christina
Last Reply June 27, 2012 at 07:06
Started September 2, 2008 at 01:56
Does anybody know for certain how long after you get a clot it stabalizes? In other words, how long before it is less likely to break off?

I was diagnosed with arm clot last week from my August 20th surgery. Currently taking aspirin as he said "coumadin" would be over kill in my situation. I return this coming Friday for another ultrasound and for another consultation with same vascular surgeon. They first said it was in superficial vein and then just last week the vascular doctor said it looked more like deep vein but hadn't moved.

This is just scary for us new folks. Going in for surgery is horrible enough but coming out with a clot is mind bending!!!

I do know after reading all the Posts on this forum that arm clot is not as common as leg clot and that my situation is totally not as complicated or scary as others out there; however it doesn't make it any easier.

Thanks,
Christina

5 replies...

INR too low?
Posted by Ashley
Last Reply June 26, 2012 at 17:21
Started July 8, 2009 at 19:09
I have had a DTV for 2 1/2 months now. My INR has never been over 2, it has stayed at 1.99 and my last check was at 1.49 and they said that was fine. My leg still hurts so I would assume the clot is not gone. In the beginning I was told I needed to stay between a 2-2.5. Does this sound strange to anyone?


5 replies...

Itchy and dry scalp on warfarin
Posted by Karen
Last Reply June 26, 2012 at 11:33
Started March 18, 2012 at 22:56
I've been on warfarin now for 4 months, and I have noticed that I can
pick little dry patches off of my scalp and it gets really itchy
sometimes as well - is this a side effect that anyone else has felt?
thanks

1 replies...

Varicose veins DVT threat and C-section
Posted by Arshi
Last Reply June 26, 2012 at 08:23
Started June 26, 2012 at 08:23
During my second pregnancy 10 years back, I had varicose veins in my vulva area which ruptured at the time of vaginal delivery. But the doctors managed stopping the excessive blood flow, now I am pregnant with my 3rd child and I have bad varicose veins in my left leg and vulva area. I am presently taking innohep injections to avoid DVT and also scheduled for a c-section at 38 weeks to avoid rupturing of my veins.
I am very nervous as I heard C-section is not a good option for DVT, but my doctor insists on one as she is concern about rupturing of my veins at the time of vaginal delivery.
Has any one under the same situation as I am? Please help…


0 replies...

big ankle
Posted by katie
Last Reply June 26, 2012 at 06:46
Started June 26, 2012 at 06:46
ok so my coumadin level looked high and so the dose was dropped.. long story short the "high" level was most likely a fluke and then my level dropped under 1 in 2 days.. during that week - really a couple days by ankle looked like i had slouch socks on super super big ankle and foot, i had to cram my foot into my shoe.
OK so my level went back up after a couple dose changes and now my swelling is back to normal. I officailly come off of the coumadin in 1month and start one aspirin a day instead. now I am thinking crap am i doomed to have a huge swollen ankle/foot for ever? !!!
I had an u/s done and it appears that nothing is going away :(

0 replies...

Lasix/HCTZ
Posted by latrejm
Last Reply June 25, 2012
Started October 8, 2011 at 02:50
I was recently diagnosed with another clot. I have extreme swelling in my right leg (were the clot is located), my doctor put me on Lasix and HCTZ today to help with the swelling. I was wondering if anyone else is taking anything for swelling and/or how can you reduce the swelling. I just got my compression stockings today also, so I have had it on all day, hoping that the swelling will start to go down.

4 replies...

Raynaud's Syndrome with DVT
Posted by Dana
Last Reply June 24, 2012 at 19:58
Started March 31, 2011 at 18:09
Hello again-

I wanted to ask if any of you experienced Raynaud's syndrome in addition to DVT. I began to exhibit some of the symptoms of it just prior to my DVT diagnosis. Now that I'm on coumadin, it has all but disappeared. I can't help but think there's a connection.

Anyone experienced those two together?

thanks,

Dana

2 replies...

Venowave
Posted by Donald Edge
Last Reply June 23, 2012 at 16:40
Started June 22, 2012 at 14:58
After reading this site I had decided to give the Venowave a try. I
was very skeptical at first. The first 2 weeks I had almost given up,
I did not see any improvements. But I called the company Saringer and
they recommended I put it on before the swelling got really bad, first
thing in the morning. My life changed the next morning. I have been
wearing the Venowave for 12 hours a day since, with not any swelling,
soreness, itchiness at all. My Post Thrombotic Syndrome is completely
under control, after 5 years since my DVT, I have for the first time
been able to go hiking with my wife. I will be returning to my job in
2 weeks since I have been of on disability for 3 years. The Venowave
changed my life and just as other people here are sharing their
stories I wanted to share mine. Anyone is welcome to email me or call
me at anytime for any information!

4 replies...

CLEAN YOUR BODY WITH SHIITAKE AND CORDICEPS
Posted by Aleksandra Bogatyriova
Last Reply June 21, 2012 at 22:12
Started June 21, 2012 at 22:12
A Shiitake mushroom ( Lentinula edodes) refers to an edible fungus
that usually grows in forests. It is the second most cultivated and
harvested edible mushroom across the globe. Sometimes, the extract of
this mushroom or the entire dried mushroom are used for herbal
remedies. When used for studies in animals, it possessed cholesterol-
lowering, virus-inhibiting, and antitumor properties. For this reason,
it is reasonable to conclude that shiitake mushrooms are a great
addition to a balanced diet.
Health benefits of Shiitake mushrooms
Since shiitake mushrooms originated from China, it has become a common
ingredient in Chinese cuisine. They are extremely popular in Asian
countries, but are also used for different dishes around the world. A
shiitake mushroom can effectively lower cholesterol levels in the body
due to its powerful compounds known as eritadenine. Another scientific
study in Japan also showed the regular consumption of this mushroom
allows the ... read more

0 replies...

HIRUDOTHERAPY WILL TREAT YOUR BLOOD FROM CLOTS
Posted by Aleksandra Bogatyriova
Last Reply June 21, 2012 at 21:54
Started June 21, 2012 at 21:54
Thrombophlebitis is caused by blood clots attacking a regular blood
flow through the veins. There is hardly a better approach to this type
of condition than the application of leech therapy. If leeches are
applied in the early stages when only a reddening of the veins
(phlebitis) is detected, then it is possible to prevent the
development of blood clots.

Thrombosis – formation of a blood clot in a blood vessel – is a major
cause of death and disability from heart attack (myocardial
infarction), stroke, peripheral ischemia (narrowing of the arteries
leading to lack of blood and oxygen getting to tissues), and pulmonary
embolism (blockage of an artery in the lung). Standard heparin has
been used successfully for the prevention and treatment of thrombotic
disorders. However, its use has several limitations, including a
variable anticoagulant effect, an inability to inhibit clot-bound
thrombin, and the potential to cause thrombocytopenia. Direct thrombin
i... read more

0 replies...

Atrophie Blanche
Posted by Graham
Last Reply June 21, 2012 at 21:22
Started June 21, 2012 at 20:18
I was wondering if anyone else has gotten this due to a DVT. I know have a quarter size
spot of it on my ankle related to my DVT and I really want to treat it. I am going to start
exercising every day and cutting out all sugar and wheat from my diet. Please if you
have this let me know how you treat it.

1 replies...

Atrophie Blanche
Posted by Graham
Last Reply June 21, 2012 at 20:19
Started June 21, 2012 at 20:19
I was wondering if anyone else has gotten this due to a DVT. I know have a quarter size
spot of it on my ankle related to my DVT and I really want to treat it. I am going to start
exercising every day and cutting out all sugar and wheat from my diet. Please if you
have this let me know how you treat it.

0 replies...

Numbness in left leg
Posted by Jeff Bellamy
Last Reply June 20, 2012 at 14:24
Started August 7, 2009 at 13:24
For a few years now I've been getting a cold numbness in my left leg above the knee. This would occur after I had been standing for some time. It wasn't painful, and walking would get rid of it. However, recently it's become more frequent, and the top of my leg always seems to be cold.
Any ideas?
I'm 60, taking lisonopril for slightly overweight.


3 replies...

Training for 1/2 Marathon after 18" Blood Clot
Posted by Kristie H.
Last Reply June 19, 2012 at 23:35
Started June 17, 2012 at 13:53
I discovered I had Factor V leiden in Aug 2010. I was training for a 1/2
Marathon. Little fact about me I have never run a race a day in my life and I
originally started training for this race December 31 2008, I am 5'3" and on
the day I started my training I weighed 197lbs. Training was a way to lose
weight in the beginning. And I didn't know what I was doing so I trained to
hard because I went from a couch potato to running 13miles in 3 months.
Well, guess what happen to my stupid butt. Yep, I got a stress fracture so
that took me out of the Sept. race for that year. So I started my recovery and
then training for the following Sept. which I got back up to running 10miles.
Then BAM, I got the 18" blood clot in my left leg, a small clot in my right leg
and they found evidence where there had been a clot in my brain, and they
discovered I had an AVM. The reason I bored you with my story was to let
you see all that I have been through to get to this rac... read more

2 replies...

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