DVT deep vein thrombosis forum

Welcome to the DVT deep vein thrombosis open discussion forum. Please feel free to start a new topic or reply to any existing topics. No need to register to use this forum. Just feel free to share your experiences of DVT.

One new option for people who have been diagnosed with a blood clot is Thrombolysis which uses medicines and devices to remove the blood clot. While not risk free, and not offered universally, the following doctors and institutions do offer this. If you think you may be interested, it is important to act quickly. Blood clots harden within the first several weeks, making it much more difficult to remove the clot. This procedure has risks and you should discuss with your doctors the tradeoffs for your particular situation.
Doctors and Hospitals offering Thrombolysis - Link to Doctors and Hospitals

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Compression stocking
Posted by HW
Last Reply May 12, 2012 at 12:24
Started May 10, 2012 at 11:09
Hi, i got a dvt from ankle to groin and it was allowed to get there
because swedish healthcare (like 15 doctors) had no clue when presentedb with the symptoms.

Finally i got diagnosed but got no help besides Warfarin,
wrong sized compression stocking and blood tests.

They did never bother to measure my leg which led to me getting
size large instead of the appropriate medium size.

Finally i got the right one but decided that i did not want to go back
there for several reasons and my doctor refused to give out my med records which led me to not getting any treatment besides the basics.

I have worn the same socks for over a year and need another pair.
Through studying i have come to the conclusion that 30-40 mmHg medium sized knee-length stockings seems to be the right fit.

I prob need to use them on both legs since the amount of spiderveins on my entire body seems to have exploded and i feel dizzy sometimes.
(very poor circulation)

PTS for me includes swollen ... read more

4 replies...

DVT - Now What?
Posted by Paula
Last Reply May 12, 2012 at 05:50
Started August 5, 2009 at 11:31
I posted last week about being diagnosed with a dvt (knee to mid thigh) in my right leg after knee arthroscopy.

I have had lots of conflicting information from the health "professionals" and now just don't know what to do for the best.

I saw a physio yesterday who explained that I should refrain from all types of exercise until my warfarin treatment stops in 6 months time. Luckily because I worked quite hard on my knee after surgery before I was diagnosed with the dvt, my knee is quite strong and nearly as good as my left leg.

My left calf is about 1" larger than my left but I have been wearing the delightful compression stockings which have helped but my leg still swells even after just walking for 20 minutes plus. I am now experiencing niggles in my left upper thigh.

I have been driving and going to work since week 3 post op (when I realised something was wrong - but the physio just gave me some calf stretching exercises and massaged my calf). Obviously that didn'... read more

21 replies...

Late and on Warfarin
Posted by Nikki
Last Reply May 11, 2012 at 18:42
Started May 11, 2012 at 13:45
I'm in need of some advice from the women of the forum. First a little history, June of last year I was diagnosed with DVT (after 3 months of pain, swelling, and misdiagnoses). The doctors believed that it was caused by the Yaz that I was on. They didn't want to do any follow up, just take warfarin for 3 months. This was not acceptable to me. After transferring to another group of doctors, I was diagnosed with Factor V Leiden and possibly May-Thurner Syndrome. Because I am so young (24), my doctors decided it would be best to place a stent for the MTS.

Okay, I had the procedure for the stent on April 13 (during which they decided MTS was not bad enough at this point). *Sorry if this is TMI but I really need some sound advice.* For the following 3 days I had very light spotting, I wasn't actually due to get my period until 2 weeks after the procedure. Well the 2 weeks rolled around and nothing. I am now 3 weeks late and have taken 2 home preg. test, both of which cam... read more

1 replies...

New clot in old clot
Posted by Diane
Last Reply May 11, 2012 at 16:31
Started March 21, 2012 at 16:08

I have just been discharged from hospital, admitted with increased pain etc (different from usual post dvt pain), from chronic DVT from 2010. Scans show old DVT which has not extended with a new clot, but the sonographer won't rule out an acute on chronic clot. Does anyone have experience of new clot in old? Starting to think I can't trust my judgement anymore and afraid of an attention seeking reputation, as no new clot found. INR in target.

I know most of you will understand where I'm coming from, and that I'm feeling a bit emotionally fragile, and dispite getting the all clear, the need to hear from the people in the know.

Thanks x

12 replies...

Flying with DVT & Diet
Posted by Vanessa Treagus
Last Reply May 11, 2012 at 09:32
Started May 11, 2012 at 09:32
I had surgery to remove a lump on my ankle on 14th April, 3 days later
went to Dr as my leg was icy cold, and found out I'd got DVT in lower
left calf. I've been on Tinzaparin every day since and Warfarin,
starting on 5mg now on 10mg as my INR had not been improving as it
should. It is now 1.6, and due for another test today. I am aware of
certain foods to avoid and finding it difficult to eat healthy, I have
had a weight problem in the past and don't want to pile the weight on,
so would like any tips please.
I have had a holiday booked for months and due to fly to Egypt which
is about a 5 hour flight on 31st May. Will I be allowed to fly with
DVT if so does my INR have to be a certain level. WE had already
booked extra leg room before knowing I'd got DVT so will be able to
move about more. I'm worried sick, I really want to go and can't seem
to get an answer from my Dr at moment. Anyone else had same
experience? If so did you go away or did you have... read more

0 replies...

DVT Study - Now Enrolling
Posted by Suresh Vedantham, MD
Last Reply May 10, 2012
Started April 30, 2012 at 16:02
Hello. My name is Dr. Suresh Vedantham. I am a board-certified physician and I specialize in the care of people who have DVT (blood clots). I am a Professor of Radiology & Surgery in the Interventional Radiology Section at the Mallinckrodt Institute of Radiology at the Washington University School of Medicine in St. Louis, MO. It is a pleasure to contribute to this forum. If you would like to round out your knowledge about DVT with additional information from national physician experts, then I encourage you to visit www.attract.wustl.edu where you will find useful DVT information including a description of conventional and newer treatment options. You will also find information about the ATTRACT Study that I am leading to compare the best traditional way of treating DVT with a newer approach that includes a clot removal treatment. This study is sponsored by the U.S. National Institutes of Health (NIH) and is open for patient enrollment in over 40 hospitals nationwide. The trea... read more

5 replies...

My gf got a dvt so I made her INRtracker.com
Posted by Pavan
Last Reply May 9, 2012 at 21:05
Started April 14, 2012 at 09:14
My girl friend got a DVT and PE in Feb 2011. It was devastating, she
was put on coumadin and was told to get a consistent amount of vitamin
k each week, which was ridiculous - because it's nearly impossible to
do that with vitamin k not being on food labels and all.

So I worked hard and made www.INRtracker.com - it lets you log your
INR, log your exercise, drug dosages, see the vitamin k in the foods
you eat and most importantly see your weekly total of vitamin k.

I'd love your feedback on it.

18 replies...

Tiffany Jewelry
Posted by wholesale10
Last Reply May 9, 2012 at 09:06
Started May 9, 2012 at 09:06
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http://www.tiffanyandcoweb.com Tiffany jewellery
http://www.mbtstores4you.com MBT Shoes
http://www.nikeairmaxtt.com nike air max

0 replies...

Stable Inr levels
Posted by Kerri
Last Reply May 8, 2012 at 08:16
Started October 14, 2010 at 07:52
Hi all, just wondering how long it has taken you to get a stable inr? Mine just
doesn't want to be stable :(

7 replies...

They have to be missing something?
Posted by Marcia
Last Reply May 7, 2012 at 18:19
Started May 2, 2012 at 03:49
Almost a month ago I noticed minor swelling in my leg, called my
doctor and he had me come in the next day, he said besides the slight
swelling, it didn't strike him as a blood clot so he sent me to the
lab to get a d dimer. This came back negative so he said to just ice
it and go from there.
A week later, swelling a little better, but I started getting pain.
Cramps on top of shin, groin pain, cramping behind knees, and a very
small warm spot that comes and goes on my lower calf. I called doctor
again, he immediately set me up for a doppler. Our hospital has
several offices in it, and it's not just one spot for ultrasounds like
most places (in imaging) but they have them in several places where
needed (Maternity, etc...) he sent me to the Cardio/pulmunary unit,
and whereas they aren't vascular surgeons, they do deal with a lot of
DVTs so I trust she knew what she was looking for. She did a full leg
scan and nothing was found.
2 weeks later, pain is still ... read more

2 replies...

symptoms of DVT?
Posted by Ellen
Last Reply May 7, 2012 at 18:18
Started May 6, 2012 at 20:37
Could I have a DVT if I have pain that varies and/or moves around and sometimes goes away? It's mostly in my calf but yesterday + this AM suddenly seemed to encompass my knee. It's usually worse when getting up. Right now it's barely noticeable.
I have plantars wart on my foot. Could that be sending nerve pain?

3 replies...

should I expect post-DVT complications?
Posted by Jen
Last Reply May 7, 2012 at 01:08
Started May 6, 2012
I'm 28 yrs old and got diagnosed with a DVT in my left thigh (just
above the knee) a month ago. The DVT was attributed to the use of
Yasmin OC pill and I had experienced pain for 12 days (after getting
the all clear from my GP). The pain had improved fairly quickly and
my warfarin therapy seems to be going well with no side effects. My
Uncle (Dad's side) had a PE and was on warfarin permanently and my
Granddad (Mum's side) had a DVT after breaking his leg. My Uncle and
Granddad were left with reddened legs due to post-DVT complications
and so I'm left wondering about the possibility of this happening to
me. I have not been given any advice about avoidance of complications,
apart from "don't run any marathons!". I'd obviously like to do the
best for my leg but my internet research indicates that there is no
clear way to prevent complications, which seem to affect 30-50% of DVT
sufferers. A nurse told me my leg should feel back to normal within 6
months. I... read more

2 replies...

Musicians Dead from Heart Attack. Why?
Posted by John
Last Reply May 7, 2012
Started May 7, 2012
Over the years some of my favorite musicians have died from heart attacks and I was just wondering today if perhaps these attacks were brought on by DVT. Grover Washington Jr., a great jazz/pop saxophonist. Joe Schermie, original bass player for the highly successful band Three Dog Night and Robert Palmer (Simply Irresistible, Addicted to Love etc.). These three men died relatively young from heart attacks. One of the biggest causes of DVT is being immobile due to traveling. Ian Anderson of Jethro Tull is a DVT sufferer as well.

Just wondering............

0 replies...

Quickly Approaching Magic "6 Month Mark"
Posted by Sam
Last Reply May 7, 2012
Started May 1, 2012 at 21:07
I have been reading and posting on this forum since shortly after diagnosis last Fall. It has been a vast source of knowledge. I am quickly approaching the 6 month mark when the doctors will make a decision about further coumadin treatment.Scary time.
Clot was/is knee to groin (multiple PEs) and hadn't dissolved at all at 2 month mark (haven't been checked since). Getting around fine, wearing compression hose, INR very stable. Still swelling (above the knee is swollen more becuase I just can't find thigh high hose that don't bunch and hurt behind my knee)
So... my question is: has anyone come off the coumadin when they still had large residual clot? (mine was still completely occluded from knee to groin last time checked). If so, how did it go?
Or.. did your doctor recommend longer coumadin therapy because of the residual clot?
I'd like to hear other's experinces coming off the stuff, before dealing with the docs. Unfortunately, the varying specialists rarely agree and I an... read more

5 replies...

Multipl small pe, no sign of dvt
Posted by Pete
Last Reply May 6, 2012 at 09:00
Started May 6, 2012 at 09:00
I am a 42 year old, 6ft 3,100 mile a week male cyclist. Went to Lanzarote in Dec
2011, had diarrhoea before getting on plane and had drunk half bottle of
champagne, then slept in a cramped position for 3 hours.
5 days later I had pain in my rib cage, felt like I had pulled a muscle. Lived with it
for 3 days, went to docs,he thought muscle pull or wind! Day after visiting doc, I
coughed up a small amount of blood. Went to see another doc, he did a blood
test and told me I had a clot, rushed into emergency, given a shot of herapin and
a ct scan showed multiple pe in both lungs.
I am know on warfarin for 6 months.
I had no sign of a dvt, the hospital say that I may have had a silent dvt in my
pelvis or a partial dvt that threw bits of clot into my lungs.
The doctor that diagnosed the embolism doesn't seem to think that the flight has
caused the pe, so I'm having lots of other tests so am obviously still worried.

0 replies...

Please help question dvt in arm
Posted by oscar
Last Reply May 4, 2012 at 22:04
Started May 4, 2012 at 22:04
im currently taking warfarin for a dvt in my left arm,just got my pt/inr in good range this week(2.2)
was wondering if the clot could somehow affect my lymph nodes in my armpits on the same side,no lumps but a tad bit of swelling on the top inside of my arm near pit,and constant discomfort there and my armpit last 3 or 4 days.any advise or thoughts?

0 replies...

Please help question dvt in arm
Posted by oscar
Last Reply May 4, 2012 at 22:03
Started May 4, 2012 at 22:03
im currently taking warfarin for a dvt in my left arm,just got my pt/inr in good range this week(2.2)
was wondering if the clot could somehow affect my lymph nodes in my armpits,no lumps but a tad bit of swelling on the top inside of my arm near pit,and constant discomfort there and my armpit last 3 or 4 days.any advise or thoughts?

0 replies...

Warfarin alternatives?
Posted by Rob, UK
Last Reply May 4, 2012 at 21:24
Started January 15, 2011 at 10:14
I have been advised to stay om warfarin until I retire (it's a job thing!), so I have been looking at possible alternatives to warfarin. Like many on this site, I am struggling with the side-effects of warfarin, especially the 'vagueness', headaches, hair loss and short-term memory loss.So I was wondering if anyone on here has any info/experience of either rivaroxaban and dabigatran? My local vascular surgeon has been quoted in the national press as stating that these are the next generation of oral anticoagulants.

8 replies...

DVT vein removal
Posted by Sarah
Last Reply May 4, 2012 at 21:16
Started May 4, 2012 at 21:16
Has anyone had a DVT that just stayed clotted and decided to have the
vein removed??
Just wondering because I am 2 years out of an extensive DVT and there
are no veins growing to replace the clotted one. Would removing the vein
altogether help other veins to grow?

0 replies...

socks in the summer!!!
Posted by cookalina
Last Reply May 3, 2012 at 22:33
Started April 30, 2012 at 13:52
Hi ,why do manufacturers make compression socks thick and in black or furniture brown only!!!.My legs are big enough without emphasising the fact. It is only April and already I am feeling the heat and have to say feeling pretty miserable at the thought of wearing them with summer dresses and open toed sandals or does one have to look like Nora Batty s Grandma!!!!!At present I wear open toe ones but am wondering that if I wear closed toe so that I cant see my pretty painted toenails I may feel a little better.!!!or not.......
It has got to the point where I hate getting up in the morning as THEY are waiting for me,how sad is that.Anyway you all take care and thanks for listening,I must be having a bad day.

2 replies...

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