DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.


One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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number of topics started (4726) - Page 91 of 237
Rivaroxaban
Posted by Teresa
Last Reply June 19, 2012 at 21:30
Started June 5, 2012 at 13:22
my doctot would like to put me on rivaroxaban now, i'm on warfrin for life and the cretia has change for this drug and they are now using it for dvt,is there anyone else that is using it, would like some opions on it, little concerned that it hasn't been on the market long, kinda of worried about the long term effects.
thanks Teresa

1 replies...

What does "Lupus like anticoagulant" mean?
Posted by Sarah
Last Reply June 19, 2012 at 17:12
Started July 10, 2008 at 19:28
In my discharge summary it states that I have Extensive DVT on S/P thrombolytics S/P IVC filter and stent placemnets......
"There is a Lupus like anticoagulant present"

What does that mean? That I have Lupus also? I see a hematologist on Aug 5th. But until then this will drive me crazy. If anyone could comment that would be great. Thanks.

I am 27 and was hospitalized with a blood clot in my leg leg that started at my ankle and went to my kidney. They told me there was something in my blood that causes it to clot and I will be on Warfarin for the rest of my life. I still have the IVC filter stuck inside me. They could not take it out. It embedded itself in my tissue or something. They did mention Cancer to my husband at one time early on, but I never heard nothing about that or about Lupus.

13 replies...

Coumadin - 9 month mark
Posted by Bob
Last Reply June 19, 2012 at 15:28
Started June 14, 2012 at 11:04
I've been on Coumadin 5mg/day for nine months as of June 9th. Lately I've been feeling different, left arm/hand tingling more than before, both arms actually feeling like they fall asleep at times. I've also felt dizziness and some level of weakness.

I didn't feel this way in the beginning with exception to feeling a slight tingling sensation in my left hand.

Is this expected for being on this stuff over 6 months?

3 replies...

Rosacea
Posted by Rob, UK
Last Reply June 19, 2012 at 06:42
Started February 7, 2012 at 11:24
Hi to you all.
I've been on warfarin now for 2 years and, unfortunately, this will be life-long. My INR is stable at 2.4/2.6 and I take 6 mg per day. However, ever since I've been on anticoagulants I have had rosacea on my face- never had it previously, so could this possibly have been brought on by the warfarin? My GP gives me the odd course of antibiotics and this does help, although she is unable to confirm any link to the warfarin and is starting to refer to it as 'stress induced'. I'm not convinced, but there seems so much about the side-effects that we just do not really know.
Has anyone else had this problem? If so, any advise/guidance would be much appreciated.
Take care,
Rob

5 replies...

MAKE DRS TEST EVERYTHING
Posted by KC
Last Reply June 18, 2012 at 16:17
Started June 12, 2012
Apr 23, my husband was diagnosed with his first DVT in his right leg. Put on
lovenox and Coumadin and levels were always high. On may 29, he was
diagnosed with his second DVT but in his left leg this time. We were being seen at
the VA and they did NO testing to find out why. They scheduled to have a filter
put in but not for a week after that. A couple days later we were in the emergency
room and he was diagnosed with severe PE in both lungs. The regular hospital
finally did testing on him only to find out that his liver levels were elevated and he
has Colon cancer that has metasticised to his liver. We meet with the oncologist
tomorrow to find out what stage the cancer is and options. Do not just sit around,
make the drs do every test possible in order to get all answers so you don't have
the same problems as we did.

I type this as I just had to calm him down from the pain and am listening to our
home air/oxygen system that he has to be on 24/7. O, and i f... read more

2 replies...

Worried about developing PTS
Posted by Sandra Baileys
Last Reply June 18, 2012 at 14:46
Started June 8, 2012 at 20:12
I had a DVT several years ago and my doctor has been warning me about
the risks and dangers of developing PTS as apparently 40% of those
with DVT's will go on to develop PTS. Recently I have become worried
because I feel like I have peculiar symptoms. I get this throbbing
pain my left leg (where I had my DVT) and I have mild swelling on the
same leg going down the medial side of my thigh. I have been on birth
control for the past 10 years and obviously I am no longer on it
anymore. Iím looking for some advice as recently I have been coming
straight home from work (I work as a teller in a bank where I do a lot
of standing) because of how bad the pain has gotten. I am wondering if
it sounds like I have PTS and what I can do?


1 replies...

DVT Calf Hurts Again
Posted by Rob
Last Reply June 18, 2012 at 04:24
Started June 18, 2012 at 04:24
Hi and thanks for reading. I have DVT in my right calf. Like others it felt like bad
muscle pain and was hospitalized for a couple of days four weeks ago. The pain
was totally gone when I left the hospital. I felt it again yesterday and now it
hurts just about as much as it did four weeks ago in the same area. On warfarin
and INR last Tuesday was 3.3. Could there be a complication or just part of the
process because the clot hasn't dissolved yet (doctor said it could take six
months). This is all new and concerning, feel like I am worrying too much about
this. Thanks in advance for any responses.

0 replies...

Surgery with dvt
Posted by Anna
Last Reply June 15, 2012 at 03:32
Started June 15, 2012 at 03:32
Has anyone had surgery with dvt? I tore my acl and developed Dvt and now am
worried the wont repair it till dvt has gone

0 replies...

DVT Pain
Posted by Anne
Last Reply June 14, 2012 at 19:55
Started June 14, 2012 at 19:55
Hello, I had a large DVT at the top of my leg (possably in my stomach too)last october. I am getting alot of pain in Both legs and i am worring my left ankle and leg has swelling in it all the time lately? Is that normal. I have been told I will be on Warfran for a long time because of the size of my DVT pluss they don't no what caused it? I am 43 and my legs are so painfull i stuggle to walk on them. Can someone help me..

0 replies...

how long is sitting too long?
Posted by claire
Last Reply June 14, 2012 at 16:24
Started June 14, 2012 at 03:55
Hello, about 3-4 days out of the week I walk a lengthy amount, other
times Iam sitting due to other things im doing. When sitting I
stretch, wiggle my toes & so on. I will get up & do about 100 jumping
jacks sometimes if I feel I've been sitting too long.

I was wondering, how long is sitting too long to avoid getting a DVT
or somelike like it.

Thanks alot
Claire

1 replies...

Ultrasound tomorrow
Posted by Dave
Last Reply June 14, 2012 at 02:55
Started June 13, 2012 at 04:14
Doctor suspect DVT after two long flights in 10 days. I have traveled the world
since the 80s so this is a bit frustrating.
Ultrasound in the morning. Left leg swollen below the knee and sensation of
being wet despite being dry. Trip was work related.
Dr put me on 12hr injections until he get the result of the ultrasound.... Then
perhaps 3months of blood thinners?
Any advice or suggestions as I get into this processes?

(This might be a double posting)

2 replies...

My Girlfriend
Posted by Max Michell
Last Reply June 14, 2012 at 02:45
Started June 14, 2012 at 02:45
Hi im Max, im 16 and my girlfriend never told me that she had DVT up
until her brother told me, Im not very good at medical things and I dont
even know how serious it is, I was just hoping someone could fill me in
on blanks and things, like what I can do to comfort her and such.

Thanks Guys/Gals
Maxxy.

0 replies...

Gout/Callus
Posted by Joe
Last Reply June 13, 2012 at 23:55
Started June 13, 2012 at 23:55
I have a large Callus on the bottom of my foot caused by Gout, that had
been cut down to a smaller size last year, and is growing back, is there
anything I can do to slow the regrowth?

0 replies...

Icaps and Warfarin
Posted by Eddie
Last Reply June 13, 2012 at 23:06
Started June 13, 2012 at 23:06
any one use ICaps eye Vitamin while taking medication such as warfarin?


0 replies...

Lovenox blood testing
Posted by Laurie
Last Reply June 12, 2012 at 13:43
Started August 28, 2008 at 23:29
I am fairly new to all this... and have been reading this site for a few weeks.. and I have learned so much from all of you. and I just wanted to say thanks! I do have a question to ask and hope someone will be able to give me advise. My PA.. says I don't need to worry about having my blood tested. I was on warfarin but after 4 months my blood clott hadn't changed much and I had developed two more, so I was taken off warfarin and put on lovenox 2 shots per day. How often should my blood be tested? It has been 20 days..How do I know its not too high or low.. ? I know I can't do INR test, but I would think there must be some kind of time line for blood tests... Please help! thanks again.. Laurie..

17 replies...

Clexane post DVT and PE
Posted by CJ
Last Reply June 12, 2012 at 10:48
Started June 12, 2012 at 10:48
Hi everyone, Advice needed!! I was diagnosed with a DVT in feb this year followed by a PE i was put on warfarin and i have now been changed to clexane in the last 2 weeks i was dosed for my clexane wrong and have subsiquently ended up with another DVT. I was admitted to hospital a few days ago with severe pain in my kidney areas which was radiating into my chest wondered if anyone else has had any kidney symptoms as im now waiting to see a surgeon which is quite scary as not sure what is happening, Any help advice would be appreciated!!

0 replies...

Worried about dosage
Posted by Paul
Last Reply June 12, 2012
Started June 12, 2012
Hi , I developed a dvt after breaking my ankle . I had 17 days of innohep
injections and warfarin tablets until my inr went above 2 . I have been taking 13
mg of wafarin for 6 days now and my inr is dropping again. I have avoided all
the foods , drinks with vitamin K . I have to go for another inr test in 3 days and
am worried if it has fallen below 2 they will just increase my dosage again
instead of trying to find out if there is any other problem as to why the warfarin
dosnt seem to sustain my inr level for more than a few days . If anyone else has
had this problem I would be grateful for any feedback
thanks Paul

0 replies...

dvt and elevated liver?
Posted by Lynn
Last Reply June 11, 2012 at 21:24
Started September 1, 2010 at 04:35
Hi I was diagnosed with a dvt behind my left knee a week ago. For some reason the pain is far worse now then it was then. My blood work came back with elevated liver values.. anyone else have that? I was wondering if it was caused by the medication.

11 replies...

Previous DVT in right leg, another in my left?
Posted by DVT25
Last Reply June 10, 2012 at 19:58
Started February 18, 2008 at 12:13
I am a 25 year old male. I was diagnosed with a DVT in my right let at the age of 19 since then it has went away but left damage in the deep vein causing some minor circulation problems but nothing like it was before. I can now walk freely without pain for long periods of time.

Recently I have a problem in my left leg. About 2 months ago i went into emergency with a very painful lump on the left side of my groin. At first the doctors thought it was a hernia, but later changed their minds and said it was a stone problem and after testing found that it was niether. The lump stayed but the pain went away so i left it alone. A couple days ago i went back into emergency with pain from the same lump but now is efecting my whole left leg. The symptoms are the same as my DVT 6 years before minus the swelling and discoloring. I cannot walk more then 100 feet without having to rest. I feel pain from my inner quad and groin. After resting for a couple minutes I can walk for another 1... read more

18 replies...

Feeling frustrated...
Posted by Juliet P.
Last Reply June 10, 2012 at 04:17
Started June 10, 2012 at 04:17
Had DVT and pulmonary emboli diagnosis on May 8th. Also had a DVT/PE diagnosis 16 years ago, which also stopped my heart. Don't have risk factors. Have seen hematologist who ordered genetic testing, as I am adopted and don't know any medical history of my family. Hematologist told me I am Coumadin for the rest of my life due to this second series of blood clots, as can happen again at any time.

On top of this, I have Crohn's colitis and everything I eat for this interferes with my Coumadin levels. My INR was up to 7.4 on Thursday. Nurse told me to eat a big bowl of baby spinach to drop it even though my primary care provider wasn't overly concerned. Well I did what nurse told me to do and today INR down to 1.6, now have to increase Coumadin back up to 10 mg.

I also have stage two chronic kidney disease and Coumadinn has been giving be terrible pain in my kidney the last couple of days. Now on pain killers to relieve that. I am only 43 and would like this roller coas... read more

0 replies...

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